Southwark MH Carers Forum June 2018

Dg3QQzpUYAAo2uyWelcome to June 2018 update from the Southwark mental health carers forum. As a reminder the mint of carers forums give unpaid carers in care for someone suffering mental health needs a chance to get updates and query mental health services and also services aimed at unpaid carers. One of the things that is important to note is that the forms allow empowerment to unpaid carers.

For this particular form over at Southwark carers, we were lucky to have the Labour MP helen Hayes attend the forum to present a new report published jointly by the Health & Social Care and the Housing, Communities & Local Government Select Committees on the long term funding of adult social care.

At the forum we all admitted that the social care system is broken. There are quite a few reasons why social care is struggling to support those in desperate need. One of the things that has been causing a lot of problems is the austerity effect. We felt that the current government seems to be dragging its heels on supporting and protecting the rights of unpaid carers.

If that wasn’t hard enough we have a double blow in regards to the ‘cared for’ where hospitals are struggling with funding, delayed hospital discharges, difficulty with mental health patients getting support and the rotating door system. All of this applies added pressure on families and unpaid carers who are trying their best to care for their loved ones.

Comforting friend. Woman consoling her sad friend.

The select committee which Helen Hayes is a member of is a cross party initiative that includes a Citizens jury. The committee looked at funding and who should fund social care. The committee also queried what social care should look like.

Too often the poorest in Society are asked to pay for social care that cannot often reach them. Above all they should be transparency not just in social care but within the NHS. It is so important that families and carers are given the support in order to care for their loved ones rather than being pushed out by care workers.

The forum also discussed the integrated social care system where are the city of Manchester has set an example for others to follow.

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The MP felt glad that such a forum is up and running since she felt the current government has failed to give unpaid carers a voice and she will do all she can in order to support the mental health carers forum. We also discussed carers assessments and who should attend the forum.  Unfortunately Southwark Council representatives were due to attend the forum, but were unaware the time had changed.

In future we can send out posters where the MPs can help publicise and support the forum.

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This concludes the update for June 2018 Southwark mental health carers forum.

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Lambeth MH Carers Forum update June 2018

20140710_143445Here is the update for the Lambeth mental health carers forum held over at 336 Brixton road. This forum alternates in time, so that carers can I do attend during the daytime or evening.

For this particular forum we had two people engaging with the members. The first being Steve badger who is the clinical lead for the Lambeth home treatment team. Home treatment teams are very important in regards to introducing is service user or patient back into the community, but how does this work with families and carers?

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Steve badger explained how the home treatment team worked. He took time to talk about the structure of the home treatment team over in the borough of Lambeth. A lot of discussions centered back onto the “place of safety ward”, this is because a lot of the members were interested in how people were introduced to the service especially in Crisis.

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As usual bed management was often talked about at the forum because there’s a lot of worrying on how patients are introduced to the service not just on me how they end up back into the community. A fair bit of discussion was on consent especially when the patient ends up back home with the family how would the home treatment team engage with the carer?

Steve kindly explain other useful support which carers or patients can use especially the 24-hour Slam helpline and also using the “Living Well network”. There was also some discussion on the new structure changes wear Slam is going back to Borough based services. We look forward to hearing more about the new structure in future forums.

The next speaker at the june lambeth mental health carers forum was Bobby Allen from “carers 4 carers”.

Carers 4 Carers is a charity group set up in Lambeth to offer care services for those who themselves care for their disabled, sick and elderly loved ones. Carers 4 Carers was set up by and is run by Carers and ex Carers. Who want to use their skills and experience of caring to support other Carers.

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Bobby explained how carers get together and exchanged ideas we found out that “carers 4 carers” is a great place to relax socialize and network with other carers. The Lambeth charity is running several initiatives one of them is called “inspirational champions”, which looks at confidence building. Another project is called “Viva”, which concentrates on carers you are over 50 and allows them a chance to exercise and go on trips. The charity has one funding from “Sports England” in order to get more carers to become active.

Carers 4 Carers have been running sessions at the Oval and Dulwich Sports Centre. The charity is based at Brixton recreational centre. You can find out more about Carers 4 Carers at the following link http://www.lambethforestnetwork.org.uk/carers-4-carers/

Next was a discussion on the recent Slam Carers listening event. This took place on the 27th of June 2018 over at Coin Street Community Centre in Lambeth. To make it easier have broken down the discussion into bullet points

  • Those who attended liked the main speaker who was speaking about planning for the future and where interested in the pack provided by Birmingham & Soulihill NHS Foundation Trust, which led to a discussion on its content and the empowerment carers got to implement changes with support from the Trust, clinicians and Council.

 

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  • They also enjoyed the workshop so especially on confidentiality and being shown in the short film.
  • Some felt the medication workshop with was good but a bit too presentational.
  • Although I could not attend in the afternoon I heard a lot about what people thought regarding the panel of question and it was good to see the chief exec attend.
  • We felt it was a shame that few carers from the borough of Lambeth could only attend.
  • Plus the events seem to lack a way to discuss on tables with carers and staff.
  • Some felt that the confidentiality film was a bit too staged.
  • One carer was unhappy that her question was not asked during the panel debate.

Moving away from the recent carers listening event, I updated the Lambeth carers forum on a new carers support group being set up over at Lambeth Hospital. We hope that the carers support group can link into the Lambeth carers forum. In regards to other updates for the Lambeth mental carers forum is that members are looking forward to updates from Lambeth Healthwatch, updates from health Locker advisory board meeting and one of the Lambeth MPs attending the Forum in future.

This concludes the update for the Lambeth mental health carers forum for June 2018.

Lewisham MH Carers forum June 2018 update

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Here is the June 2018 update for the Lewisham mental health carers forum. We had a visit from the involvement lead for Croydon and Lewisham. With support from south London and Maudsley NHS trust, the purpose of this forum is to see who will engage with the forum throughout the year and beyond.

 

The Forum looks forward to the Deputy Director of the Crisis Services Psychological Medicine Management lead attending the forum in July. Members of the forum were also pleased to hear that in future in Lewisham Execitive would also drop by to explain about service updates and engage with the members.

We were also pleased to hear that a lead from the “Centre for Anxiety disorders and Trauma” would engage with the forum in October.

In regards to Triangle of care policy launched for NHS trusts, no new applications are taking place for Trusts to join. We hope that in September there will be a review and an update regarding applications to join the policy.

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Last month the forum members were interested in the staffing structure at the NHS Trust particularly in Lewisham. Due to the recent structure changes the NHS Trust will update the forum once job posts have been filled.

Members of the forum also wanted a carers handbook to be placed at GP surgeries across the borough of Lewisham, however due to funding issues this cannot be possible although Lewisham CCG have kindly put information about carers in the GPS newsletter.

After the discussion with the involvement lead carers had a group discussion regarding problems carers are currently facing. We discussed the following issues:-

1. GP not always understanding carers in regards to the ‘cared for’ being referred to services.
2. The lack of respite and breaks for carers.
3. The lack of emergency respite.
4. The lack of carer activities.
5. Limited education on carers rights.

Members of the forum were wondering what on earth happened to the borough of Lewisham carers strategy considering other boroughs have their own carers strategy.

Lastly members were very pleased with the involvement lead working so hard to support the forum. We hope to hear from the lead soon.

This concludes the update for the June 2018 Lewisham mental health carers forum.

 

Lewisham BME MH Carer/SU Forum June Update 2018

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Hello everyone, welcome to the latest update for the Lewisham BME mental health carers forum. This forum took place on the 29th of June over at Family Health Isis. This particular forum has been running since last summer 2017.

There has been changes at the South London and Maudsley NHS Foundation trusts structure where they are moving towards borough based services. The members of the forum were interested in how the changes would reflect on services. So the main aim of the forum that particular Friday was to try and discuss who the members would like to have engaged with on future forums.

The members of the forum were hoping that the mental health police lead for Lewisham would attend, however that has been moved to month of October. The members are interested to hear about the Mental Health Act and centralised place of safety, but emotions are strong regarding the recent death of Kevin Clark, who also was a member of Family Health Isis.

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Members was interested from hearing about how carer leads over at the Ladywell unit were engaging with families and carers. Members of the forum were wondering if there would be a carers lead in the borough. Others were interested too see if a medical director for Lewisham would engage with the forum.

One member is very active with Lewisham Mind and wants them to engage with the forum. There was a discussion on how Lewisham Mind works with the BME community. There was also a discussion regarding NHS staff morale within Lewisham so the forum would like to hear from HR this is because of the worry of bank staff not knowing what is going on.

Management from Family Health Isis would also like senior managers from lewisham CCG to engage with the forum, although they were happy that lewisham CCG is working hard with service users there should be some engagement for BME Family and carers.

The forum is pleased to hear that a carers support group will eventually take form over at the Ladywell unit in the coming months. This concludes the update from the Lewisham BME mental health carers forum.

Carers week 2018

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Hello everyone welcome to your new blog for Matthew McKenzie a carer from South London. Now as of this blog it is carers week 2018. Carers Week is an annual campaign to raise awareness of caring, highlight the challenges carers face and recognise the contribution they make to families and communities throughout the UK.

For this year carers 2018 looks to address caring in the community as where carers can come connected to the community and also keeping carers healthy. It is quite common to know that carers can also be isolated and caring for someone that they have known for most of their lives or at least someone special.

We all want a caring Society so that’s why it is so important and continue to address that carers can be connected to the community.

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1. Make sure carer centers are still active in the area so at least carers have a safe space to go and get support and advocacy.

2. Make sure staff are trained to be carer aware and engage with carers and unknown carers as much as possible.

3. If you know of any carers or your close to someone who is currently carer, it does not hurt to give them a call to see how they are doing.

4. A good one is to make a Pledge on the ‘carers week’ website. https://www.carersweek.org/get-involved/pledge-support.

5. Educate carers on how they can keep fit and healthy so in order that they can care for others it is important that carers care for themselves.

6. Reward organisations that make a continued effort to raise the profile and support of carers so it can sit a good example to other organisations for instance GP practices, NHS trusts or councils.

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It is so important that you raise and continue raise the needs of 6.5 million carers across the country. It is a shame that carers have to Sacrifice so much when their loved ones become unwell. Carers don’t often ask for much so that’s why we should at least give carers some recognition.

Lambeth MH Carers Forum update May 2018

IMG_20180531_195653Welcome to the May’s update of the Lambeth Mental Health Carer forum. It has been a while since I did an update for the forum, since I could not attend the previous Lambeth MH carer forum and forgot to blog about the other previous forums.

This forum caters for unpaid carers who are caring for someone with a mental health need, e.g. someone suffering from psychosis, eating disorder, depression, bipolar and other MH illnesses.

The forum is strategic and gives carers the involvement and empowerment to query, question and even compliment the mental health services in Lambeth and sometimes beyond e.g. we are hoping to have a representative from NHS england attend in future.

This Lambeth MH forum was on the 31st of May and was well attended with some very good questions and statements from the forum members. The Lambeth MH Carers forum is run from the 336 building off Brixton road.

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Guest speakers at the forum was Stacey Hemphill from the ‘Living Well Network Hub’ and also Lambeth Police Mental Health lead inspector Mark McLeavery.

Updates from Stacey was on how and why the Lambeth Living Well Network was started up and provides support people’s Mental Health and wellbeing. They liason with Lambeth GPs and those using the services.

Stacey talked about how the network engages with carers and what support they can provide service users. The Living Well network runs at the following places being the Mosaic Clubhouse on Effra Road, Clapham Methodist Church and also at 336 Brixton Road, you can call them on 0203-691-5080 or email them on slm-tr.lwnhub@nhs.net

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Next up was Inspector Mark McLeavery from the Lambeth Met Police. He spoke about how the Lambeth police engages with someone who is in a crisis out in public. The forum were very interested to hear how someone in crisis ends up at the Maudsley’ hospital ‘Central Place of Safety’.

Mark mentioned Lambeth has a challenging and high rate of mental health needs, plus the stigma of mental health can make things even more challenging.

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Mark Spoke about the Crisis Assessment Team ‘CAT’ and the use of ‘street triage’ Mark stressed that there are no use for police custody cells for those in mental distress, although I did mention the problem with beds and he mentioned at worse A&E might be the last option for someone in serve distress.

The forum moved on to discuss GDPR and updates from Carers Hub Lambeth, it now seems that the charity ‘Help for Carers’ is being disbanded and Carers Hub Lambeth has split from it.

Going on to the minutes of the last forum that took place in April, the updates were from how Lambeth Healthwatch are engaging with its support networks. Updates on the King’s Health Partners ‘Mind & Body’ programme. Updates on C4C visits, plus the good news on the Money and MH Link update with government passing a law that supports those suffering debt from MH illness, which involved one of our very own carer member of the forum helping to lead on the project.

Other updates have been no news on the rota from SLaM regarding guest speakers, but I mentioned the trust were under reorganisation, so we will see what happens after that. There is also a push to have a Lambeth MP engage with the forum to see the wonderful work unpaid carers are trying to do to help their community.

This concludes the update from the Lambeth MH carers forum.

Lewisham MH Carers forum April 2018 update

IMG_20180529_135451Welcome to the Lewisham MH carers forum update for May. Out of all the four Mental Health carer forums in South London, this is the oldest one I chair. The MH carers forum ran on the 29th of May.

Carers Lewisham have been very good in supporting the forum and helping to advertise it, but we still need to reach other mental health carers in the borough of Lewisham. It is very important unpaid mental health carers know what is going on with the mental health services, let alone being engaged and trying to influence them.

For the month of May, we had guest speaker Stephanie Edwards who is the Clinical Team Leader for the Psychosis service in Lewisham. This forum was highly strategic as the forum members got a brief breakdown of the mental health services in Lewisham. The mental health service structure for the borough of Lewisham was complicated due to the current restructuring of SLaM staff, but hopefully we will have Donna Hayward-Sussex at the April forum, she is the Deputy Director of the Crisis Services within the Psychological Medicine Team.

The forum members need to know and query how mental health staff restructuring will affect service user and carers in the borough of Lewisham. As far as the forum knows, there will be be senior management consultations regarding interim posts.

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The mental health trust that covers 4 boroughs and a few more regarding mental health services is preparing for the CQC visit in July, they have spent a long time preparing services and involving carers and service users in ward/service inspections, which was good to hear. The MH carers forum appreciates staff have worked very hard.

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Regarding future forum engagement, the members look to be updated on the NHS trusts estate developments, governance structure and involvement oppertunities. I queried how many carers does Lewisham MH services have on the books, but it can be difficult to pin down the answer, still heard that around about over 800 Mental health cases are in the books, so it gives us some idea of the number of families and carers we need to reach.

Stephanie Edwards is preparing for Lewisham’s People’s Day, so the forum looks to provide cards, posters and leaflets.

After discussions, I brought out a large map of SLaM’s services and Stephanie took time to explain what the services in Lewisham are about, who was responsible and answered queries from the forum members.

There is concern that not enough carers in the borough know what is going on and are not getting involved. There are plans to have the forum held alternatively in the evenings at the Depford community centre. We also hope the carers support group can be set up in Lewisham Hospital so new carers can gain therapeutic support since there is limited time for carers stories at a Carer MH Forum.

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The forum has requested an MP visit soon from the borough of Lewisham to boost carer empowerment and understand carer issues with the borough

This concludes the update for the Lewisham MH carer forum.

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