Category Archives: Creative Corner

Poems, Art, thoughts about unpaid carers

Voices & Verses PCREF Carer event

By Matthew McKenzie, Cygnet PCREF Carer Lead

On Tuesday 28th April 2026, from 2:00pm to 4:00pm, we came together at Cygnet Churchill in Lambeth for what was described as a carers poetry event, but in truth, it became something much deeper.

It became a space where carers could speak, reflect, and be heard.

I hosted the session not just as a PCREF Carer Lead, but as someone with lived experience. That shaped everything the tone, the structure, and the intention behind every part of the agenda.

I made it clear: this was a safe, inclusive, and optional space. No pressure to perform. No expectation to share. Just an invitation.

We began with a simple check-in:
“What’s one word you’re arriving with?”

Opening Readings: Creating a Shared Starting Point

I started with a couple of my own poems, drawn from my work around carers, stigma, and racial inequality in mental health.

As shown above, one piece explored the question of who is listened to and who is overlooked within systems. Another focused on stigma and shame, particularly how cultural expectations and institutional barriers can compound the experience of caring.

These weren’t just readings—they were a way of opening the room.
An invitation for others to see themselves reflected.

Featured Performer: Karen Ibrahim

We then heard from Karen Ibrahim, whose poetry captured something deeply familiar to many carers the quiet, often invisible emotional labour of caring.

Her piece reflected the silence between carer and loved one, the fear of saying the wrong thing, and the reality of sitting with someone in distress without always knowing how to help. It spoke to that fragile balance carers hold every day.

Karen also shared a series of haiku-style reflections, drawn from carer experiences—short, powerful snapshots of emotion, nature, and coping. They reminded us that even the smallest expressions can carry deep meaning.

Guided Writing Exercise #1: Bringing PCREF to Life

We then moved into the first guided writing exercise.

I paired participants and asked them to:

  • Match PCREF-related concepts (like equity, advocacy, inclusion, resilience) to their meanings
  • Use those words to create a short poem or reflection

It was about translating PCREF from policy into lived language.

The results were powerful. Carers wrote about 4 poems altogether, below were the themes, which will be included in the new PCREF poetry book I am working on.

  • Feeling unseen and unheard
  • Wanting their voice recognised
  • Breaking down barriers in care
  • Finding strength through community

One group asked:
“Is my voice not loud enough to be heard?”

I felt that line stayed with me, because it captures exactly what PCREF is trying to address.

Performer & Open Mic (Round 1)

We then moved into our first round of performances, where carers shared both prepared and newly written work.

I felt Brenda brought something unique, blending cultural storytelling and poetry rooted in Jamaican heritage. She reflected on traditional knowledge, community wisdom, and the use of language and folklore as a way of preserving identity and healing. Her use of dialect and storytelling highlighted how culture shapes how we express and understand care.

Next was Annette Davis shared a piece centred on the identity of being a carer, capturing the emotional strain, lack of recognition, and inner strength that comes with the role. Her poem questioned what it means to be labelled a “carer” while navigating burnout, resilience, and the need for self-care.

Next up was Faith Smith and Nadine sharing a powerful reflection on system inequality, exploring the daily pressures of navigating services, the lack of accessible support, and the feeling of being caught in processes that don’t always respond to real-life needs.

Each piece added another layer to the conversation, with different perspectives, but shared truths.

Break & Connection

We paused for a short break and refreshments provided by the kind and wonderful staff at cygnet, but for the poetry event the conversations didn’t stop.

Carers continued to connect. Share stories. and reflected on what they had heard.

This is something I always emphasise, community doesn’t just happen in structured sessions. It happens in those in-between moments.

Creative Exercise session #2: Exploring PCREF Language

After the break, I introduced a second exercise, which was more interactive and reflective.

Participants worked with a word-search style challenge, identifying key PCREF-related terms such as:

  • Voice
  • Inclusion
  • Equity
  • Community
  • Trust
  • Advocacy
  • Listening
  • Stereotyping

Rather than writing full poems, we focused on discussion:
Which word stands out and why?

The responses were honest and grounded:

  • “Listening builds trust.”
  • “Community is where we belong.”
  • “Inclusion is what drives change.”
  • “Stereotyping still shapes how we’re treated.”

This is where PCREF becomes real, when people recognise themselves within it.

Performer & Open Mic (Round 2)

We continued with a second round of performances.

Carers shared reflections shaped by:

  • Cultural identity
  • Personal caring journeys
  • The emotional impact of systems
  • Hope, resilience, and change

Then ended with cultural carer songs by Brenda, see the video of part of the PCREF poetry session below.

In the end PCREF is about improving outcomes for racialised communities—but it cannot succeed if it remains purely clinical.

We:

  • Translated PCREF into lived experience
  • Used creativity to engage carers meaningfully
  • Created a culturally responsive space
  • Positioned carers as equal voices not passive participants

If you are caring for someone using Cygnet services, contact Family&Friends@cygnethealth.co.uk to join our Voices & Verses poetry group

“Listen to Me” – A Carer’s Plea Turned into Song

Caring for someone with a mental illness is an emotional, often isolating experience. Unpaid carers—whether they are family members, friends, or loved ones—carry immense responsibility, yet their voices can feel unheard, especially within the healthcare system.

One of my poem’s “On Being Heard” taken from my book The Poetry Book of Mental Health Caring, captures this struggle with raw honesty.

Continue reading →

On Caring – Carer awareness poem by Matthew McKenzie

Welcome back to another blog post by Carer activist, poet and author Matthew McKenzie. As you can guess by most of my post off this site, I raise awareness of those providing unpaid care to someone.

Even though I have written a few books containing poems about the caring role. There will be times I will just come out with the odd poem due to spark of creativitiy. Here is my latest poem to raise awareness of caring for someone living with long term illness. I hope you like it, but if you dont then I hope it provides plenty of discussion.

I am always interested in what people think of my new poem. I am sure to place these poems in another book at a later date. Feel free to comment either in the video or my YouTube channel.

The Power of Poetry to reach carers

Welcome back.

Here is a new blog post from carer activist Matthew McKenzie. I write about the challenges, roles and journeys of those caring for someone. Usually the experience of caring for someone with mental health challenges or someone living with cancer.

However, I find that writing is not enough when trying to connect with others. I find poetry a great way of sharing experiences, creativity and understanding.

There can be challenges of using creativity to explain the experiences of caring. It all becomes worth while in the performance, even if things do not go as expected.

Each person finds the poem will mean something different to them. Just as no carer’s journey is the same, this can be included as to how poems can mean something different.

In order to promote the power of poetry, I have made a short video of my ideas, which you can see below.

In life, whatever we experience will eventually pass and things move so fast that we are left wondering what it was all about. If we can leave something behind, express our experiences, share our thoughts of our existance then we can for a brief moment connect with others.

Thanks for reading.

The Long Road – Carer poem by Matthew McKenzie

Carers week 2023 approaches. When you start your journey providing unpaid care it can be a long journey. You might start out caring for someone with cancer, mental illness or physical health difficulties. No matter how you see it, you will starting out on a journey.

As an author and poet, I have written extensively on the journey I have travelled. I hae also written about the path where many other unpaid carers will have to walk.

It helps when former or veteran carers help guide others down that road. We need to be aware that not all carer journeys are the same, but it helps if we identify and value each other.

Below is a poem taken from my book “The Poetry book of mental health caring”. You can check out that book at the end of this blog post. I do actually have some podcasts of the poems off my website.

This poem “The Long Road” talks about how a former carer looks back down the road they have travelled. They see new people beginning their caring journey. The stop and tell those carers about that journey. This is a peer carer task, but it is so important vulnerable groups look out for each other.

Watch the poem below.

Preview My carer poetry book on the link below

The Poetry book of mental health caring

Thank you for reading, good luck with your caring journey

The Hidden Link

Welcome readers and those who care for someone. As you might already know, not only am I an author raising awareness of carers, but I am also a poet. I find poetry an excellent way to raise awareness of social causes. A good poem can reach the hearts and minds of those trying to understand caring.

I am sure many out there are aware that carers can often remain hidden. The world of unpaid care is often carried out behind closed doors. This might not be a problem, but when the role of caring becomes stressful then we need raise awareness of the plight of unpaid carers.

I feel even when someone becomes uninvolved in caring for someone close to them, they are still in the background somewhere inquiring about the person health and wellbeing. I feel a lot of carers can be a link in that chain.

So in my 3rd book on using poetry to raise awareness of those caring for someone with mental illness, I wrote a poem called “The Hidden Link”.

Feel free to listen to the poem below. I would love to get people’s views on what they think about the poem.

You can also get my poetry book from the Amazon link below.

More Carer Poems by Matthew McKenzie

Hello fellow unpaid carers. Here are some more poems from my book “The Poetry book of mental health caring”.

Every so often I tend to make videos of my poetry off my YouTube Channel.

The Long Wait – Poem by Matthew McKenzie

The Poem below describes my experiences in a hospital when trying to help my mother who was suffering mental and physical health problems at the time.

The unwanted role – by Matthew McKenzie

This poem below focuses on someone becoming an unpaid carer for the first time. The poem explains from their view that they are slightly aware of the difficulties they will face, but will have to face these challenges alone.

How do I say this? – by Matthew McKenzie

The Poem below explores the struggles a carer has in understanding mental illness. He is aware of the stigma when he is trying to communicate with his daughter, but he is dealt a blow regarding his own caring duties and also to fight to sustain a relationship with his daughter.

The Triangle – by Matthew McKenzie

The poem below explains a mental health policy aimed at NHS organisations to make sure carers are included in services. The Triangle of Care has a long history and is highly sought after by mental health NHS trusts to strengthen carer strategies.

To explore more carer/mental health poems from Matthew McKenzie, you can check out the book below on Amazon.

The Unwanted role – Poem From The Poetry of mental health caring

Welcome fellow carer viewers. I thought to add another of my carer poems to my website.

This is poem number 24 – The Unwanted Role.

This poem is from my latest book “The Poetry of mental health caring”, which you can find on Amazon.

I want you to reflect on the poem with the following questions.

• Why do you think the son is worried about caring?

• Do you think the carer will abandon his father? State your reasons why.

• Why is it important that someone should not feel guilty if they cannot care anymore?

• Why do you think it is important someone should continue to provide unpaid care?

Check out the book in the link below.

New poems by Matthew McKenzie

Here are two more poems from my upcoming book “The Poetry book of mental health caring”.

The first poem focuses on wellbeing for carers who are caring for someone suffering mental illness. To be fair it does not actually have to be mental illness, but the main point is the person is thrown into becoming a carer.

The next poem is more psychological. The poem called “The Mirror” asks the carer to reflection on their identity, especially when the carer is judgemental about themselves. I certainly was very judgemental about trying to provide unpaid care and at times I still am critical.

Poem Time – Carers and co-production

Welcome to another blog post by carer rep, author and poet Matthew McKenzie. I have just released another poem called “Being Part of it”. As an unpaid carer I was involved in many co-production and involvement meetings, especially to help shape Health & Social care services.

Having unpaid carers and service users become involved in shaping services will help provide services that have such stakeholders in mind. There has often been criticism of where professionals design services and those services do not work out well because the patients or families and carers were not involved in such design.

At those involvement meetings, I often thought how could I express my experiences to other unpaid carers and with this poem, I now have the method to share my experiences.

To view my poem please watch the video below.