Category Archives: Lewisham BME Mental Health Carers Forum

Lewisham BAME MH Carer Forum November 2019

Carers Nov2019Hello again!! Here is the Lewisham BAME Mental Health Carer forum update for November. This is usually the last forum I run out of all the 4 forums per month. The forum is quite unique as the other forums promote mental health carer inclusion and awareness in the other London Boroughs, but this one focuses on Black Asian Minority Ethnic queries. BAME carers and service users suffer a whole different set of issues in regards to mental health services. Most are complex, cultural and historic, but there MUST be some platform for important parties to discuss, network and work on these issues.

Another thing different between this forum and the 3 others is sometimes this forum is a mix of patients and unpaid carers. I often try and leave space for the Service user Rep or chair to update the forum.

Who Attended and spoke

For the November update we had a discussion from Pharmacist Della Bishara in regards to medication and its affects on the patient and how unpaid carers could and should be involved.

We also had a detailed presentation from Rachel Ellis who is from Table Talk, which is a new initiative that aims to help inform senior residents throughout the borough, with the help of volunteers. Table Talk provides leaflets, information and a table in order to engage with the older population.

IMG_20191129_112016

We were also joined by a number of unpaid carers and patients, along with a representative from Lewisham Homes, plus Metro’s Representative who provide one-to-one counselling for people who identify as LGBTQ and/or those experiencing issues relating to diversity, equality and identity. We were also joined by Lewisham CCG Engagement Teresa and also Natasha from Greenwich Carers who I approached to set up some carer groups. We were also joined by the rep from Community wellbeing from BLG-Mind who I will also bet setting up a peer support group.

On Medication

We had a very lengthy discussion on medication with Della. Many questions from the attendees she took away to raise at SLaM especially in regards to clinical trials and reporting on side affects. Carers need to be involved because of the patient might not always be able to advocate for their need, especially if dementia takes hold. I raised with Della if there were studies looking at medication effects on BAME groups and if there is a SLaM trust wide forum that engages pharmacist issues.

IMG_20191129_105421

It was mentioned that Lewisham Integrated Medicines Optimisation Service (LIMOS) is working in improving medication safety for older people. Basically LIMOS is integrated across the hospital, local care homes and community settings, which means that, if a care home resident is admitted to hospital, or vice versa, there is a seamless approach to managing medication.

As with the psychiatrists bible being the DSM, the pharmacists have an important book, that being the British National Formulary (BNF), the book is not easy to get hold of and is the UKs pharmaceutical reference book that contains a wide spectrum of information and advice on prescribing and pharmacology, along with specific facts and details about many medicines available.

IMG_20191129_105959

Della discussed the BNF in detail and how it can help pharmacists, which the forum played close attention to. The forum also discussed the issue of miscommunication of medication between hospitals, covert medication and the issue of control & release medication.

Table Talk presentation

After the discussion with the pharmacist, we moved on to another topic regading older ages people. This was the Table Talk project, which was presented by Rachel Ellis. Rachel has been an outstanding promoter of senior citizen’s causes throughout the borough of Lewisham and has visited a large number different venus in Lewisham this year alone. As mentioned before Table Talk engage with the public on raising awareness of activities, information and support for senior citizens. This is specially important due to the population is ageing as we all are living longer.

IMG_20191129_112959

Table Talk work closely with Lewisham council and with Age UK. The Lewisham BAME MH carer forum were shown several leaflets, which can help older people in regards to meter readings, warm homes, fire alarm checks and transport. We discussed how isolated older people can be in the community as Rachel described more information and leaflets.

This slideshow requires JavaScript.

Carer led Support Groups

Lastly for the Lewisham BAME MH Carers forum. I discussed the importance of carer-led peer support groups. I will be setting up several carer support groups in a few boroughs. Usually the forums are strategic and engagement focused and there is not enough time to hear carer stories. In fact carer support groups are meant to feed into the carer forums for empowerment purposes, but there were only a few carer support groups in the borough and none carer-led, which means there is not much motivation for carers to connect with each other.

I will be setting a BAME and a general MH carer peer support group with the help of Greenwich carers for that borough and I was so glad Greenwich carers engagement and community officer (Natasha) came along and support me at the Lewisham BAME forum.

download (2)

This will be the same for Lewisham as we will work closely with the CCGs. The forum talked about how they felt about the Bromley, Lewisham and Greenwich Mind peer support group event that was held on wednesday the 27th over at York Hall in Beckhenham. We are very glad that they are able to fund that startups of the groups, however I pressed that we do not really need the funding, it will be the passion, drive and connection that can help, not to say funding will not be helpful.

Large-BLG-logo

With Lewisham CCG engagement, the forum has been aware of NHS England’s long term plan and we have made it clear they need to involve patients and carers in that plan. The good news is that the NHS England’s long term plan is beginning to take shape and involve us, but no matter what I do, I want to connect with carers and make them aware that the health system is trying hard to involve them. I am not sure about the social care element, but at least with NHS England, there looks to be some very good and exciting projects coming our way.

BAME Carer experiences Research

As promised I promoted a trainee psychologist’s study into African Caribbean experiences of supporting an individual with MH needs in a forensic setting. She contacted me after reading my blogs to see other researchers were engaging with forums about their own research. The researcher feels there is not enough literature or research papers detailing such experiences and Lewisham CCG will follow this up with the trainee Psychologist studying at the University of East London.

poster

As usual I thank Kelvin (one of the proactive members) for setting up the talk with the pharmacist.  I also thanks Community wellbeing and BLG Mind for hosting the Lewisham BAME forum and thank Greenwich Carers for the support they have given me and look forward to exciting projects ahead.  I would lastly like to thank Lewisham CCG engagement officer (Teressa) and the other CCGs for engaging with the Carer forums and I am very impressed with the plans they are looking to involve us in.

This concludes the update for November and I will be preparing for the groups with the support of Oxleas and Greenwich carers.

Lewisham BAME MH Carer Forum August 2019

me_edited-1Welcome to another update from an unpaid carer who is involved in their local mental health trust and communities. I often try and engage with communities as much as possible, be it through running carer strategy groups, giving my views and engaging with events.

For the August Lewisham BAME Mental Health Carers forum, we focused on Patient Participation Groups and also updates from the South London and Maudsley Inpatient Social worker over at Lewisham hospital.

The Lewisham Black Asian Minority Ethnic Carers group is one of the 4 groups that not only focuses on carers, but makes a distinction on their background, culture and ethnicity.

BAME groups are more likely to experience stigma and distress due to cultural interpretations and systems set up or designed that does not take into account BAME communities. Lewisham is certainly one of the most diverse London boroughs around so it really helps that communities get together to discuss and educate each other on issues regarding health.

Lewisham Ward Map

The Lewisham BAME carers forums also accommodates those using services, but there still needs to be a drive to engage with more BAME carers who are very uncertain of their role and perhaps lack peer support and identity.

The carers forum runs from Lewisham, Bromley and Greenwich Mind under the Community Wellbeing umbrella.

LCW-logo-colour

Lewisham Community Wellbeing is delivered in partnership with several other local charities and public sector organisations. We have been very lucky to get the support of Mind who probably have a lot on as it is and there will be some very exciting community projects coming up soon.

Large-BLG-logo

We have around 45 to 50 doctor’s practices in Lewisham and I was fortunate enough to have the chair of one of the largest doctors practice in Lewisham. Alexandra Camies does an immense amount of work engaging with patients for the doctors practice she helps with. The doctors surgery is also a member of the National Association Of Patient Participation or N.A.P.P. I have always said to carers and patients that doctors are usually the gatekeeper to services, if you feel your doctors practice could do more for you or the community, perhaps look into how their Patient Participation group works.

So what is a PPG anyway? What do they do?

  • PPGs offer patients an opportunity to be involved with and support their local General Practice. For the South Lewisham Health Centre. Here are some of the following things that PPG involves.
  • Patients wishing to join must, in order to comply with General Data Protection Regulation (GDPR), complete an application form.
  • They currently have a committee of 8 patients, including aChair and Secretary.Committee members are provided with written details of their roles, responsibilities and key relationships.
  • They have the assistance of the surgery Patient Liaison Officer, who attends each meeting and provides us with any help needed at the surgery.
  • They have a GP representative (usually a partner), and the Patient Services Manager that attends the meeting.
  • All members are invited to general meeting, held quarterly, and asked if they have any agenda items to put forward for discussion.
  • Members that are unable to attend are able to have a virtual input via email. Virtual members are sent copies of the minutes, which are also placed on the practice web site for all to view.
  • Committee members take on a little more responsibility at the South Lewisham PPG, taking a part in organising events or projects, or helping with various admin tasks. Committee meetings take place as and when needed.
  • Members may be being asked to help out for such things as events.

Take note not all doctor’s surgeries are alike. Some do not have the resources to have a PPG, but it does not stop patients from helping set one up. I explained to the forum that your doctors surgery is only as good as the community that cares for it and uses it.

How can a success for Patient participation group operate?

  • The PPG should try monitor progress against objectives
  • Publicise their successes
  • Involve people and not that would mean patients, especially those whose voice is not often heard.
  • Learn from other groups, usually other PPGs hence the PPG Network.
  • Build on and work with their network of health and wellbeing groups and organisations.
  • Expand activity where possible
  • Make sure to review our objectives regularly

There are only a very small part of what a PPG doctors surgery should work towards. Alex gave the group an excellent presentation and we both learnt and picked up ideas from each other. I reminded the group that they could start their own projects and inquire about their local doctors patient participation group.

IMG_20190830_111301

If you want more information about South Lewisham GP Practice, check out their website below.

http://www.southlewishamgrouppractice.co.uk/

Next up was Errol Chambers who is the social work for the Lewisham Hospital Ladywell unit. It was great that SLaM engages with the BAME forum, because I have always stressed the the forum represents empowerment when we form as a group. If SLaM staff recognise this, then they can support us, although we try hard not to be antagonistic. Errol gave us a choice on what information the group would want be it on benefits or on how the Ladywell unit is operating currently. The group wanted updates on the ladywell unit and we discussed changes and progress regarding patients experience of the mental health unit.

Lewisham CCG was mentioned quite a lot as they invest in the services and are keen to see if the hospital is working to the best of its abilities. Many members pressed for a relationship with the units, but also felt that staff development must be key as a good quality service. This is mainly down to how staff engage with patients and their carers.

IMG_20190830_113441.jpg

At the end of the forum, I updated on the planning meeting for Lewisham CCG’s stakeholder event and also for Lewisham’s Carers conference requested by my MP Janet Daby who is a carer herself. I also pointed out that the Lewisham HR lead will be at the BAME forum for September. I have asked we are updated on the following.

BME staff engagement – What else is happening to engage with BAME community.

Plus small updates on the following.

  • SLaM’s Health and well-being strategy
  • SLaM’s Talent management programme
  • The South London Partnership collaboration (South west london & St georges, South London & Maudsley and Oxleas NHS Trust)

Plus an update on whats been done for staff to tackle.

  • Equal opportunity for career progression
  • Violence
  • Bullying & harassment
  • Discrimination
  • Stress
  • Flexible working

I guess as a carer, I do not ask for much. Still, I mentioned to the group…knowledge is power.

That is the August update for the Lewisham BAME MH carers forum.

Lewisham BME MH Carer/SU Forum July Update 2019

965946_fa217b70Welcome to the July 2019 update of the Lewisham BAME Mental Health carer forum. The forum is one of the 4 carer strategy forums I run in the community and has a focus on BAME carers and sometimes Service user issues. As a reminder, the London borough of Lewisham is a diverse community, with many health and wellbeing challanges, but also some successes.

Although it is good we have carer support groups, there must be a physical platform where families and unpaid carers can come together for empowerment purposes. Carers should have a right to have a say about Health and well-being services. For the July Lewisham BAME Carers mental health forum, I had to run it earlier in the month due to a meeting I have at the end of the month.

IMG_20190712_110237.jpg

Usually the forum would be packed, but a lot of members had sent apologies and this is one of the reasons I have blogged about the forum as a way to report back to members who can then feed into their networks.

Continue reading

Lewisham BME MH Carer/SU Forum September Update 2018

965946_fa217b70Here is the September update from the Lewisham BME carer/SU forum. This is one of the only carer forum, which Focuses on carers from the Black Minority Ethic Community, mainly Afro Carribean, but not strictly.

For this update we were fortunate to have the Lewisham HR lead for mental health staff attend and brief the forum. As a forum we did not know how much the HR lead has to do, which is quite a lot!! The fun runs from the Family Health Isis centre over in Lee.

Continue reading

Lewisham BME MH Carer/SU Forum August Update 2018

Welcome to the latest update of the Lewisham BME MH carer/SU forum for august. This is the first time that the forum took place in the evening, so to allow other carer members Who cannot always attends during friday morning.

Picture1

For the August forum, we hoped to have the Mental Health Act officer attend and give a presentation regarding the Mental Health Act and how south London and Maudsley were going to adapt to the latest changes to the mental Health Act. Unfortunately he could not make it, so we decided to discuss south London and Maudsley carer strategy.

Continue reading

Lewisham BME MH Carer/SU Forum June Update 2018

965946_fa217b70

Hello everyone, welcome to the latest update for the Lewisham BME mental health carers forum. This forum took place on the 29th of June over at Family Health Isis. This particular forum has been running since last summer 2017.

There has been changes at the South London and Maudsley NHS Foundation trusts structure where they are moving towards borough based services. The members of the forum were interested in how the changes would reflect on services. So the main aim of the forum that particular Friday was to try and discuss who the members would like to have engaged with on future forums.

The members of the forum were hoping that the mental health police lead for Lewisham would attend, however that has been moved to month of October. The members are interested to hear about the Mental Health Act and centralised place of safety, but emotions are strong regarding the recent death of Kevin Clark, who also was a member of Family Health Isis.

FamilyHealthIsis

Members was interested from hearing about how carer leads over at the Ladywell unit were engaging with families and carers. Members of the forum were wondering if there would be a carers lead in the borough. Others were interested too see if a medical director for Lewisham would engage with the forum.

One member is very active with Lewisham Mind and wants them to engage with the forum. There was a discussion on how Lewisham Mind works with the BME community. There was also a discussion regarding NHS staff morale within Lewisham so the forum would like to hear from HR this is because of the worry of bank staff not knowing what is going on.

Management from Family Health Isis would also like senior managers from lewisham CCG to engage with the forum, although they were happy that lewisham CCG is working hard with service users there should be some engagement for BME Family and carers.

The forum is pleased to hear that a carers support group will eventually take form over at the Ladywell unit in the coming months. This concludes the update from the Lewisham BME mental health carers forum.

Lewisham BME MH Carer/SU Forum May Update

Welcome back to a quick update on one of the mental health carer forums I chair. This particular forum involves unpaid BME carers and those using or have used the mental health system. This is the only forum which involves ethnicity at it’s core.

965946_fa217b70

Lewisham is a very diverse borough and there is a high rate of mental health representation amongst the afro/carribean population. The forum has been running since last year and we have made a lot of progress, especially through engagement.

The forum runs once a month, usually on a Friday. The main topic for the May BME forum was on the SLaM quality report on the “Quality Priority setting for 2018/19”. All 4 of the Mental Health forums had a chance to give feedback on the mental health services South London & Maudsley provides regarding quality improvement. Despite feedback having to be rushed, I am grateful that the board has given the forums opportunity to provide feedback.

IMG_20180525_105613

The report is an 8 page breakdown of where feedback is given in regards to improving quality of services at the trust. The BME MH forum meeting held on the 25th of May focused on page 7 of the report. I allowed each member of the forum to speak about how they felt was raised in the report.
– Quite a few had opinions about how medication could be improved and wondered how the forum would be updated on progress.

– It was mentioned that some people would not have time to read the report and it should have pictures, but I felt at least we can have a discussion about the report so members can hear other’s views who had read the report.

– A lot of the members felt it was very important that the board take the suggestion of including familes in services, especially on the ward. One member felt comforted that family visited them on the ward, because they had a difficult time with staff.

– Another member wanted more information booklets, since I had handed them the new carers handbook, the confidentiality handbook and they queried why they had not seen those before.

– Some members want engagement regarding what compliants and compliments are made across the trust

– Lastly a discussion was raised on the problem of training staff to be empathic, especially staff from BME backgrounds who still lack empathy towards BME service users. This requires more discussion.

The forum members look forward to the Police along with the Central Place of Safety attending the June forum, especially since there was concern due to the recent death in Catford.

One important note is the members wish to have a mental health act officer engage with them to understand not only the mental health act, but also how the trust will adopt any new changes to Mental Health Law.