Lewisham MH Carers forum May 2020

Welcome to the month of May’s update of the Lewisham Mental Health Carer forum. This is one of the 5 carer groups I run once a month to give carers a chance to find out what is happening to health, mental health and local authority services aimed at carers.

For this month we were joined by South London and Maudsley’s Associate Medical Director Dr Zain Sadiq who is also a psychiatrist. We were also joined by Lewisam’s Wellbeing Map coordinator Tim Bradley. At the forum we had a number of carers as well as carer champions, the modern matron from SLaM’s Ladywell inpatient wards. We also had in attendance the SLaM involvement lead for Lewisham and Croydon as well as Carers Lewisham staff and a representative from POhWER mental health advocacy.

I explained the reasons for the forum being the following.

1. It can be difficult for Carers in Lewisham have an idea on MH services and influencing them.
2. MH carers need some empowerment in their role.
3. Services have suffered from cuts, carers need to act in order to support everyone.
4. There needs to be an engagement platform for carers to discuss issues.

Of course there are many more reasons for the carers forum to run, but the above are at least the main issues. I also view the forum as a way of carers becoming educated about how services run and their progress.

agenda

Talking about services, Dr Zain presented a run down of SLaM’s Lewisham mental health services and how things were progressing.

  • He explained what boroughs SLaM’s MH services covered, being Lambeth, Southwark, Lewisham and Croydon.
  • How SLaM tries to cover all MH conditions for all ages.
  • Dr Zain explained how SLaM has around 4800 staff and treat 64,000 patients a year over 74 sites. SLaM also has National specialist services on eating disorders, Affective disorders and more. Plus SLaM’s services are split between inpatient and community services.

One of the important services Dr Zain mentioned was SLaMs 24 hr crisis line, which carers can also use.

Dr Zain gave a brief overview of SLaM’s Trust staff from the CEO, chair to the medical director, Head of Nursing and how the staff structure is arranged in Lewisham. The carers forum learnt about how important Leadership is for Dr Zain’s role and what he covers in his role, which is management on recruiting, retentionn, line management, junior docctors along with training and teaching.

As the associate medical director for Lewisham, he has around 45 – 50 regular meeting with a focus on complaints and serious incidents. Members of the forum were particularly interested on carer involvement at some of the meetings especially serious incidents and carer complaints. The forum is continuing to query what type of complaints are being raised to the NHS trust from families and carers.

Dr Zain concluded on the challenges faced by Lewisham’s mental health services, due to the COVID-19 virus. Before COVID-19 hit, SLaM lewisham services were working on many projects although I can mention some of what Dr Zain spoke about being

  • Development on the Care process model
  • Dealing with Violence and aggression
  • Community transformation especially working with primary care and the voluntary sector
  • There were projects looking to deal with waiting times
  • Plus continued approaches to being responsive to patient and carer needs.

COVID updates

Dr Zain updated for carers forum on how SLaM is following guidance from NHS England and Improvement, plus following guidance from Public Health England. During the week Dr Zain has remote meetings from other associate medical directors and junior doctors on how the virus is affecting services.

There were several things that had to be done due to COVID-19, although I can only mention some from my notes.

  • They had to move their Emergency Department to avoid transmission of viruses at University Hospital Lewisham. This led to a redeployment of liason teams at the hospital.
  • One of the wards had to be closed incase the beds were needed for covid patients, but has now reopened again.
  • Due to the coronavirus, there has been more complex admissions plus Mental
  • Health Act challenges to address especially regarding leave and discharge.
  • They are working on COVID and non-COVID pathways in regards to patient admission and discharge.
  • There has been a digital transformation not only at SLaM services in Lewisham, but trust wide.

COVID sitrep stats during May

Dr Zain exercised NHS transparancy regarding COVID and reported to the Lewisham MH Carers forum the confirmed cases across SLaM. It is with sad regret to learn 43 patients have died although the forum is not sure if it was ward infections or out in the community. My heart goes out to the families and carers mourning the loss of their loved ones who were already vulnerable before covid-19 hit.

What next?

  • Dr Zain explained that the development of Covid and non-covid pathway are a must.
  • Services of course must resume, but there will be new ways of working.
  • There will be a continued aim at measuring outcomes and quality of care.
  • Engaging and involving Carers and service users
  • Transformation of services and to continue recruitment.

After the talk there was a flurry questions from carers at the forum including

  1. Access to IAPTs due to cuts.
  2. Querying Use of testing patients and staff.
  3. If there will be involvement for carers to attend complaints and serious incident meetings.

I then gave the floor for SLaM’s Lewisham and Croydon patient and public involvement to update the forum on the advisory group developments.

  • The updates were looking for more carers to join SLaMs involvement register
  • Updates on the recent SLaM’s online family and carer’s committee.
  • It was good news to hear that the Croydon mental health carers forum will attempt to run their forum online.
  • Jane the SLaM involvement lead for Lewisham and Croydon also updated us on our queries regarding referrals.
  • Jane reminder the forum of the SLaM’s summit in June, which I have posted below.

Urgent South London Covid-19 Mental Health Prevention Summit
https://www.eventbrite.co.uk/e/urgent-south-london-covid-19-mental-health-prevention-summit-tickets-105809561246

I then updated carers on the following before moving on to the Lewisham’s wellbeing map presentation.

  • A reminder of Carers Week 8 – 14 June 2020
  • Update on Mental Health Awareness Week 2020
  • I asked if members could feedback updates of SLaM carers committee?
  • The Carers UK Corona Virus info

Lewisham Wellbeing map

Next we had a great presentation from Tim Bradley on the development and maintenance of the Lewisham Wellbeing online Map.

wellbeing map

Taken from the wellbeing map’s site.

“The Lewisham Wellbeing Map was established in early 2018 by Tim Bradley, as a way of mapping local and borough wide health and social services in the Lewisham Borough in order to provide easier access for individuals, but also to reduce the pressure on GP’s and Link-workers that are focusing on social prescribing.

The Lewisham Wellbeing Map can be used to find local volunteer groups, neighbourhood support and other nearby services to help people in Lewisham cope during the Coronavirus outbreak”

Tim talked to the forum about how the wellbeing map is adapting the location of services due to the corona virus situation.

lwb map

I managed to give the forum an online demonstration of how the Lewisham wellbeing map worked.

This concludes the May update from my Lewisham MH carers forum.

LSE research on Carer wellbeing

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Research at the London School of Economics and Political Science want to understand what impact covid19 coronavirus has on mentalhealth, wellbeing and loneliness of carers supporting people with poor mentalhealth. If you are an unpaid carer help LSE by filling in their brief

https://lse.eu.qualtrics.com/jfe/form/SV_3ItyiAwSrT7xeTj

The survey should take about 15 minutes. All information will be treated in confidence. You can change answers until you submit the questionnaire. It has received ethical clearance from the London School of Economics and Political Science. If you have questions please contact David McDaid Email: d.mcdaid@lse.ac.uk More information at http://eufami.org/2020/04/28/covid-19/

Mental Health Awareness Week – Kindness

 

Giving help

Welcome to a caringmindblog written by a former carer Matthew Mckenzie in South London. As of this blog’s writing it is Mental Health Awareness Week which is Hosted by the Mental Health Foundation. Mental Health Awareness Week takes place from 18-24 May 2020 and the theme this year is kindness.

The Mental Health Foundation is a charity that works to prevent and raise awareness of mental health problems.

The Mental Health Foundation works towards a mentally healthy society for all and not just for service users but also for everyone.  The MHF believes we ALL can suffer varying levels of mental ill health any time of our lives.

The video version is below

The Mental Health Foundation works to place health and well-being in communities, families and individuals to live mentally healthier lives, with a particular focus on those at greatest risk.

mental-health-awareness-week-2020

So……why the theme of kindness this year?

Well it does not take long to work out that 2020 has been a particularly unkind year to practically everyone. With many lives around the world being not only affected by the coronavirus, but also the devastation it brings to families suffering loss, job losses, poverty and uncertainty. The theme of kindness has never before been so important.

Still, kindness is more than just being kind, there is so much more to it.

What is Kindness?

To be kind, we must understand what kindness is, even though society bombards us to be strong, be individualistic, focus on getting ahead and not having time for anyone else.

The problem is if we all begin to think like this, then it would not take long before people, families and communities ignore each other and suffer more mental low health and low well-being.

But the question remains……what is Kindness? and why practice kindness? What is in it for me? Or for us?

Being Kind is a measure of quality as in the quality of being friendly, generous, and considerate to others and ourselves. Kindness should bring people together as we all have a vested interest on being happy and a feeling that we belong.

anxiety disorder icon

Kindness is also a strength of character and does not show weakness since its aim is linking with humanity. We do not to always have to befriend others, but at least give the opportunity to allow friendship.

Kindness can be a form of being generous and considerate, with little to no expectation of reward since a little thank you, smile or sympathy can go a long way. Especially when so many are suffering in this day and age.

Kindness can be a form of love although it should not be confused as being in love with someone. We can practice kindness in choosing others wants or needs over our own.

If one practices kindness it is a like a chain reaction as others learn from our kind acts and it spreads like a wave that keeps going. All it needs is one person to perform the kind act and that kind act can cause a ripple effect that affects the entire community.

Family

Kindness is not always simple or automatic as it does take practice to understand and feel it. Education especially in schools should try to introduce the ideal of kindness and avoid too much focus on religion as sometimes religion can be unkind and focus on the hereafter while kindness asks what can we do NOW within the realms of humanity. Not that I have got anything against religion, but I do feel we need a healthy balance.

Kindness can also be a form of respect and helping others without waiting for someone to help one back. Kindness is not about being weak, it is about strength to give and not needing to take all the time because we feel that we have nothing or protect our ego.

Examples of Kindness

So being kind can be so many things, but how can we practice kindness in a world that we are to become distant to be safe? Here are some examples taken from The Mental Health Foundation site.

  • Arrange to have a cup of tea and virtual catch up with someone you know
  • Arrange to watch a film at the same time as a friend and video call
  • Call a friend that you haven’t spoken to for a while
  • Tell a family member how much you love and appreciate them
  • Tell someone you know that you are proud of them
  • Tell someone you know why you are thankful for them
  • Send a motivational text to a friend who is struggling
  • Send someone you know a joke to cheer them up
  • Send someone you know a picture of a cute animal
  • Send an inspirational quote to a friend
  • Send an interesting article to a friend

We would just like to mention a final word, if you struggle to be kind to others then at least be kind to yourself and that is a whole other blog for another day…..#KindnessMatters

Latest poem by Carer Elsie Cronin

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‘Why’ By Elsie Cronin

Why don’t you see a Mum doing her best?
You see it differently from the rest

From your madness I take the flak
And patiently wait for you to come back

The worry you cause, the tears I cry
Just to end up asking why?

Why is it so wrong for me to care?
What is it you don’t want to share?

Be careful how you play this out
Madness or not I will shout

I have got your best interests at heart
So come on – make a start

Start to accept with grace
The love and care that I give without a trace

A trace of tiredness and frustration at your place……….
In the mental health rat race

When you come around, as you will
You may well find I’ve swallowed “the pill”

The “pill” of rejection that I receive
Each time you give it there is no reprieve

No reprieve
And so I grieve
Oh well hopefully you will reflect
On the one who sees a speck

A speck of you from long ago
That keeps on making me want to show

Show that I love you without conditions
With all my heart and soul

To you I pledge this rendition

Lewisham MH Carers forum April 2020

133Welcome to the April update of the Lewisham Mental Health carers forum. This is one of the several forums that I run in the community aimed at carers who look after someone with a mental illness. The forum is not a support group since it focuses on carers engaging with health and social care services. I feel there is a lack of carer led forums where carers can come together and seek engagement, information, co-production and querying of health services.

Due to the COVID-19 virus, all forums have moved to online video conferencing. This forum runs every last tuesday of the month. Present at the forum where carer members, but we were joined by Oyeyemi Arogunjo who manages The Harbour Café “Based at Lewisham Hospital” in order to update members on how the crisis cafe had been progressing over the year.

We were also joined by South London & Maudsley’s inpatient matron ‘Eunice Adeshokan’ for Lewisham’s Ladywell unit to update the carers forum on how they have been engaging with families and carers whose ‘loved ones’ are currently in the mental health wards. Plus we were joined by Tama Khalk Pohwer who is their Independent Health Complaints Advocate.

As usual at the start of the forum, I always give reasons as to why I have voluntary built up the carer forum

Untitled-2

There are of course been a few changes over the years as SLaM have been engaging heavily with the carer forums, but there are difficulties querying social care and social care leads. There have been problems tackling carer strategies borough wide as members are not sure of what plans Lewisham have for families or carers, because of the virus, i suspect it will make things even more complicated, but that will be another story for another day.

After the explanation of the carers forum, each member and pariticipant introduces themselves to the group, we were also joined by Gillian from Lewisham Community wellbeing and Staff members of Lewisham Carers who have been working very hard to engage carers in the community via online resources.

The Habour Cafe – Crisis Cafe

The invited guest speaker Oyeyemi Arogunjo from Lewisham Harbour Cafe spoke about the reasons for the Crisis Cafe. Basically the Habour Cafe is a joint partnership between Lewisham hospital, Certitude and the South London and Maudsley NHS Foundation Trust. The aim of the cafe is to offer people who are feeling distressed someone to talk to in a relaxed, non-clinical setting, this especially if the patient was admitted to A&E at the hospital and is very distressed due to a MH history.

Oyeyemi Arogunjo presented the following to the Carers forum

  • Athough a non-clinical envronment, it does emphasize on therapeutic support.
  • Lewisham hospital A&E tends to bring MH patients and how others are referred to the Cafe.
  • The crisis cafe also help in sign posting and some advocacy.
  • How they liase with Care co-ordinators, housing agencies and psych liaison.
  • How long they support people, usually the minimum is 3 weeks.
  • What the Crisis cafe team consists of, usually minimum band 6 nurse and peer supporters usually from Solidarity in a Crisis.
  • Over the year the cafe has supported over 1000 residents.
  • They are looking into expanding into self referrals.

Many queries and questions came from carer attendees looking into how The Crisis Cafe will promote their services and self referral service, especially due to the diverse population of Lewisham.

Because of the COVID-19 crisis, the Harbour cafe is suspended, but services have been transferred to virtual support be it skype or phone to keep in contact with patients. Peer supporters are currently stationed at the hospital’s A&E majors and are working closely with the Psychiatric liaison services.

To find out more about The Harbour Cafe, please view the video below based off the Lewisham hospital’s YouTube site, you might even catch a glimpse of myself.

COVID-19 updates

Because of the COVID-19 situation it is only natural to update carer members on how the corona virus is affecting the vulnerable around the country. People are fairly well aware on how the front line NHS workers, shop assistants and delivery network are supporting the country during this crisis and they are all heros, but since this is a carers forum it is important attention to be raised on how the virus is affecting families and carers.

I showed members an interview from BBC News featuring Carers UK CEO Helen Walker on how the COVID-19 crisis was affecting carers in the UK. There was an interesting debate from the forum about the interview.

We also discussed how councils will move towards the Covid-19 emergency law and how it will affect social care. I showed members and article about the current situation, shown below.

Councils move to ditch adult social care duties

Next we discussed a survey from Carers UK regarding carers being close to burnout, which will probably be made worse if auterity measures kick in again due to the impact on the economy from the Corona Virus.

Unpaid carers close to burnout, charity claims

There were 2 more updates on how Scotland is managing to provide unpaid carers with PPE Kits and the new campaign from Carers UK “Caring Behind Closed Doors”, which calls upon the government to :-

  • Raise awareness and recognition of unpaid carers.
  • Increase the level of Carer’s Allowance.
  • Increase the availability and delivery of testing and PPE to paid care workers and carers.
  • Make care a priority.

You can read more about the campaign below..

Caring Behind Closed Doors Campaign

The next part of the forum focused on Social prescribing, which is a new initiative from the NHS. This looks at how patients especially older aged can link into the community rather than being prescribed medication for everything. Social prescribing can be beneficial for carers, but there needs to be a coordinated network between the link workers and GP surgeries.

social prescribing

The forum moved onto engagement and co-production from Lewisham and Greenwich hospital Trust, although the lead could not make the forum that day and will attend in May. It is vital the forums make links with Acute hospitals due to several reasons, one being that MH Patients suffer physical health problems as well as Mental health. Another reason is acute NHS trusts are working very hard to identify, engage and involve carers especially Kings College hospital and Guys & St Thomas Hospital regarding my other carer forums.

The rest of the forum were updates from SLaM’s Croydon and Lewisham involvement lead and an update from Ladywell wards Modern Matron on how they are engaging families and carers. Members are interested on infection rates at the wards and are keen to hear how SLaM quality Improvement will adapt to the strain on services.

lewisham ladywell unit - carers forum update

Lastly we got updates from Carers Lewisham on how virtual groups were runing, there were also updates from Gillian of Lewisham Community wellbeing regarding grants for carers shown below.

https://www.ftct.org.uk/support-for-families-affected-by-coronavirus

This concludes the April update for the Lewisham MH Carers forum.