Recommended Carer books

10 Helpful Hints for Carers: Practical Solutions for Carers Living with People with Dementia – June Andrews, Allan House

A Carer's Chaos - Julie Nancy Wiltshire

10 Helpful Hints for Carers is an easy-to-read guide for carers living with people with dementia. It provides simple, practical solutions to the everyday problems family carers can face when looking after a person with dementia.

A Carer’s Chaos – Julie Nancy Wiltshire

10 Helpful Hints for Carers Practical Solutions for Carers Living with People with Dementia

When Julie Wiltshire’s husband, David, was diagnosed with cancer twice, he faced a series of treatments made all the more difficult by multiple complications. In A Carer’s Chaos, Julie records the details of David’s long journey of cancer treatment, but also offers a unique perspective into life as a carer to a loved one, exploring the love, hate, anger, loneliness and fear experienced on a daily basis by a carer.

A Carer’s Odyssey – Anna Chan

A Carer's Odyssey - Anna Chan

In the first part of A Carer’s Odyssey, Anna Chan describes how she and her husband Jeff were devastated 16 years ago by the diagnosis of their daughter Emma’s severe neurological disorder, called Rett Syndrome.

A Gift for Carers – William Long

A Gift for Carers - William Long

This book was written following the author’s personal struggle with the psychological and physical pressures of caring for his mum. His experiences and research led him to develop a solution which counters the devastating effects of what the medical world refers to as “Caregiver Syndrome.” He identifies seven areas that make for a joyful life.

A Gradual Disappearance – Elizabeth Lonseth

A Gradual Disappearance - Elizabeth Lonseth

“Dementia is like a maze. Its victims get lost in the labyrinth of their own minds, bringing confusion and despair to themselves and to others around them. Families watch helplessly as their loved ones drift further and further away from reality, and when decisions are made, emotions often get in the way of what is really necessary.” – Dr. Sameh Elsanadi, MD Geriatric Psychiatrist

An Introduction to Coping with Depression for Carers – Tony Frais

An Introduction to Coping with Depression for Carers

Looking after a person with depression can often leave carers emotionally and physically exhausted. This short, straightforward and easily understandable guide offers valuable advice on how carers can

BMA Carer’s Manual – British Medical Association

BMA Carer's Manual

Endorsed by the British Medical Association, this is the definitive guide to caring for the elderly or sick, offering practical advice and solutions for everyday concerns such as adapting living space and safe movement and handling. Step-by-step sequences explain essential activities such as helping someone in and out of a chair and special features focus on topics relating to common conditions.

Carer’s Bible – Amanda Waring

Carer's Bible

This accessible and detailed guide includes practical tips, checklists for best practice, descriptions of their experience from a wide range of carers that addresses solutions to common problems, and expert advice on how to deliver compassionate and dignified care to older people.

Caring for a Loved One with an Eating Disorder – Jenny Langley, Janet Treasure, Gill Todd

Caring for a Loved One with an Eating Disorder

Caring for a Loved One with an Eating Disorder: The New Maudsley Skills-Based Training Manual provides a framework for carer skills workshops which can be used by anyone working with these conditions.

Confidence to Care: A Resource for Family Caregivers Providing Alzheimer’s Disease Or Other Dementias Care at Home – Molly Carpenter

Confidence to Care A Resource for Family Caregivers Providing Alzheimer's Disease Or Other Dementias Care at Home

Confidence to Care is the essential handbook for the family caregiver offering practical insights to understanding, managing and preventing the behavioral symptoms associated with dementia and Alzheimer’s disease. Touching, personal stories come together with practical and easy-to-access tips and techniques drawn from decades of caregiving experience by internationally-recognized experts.

Guide to Mental Health for Families and Carers of People with Intellectual Disabilities – Geraldine Holt, Anastasia Gratsa, Nick Bouras

Guide to Mental Health for Families and Carers of People with Intellectual Disabilities

A practical and comprehensive introduction for carers to mental health problems, this accessible guide outlines a range of signs and symptoms of mental health problems that can affect people with intellectual disabilities. The guide explains why mental health problems develop, and advises on what can be done to help people with intellectual disabilities and carers themselves.

Living with Dying: A Complete Guide for Caregivers – Jahnna Beecham, Katie Ortlip

Living with Dying A Complete Guide for Caregivers

  • This easy-to-use guide for caregiving instructs you how to:
  • Have the conversation
  • Navigate the emotional and spiritual journey
  • Control pain
  • Address symptoms
  • Work with hospice
  • Care for yourself
  • Get your loved one’s affairs in order

Mindfulness for Carers: How to Manage the Demands of Caregiving While Finding a Place for Yourself – Cheryl Rezek

Mindfulness for Carers How to Manage the Demands of Caregiving While Finding a Place for Yourself

Carers are particularly vulnerable to feeling stressed, worried and worn down by the vast demands that often come with caregiving, be they physical, psychological or emotional. Mindfulness can be enormously beneficial to carers, whether professional or voluntary, as a means of developing greater inner stability, resilience and gaining more control over their thoughts, feelings and emotions.

No Saints Around Here: A Caregiver’s Days – Susan Allen Toth

No Saints Around Here A Caregiver's Days

When we promise “in sickness and in health,” it may be a mercy that we don’t know exactly what lies ahead. Forcing food on an increasingly recalcitrant spouse. Brushing his teeth. Watching someone you love more than ever slip away day by day. As her husband James’s Parkinson’s disease with eventual dementia began to progress, writer Susan Allen Toth decides she intensely wants to keep her husband at home—the home he designed and loved and lived in for a quarter century—until the end.

Self-Care for Caregivers: A Twelve Step Approach – Pat Samples, Diane Larsen, Marvin Larsen

Self-Care for Caregivers A Twelve Step Approach

For those serving as a caregiver for a loved one, the authors of this down-to-earth, encouraging book can help you make the most of the experience without losing yourself in the process.

Supporting Families and Carers: A Nursing Perspective – Mary E. Braine, Julie Wray

Supporting Families and Carers A Nursing Perspective

Understanding the perspective of carers is an essential aspect of nursing. Supporting Families and Carers: A Nursing Perspective offers insights into the fundamental principles of caring for families and carers irrespective of age, gender, ethnicity, sexuality or religion.

Take Care, Son: The Story of My Dad and his Dementia – Tony Husband

Take Care, Son The Story of My Dad and his Dementia

Hi Dad . . . can we have a chat about your dementia . . . Can you remember how it started?
When Ron Husband started to forget things – dates, names, appointments . . . daft things, important things – it took a while to realise that this was ‘a different form of forgetting’. But it was just the first sign of the illness that gradually took him away from the family he loved.

The Carer’s Handbook: Essential Information and Support for All Those in a Caring Role – Jane Matthews

The Carer's Handbook Essential Information and Support for All Those in a Caring Role

This indispensable guide aims to be a one-stop-shop for the huge percentage of the population who, now or later, find themselves in a caring role, whether that involves shopping for a housebound neighbour, or giving up work to care full-time for a disabled child or confused parent.

The Complete Carer’s Guide – Bridget McCall

The Complete Carer's Guide

There are around six million carers in the UK, a figure estimated to reach nine million by 3037. Being a carer can be rewarding, but it is often stressful and exhausting: it involves a range of tasks, such as providing personal care, managing medication and ensuring that the needs of the person being cared for are met. This practical, much needed guide discusses how to ensure that you have a life of your own while caring, how to make informed decisions and, most importantly, how to access the support and help you need.

The Essential Carer’s Guide – Mary Jordan

The Essential Carer_s Guide

Illustrated with individual case stories, this book covers physical, social, and financial needs, across the stages of immediate, intermediate and advanced care. It is useful as a practical companion for those caring for, or responsible for the care of, an elderly friend or relative.
The Selfish Pigs guide to caring – Hugh Marriot

The Selfish Pigs guide to caring

Over six million people in the UK…provide unpaid care for disabled or elderly relatives, friends or neighbours. Their job is long, lonely and hard, yet there is limited support and no formal training. As a result, carers suffer frequent damage to physical and mental health. Oddly, though carers by definition are anything but selfish pigs, they are liable to feelings of guilt, probably brought on by fatigue and isolation.

Where There is No Psychiatrist: A Mental Health Care Manual – Vikram Patel

Where There is No Psychiatrist A Mental Health Care Manual

Even though mental illnesses are common and cause great suffering in every part of the world, many health workers have a limited understanding about mental health and are less comfortable dealing with mental illness. This book is a practical manual for mental health care for the community health worker, the primary care nurse, the social worker and the primary care doctor, particularly in developing countries.

Young Carers and their Families: Working Together for Children, Young People and Their Families – Saul Becker, Jo Aldridge, Chris Dearden

Young Carers and their Families Working Together for Children, Young People and Their Families

Young carers are children and young people under the age of 18 who provide care for an ill or disabled parent or relative in the community, usually within their own home. They perform many of the same domestic, caring and other duties as adult carers but often without the recognition and support received by many adult carers.

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Influential poem from Patrick Lee

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Welcome one and all to a new blog for the month of August. I have to apologise for not putting anything up for some weeks now since I have been really busy doing a lot of carer campaigning. To be honest I have not had much time to provide feedback from the 4 carer forums in South London.

I have also just recently come back from a lovely forum held over in West London, from the West London Collaborative, they do excellent work over there helping to build communities.

Going back to this particular post, I want to dedicate this blog post for its creative content. A while ago I met Patrick who provides peer support for those using the mental health services. He spoke to me how he used the power of poetry to help others express themselves. Poetry can be very creative and powerful in a non-combative way. Sometimes just saying things is hard enough, but if we use the power of poetry then anything is possible.

I have recently created a video about one of his poem’s which is from his book “The Nearly Man”. The Poem from the video is called “Cardboard City Dweller”. You can watch the full video below

 

Patrick has released several books of poetry, let me know if you want to try catch him in order to hear more about his work. I hope to do some more blogging real soon.

Thanks for dropping by.

Southwark MH Carers Forum June 2018

Dg3QQzpUYAAo2uyWelcome to June 2018 update from the Southwark mental health carers forum. As a reminder the mint of carers forums give unpaid carers in care for someone suffering mental health needs a chance to get updates and query mental health services and also services aimed at unpaid carers. One of the things that is important to note is that the forms allow empowerment to unpaid carers.

For this particular form over at Southwark carers, we were lucky to have the Labour MP helen Hayes attend the forum to present a new report published jointly by the Health & Social Care and the Housing, Communities & Local Government Select Committees on the long term funding of adult social care.

At the forum we all admitted that the social care system is broken. There are quite a few reasons why social care is struggling to support those in desperate need. One of the things that has been causing a lot of problems is the austerity effect. We felt that the current government seems to be dragging its heels on supporting and protecting the rights of unpaid carers.

If that wasn’t hard enough we have a double blow in regards to the ‘cared for’ where hospitals are struggling with funding, delayed hospital discharges, difficulty with mental health patients getting support and the rotating door system. All of this applies added pressure on families and unpaid carers who are trying their best to care for their loved ones.

Comforting friend. Woman consoling her sad friend.

The select committee which Helen Hayes is a member of is a cross party initiative that includes a Citizens jury. The committee looked at funding and who should fund social care. The committee also queried what social care should look like.

Too often the poorest in Society are asked to pay for social care that cannot often reach them. Above all they should be transparency not just in social care but within the NHS. It is so important that families and carers are given the support in order to care for their loved ones rather than being pushed out by care workers.

The forum also discussed the integrated social care system where are the city of Manchester has set an example for others to follow.

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The MP felt glad that such a forum is up and running since she felt the current government has failed to give unpaid carers a voice and she will do all she can in order to support the mental health carers forum. We also discussed carers assessments and who should attend the forum.  Unfortunately Southwark Council representatives were due to attend the forum, but were unaware the time had changed.

In future we can send out posters where the MPs can help publicise and support the forum.

MH Forum V2

This concludes the update for June 2018 Southwark mental health carers forum.

Lambeth MH Carers Forum update June 2018

20140710_143445Here is the update for the Lambeth mental health carers forum held over at 336 Brixton road. This forum alternates in time, so that carers can I do attend during the daytime or evening.

For this particular forum we had two people engaging with the members. The first being Steve badger who is the clinical lead for the Lambeth home treatment team. Home treatment teams are very important in regards to introducing is service user or patient back into the community, but how does this work with families and carers?

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Steve badger explained how the home treatment team worked. He took time to talk about the structure of the home treatment team over in the borough of Lambeth. A lot of discussions centered back onto the “place of safety ward”, this is because a lot of the members were interested in how people were introduced to the service especially in Crisis.

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As usual bed management was often talked about at the forum because there’s a lot of worrying on how patients are introduced to the service not just on me how they end up back into the community. A fair bit of discussion was on consent especially when the patient ends up back home with the family how would the home treatment team engage with the carer?

Steve kindly explain other useful support which carers or patients can use especially the 24-hour Slam helpline and also using the “Living Well network”. There was also some discussion on the new structure changes wear Slam is going back to Borough based services. We look forward to hearing more about the new structure in future forums.

The next speaker at the june lambeth mental health carers forum was Bobby Allen from “carers 4 carers”.

Carers 4 Carers is a charity group set up in Lambeth to offer care services for those who themselves care for their disabled, sick and elderly loved ones. Carers 4 Carers was set up by and is run by Carers and ex Carers. Who want to use their skills and experience of caring to support other Carers.

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Bobby explained how carers get together and exchanged ideas we found out that “carers 4 carers” is a great place to relax socialize and network with other carers. The Lambeth charity is running several initiatives one of them is called “inspirational champions”, which looks at confidence building. Another project is called “Viva”, which concentrates on carers you are over 50 and allows them a chance to exercise and go on trips. The charity has one funding from “Sports England” in order to get more carers to become active.

Carers 4 Carers have been running sessions at the Oval and Dulwich Sports Centre. The charity is based at Brixton recreational centre. You can find out more about Carers 4 Carers at the following link http://www.lambethforestnetwork.org.uk/carers-4-carers/

Next was a discussion on the recent Slam Carers listening event. This took place on the 27th of June 2018 over at Coin Street Community Centre in Lambeth. To make it easier have broken down the discussion into bullet points

  • Those who attended liked the main speaker who was speaking about planning for the future and where interested in the pack provided by Birmingham & Soulihill NHS Foundation Trust, which led to a discussion on its content and the empowerment carers got to implement changes with support from the Trust, clinicians and Council.

 

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  • They also enjoyed the workshop so especially on confidentiality and being shown in the short film.
  • Some felt the medication workshop with was good but a bit too presentational.
  • Although I could not attend in the afternoon I heard a lot about what people thought regarding the panel of question and it was good to see the chief exec attend.
  • We felt it was a shame that few carers from the borough of Lambeth could only attend.
  • Plus the events seem to lack a way to discuss on tables with carers and staff.
  • Some felt that the confidentiality film was a bit too staged.
  • One carer was unhappy that her question was not asked during the panel debate.

Moving away from the recent carers listening event, I updated the Lambeth carers forum on a new carers support group being set up over at Lambeth Hospital. We hope that the carers support group can link into the Lambeth carers forum. In regards to other updates for the Lambeth mental carers forum is that members are looking forward to updates from Lambeth Healthwatch, updates from health Locker advisory board meeting and one of the Lambeth MPs attending the Forum in future.

This concludes the update for the Lambeth mental health carers forum for June 2018.

Lewisham MH Carers forum June 2018 update

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Here is the June 2018 update for the Lewisham mental health carers forum. We had a visit from the involvement lead for Croydon and Lewisham. With support from south London and Maudsley NHS trust, the purpose of this forum is to see who will engage with the forum throughout the year and beyond.

 

The Forum looks forward to the Deputy Director of the Crisis Services Psychological Medicine Management lead attending the forum in July. Members of the forum were also pleased to hear that in future in Lewisham Execitive would also drop by to explain about service updates and engage with the members.

We were also pleased to hear that a lead from the “Centre for Anxiety disorders and Trauma” would engage with the forum in October.

In regards to Triangle of care policy launched for NHS trusts, no new applications are taking place for Trusts to join. We hope that in September there will be a review and an update regarding applications to join the policy.

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Last month the forum members were interested in the staffing structure at the NHS Trust particularly in Lewisham. Due to the recent structure changes the NHS Trust will update the forum once job posts have been filled.

Members of the forum also wanted a carers handbook to be placed at GP surgeries across the borough of Lewisham, however due to funding issues this cannot be possible although Lewisham CCG have kindly put information about carers in the GPS newsletter.

After the discussion with the involvement lead carers had a group discussion regarding problems carers are currently facing. We discussed the following issues:-

1. GP not always understanding carers in regards to the ‘cared for’ being referred to services.
2. The lack of respite and breaks for carers.
3. The lack of emergency respite.
4. The lack of carer activities.
5. Limited education on carers rights.

Members of the forum were wondering what on earth happened to the borough of Lewisham carers strategy considering other boroughs have their own carers strategy.

Lastly members were very pleased with the involvement lead working so hard to support the forum. We hope to hear from the lead soon.

This concludes the update for the June 2018 Lewisham mental health carers forum.

 

Lewisham BME MH Carer/SU Forum June Update 2018

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Hello everyone, welcome to the latest update for the Lewisham BME mental health carers forum. This forum took place on the 29th of June over at Family Health Isis. This particular forum has been running since last summer 2017.

There has been changes at the South London and Maudsley NHS Foundation trusts structure where they are moving towards borough based services. The members of the forum were interested in how the changes would reflect on services. So the main aim of the forum that particular Friday was to try and discuss who the members would like to have engaged with on future forums.

The members of the forum were hoping that the mental health police lead for Lewisham would attend, however that has been moved to month of October. The members are interested to hear about the Mental Health Act and centralised place of safety, but emotions are strong regarding the recent death of Kevin Clark, who also was a member of Family Health Isis.

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Members was interested from hearing about how carer leads over at the Ladywell unit were engaging with families and carers. Members of the forum were wondering if there would be a carers lead in the borough. Others were interested too see if a medical director for Lewisham would engage with the forum.

One member is very active with Lewisham Mind and wants them to engage with the forum. There was a discussion on how Lewisham Mind works with the BME community. There was also a discussion regarding NHS staff morale within Lewisham so the forum would like to hear from HR this is because of the worry of bank staff not knowing what is going on.

Management from Family Health Isis would also like senior managers from lewisham CCG to engage with the forum, although they were happy that lewisham CCG is working hard with service users there should be some engagement for BME Family and carers.

The forum is pleased to hear that a carers support group will eventually take form over at the Ladywell unit in the coming months. This concludes the update from the Lewisham BME mental health carers forum.

Carers week 2018

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Hello everyone welcome to your new blog for Matthew McKenzie a carer from South London. Now as of this blog it is carers week 2018. Carers Week is an annual campaign to raise awareness of caring, highlight the challenges carers face and recognise the contribution they make to families and communities throughout the UK.

For this year carers 2018 looks to address caring in the community as where carers can come connected to the community and also keeping carers healthy. It is quite common to know that carers can also be isolated and caring for someone that they have known for most of their lives or at least someone special.

We all want a caring Society so that’s why it is so important and continue to address that carers can be connected to the community.

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1. Make sure carer centers are still active in the area so at least carers have a safe space to go and get support and advocacy.

2. Make sure staff are trained to be carer aware and engage with carers and unknown carers as much as possible.

3. If you know of any carers or your close to someone who is currently carer, it does not hurt to give them a call to see how they are doing.

4. A good one is to make a Pledge on the ‘carers week’ website. https://www.carersweek.org/get-involved/pledge-support.

5. Educate carers on how they can keep fit and healthy so in order that they can care for others it is important that carers care for themselves.

6. Reward organisations that make a continued effort to raise the profile and support of carers so it can sit a good example to other organisations for instance GP practices, NHS trusts or councils.

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It is so important that you raise and continue raise the needs of 6.5 million carers across the country. It is a shame that carers have to Sacrifice so much when their loved ones become unwell. Carers don’t often ask for much so that’s why we should at least give carers some recognition.