Seeing the whole family: reflections on Sussex’s Psychosocial Interventions for Nurses conference

By Matthew McKenzie – Carer Lived experienced member of Royal College of Nursing

On Friday 23 October 2026, I joined Sussex Partnership NHS Foundation Trust’s Psychosocial Interventions for Nurses conference at the University of Sussex in Falmer.

The day brought together mental health nurses, educators and people with lived experience to explore psychosocial interventions, often shortened to PSI, and their place in everyday nursing practice.

I contributed through poetry, a conversation about lived experience and an afternoon carers and families workshop. As a carer activist, I wanted to bring attention to the relatives and friends whose knowledge, concerns and wellbeing can become overlooked within mental health services.

Across the day, one theme kept returning: the importance of relationships. What does it mean to stay alongside someone in distress? How do we build trust with families? And how can staff protect that work when services face competing pressures?

Opening with poetry and lived experience

The conference began with poems and reflections from Royal College of Nursing Lived Exprience group including myelf.

Hannah, the Royal College of Nursing’s Lead Nurse for Lived Experience, shared a poem about moving from being a nurse to receiving mental health care, and eventually returning to nursing.

Her words explored the loss of identity, fear and vulnerability that can accompany becoming a patient. They also recognised the nurses who continued trying to connect with her, including through small, ordinary acts of kindness.

That opening placed lived experience at the centre of the conference. Before discussing approaches and training, we heard about what receiving care can feel like.

Another lived experienced poem explored his personal history and experiences of treatment at the Cassel Hospital. His account highlighted the importance of community, boundaries, everyday activities and relationships with nurses.

Together, these contributions reminded us that care is experienced through how people listen, respond and remain alongside someone.

“The Carer They Didn’t See”

In my opening contribution, I explained that I did not immediately recognise myself as a carer. I was my mother’s son, trying to support someone I loved.

It took time before someone helped me recognise that caring role. Meanwhile, my own needs could easily slip into the background.

I shared my video poem, “The Carer They Didn’t See,” connecting that experience with the workshop planned for later in the day.

For me, poetry offers a way to communicate the emotional reality behind carer inclusion: being present, listening, remembering information and worrying about what happens next, while feeling that nobody has asked how you are managing.

Watch “The Carer They Didn’t See” here.

Hannah’s embroidery: finding a way through together

Hannah also explained the meaning behind her embroidered butterfly imagery, used in connection with the PSI programme.

She described recovery as a journey made through relationships, with each person needing space to find their own way. Her explanation connected creativity with identity, trust and the experience of being supported to become yourself.

This stayed with me because creative activity can provide opportunities for connection when words are difficult. Poetry, embroidery, drawing and other forms of expression can give people another way to communicate what matters to them.

Geoff Brennan: where the PSI programme came from

Geoff Brennan presented the session on the development of PSI, explaining that Cath Gamble was unable to attend because she was caring for her mother.

For a conference that included carers’ experiences, that was a reminder that caring responsibilities also sit within professional lives.

Geoff traced the programme’s roots to concerns in the 1990s about how mental health nurses were supported to work with people experiencing serious mental illness.

He described the development of the Thorn programme, including its emphasis on working with families and helping nurses develop practical therapeutic skills.

An important part of his message was that nurses need both skills and permission to use them. Training has limited value if staff return to environments where they lack time, supervision or encouragement to put their learning into practice.

He also reflected on the difficulty of sustaining progress when courses disappear or experienced practitioners move on. That helped explain the day’s emphasis on building a community of practice.

Protecting the therapeutic role of mental health nurses

The discussion included questions about what PSI adds to work already happening in services.

Some participants described established psychological and group-based approaches within Sussex. Others spoke about pressures that left them feeling increasingly occupied with risk assessment and tasks, with less room for meaningful connection.

Hannah brought this back to the experience of needing support at two o’clock in the morning. The mental health nurse is often the professional present at that moment.

Her point was powerful: nurses need confidence and support to respond to emotional distress, rather than feeling that every therapeutic conversation belongs elsewhere.

For me, this also matters to families. Carers need to know that someone can hear their concerns, help them make sense of a situation and respond with understanding.

Our conversation: what happens when carers are excluded?

During the morning conversation, I was asked what happens when a carer is overlooked or excluded.

I spoke about feeling unheard and outside the team, even while trying hard to support someone who is struggling.

Exclusion can leave carers uncertain about their role. Some withdraw because they feel their contribution is unwanted. Others keep pushing to be heard, often at a cost to their own wellbeing.

I connected this with the Triangle of Care: the person receiving support, their unpaid carer and professionals working in partnership.

The discussion also recognised that family involvement can be complicated. People may have different wishes, relationships may be strained, and relatives may fear being blamed.

That calls for thoughtful engagement. Sometimes a less formal conversation can provide a starting point for trust.

Hannah’s account: a nurse who did not give up

Hannah described the sustained support of a psychiatric nurse who worked alongside her over several years.

She explained that she had not initially been able to engage with psychological therapy. Her nurse helped her move towards a point where that became possible.

What stood out was his persistence. He kept returning, believed in her and continued trying to understand what she needed.

Her account showed the significance of work that may be difficult to capture in a short appointment or a checklist: building enough trust for someone to accept support.

The conversation also recognised the emotional demands of this work and the importance of supervision. Staff need opportunities to reflect on what they are holding and to receive support themselves.

Jim Turner: tracing the history of mental health nursing

Dr James “Jim” Turner led an interactive exploration of how mental health nursing had developed alongside changing psychological ideas, treatments and service structures.

Although his programme slot was titled “Five Stages Intervention,” the recorded session included a much broader historical timeline.

Jim invited the room to think across roughly a century, beginning around the early twentieth century and moving towards contemporary practice. Participants contributed ideas as he connected different influences on the profession.

His central message was that psychosocial nursing has a history. It draws on generations of learning about distress, behaviour, relationships and the circumstances in which people live.

Beginning with an encounter, rather than a theory

Jim opened with an example from his early nursing career involving a person who was frightened by what he believed he could see outside.

He described going outside with him, exploring what was there and offering another interpretation. They did not arrive at the same explanation, but they were able to remain together and share a calmer moment.

Looking back, Jim recognised therapeutic elements within that encounter: listening, exploring someone’s understanding and gently considering another perspective.

For me, the significance was in his willingness to spend time with the person and take the fear seriously. The relationship made that exploration possible.

Psychological ideas and the understanding of relationships

Jim’s timeline considered the influence of psychoanalysis, including Freud and later thinkers concerned with relationships and emotional development.

He discussed ideas such as defence mechanisms, projection and the ways people respond to anxiety or difficult feelings.

He approached these theories critically, questioning some of their assumptions while considering what they contributed to understanding human relationships.

A recurring theme was that people bring earlier experiences into present encounters. Trust, fear, closeness and rejection can affect how someone experiences support.

For nursing, Jim connected this with being curious about the person and working collaboratively, rather than assuming a professional interpretation must be the whole answer.

Behavioural approaches and group work

The discussion moved through the influence of behavioural approaches, including reinforcement and token economies.

Jim explored how these approaches helped nurses identify and describe particular therapeutic interventions.

He also referred to Annie Altschul and the importance of group work. His discussion connected groups with families, encouraging participants to think about how people relate to one another within both.

From my perspective, that connection mattered. Mental health difficulties affect relationships, and relationships can also become sources of support. Understanding the wider picture requires attention to the people around someone.

Medication and the changing responsibilities of nurses

Jim included the arrival of medicines such as chlorpromazine within his account of changes in mental health care.

He connected medication with nursing responsibilities around helping people understand treatment, discussing its effects and supporting them with difficulties they experience.

The conversation also touched on ECT and the tensions nurses can encounter when treatment, distress, consent and maintaining trust come together.

For me, this part raised the importance of honest communication. People receiving care and their families need opportunities to ask questions and explain their experiences.

Cognitive approaches and integrating knowledge

Jim went on to discuss cognitive and behavioural approaches, including CBT, and referred to Eric Berne’s Transactional Analysis.

He explored how different approaches contributed ways of understanding thoughts, feelings, behaviour and interactions.

A distinction he emphasised was between selecting an approach with a clear understanding of its purpose and trying different techniques without knowing why.

That linked his historical discussion directly to training and supervision. Nurses need opportunities to understand the approaches they use and reflect on how they fit the person and situation.

From institutions to community care

Another part of Jim’s timeline considered the movement away from large institutions towards community services.

He questioned whether changing the location of care always changed the experience of it. His examples invited reflection on whether institutional habits could continue in smaller settings.

He also discussed changes in service organisation, care coordination and the development of more specialised approaches.

As a carer activist, I found this relevant to what happens when care moves into the community. Families may take on substantial responsibilities, so services need to understand what support is actually available at home.

The “golden thread”: relationship and hope

Throughout the historical discussion, Jim returned to the therapeutic relationship as a “golden thread.”

Models, treatments and service structures change, but the ability to build a relationship remains central to mental health nursing.

He also spoke about hope: the importance of entering a situation believing that progress is possible and helping someone hold onto that possibility.

Towards the end, the discussion returned to creativity, imagery, drawing, music and shared activity. This connected with Hannah’s embroidery and the poetry that opened the day.

For me, Jim’s session explained why the history mattered. It encouraged nurses to understand the foundations of their work, recognise the value of their therapeutic role and use their knowledge deliberately.

My afternoon carers and families workshop

After lunch, I led a workshop using three fictional scenarios.

I wanted participants to explore situations that many families will recognise: uncertainty about confidentiality, assumptions about a relative’s behaviour and expectations placed on carers when someone returns home.

The scenarios encouraged discussion about what staff could do, what they needed to understand and whose voice might be missing.

Confidentiality and a mother’s concerns

One scenario explored a mother’s concerns alongside her son’s wish for independence and limits on family involvement.

Participants discussed how to understand his preferences while still making space to hear her observations and offer support.

They considered the distinction between receiving information from a relative and sharing someone’s confidential information.

The feedback also recognised the mother’s own wellbeing. Supporting her meant acknowledging her relationship with her son and the strain she might be experiencing.

Questioning the word “demanding”

Another scenario explored assumptions about a family, unfamiliar clinical language and the importance of faith.

Participants challenged the description of a relative as “demanding.” They asked what might be behind repeated requests for information or meetings.

Fear, confusion and a need for reassurance could all be relevant. Describing someone negatively too quickly could prevent those concerns from being understood.

The discussion also considered asking someone what their faith means to them, using clearer language and arranging conversations around practical circumstances such as employment.

This connected closely with my work on culturally responsive carer inclusion: understanding the individual and questioning the assumptions shaping our response.

Discharge planning and sustainable support

The third scenario concerned a wife facing substantial expectations when her husband returned home.

She had work commitments, health difficulties and disrupted sleep, yet the proposed arrangements relied heavily on her.

Participants questioned that assumption and discussed the need to understand both partners’ concerns, identify professional responsibilities and consider support for the carer herself.

For me, this was an essential message: discharge planning needs an honest conversation about what a carer is willing and able to do.

Love and concern do not remove exhaustion or create unlimited capacity.

Keeping the learning going

The wider afternoon programme included PSI in Sussex, the Sussex Partnership Recovery College and discussion about a community of practice and peer support.

These themes connected with concerns raised earlier: staff need support to continue developing and using their skills after training ends.

I hope that ongoing learning also continues to include the experiences of people receiving care and the relatives and friends supporting them.

Thank you

My thanks to Dr Ali Smith, the organising team, the Royal College of Nursing contributors and everyone who took part.

I appreciated the opportunity to bring poetry, caring experience and practical scenarios into the day.

The conference offered space to consider where mental health nursing has come from and what needs protecting as it develops.

For me, that includes time to listen, the confidence to build relationships and a commitment to seeing carers as people whose knowledge and wellbeing matter.

More Than Carers: Voices & Verses Brings Poetry, Art and Connection

On Tuesday 20 October 2026, we came together at Cygnet Churchill and online for our third Voices & Verses poetry and art event and our first delivered in a hybrid format.

For me, this was about creating space for people to be seen beyond their caring responsibilities. We are carers, but we are also writers, artists, music lovers, storytellers and people with our own hopes and ambitions.

With Cygnet’s support, the afternoon brought together poetry, art, music and lived experience. Joining online meant that people who could not travel could still contribute, create and share in the occasion.

Beginning with our voices

We opened with introductions and a grounding activity, inviting everyone to share a word describing how they arrived. Togetherness, gratitude, curiosity and openness helped set the tone.

My opening readings included Our Stories Matter and The Carer They Didn’t See. These explored the knowledge and emotions that carers carry, and how easily our contributions can remain unseen.

The discussion that followed reminded us why creative spaces matter. Poetry can communicate something that an assessment or formal meeting may struggle to capture. It allows room for love, uncertainty, frustration and hope, without expecting caring to be presented as an entirely positive experience.

Turning kindness towards ourselves

Our first art activity invited us to offer ourselves some of the kindness we so often give to others.

Using paper hearts, postcards, colours and decorations, participants created personal messages and images. Those joining online could take part with paper and pens at home.

It was a simple invitation, but a meaningful one: take a moment to make something for yourself. The artwork became a reminder that our own feelings and needs deserve attention too.

Finding poetry in unexpected places

Next came the word-hat poetry activity, using prompts, colours, images and words to spark ideas.

Starting points included autumn, a favourite colour, a happy place and the way music makes us feel. Short poems emerged about nature, memories, everyday life and imagined scenes.

There was laughter as well as reflection. Nobody needed to produce a polished poem or make their words rhyme. A few lines were enough to begin.

One of the prompts invited us to begin with “Music helps me…” This was my response:

Music helps me to feel fine,
As long as the right rhythm is on time.
My emotions will be mine,
No longer feel bad.
It helps the sun to shine,
Now and for all time.

— Matthew McKenzie

A simple starting line became an opportunity to express something personal. That is part of what Voices & Verses offers: space to discover our creativity and be seen beyond our caring responsibilities.

This part of the afternoon captured something I want Voices & Verses to encourage: our creativity does not have to revolve entirely around caring. We can write about whatever interests, moves or amuses us.

Making space for connection and inclusion

A break and refreshments kindly provided by Churchill gave those in the room time to talk and appreciate the work taking shape around them.

Running through the programme was the importance of voice, identity and respect, reflected in the planned Patient and Carer Race Equality Framework (PCREF) poetry prompts. What helps us feel heard? What do we wish others understood? What hopes do we bring to care?

From my lived experience perspective, inclusion means making room for people to express themselves in their own way. Culture, background and personal experience all shape our stories. Creative activities offer another way for those stories to be recognised.

Sharing music and creating the covers of our lives

The music section brought us together for a singalong to You Are My Sunshine, welcoming voices from the room and online.

We then moved into the cover-art activity. Participants thought about songs that resonated with their lives or reflected how they were feeling, before creating artwork for an imagined personal playlist.

Some used recognisable images; others expressed themselves through colour and abstract patterns. Conversations about favourite songs opened up memories and connections between people.

The activity showed how closely poetry, music and visual art can speak to one another — and how differently each of us can interpret the same starting point.

Closing with reflection

The final sharing and closing circle gave us time to look at the artwork, hear reflections and consider what we would take away.

Participants valued the variety of activities and the opportunity to try something unexpected. Online contributions also highlighted why access matters: travelling can be difficult alongside caring, work and other commitments.

Our first hybrid event involved learning as we went, but it opened another route into the group. People could be part of the afternoon without being physically at Cygnet Churchill.

I left feeling proud of what we had created together. This was lived experience expressed through imagination, humour, culture and connection. It was a reminder that carers have talents and identities that deserve space to grow.

PCREF Poetry: Race, Mental Health and Unpaid Carers

Poetry by Matthew McKenzie — exploring caring, identity, belonging and the need to be heard.

Welcome to my PCREF poetry project. Through poetry and filmed readings, I explore the experiences of unpaid carers, particularly Black and other ethnic minority carers supporting someone with mental ill health.

The poems open conversations about racism, cultural understanding, trust and the relationships between families and mental health services. They also celebrate creativity, community and the people behind the caring role.

Why PCREF and Poetry?

PCREF stands for the Patient and Carer Race Equality Framework.

For me, connecting poetry with PCREF means making space for experiences that can be difficult to express in meetings, assessments or formal feedback. A poem offers another way to speak about feeling excluded, finding support or wanting services to understand your family.

These are personal and creative contributions to conversations about race equality and carer inclusion. My hope is that they encourage people to listen, reflect and consider what needs to change.

Start Here: A Featured Poem

Creativity as the Expression — Poem 41

How do we explain our caring experiences when the words used in meetings, assessments and care plans do not quite capture what we want to say?

This poem explores creativity as a way of finding a voice and sharing experiences of caring.

Reflect: How can we make more room for carers to express themselves in their own way?

Explore the PCREF Poetry Collection

Explore my published poetry about race, mental health and unpaid caring. Click a poem’s title to watch it on YouTube.

PoemWatch on YouTube
4Who Is
9Today I Prayed
11Fear Has Roots
16We Look After Each Other
29Nothing About Us Without Us
30Language as Comfort
37Our Stories Matter
41Creativity as the Expression
46My Anger Without Permission
49Gatekeeping Care
53Racial Inequality in Mental Health

The poem numbers identify pieces within the collection. More video links will be added as this page develops.

More Poetry

Unpaid, Unseen and Yet Unbroken

Explore another spoken-word reading from my wider poetry project recognising ethnic mental health carers’ experiences.

Poetry in Action

Voices & Verses — PCREF Carer Poetry Event

See how poetry brings carers together through creativity, shared experiences and conversation.

Browse more videos on A Caring Mind

Visit A Caring Mind on YouTube to explore the poems

You can find a particular reading by searching for its title within my channel.

More Poetry and Shared Readings

Alongside the numbered poems above, you can also find:

  • Unpaid, Unseen and Yet Unbroken
  • The Carer They Didn’t See
  • Hope That Feels Real — Poem 80, performed by Matthew McKenzie and Jo Lambert

These readings form part of my wider work using poetry to recognise unpaid carers’ experiences and create opportunities for expression.

Poetry in Action: Voices & Verses

Poetry can bring carers together as well as help individuals find their voice.

My channel also includes poetry event recordings and community activities, including Voices & Verses — Carers Poetry Event: PCREF in Action.

If you would like to find out about joining a carer poetry group or referring carers to a session, please get in touch.

Use a Poem to Begin a Conversation

Carer groups, PCREF networks, staff teams, libraries and community organisations may find these poems useful as starting points for reflection.

Choose a poem, watch or listen together, and consider:

  • What words or images stayed with you?
  • What does the poem prompt you to consider about carers’ experiences?
  • Whose voices might be missing from your service or group?
  • What practical change could help carers feel heard and included?

Allow people to choose whether to share their own experiences. Listening is a valuable form of participation too.

Further Learning

For those interested in exploring the wider issues, my YouTube channel also includes:

  • Listening Differently to Black Carers with Poetry, and PCREF
  • Putting the C (Carer) into PCREF — Triangle of Care & Racial Equity in NHS Mental Health
  • Triangle of Care Through an Anti-Racist Lens: Are All Carers Equally Heard?
  • Hard to Reach or Easy to Ignore — Ethnic Mental Health Carers
  • Why Black Carers Struggle to Access Mental Health Support

These presentations offer further opportunities to consider race equality, lived experience and meaningful carer involvement.

About Matthew McKenzie

I am Matthew McKenzie, an unpaid carer, carer advocate, author and poet.

My work draws on my lived experience of supporting family members and my commitment to improving recognition and inclusion for unpaid carers. Through A Caring Mind, I bring together caring, mental health, race equality and creative expression.

Poetry gives me another way to raise questions, share experiences and encourage conversations that might otherwise remain unheard.

Sharing, Enquiries and Getting Involved

You can support the project by sharing this page or links to the original videos with carers, colleagues and community networks.

Please credit Matthew McKenzie / A Caring Mind when sharing links. For permission to reproduce poems, include them in publications or training materials, or arrange a reading or workshop, please contact me through this website.

I welcome enquiries from carer centres, NHS teams, PCREF leads, libraries, arts organisations and others interested in creating more space for carers’ voices.

Watch and subscribe to A Caring Mind on YouTube

Carers’ experiences deserve to be heard. Poetry offers another way to listen.

Creativity as the Expression – Poem 41: Finding a Voice Through Poetry

How do we explain our caring experiences when the words used in meetings, assessments and care plans do not quite capture what we want to say?

My latest PCREF poetry video, “Creativity as the Expression”, reflects on this question. It is Poem 41 from my upcoming poetry book, Unpaid, Unseen and Yet Unbroken, which explores the experiences of ethnic minority unpaid mental health carers.

When the words are difficult to find

As an unpaid carer, there can be times when you know what you have witnessed and understand what worries you, yet struggle to explain it in the language expected by services.

You might leave a meeting thinking about everything you wanted to say. The emotional weight of caring, family history and the everyday changes you notice do not always fit neatly into an assessment or a short conversation.

This poem begins with that struggle:

I struggle to speak the clinical language
I stumble on that path
but over the years I found a new way to express myself
Using that creativity as expression

For me, poetry offers space to find those words and express them in my own way.

Writing to cope, express and reveal

Writing gives me time to reflect on experiences that can be difficult to speak about. It allows feelings, memories and questions to take shape without the pressure of having to explain everything at once.

In the poem, I describe poetry as an art that helps me stay whole. That matters because carers also need opportunities to express who we are and how caring affects us.

Our creativity can reveal parts of our lives that others may never see during a meeting.

Reclaiming our own stories

Carers are often described through records, professional conversations and decisions made within services. Having the opportunity to tell our own stories matters.

“Creativity as the Expression” explores that wish to make the caring role visible and reclaim the narrative. Poetry allows us to speak from our own standpoint, using words that carry meaning for us.

It can also open a conversation. A poem may help someone pause, ask a question or recognise an experience they had not previously understood.

A connection to PCREF

My PCREF poetry work draws attention to the voices of ethnic minority unpaid mental health carers. PCREF stands for the Patient and Carer Race Equality Framework.

Through this poem, I want to encourage reflection on whose voices are heard and which forms of expression are valued. Confidence with professional language should not determine how seriously a carer’s experience is taken.

The poem imagines creativity as a bridge: a way to communicate experiences that might otherwise be difficult to explain or record. For that bridge to work, there must also be a willingness to listen.

One voice can become many

The final verse moves from personal expression towards community:

My creativity will reveal that experience
My lived experience
I will share it back to others
Back to the community, where one voice can become many

Sharing a poem can help another carer recognise something from their own life. It can create a moment of connection and give others encouragement to share their experiences too.

I hope this video offers that invitation.

Watch the poem below, and please like, share and subscribe to A Caring Mind for more poetry and unpaid carer voices.

Watch “Creativity as the Expression” on YouTube

Please also keep an eye out for my upcoming poetry book, Unpaid, Unseen and Yet Unbroken.

Has poetry, art, music or another creative activity helped you express your caring experience? You are welcome to share your thoughts in the comments.

National Ethnic Mental Health Carer Forum: September Update 2026

By Matthew McKenzie – Chair, National Ethnic Mental Health Carers Forum

Welcome back to A Caring Mind. September’s National Ethnic Mental Health Carers Forum brought together unpaid carers, NHS professionals, researchers and community representatives to discuss racial equality, community involvement and support for families.

The forum connects carers’ lived experience with organisations working to improve services. It provides opportunities to ask questions, share approaches and challenge barriers affecting ethnic minority carers and those they support.

Continue reading →

Supporting someone with psychosis? Share your experience through the OSMOSIS study

Welcome to another update from A Caring Mind. I am sharing a research opportunity for unpaid carers who support someone with psychosis and live in Hackney, Tower Hamlets or East Sussex.

As someone with lived experience of caring, I know how much attention can focus on the person receiving care, while the support needs of family members and friends remain less visible. Listening to carers can help us understand what happens when we reach out for support ourselves.

The OSMOSIS project is exploring carers’ experiences of support to inform the development of resources and actions to support carers.

Whose voices are needed?

The research team would particularly welcome interest from carers from minoritised communities, who are currently underrepresented in the study.

This matters to me because carers’ experiences can differ across communities. Creating opportunities for people to share those experiences can help bring overlooked needs and barriers into view.

The study is only recruiting carers who live in Hackney, Tower Hamlets or East Sussex. Within these areas, the team would like to hear from people who meet all the criteria below.

Who can take part?

You may be eligible if you:

  • Provide unpaid support for a family member or friend with psychosis.
  • Are aged 18 or over.
  • Live in Hackney, Tower Hamlets or East Sussex.
  • Have tried to seek out, or have received, support for yourself.

You do not have to use the word “carer” to describe yourself. You might simply see yourself as a brother, sister, parent, partner, relative or friend who provides unpaid support.

What does taking part involve?

Taking part involves a 90-minute interview, either online through Microsoft Teams, over the phone or in person, depending on your preference.

Participants will receive a £20 voucher of their choice.

The study flyer states that your information will be kept private and you will not be identified in any outputs.

How to find out more

If you are interested in participating, or would like to ask questions before deciding, please contact:

Dr Evelyn Callahan
Email: evelyn.callahan@citystgeorges.ac.uk
Phone: 07341 492068

The study flyer accompanies this post with further details.

Please share this opportunity with eligible carers and local networks in Hackney, Tower Hamlets and East Sussex, particularly networks reaching carers from minoritised communities.

Carers’ experiences deserve to be heard—including our experiences of seeking support for ourselves.

Tackling Mental Health Inequalities Together: An Evening with Kent and Medway

By Matthew McKenzie – Chair of Ethnic MH Carer forum

On Thursday 15 October 2026, I attended an evening event hosted by Kent and Medway Mental Health NHS Trust, bringing together staff, community representatives, faith voices and people with lived experience to discuss racial inequalities in mental health care, although I attended as Chair of the National ethnic mental health carer forum, It was also lovely to be joined by Beata Bikowska and Tina Stevens from Cygnet Hospital Maidstone, alongside NHS colleagues and community partners, for this important conversation on tackling mental health inequalities.

Continue reading →

Making carers visible: World Mental Health Day at King’s College Hospital

By Matthew McKenzie – Carers UK Ambassador, chair of South London Carers Forum

On Thursday 15 October 2026, I attended the World Mental Health Day Fair at King’s College Hospital in Denmark Hill. Organised by the hospital’s Vulnerabilities Team, the event brought together organisations sharing information about mental health, wellbeing, recovery and community support.

I was there as a Carers UK Ambassador and facilitator of the South London Mental Health Carers Forum. For me, attending these events comes from personal experience. Having cared for my late mother, who lived with schizophrenia, I know how much responsibility families can carry, and how easily their own needs can go unnoticed.

Continue reading →

Triangle of Care Community Meeting: October 2026 Update

By Matthew McKenzie – Triangle of Care Community Group Chair

Turning carer involvement into meaningful change

On Monday 12 October, I chaired the latest Triangle of Care Community Group meeting, bringing together unpaid carers, mental health professionals and partner organisations to share experiences and learning.

Our discussions explored what meaningful carer involvement looks like, developments within the Triangle of Care programme, and the support carers should be able to access. We heard encouraging examples of co-production, alongside honest accounts of gaps that continue to affect families.

Continue reading →

Finding our voices through poetry with Imago carers

On Tuesday 13 October 2026, I facilitated a carers’ poetry session at Ignition Brewery in Lewisham, supported by Imago. We explored our surroundings, shared thoughts about poetry, and used drawings to express feelings through words. What mattered to me was giving carers space to create and hear one another.

I began by sharing how writing became part of my own caring journey. As a former carer for my mother, who lived with schizophrenia, and an ongoing carer for my two non-verbal autistic brothers, I know how difficult it can be to explain what caring involves. Writing books helped me raise awareness, while poetry gave me another way to communicate experiences and emotions in a few lines.

Continue reading →