Monthly Archives: August 2018

Lewisham MH Carers forum August 2018 update

IMG_20180828_141300Hello everyone, welcome to the latest update from the Lewisham mental health carers forum, which took place on August the 28th carers Lewisham. I know I have missed a few updates regarding the other forums that took place in July, I am hoping to add those at a later date.

As a quick reminder, the MH carers forums give a chance for carers to get updates, engagement, empowerment and also query NHS services and policies. We had some good attendance for the latest lewisham carers forum.

The forum usually runs for 2 hours, however so much was discussed at this particular forum we actually overran. I gave updates from our local mental health trust, which is South London and Maudsley. The NHS Trust has been really good in engaging with carers forums from the Boroughs of Lambeth, Southwark, Croydon and Lewisham.

As a forum we are excited to have future guest invites from lewisham hospital in regards to how they engage with mental patients at A&E. We are also excited to have the attendance of the social care lead in the coming months. We also hope to get engagement from the director of carers Trust. The forum has achieved a lot over the past 2 and a half years.

As a forum we were glad to hear how the modern matron in charge of carer engagement feedback how the trust aims to look into the Triangle of care. We are also hoping that a new care support group start up at the inpatient unit soon. As a forum, the members were very impressed with the director of Lewisham mental health services attending and engaging with some exciting ideas and projects.

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For this month, we were very lucky to have Lewisham CCG engagement officer attending and listening to a lot of the members feedback and updates. The engagement officer told us about her role and the role of lewisham CCG, we got updates about some new projects and the importance of patient participation groups at doctors surgeries. As a forum we discussed NHS service provision, however a lot of questions should be saved for the Lewisham CCG AGM.

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The CCG engagement officer educated and updated us on the recent health promotion projects in the borough of Lewisham. The engagement officer was well aware of my activities in the borough of Lambeth and Southwark and felt that we can learn from what they are doing over there and vice a versa.

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I updated members that the NHS trust mental health act officer is due to appear this Thursday at the BME MH carers forum, plus members are interested on updates regarding the trusts carers strategy, however there is a strong feeling that the carers strategy must encompass local engagement rather than being too heavily trustwide focused.

I also updated members that SLaM are looking to discuss the Carers Strategy, plus that their AGM is coming up.  We are interested on who will win staff awards.

As usual many of the members feedback on what they are doing in regards to carer empowerment projects. Members of Keen to have a local carers listening event, however we are wondering about promotion and networking.

We look forward to more engagement from Lewisham CCG and also Lewisham Healthwatch, but importantly from a local NHS Mental Health Trust and Lewisham hospital.

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Recommended Carer books

10 Helpful Hints for Carers: Practical Solutions for Carers Living with People with Dementia – June Andrews, Allan House

A Carer's Chaos - Julie Nancy Wiltshire

10 Helpful Hints for Carers is an easy-to-read guide for carers living with people with dementia. It provides simple, practical solutions to the everyday problems family carers can face when looking after a person with dementia.

A Carer’s Chaos – Julie Nancy Wiltshire

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When Julie Wiltshire’s husband, David, was diagnosed with cancer twice, he faced a series of treatments made all the more difficult by multiple complications. In A Carer’s Chaos, Julie records the details of David’s long journey of cancer treatment, but also offers a unique perspective into life as a carer to a loved one, exploring the love, hate, anger, loneliness and fear experienced on a daily basis by a carer.

A Carer’s Odyssey – Anna Chan

A Carer's Odyssey - Anna Chan

In the first part of A Carer’s Odyssey, Anna Chan describes how she and her husband Jeff were devastated 16 years ago by the diagnosis of their daughter Emma’s severe neurological disorder, called Rett Syndrome.

A Gift for Carers – William Long

A Gift for Carers - William Long

This book was written following the author’s personal struggle with the psychological and physical pressures of caring for his mum. His experiences and research led him to develop a solution which counters the devastating effects of what the medical world refers to as “Caregiver Syndrome.” He identifies seven areas that make for a joyful life.

A Gradual Disappearance – Elizabeth Lonseth

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An Introduction to Coping with Depression for Carers – Tony Frais

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BMA Carer’s Manual – British Medical Association

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Carer’s Bible – Amanda Waring

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Caring for a Loved One with an Eating Disorder – Jenny Langley, Janet Treasure, Gill Todd

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Caring for a Loved One with an Eating Disorder: The New Maudsley Skills-Based Training Manual provides a framework for carer skills workshops which can be used by anyone working with these conditions.

Confidence to Care: A Resource for Family Caregivers Providing Alzheimer’s Disease Or Other Dementias Care at Home – Molly Carpenter

Confidence to Care A Resource for Family Caregivers Providing Alzheimer's Disease Or Other Dementias Care at Home

Confidence to Care is the essential handbook for the family caregiver offering practical insights to understanding, managing and preventing the behavioral symptoms associated with dementia and Alzheimer’s disease. Touching, personal stories come together with practical and easy-to-access tips and techniques drawn from decades of caregiving experience by internationally-recognized experts.

Guide to Mental Health for Families and Carers of People with Intellectual Disabilities – Geraldine Holt, Anastasia Gratsa, Nick Bouras

Guide to Mental Health for Families and Carers of People with Intellectual Disabilities

A practical and comprehensive introduction for carers to mental health problems, this accessible guide outlines a range of signs and symptoms of mental health problems that can affect people with intellectual disabilities. The guide explains why mental health problems develop, and advises on what can be done to help people with intellectual disabilities and carers themselves.

Living with Dying: A Complete Guide for Caregivers – Jahnna Beecham, Katie Ortlip

Living with Dying A Complete Guide for Caregivers

  • This easy-to-use guide for caregiving instructs you how to:
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Mindfulness for Carers: How to Manage the Demands of Caregiving While Finding a Place for Yourself – Cheryl Rezek

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Carers are particularly vulnerable to feeling stressed, worried and worn down by the vast demands that often come with caregiving, be they physical, psychological or emotional. Mindfulness can be enormously beneficial to carers, whether professional or voluntary, as a means of developing greater inner stability, resilience and gaining more control over their thoughts, feelings and emotions.

No Saints Around Here: A Caregiver’s Days – Susan Allen Toth

No Saints Around Here A Caregiver's Days

When we promise “in sickness and in health,” it may be a mercy that we don’t know exactly what lies ahead. Forcing food on an increasingly recalcitrant spouse. Brushing his teeth. Watching someone you love more than ever slip away day by day. As her husband James’s Parkinson’s disease with eventual dementia began to progress, writer Susan Allen Toth decides she intensely wants to keep her husband at home—the home he designed and loved and lived in for a quarter century—until the end.

Self-Care for Caregivers: A Twelve Step Approach – Pat Samples, Diane Larsen, Marvin Larsen

Self-Care for Caregivers A Twelve Step Approach

For those serving as a caregiver for a loved one, the authors of this down-to-earth, encouraging book can help you make the most of the experience without losing yourself in the process.

Supporting Families and Carers: A Nursing Perspective – Mary E. Braine, Julie Wray

Supporting Families and Carers A Nursing Perspective

Understanding the perspective of carers is an essential aspect of nursing. Supporting Families and Carers: A Nursing Perspective offers insights into the fundamental principles of caring for families and carers irrespective of age, gender, ethnicity, sexuality or religion.

Take Care, Son: The Story of My Dad and his Dementia – Tony Husband

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Hi Dad . . . can we have a chat about your dementia . . . Can you remember how it started?
When Ron Husband started to forget things – dates, names, appointments . . . daft things, important things – it took a while to realise that this was ‘a different form of forgetting’. But it was just the first sign of the illness that gradually took him away from the family he loved.

The Carer’s Handbook: Essential Information and Support for All Those in a Caring Role – Jane Matthews

The Carer's Handbook Essential Information and Support for All Those in a Caring Role

This indispensable guide aims to be a one-stop-shop for the huge percentage of the population who, now or later, find themselves in a caring role, whether that involves shopping for a housebound neighbour, or giving up work to care full-time for a disabled child or confused parent.

The Complete Carer’s Guide – Bridget McCall

The Complete Carer's Guide

There are around six million carers in the UK, a figure estimated to reach nine million by 3037. Being a carer can be rewarding, but it is often stressful and exhausting: it involves a range of tasks, such as providing personal care, managing medication and ensuring that the needs of the person being cared for are met. This practical, much needed guide discusses how to ensure that you have a life of your own while caring, how to make informed decisions and, most importantly, how to access the support and help you need.

The Essential Carer’s Guide – Mary Jordan

The Essential Carer_s Guide

Illustrated with individual case stories, this book covers physical, social, and financial needs, across the stages of immediate, intermediate and advanced care. It is useful as a practical companion for those caring for, or responsible for the care of, an elderly friend or relative.
The Selfish Pigs guide to caring – Hugh Marriot

The Selfish Pigs guide to caring

Over six million people in the UK…provide unpaid care for disabled or elderly relatives, friends or neighbours. Their job is long, lonely and hard, yet there is limited support and no formal training. As a result, carers suffer frequent damage to physical and mental health. Oddly, though carers by definition are anything but selfish pigs, they are liable to feelings of guilt, probably brought on by fatigue and isolation.

Where There is No Psychiatrist: A Mental Health Care Manual – Vikram Patel

Where There is No Psychiatrist A Mental Health Care Manual

Even though mental illnesses are common and cause great suffering in every part of the world, many health workers have a limited understanding about mental health and are less comfortable dealing with mental illness. This book is a practical manual for mental health care for the community health worker, the primary care nurse, the social worker and the primary care doctor, particularly in developing countries.

Young Carers and their Families: Working Together for Children, Young People and Their Families – Saul Becker, Jo Aldridge, Chris Dearden

Young Carers and their Families Working Together for Children, Young People and Their Families

Young carers are children and young people under the age of 18 who provide care for an ill or disabled parent or relative in the community, usually within their own home. They perform many of the same domestic, caring and other duties as adult carers but often without the recognition and support received by many adult carers.

Influential poem from Patrick Lee

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Welcome one and all to a new blog for the month of August. I have to apologise for not putting anything up for some weeks now since I have been really busy doing a lot of carer campaigning. To be honest I have not had much time to provide feedback from the 4 carer forums in South London.

I have also just recently come back from a lovely forum held over in West London, from the West London Collaborative, they do excellent work over there helping to build communities.

Going back to this particular post, I want to dedicate this blog post for its creative content. A while ago I met Patrick who provides peer support for those using the mental health services. He spoke to me how he used the power of poetry to help others express themselves. Poetry can be very creative and powerful in a non-combative way. Sometimes just saying things is hard enough, but if we use the power of poetry then anything is possible.

I have recently created a video about one of his poem’s which is from his book “The Nearly Man”. The Poem from the video is called “Cardboard City Dweller”. You can watch the full video below

 

Patrick has released several books of poetry, let me know if you want to try catch him in order to hear more about his work. I hope to do some more blogging real soon.

Thanks for dropping by.