Still We Rise: A Black Carer’s Perspective on Black History Month

By Matthew McKenzie BEM, FRSA

On Monday 26 October 2026, I attended a Black History Month event at Springfield Hospital, where I was also invited to give a presentation about the experiences of Black unpaid carers.

Black History Month at Springfield Hospital, 26 October 2026.

The event was made possible through the combined efforts of Sound Minds, South West London and St George’s Mental Health NHS Trust, the Community Empowerment Network and the Hope Project. Together, they brought people with lived experience, community organisations, mental health professionals, artists and carers into the same space to celebrate Black history and culture. Their contributions showed the value of partnership in creating welcoming spaces where people can share their stories, connect through creativity and support one another’s wellbeing.

The event brought together people with lived experience, mental health professionals, community organisations, artists, poets and supporters. Throughout the day, we heard stories of resilience, creativity and community. We also had opportunities to reflect on what it means to be seen, heard and supported.

For me, the event was a reminder that Black History Month is not only about looking back. It is also about recognising the people whose experiences continue to shape our communities today, including the unpaid carers who are often missing from conversations about mental health.

A space for community and connection

The day began with a creative activity called “My Shield of Strength.” We were invited to think about what brings us joy, what resilience means to us and what helps us through difficult times.

People spoke about family, community, freedom and helping others. Listening to those reflections made me think about how important it is for carers to have spaces where they can consider their own needs and strengths.

When you are supporting someone else, it can be easy to become so focused on their wellbeing that you forget to ask what sustains you. A carer might find strength in faith, friendship, creativity, family or simply having time to rest. Those things matter.

The event also highlighted the work of community organisations supporting mental health and wellbeing. We heard about welcoming spaces where people can take part in activities, connect with others and access practical support. Such spaces can help people build trust and find a sense of belonging, particularly when formal services may feel difficult to approach.

Sound Minds shared how creativity, music, art and peer support can help people connect with one another. As someone who uses poetry in my own carer engagement work, I appreciated seeing creativity given such a prominent place in the programme.

Recognising Black unpaid carers

My presentation was called “Still We Rise: Recognising Black Unpaid Carers.” It drew on my experience of caring for my mother, who lived with schizophrenia, and my continuing role supporting my two autistic brothers.

I wanted to speak about the caring that people do not always see: the phone calls after a difficult appointment, the worry that follows you home, the questions you carry into meetings and the knowledge built up over years of supporting someone.

Families and carers can know a great deal about the people they support. They may recognise when something has changed, understand what helps a loved one feel safe or know how best to communicate with them. Yet carers can still struggle to have their concerns heard.

For Black carers, those difficulties can be compounded by racism, stereotyping and assumptions about family life. One assumption is that Black families will always cope because they have strong family or community networks. Those networks can be a source of strength, but their existence should never be used as a reason to overlook a carer’s need for support.

Every family is different. Every carer deserves the opportunity to explain their own situation.

What does it mean for a carer to rise?

Maya Angelou’s Still I Rise provided inspiration for the event and for my own contribution. Her poem speaks powerfully to dignity, resistance and the determination to rise in the face of oppression.

I found myself asking what rising might mean for a carer who has struggled to be heard by health and social care services.

Perhaps it means finding the confidence to ask a question again when the first attempt was dismissed. Perhaps it means finding a community of other carers who understand. It might mean being recognised as a person with needs of your own, as well as someone who provides support.

But I also think we need to be careful about how we speak about resilience. Black carers should not have to carry an ever-growing burden simply because they have shown they can be strong. Recognition should lead to practical support, genuine involvement and a willingness to challenge unfair treatment.

Room for our voices

During my presentation, I shared my poem “Room for Our Voices.” It begins with a carer bringing a notebook to a meeting, filled with names, dates and questions gathered through difficult nights.

Behind those notes is a person the carer wants professionals to understand. The poem asks for space at the table and for those questions to reach the room.

It also makes room for something else: joy, friendship, creativity and life beyond caring. Carers need support when they are tired, but they also need opportunities to be seen as whole people, with their own interests, hopes and identities.

Poetry can open up a conversation in a different way. It can help us describe emotions and experiences that do not always fit neatly into a form, assessment or meeting agenda. At this event, poetry became a way of connecting Black history, mental health and lived experience.

A family story behind an artist’s achievement

One contribution that stood out was a family perspective on the artist Nnena Kalu, who won the 2025 Turner Prize.

Her brother shared his pride in her achievement and spoke about their family history, her communication and the support she needs in everyday life. He also reflected on discovering the scale of her artistic success through a news story.

What stayed with me was his reminder that needing support in one part of life does not tell us everything about a person’s abilities. His account encouraged us to look beyond labels and consider how people express themselves in different ways.

As someone who supports my own brothers, I connected with the importance of recognising the person behind a diagnosis or description. Families can offer valuable insight, while each person also deserves space to be recognised for their own identity, talents and achievements.

Poetry, music and shared experience

The event included performances and contributions from poets, artists and musicians. We heard reflections on identity, history, mental health, belonging and the experiences of the Windrush generation.

There was also a collective musical performance and an opportunity for people to join in singing together. These moments brought warmth to the day and reminded me that conversations about mental health do not always have to happen in clinical language.

Creativity can give people a way to express pain, pride, memory and hope. It can also bring people together, helping them feel less isolated.

For carers, having access to creative spaces can be especially valuable. It offers a chance to reflect on our experiences, connect with others and be heard in ways that feel meaningful to us.

Turning recognition into action

Events like this are valuable because they create a space for stories and perspectives that are too often overlooked. However, the conversations should continue beyond Black History Month.

In my presentation, I encouraged services and professionals to:

  • Ask carers what they need in their own right, rather than assuming they are managing.
  • Make space for carers’ knowledge in conversations about the care of the person they support.
  • Challenge assumptions and follow up on concerns, including where racism or bias may be affecting someone’s experience.
  • Offer support that respects culture and individual choice, recognising that no community or family is the same.

These are practical steps towards a more inclusive relationship between services, patients and carers.

Looking beyond October

I was grateful for the opportunity to contribute to the event and to listen to the other voices represented throughout the day. Thank you to Mia, Sound Minds, the community partners, speakers, performers and everyone who helped bring people together.

Black History Month gives us a chance to celebrate the contributions of Black communities and reflect on the inequalities that remain. As a Black carer, I want those reflections to lead to conversations throughout the year: conversations in which carers are welcomed, their knowledge is valued and their concerns are taken seriously.

I ended my presentation with a question that I hope people will continue to consider:

Who could you help to feel heard this week?

Find out more about my carer advocacy, forums and poetry at A Caring Mind.

Seeing the whole family: reflections on Sussex’s Psychosocial Interventions for Nurses conference

By Matthew McKenzie – Carer Lived experienced member of Royal College of Nursing

On Friday 23 October 2026, I joined Sussex Partnership NHS Foundation Trust’s Psychosocial Interventions for Nurses conference at the University of Sussex in Falmer.

The day brought together mental health nurses, educators and people with lived experience to explore psychosocial interventions, often shortened to PSI, and their place in everyday nursing practice.

I contributed through poetry, a conversation about lived experience and an afternoon carers and families workshop. As a carer activist, I wanted to bring attention to the relatives and friends whose knowledge, concerns and wellbeing can become overlooked within mental health services.

Across the day, one theme kept returning: the importance of relationships. What does it mean to stay alongside someone in distress? How do we build trust with families? And how can staff protect that work when services face competing pressures?

Opening with poetry and lived experience

The conference began with poems and reflections from Royal College of Nursing Lived Exprience group including myelf.

Hannah, the Royal College of Nursing’s Lead Nurse for Lived Experience, shared a poem about moving from being a nurse to receiving mental health care, and eventually returning to nursing.

Her words explored the loss of identity, fear and vulnerability that can accompany becoming a patient. They also recognised the nurses who continued trying to connect with her, including through small, ordinary acts of kindness.

That opening placed lived experience at the centre of the conference. Before discussing approaches and training, we heard about what receiving care can feel like.

Another lived experienced poem explored his personal history and experiences of treatment at the Cassel Hospital. His account highlighted the importance of community, boundaries, everyday activities and relationships with nurses.

Together, these contributions reminded us that care is experienced through how people listen, respond and remain alongside someone.

“The Carer They Didn’t See”

In my opening contribution, I explained that I did not immediately recognise myself as a carer. I was my mother’s son, trying to support someone I loved.

It took time before someone helped me recognise that caring role. Meanwhile, my own needs could easily slip into the background.

I shared my video poem, “The Carer They Didn’t See,” connecting that experience with the workshop planned for later in the day.

For me, poetry offers a way to communicate the emotional reality behind carer inclusion: being present, listening, remembering information and worrying about what happens next, while feeling that nobody has asked how you are managing.

Watch “The Carer They Didn’t See” here.

Hannah’s embroidery: finding a way through together

Hannah also explained the meaning behind her embroidered butterfly imagery, used in connection with the PSI programme.

She described recovery as a journey made through relationships, with each person needing space to find their own way. Her explanation connected creativity with identity, trust and the experience of being supported to become yourself.

This stayed with me because creative activity can provide opportunities for connection when words are difficult. Poetry, embroidery, drawing and other forms of expression can give people another way to communicate what matters to them.

Geoff Brennan: where the PSI programme came from

Geoff Brennan presented the session on the development of PSI, explaining that Cath Gamble was unable to attend because she was caring for her mother.

For a conference that included carers’ experiences, that was a reminder that caring responsibilities also sit within professional lives.

Geoff traced the programme’s roots to concerns in the 1990s about how mental health nurses were supported to work with people experiencing serious mental illness.

He described the development of the Thorn programme, including its emphasis on working with families and helping nurses develop practical therapeutic skills.

An important part of his message was that nurses need both skills and permission to use them. Training has limited value if staff return to environments where they lack time, supervision or encouragement to put their learning into practice.

He also reflected on the difficulty of sustaining progress when courses disappear or experienced practitioners move on. That helped explain the day’s emphasis on building a community of practice.

Protecting the therapeutic role of mental health nurses

The discussion included questions about what PSI adds to work already happening in services.

Some participants described established psychological and group-based approaches within Sussex. Others spoke about pressures that left them feeling increasingly occupied with risk assessment and tasks, with less room for meaningful connection.

Hannah brought this back to the experience of needing support at two o’clock in the morning. The mental health nurse is often the professional present at that moment.

Her point was powerful: nurses need confidence and support to respond to emotional distress, rather than feeling that every therapeutic conversation belongs elsewhere.

For me, this also matters to families. Carers need to know that someone can hear their concerns, help them make sense of a situation and respond with understanding.

Our conversation: what happens when carers are excluded?

During the morning conversation, I was asked what happens when a carer is overlooked or excluded.

I spoke about feeling unheard and outside the team, even while trying hard to support someone who is struggling.

Exclusion can leave carers uncertain about their role. Some withdraw because they feel their contribution is unwanted. Others keep pushing to be heard, often at a cost to their own wellbeing.

I connected this with the Triangle of Care: the person receiving support, their unpaid carer and professionals working in partnership.

The discussion also recognised that family involvement can be complicated. People may have different wishes, relationships may be strained, and relatives may fear being blamed.

That calls for thoughtful engagement. Sometimes a less formal conversation can provide a starting point for trust.

Hannah’s account: a nurse who did not give up

Hannah described the sustained support of a psychiatric nurse who worked alongside her over several years.

She explained that she had not initially been able to engage with psychological therapy. Her nurse helped her move towards a point where that became possible.

What stood out was his persistence. He kept returning, believed in her and continued trying to understand what she needed.

Her account showed the significance of work that may be difficult to capture in a short appointment or a checklist: building enough trust for someone to accept support.

The conversation also recognised the emotional demands of this work and the importance of supervision. Staff need opportunities to reflect on what they are holding and to receive support themselves.

Jim Turner: tracing the history of mental health nursing

Dr James “Jim” Turner led an interactive exploration of how mental health nursing had developed alongside changing psychological ideas, treatments and service structures.

Although his programme slot was titled “Five Stages Intervention,” the recorded session included a much broader historical timeline.

Jim invited the room to think across roughly a century, beginning around the early twentieth century and moving towards contemporary practice. Participants contributed ideas as he connected different influences on the profession.

His central message was that psychosocial nursing has a history. It draws on generations of learning about distress, behaviour, relationships and the circumstances in which people live.

Beginning with an encounter, rather than a theory

Jim opened with an example from his early nursing career involving a person who was frightened by what he believed he could see outside.

He described going outside with him, exploring what was there and offering another interpretation. They did not arrive at the same explanation, but they were able to remain together and share a calmer moment.

Looking back, Jim recognised therapeutic elements within that encounter: listening, exploring someone’s understanding and gently considering another perspective.

For me, the significance was in his willingness to spend time with the person and take the fear seriously. The relationship made that exploration possible.

Psychological ideas and the understanding of relationships

Jim’s timeline considered the influence of psychoanalysis, including Freud and later thinkers concerned with relationships and emotional development.

He discussed ideas such as defence mechanisms, projection and the ways people respond to anxiety or difficult feelings.

He approached these theories critically, questioning some of their assumptions while considering what they contributed to understanding human relationships.

A recurring theme was that people bring earlier experiences into present encounters. Trust, fear, closeness and rejection can affect how someone experiences support.

For nursing, Jim connected this with being curious about the person and working collaboratively, rather than assuming a professional interpretation must be the whole answer.

Behavioural approaches and group work

The discussion moved through the influence of behavioural approaches, including reinforcement and token economies.

Jim explored how these approaches helped nurses identify and describe particular therapeutic interventions.

He also referred to Annie Altschul and the importance of group work. His discussion connected groups with families, encouraging participants to think about how people relate to one another within both.

From my perspective, that connection mattered. Mental health difficulties affect relationships, and relationships can also become sources of support. Understanding the wider picture requires attention to the people around someone.

Medication and the changing responsibilities of nurses

Jim included the arrival of medicines such as chlorpromazine within his account of changes in mental health care.

He connected medication with nursing responsibilities around helping people understand treatment, discussing its effects and supporting them with difficulties they experience.

The conversation also touched on ECT and the tensions nurses can encounter when treatment, distress, consent and maintaining trust come together.

For me, this part raised the importance of honest communication. People receiving care and their families need opportunities to ask questions and explain their experiences.

Cognitive approaches and integrating knowledge

Jim went on to discuss cognitive and behavioural approaches, including CBT, and referred to Eric Berne’s Transactional Analysis.

He explored how different approaches contributed ways of understanding thoughts, feelings, behaviour and interactions.

A distinction he emphasised was between selecting an approach with a clear understanding of its purpose and trying different techniques without knowing why.

That linked his historical discussion directly to training and supervision. Nurses need opportunities to understand the approaches they use and reflect on how they fit the person and situation.

From institutions to community care

Another part of Jim’s timeline considered the movement away from large institutions towards community services.

He questioned whether changing the location of care always changed the experience of it. His examples invited reflection on whether institutional habits could continue in smaller settings.

He also discussed changes in service organisation, care coordination and the development of more specialised approaches.

As a carer activist, I found this relevant to what happens when care moves into the community. Families may take on substantial responsibilities, so services need to understand what support is actually available at home.

The “golden thread”: relationship and hope

Throughout the historical discussion, Jim returned to the therapeutic relationship as a “golden thread.”

Models, treatments and service structures change, but the ability to build a relationship remains central to mental health nursing.

He also spoke about hope: the importance of entering a situation believing that progress is possible and helping someone hold onto that possibility.

Towards the end, the discussion returned to creativity, imagery, drawing, music and shared activity. This connected with Hannah’s embroidery and the poetry that opened the day.

For me, Jim’s session explained why the history mattered. It encouraged nurses to understand the foundations of their work, recognise the value of their therapeutic role and use their knowledge deliberately.

My afternoon carers and families workshop

After lunch, I led a workshop using three fictional scenarios.

I wanted participants to explore situations that many families will recognise: uncertainty about confidentiality, assumptions about a relative’s behaviour and expectations placed on carers when someone returns home.

The scenarios encouraged discussion about what staff could do, what they needed to understand and whose voice might be missing.

Confidentiality and a mother’s concerns

One scenario explored a mother’s concerns alongside her son’s wish for independence and limits on family involvement.

Participants discussed how to understand his preferences while still making space to hear her observations and offer support.

They considered the distinction between receiving information from a relative and sharing someone’s confidential information.

The feedback also recognised the mother’s own wellbeing. Supporting her meant acknowledging her relationship with her son and the strain she might be experiencing.

Questioning the word “demanding”

Another scenario explored assumptions about a family, unfamiliar clinical language and the importance of faith.

Participants challenged the description of a relative as “demanding.” They asked what might be behind repeated requests for information or meetings.

Fear, confusion and a need for reassurance could all be relevant. Describing someone negatively too quickly could prevent those concerns from being understood.

The discussion also considered asking someone what their faith means to them, using clearer language and arranging conversations around practical circumstances such as employment.

This connected closely with my work on culturally responsive carer inclusion: understanding the individual and questioning the assumptions shaping our response.

Discharge planning and sustainable support

The third scenario concerned a wife facing substantial expectations when her husband returned home.

She had work commitments, health difficulties and disrupted sleep, yet the proposed arrangements relied heavily on her.

Participants questioned that assumption and discussed the need to understand both partners’ concerns, identify professional responsibilities and consider support for the carer herself.

For me, this was an essential message: discharge planning needs an honest conversation about what a carer is willing and able to do.

Love and concern do not remove exhaustion or create unlimited capacity.

Keeping the learning going

The wider afternoon programme included PSI in Sussex, the Sussex Partnership Recovery College and discussion about a community of practice and peer support.

These themes connected with concerns raised earlier: staff need support to continue developing and using their skills after training ends.

I hope that ongoing learning also continues to include the experiences of people receiving care and the relatives and friends supporting them.

Thank you

My thanks to Dr Ali Smith, the organising team, the Royal College of Nursing contributors and everyone who took part.

I appreciated the opportunity to bring poetry, caring experience and practical scenarios into the day.

The conference offered space to consider where mental health nursing has come from and what needs protecting as it develops.

For me, that includes time to listen, the confidence to build relationships and a commitment to seeing carers as people whose knowledge and wellbeing matter.

More Than Carers: Voices & Verses Brings Poetry, Art and Connection

On Tuesday 20 October 2026, we came together at Cygnet Churchill and online for our third Voices & Verses poetry and art event — and our first delivered in a hybrid format.

I led the afternoon with the support of Jo Lambert, Faith Smth, Ana Maira, Nadine Knight and the other contributors, who helped co-facilitate the creative activities and made the event a shared experience.

For me, this event was about creating space for people to be seen beyond their caring responsibilities. We are carers, but we are also writers, artists, music lovers, storytellers and people with our own hopes and ambitions.

With Cygnet’s support, the afternoon brought together poetry, art, music and lived experience. Joining online meant that people who could not travel could still contribute, create and share in the occasion.

Beginning with our voices

We opened with introductions and a grounding activity, inviting everyone to share a word describing how they arrived. Togetherness, gratitude, curiosity and openness helped set the tone.

My opening readings included Our Stories Matter and The Carer They Didn’t See. These explored the knowledge and emotions that carers carry, and how easily our contributions can remain unseen.

The discussion that followed reminded us why creative spaces matter. Poetry can communicate something that an assessment or formal meeting may struggle to capture. It allows room for love, uncertainty, frustration and hope, without expecting caring to be presented as an entirely positive experience.

Turning kindness towards ourselves

Jo Lambert led an art activity inspired by the idea that carers often spend so much time giving love and support to others that we can forget to offer the same kindness to ourselves.

Jo shared research she had read about the potential connection between speaking kindly to ourselves and inflammatory markers in people living with autoimmune conditions. This had encouraged her to explore self-compassion in her own life and to share the idea with the group.

Holding out a heart, Jo invited us to think about bringing some of that love back towards ourselves. We then created personal messages using paper hearts, postcards, colours and decorations. People joining online could also take part using materials they had at home.

The activity encouraged us to pause, reflect and speak to ourselves with the same warmth we might offer someone we love. Each creation was different, but the message was shared: our own wellbeing and feelings matter too.

Finding poetry in unexpected places

Next came the word-hat poetry activity, using prompts, colours, images and words to spark ideas.

Starting points included autumn, a favourite colour, a happy place and the way music makes us feel. Short poems emerged about nature, memories, everyday life and imagined scenes.

There was laughter as well as reflection. Nobody needed to produce a polished poem or make their words rhyme. A few lines were enough to begin.

One of the prompts invited us to begin with “Music helps me…” This was my response:

Music helps me to feel fine,
As long as the right rhythm is on time.
My emotions will be mine,
No longer feel bad.
It helps the sun to shine,
Now and for all time.

— Matthew McKenzie

A simple starting line became an opportunity to express something personal. That is part of what Voices & Verses offers: space to discover our creativity and be seen beyond our caring responsibilities.

This part of the afternoon captured something I want Voices & Verses to encourage: our creativity does not have to revolve entirely around caring. We can write about whatever interests, moves or amuses us.

Making space for connection and inclusion

A break and refreshments kindly provided by Churchill gave those in the room time to talk and appreciate the work taking shape around them.

Running through the programme was the importance of voice, identity and respect, reflected in the planned Patient and Carer Race Equality Framework (PCREF) poetry prompts. What helps us feel heard? What do we wish others understood? What hopes do we bring to care?

From my lived experience perspective, inclusion means making room for people to express themselves in their own way. Culture, background and personal experience all shape our stories. Creative activities offer another way for those stories to be recognised.

Sharing music and creating the covers of our lives

The music section brought us together for a singalong to You Are My Sunshine, welcoming voices from the room and online.

We then moved into the cover-art activity. Participants thought about songs that resonated with their lives or reflected how they were feeling, before creating artwork for an imagined personal playlist.

Some used recognisable images; others expressed themselves through colour and abstract patterns. Conversations about favourite songs opened up memories and connections between people.

The activity showed how closely poetry, music and visual art can speak to one another — and how differently each of us can interpret the same starting point.

Closing with reflection

The final sharing and closing circle gave us time to look at the artwork, hear reflections and consider what we would take away.

Participants valued the variety of activities and the opportunity to try something unexpected. Online contributions also highlighted why access matters: travelling can be difficult alongside caring, work and other commitments.

Our first hybrid event involved learning as we went, but it opened another route into the group. People could be part of the afternoon without being physically at Cygnet Churchill.

I left feeling proud of what we had created together. This was lived experience expressed through imagination, humour, culture and connection. It was a reminder that carers have talents and identities that deserve space to grow.

PCREF Poetry: Race, Mental Health and Unpaid Carers

Poetry by Matthew McKenzie — exploring caring, identity, belonging and the need to be heard.

Welcome to my PCREF poetry project. Through poetry and filmed readings, I explore the experiences of unpaid carers, particularly Black and other ethnic minority carers supporting someone with mental ill health.

The poems open conversations about racism, cultural understanding, trust and the relationships between families and mental health services. They also celebrate creativity, community and the people behind the caring role.

Why PCREF and Poetry?

PCREF stands for the Patient and Carer Race Equality Framework.

For me, connecting poetry with PCREF means making space for experiences that can be difficult to express in meetings, assessments or formal feedback. A poem offers another way to speak about feeling excluded, finding support or wanting services to understand your family.

These are personal and creative contributions to conversations about race equality and carer inclusion. My hope is that they encourage people to listen, reflect and consider what needs to change.

Start Here: A Featured Poem

Creativity as the Expression — Poem 41

How do we explain our caring experiences when the words used in meetings, assessments and care plans do not quite capture what we want to say?

This poem explores creativity as a way of finding a voice and sharing experiences of caring.

Reflect: How can we make more room for carers to express themselves in their own way?

Explore the PCREF Poetry Collection

Explore my published poetry about race, mental health and unpaid caring. Click a poem’s title to watch it on YouTube.

PoemWatch on YouTube
4Who Is
9Today I Prayed
11Fear Has Roots
16We Look After Each Other
29Nothing About Us Without Us
30Language as Comfort
37Our Stories Matter
41Creativity as the Expression
46My Anger Without Permission
49Gatekeeping Care
53Racial Inequality in Mental Health

The poem numbers identify pieces within the collection. More video links will be added as this page develops.

More Poetry

Unpaid, Unseen and Yet Unbroken

Explore another spoken-word reading from my wider poetry project recognising ethnic mental health carers’ experiences.

Poetry in Action

Voices & Verses — PCREF Carer Poetry Event

See how poetry brings carers together through creativity, shared experiences and conversation.

Browse more videos on A Caring Mind

Visit A Caring Mind on YouTube to explore the poems

You can find a particular reading by searching for its title within my channel.

More Poetry and Shared Readings

Alongside the numbered poems above, you can also find:

  • Unpaid, Unseen and Yet Unbroken
  • The Carer They Didn’t See
  • Hope That Feels Real — Poem 80, performed by Matthew McKenzie and Jo Lambert

These readings form part of my wider work using poetry to recognise unpaid carers’ experiences and create opportunities for expression.

Poetry in Action: Voices & Verses

Poetry can bring carers together as well as help individuals find their voice.

My channel also includes poetry event recordings and community activities, including Voices & Verses — Carers Poetry Event: PCREF in Action.

If you would like to find out about joining a carer poetry group or referring carers to a session, please get in touch.

Use a Poem to Begin a Conversation

Carer groups, PCREF networks, staff teams, libraries and community organisations may find these poems useful as starting points for reflection.

Choose a poem, watch or listen together, and consider:

  • What words or images stayed with you?
  • What does the poem prompt you to consider about carers’ experiences?
  • Whose voices might be missing from your service or group?
  • What practical change could help carers feel heard and included?

Allow people to choose whether to share their own experiences. Listening is a valuable form of participation too.

Further Learning

For those interested in exploring the wider issues, my YouTube channel also includes:

  • Listening Differently to Black Carers with Poetry, and PCREF
  • Putting the C (Carer) into PCREF — Triangle of Care & Racial Equity in NHS Mental Health
  • Triangle of Care Through an Anti-Racist Lens: Are All Carers Equally Heard?
  • Hard to Reach or Easy to Ignore — Ethnic Mental Health Carers
  • Why Black Carers Struggle to Access Mental Health Support

These presentations offer further opportunities to consider race equality, lived experience and meaningful carer involvement.

About Matthew McKenzie

I am Matthew McKenzie, an unpaid carer, carer advocate, author and poet.

My work draws on my lived experience of supporting family members and my commitment to improving recognition and inclusion for unpaid carers. Through A Caring Mind, I bring together caring, mental health, race equality and creative expression.

Poetry gives me another way to raise questions, share experiences and encourage conversations that might otherwise remain unheard.

Sharing, Enquiries and Getting Involved

You can support the project by sharing this page or links to the original videos with carers, colleagues and community networks.

Please credit Matthew McKenzie / A Caring Mind when sharing links. For permission to reproduce poems, include them in publications or training materials, or arrange a reading or workshop, please contact me through this website.

I welcome enquiries from carer centres, NHS teams, PCREF leads, libraries, arts organisations and others interested in creating more space for carers’ voices.

Watch and subscribe to A Caring Mind on YouTube

Carers’ experiences deserve to be heard. Poetry offers another way to listen.

Creativity as the Expression – Poem 41: Finding a Voice Through Poetry

How do we explain our caring experiences when the words used in meetings, assessments and care plans do not quite capture what we want to say?

My latest PCREF poetry video, “Creativity as the Expression”, reflects on this question. It is Poem 41 from my upcoming poetry book, Unpaid, Unseen and Yet Unbroken, which explores the experiences of ethnic minority unpaid mental health carers.

When the words are difficult to find

As an unpaid carer, there can be times when you know what you have witnessed and understand what worries you, yet struggle to explain it in the language expected by services.

You might leave a meeting thinking about everything you wanted to say. The emotional weight of caring, family history and the everyday changes you notice do not always fit neatly into an assessment or a short conversation.

This poem begins with that struggle:

I struggle to speak the clinical language
I stumble on that path
but over the years I found a new way to express myself
Using that creativity as expression

For me, poetry offers space to find those words and express them in my own way.

Writing to cope, express and reveal

Writing gives me time to reflect on experiences that can be difficult to speak about. It allows feelings, memories and questions to take shape without the pressure of having to explain everything at once.

In the poem, I describe poetry as an art that helps me stay whole. That matters because carers also need opportunities to express who we are and how caring affects us.

Our creativity can reveal parts of our lives that others may never see during a meeting.

Reclaiming our own stories

Carers are often described through records, professional conversations and decisions made within services. Having the opportunity to tell our own stories matters.

“Creativity as the Expression” explores that wish to make the caring role visible and reclaim the narrative. Poetry allows us to speak from our own standpoint, using words that carry meaning for us.

It can also open a conversation. A poem may help someone pause, ask a question or recognise an experience they had not previously understood.

A connection to PCREF

My PCREF poetry work draws attention to the voices of ethnic minority unpaid mental health carers. PCREF stands for the Patient and Carer Race Equality Framework.

Through this poem, I want to encourage reflection on whose voices are heard and which forms of expression are valued. Confidence with professional language should not determine how seriously a carer’s experience is taken.

The poem imagines creativity as a bridge: a way to communicate experiences that might otherwise be difficult to explain or record. For that bridge to work, there must also be a willingness to listen.

One voice can become many

The final verse moves from personal expression towards community:

My creativity will reveal that experience
My lived experience
I will share it back to others
Back to the community, where one voice can become many

Sharing a poem can help another carer recognise something from their own life. It can create a moment of connection and give others encouragement to share their experiences too.

I hope this video offers that invitation.

Watch the poem below, and please like, share and subscribe to A Caring Mind for more poetry and unpaid carer voices.

Watch “Creativity as the Expression” on YouTube

Please also keep an eye out for my upcoming poetry book, Unpaid, Unseen and Yet Unbroken.

Has poetry, art, music or another creative activity helped you express your caring experience? You are welcome to share your thoughts in the comments.

National Ethnic Mental Health Carer Forum: September Update 2026

By Matthew McKenzie – Chair, National Ethnic Mental Health Carers Forum

Welcome back to A Caring Mind. September’s National Ethnic Mental Health Carers Forum brought together unpaid carers, NHS professionals, researchers and community representatives to discuss racial equality, community involvement and support for families.

The forum connects carers’ lived experience with organisations working to improve services. It provides opportunities to ask questions, share approaches and challenge barriers affecting ethnic minority carers and those they support.

Continue reading →

Supporting someone with psychosis? Share your experience through the OSMOSIS study

Welcome to another update from A Caring Mind. I am sharing a research opportunity for unpaid carers who support someone with psychosis and live in Hackney, Tower Hamlets or East Sussex.

As someone with lived experience of caring, I know how much attention can focus on the person receiving care, while the support needs of family members and friends remain less visible. Listening to carers can help us understand what happens when we reach out for support ourselves.

The OSMOSIS project is exploring carers’ experiences of support to inform the development of resources and actions to support carers.

Whose voices are needed?

The research team would particularly welcome interest from carers from minoritised communities, who are currently underrepresented in the study.

This matters to me because carers’ experiences can differ across communities. Creating opportunities for people to share those experiences can help bring overlooked needs and barriers into view.

The study is only recruiting carers who live in Hackney, Tower Hamlets or East Sussex. Within these areas, the team would like to hear from people who meet all the criteria below.

Who can take part?

You may be eligible if you:

  • Provide unpaid support for a family member or friend with psychosis.
  • Are aged 18 or over.
  • Live in Hackney, Tower Hamlets or East Sussex.
  • Have tried to seek out, or have received, support for yourself.

You do not have to use the word “carer” to describe yourself. You might simply see yourself as a brother, sister, parent, partner, relative or friend who provides unpaid support.

What does taking part involve?

Taking part involves a 90-minute interview, either online through Microsoft Teams, over the phone or in person, depending on your preference.

Participants will receive a £20 voucher of their choice.

The study flyer states that your information will be kept private and you will not be identified in any outputs.

How to find out more

If you are interested in participating, or would like to ask questions before deciding, please contact:

Dr Evelyn Callahan
Email: evelyn.callahan@citystgeorges.ac.uk
Phone: 07341 492068

The study flyer accompanies this post with further details.

Please share this opportunity with eligible carers and local networks in Hackney, Tower Hamlets and East Sussex, particularly networks reaching carers from minoritised communities.

Carers’ experiences deserve to be heard—including our experiences of seeking support for ourselves.

Tackling Mental Health Inequalities Together: An Evening with Kent and Medway

By Matthew McKenzie – Chair of Ethnic MH Carer forum

On Thursday 15 October 2026, I attended an evening event hosted by Kent and Medway Mental Health NHS Trust, bringing together staff, community representatives, faith voices and people with lived experience to discuss racial inequalities in mental health care, although I attended as Chair of the National ethnic mental health carer forum, It was also lovely to be joined by Beata Bikowska and Tina Stevens from Cygnet Hospital Maidstone, alongside NHS colleagues and community partners, for this important conversation on tackling mental health inequalities.

Continue reading →

Making carers visible: World Mental Health Day at King’s College Hospital

By Matthew McKenzie – Carers UK Ambassador, chair of South London Carers Forum

On Thursday 15 October 2026, I attended the World Mental Health Day Fair at King’s College Hospital in Denmark Hill. Organised by the hospital’s Vulnerabilities Team, the event brought together organisations sharing information about mental health, wellbeing, recovery and community support.

I was there as a Carers UK Ambassador and facilitator of the South London Mental Health Carers Forum. For me, attending these events comes from personal experience. Having cared for my late mother, who lived with schizophrenia, I know how much responsibility families can carry, and how easily their own needs can go unnoticed.

Continue reading →

Triangle of Care Community Meeting: October 2026 Update

By Matthew McKenzie – Triangle of Care Community Group Chair

Turning carer involvement into meaningful change

On Monday 12 October, I chaired the latest Triangle of Care Community Group meeting, bringing together unpaid carers, mental health professionals and partner organisations to share experiences and learning.

Our discussions explored what meaningful carer involvement looks like, developments within the Triangle of Care programme, and the support carers should be able to access. We heard encouraging examples of co-production, alongside honest accounts of gaps that continue to affect families.

Continue reading →