Tag Archives: mental health

Holding MH Trusts to account via carer forums

2000px-NHS-Logo.svgWhat Carer forums need to take note of

Welcome back to my mental health blogsite. Most of the time I write about Unpaid Carers who support someone close requesting mental health needs or are suffering from mental illness. On this blog I am going to write about why Carer forums need to take note of what their local mental health trust is doing.

Quite a few mental health trusts do amazing work regarding patient care, but there should be a place where carers can get together with the trust and raise concerns. We all know the mental health service is struggling as of present and this can affect service users and their families.

Meeting Of Support Group

Just as a reminder, not all carer groups are the same. You can have a carer support group, where carers get to tell their story in a safe closed space. We can also have a forum where time is put into presentations, discussions and agendas. Lastly some carer groups have a mixed of presentations and carer stories where carer seek emotional support, some carer groups act as information hubs where peer supports or MH staff aide carers on how to get support.

Most of the issues below are usually covered in a Carer forum, where there is little or no time for carer stories and more time is spent on understanding why certain Trust problems are occuring.

  • Delays in providing the treatment.

Out of all the issues listed, this would be the most common that affects carers and those they seek to support. If the patient cannot get any treatment or support, then most if not all the support falls onto the family or carer who all too often will lack the skills to provide the treatment.

  1. Such treatment could be a bed/room to stay while recovering from a mental health crisis.
  2. Access to medication e.g. antipsychotics
  3. Access to psycho-therapy
  4. Information about their mental health and so on..

Delays usually occur if there are no beds, but even then the trust may not be fully at fault as GPs can often misdiagnose a mental health need. Lack of mental health staff can lead to delays as no one is available to provide a mental health assessment, which can often end up with the police stepping in wondering what to do. Within a Carer forum, carers should query with the mental health trust if there are any delays regarding treatment and query reports on how many patients have been seen at the trust.

  • Failure to provide appropriate medication.

Again, This is one of the most common issues that can affect the patient and carer. Medication is usually one of the core aspects of mental health treatment. Wrong medication can often cause the patient to deteriorate even further. What is even worse is if no medication is provided. Often the patient can refuse medication, it is their right, but due to mental health laws or MH Trust policies (we ll come to this later) there could be high levels of failures in providing medication.

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Without medication, service users can relaspe causing distress with family, friend and carer. Serious Incident levels begin to rise and Carer forums should query who is responsible for monitoring medication incidents.

  • Lack of referring patient or carer

This problem is not only common to mental health trusts, but also partner organisations. GP surgeries, Advice bureaus and even hospitals can fail here. Failure to refer patient or carer for support can leave both in isolation and desperation. Carer forums should not only query patient/carer leaflets, but also if there are a lack of carer information leaflets/booklets or why information has not been produced in a document.

  • Family/friend, GP or advocates ignored.

Going through past serious incidents, if you look back far enough you will find someone had been constantly ignored. Oddly enough even the gatekeepers to mental health services can be ignored. Carers can try to raise an issue with mental health professionals that their loved one is experiencing a crisis and needs to be assessed. Carers would either phone, email, write a letter or speak face to face with Mental Health Staff, but if nothing is done and a serious incident arises then it should be queried.

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Carer forums should have an interest to query if members of the forum have experienced this and if the trust produces reports regarding such issues. Maybe a Mental Health trust have a policy to tackle carer/patient requests. Carer forums should certainly discuss developments regarding the trusts patient database system and ask for database queries.

  • Insufficient or poor risk assessments

A poor risk assessment can certainly lead to incidents as mental health problems can go misdiagnosed. This leads to carers having to struggle supporting their ‘cared for’ in a crisis for longer amount of time. The problem is risk assessments are notoriously difficult to measure or even regulate. Members of the Carer forum should not only query how a risk assessment is done, but ask for reports on the number of assessments carried out and who at the trust are task with doing them.

  • Insufficient or lack of training

Lack of training can lead to all of the problems raised so far in this blog and even more. A mental health trust has a duty to continually train its staff, not only to help the patient but improve the quality of its staff. Mental Health staff should be patient and Carer aware. Carer forums should make a lot of noise if they continually hear stories of staff who do not understand what a carer is. I myself am fortunate to be included in helping to train staff at South London & Maudsley about families and carers, but there are some trusts that may not even provide training about carers or might not involve carers in their service.

Carer forums should ask for engagement from a trusts Staff training forum. Carer forums should have members who are active in training mental health staff and there should be involvement protocols to allow carers to be involved at the trust.

  • Confidentiality Issues

One of the biggest issues regarding carer and patient. I have been to many carer forums talking about the good and bad aspects of confidentiality. I have also been making a lot of noise about confidentiality, which I am sure has annoyed mental health professionals.

Why is this?

If carer is continually blocked on asking how their ‘loved one’ is coping or being involved at meetings, it might boil down to patient confidentiality, sometimes the patient will not want the carer involved, but it is a lot more tricky than that. Mental Health trusts have the duty to help the patient understand why the carer would want to be involved unless it is a safe guarding issue. Unfortunately confidentiality can be used as an excuse to avoid dialogue with the family or carer. Lack of confidentiality policies or booklets can cause confusion with staff and carer not knowing what to do.

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Carer forums should task themselves with who is responsible for confidentiality policies/booklets. Family and carers should also be involved in training staff about confidentiality.

  • Issues around discharge.

Due to bed management, patient discharge can happen too soon and sometimes might not happen at all. Some patients might be discharged because a bed is needed or a patient might be discharged because there has been a misdiagnoses of their MH needs. Discharge to a carer is risky if the carer is not prepared, informed or involved.

A carer forum should query a trust’s discharge pathway and seek engagement from the mental health trusts Quality improvement team.

  • Lack of appropriate care or continuity of care.

Another difficult issue to monitor or assess. Sometimes a mental health carer forum can pick up stories where carers are complaining that their ‘loved one’ is not getting any community care. It is vital a carer forum raises such stories to the trust otherwise families or carers may find themselves becoming the mental health team and being told to just “get on with it”.

  • Problems with protocols or policies.

Mental Health trusts can be pulled and pushed in all sorts of directions. Such problems can cause a trust not to update protocols and policies. If protocols and policies are not followed, then incidents can arise from them. Carer forums should ask for a list of policies related to carers (Expect the number to be large).

  • Patient was without care plan or the care plan in place was inadequate.

Difficult to measure due to confidentiality, but reports should be processed on the number of care plans done. Carer forums should most definitely be consulted with the CQC (care Quality Commission) who monitors and inspects health services. A patient without a care plan can often cause the carer to not know their role and this can lead to a lack of patient recovery.

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  • Poor communications between agencies and/or staff.

This is often a culture problem and unfortunately a carer forum may have to poke their nose into what the local council is doing. Healthwatch should be able to help the carer forum engage with other agencies, but if there continues to be poor communication between agencies then a number of health problems will not be picked up or delayed.

  • Poor communications with the patient or his or her family.

This might also boil down to confidentiality, but quite a lot of issues can be down to training, misinterpretation, lack of time or difficultly in building relationships. Issues of trust can also cause an issue here. Carer forums should keep an eye open if poor communication is happening at their local mental health trust.

  • Poor record-keeping.

The CQC can come down hard on mental health trusts on this issue. Mental Health trusts have been fined large sums for poor record keeping. If a patient has no record or is not past information required to their care, then the quality of care can go downhill.

  • Staff shortages or a lack of funding, available facility or available beds.

It has been unfortunate that Trusts have an appetite for Bank Staff or temporary MH staff. There are policies that have come into place to reduce reliance on Bank staff, but due to pay issues it has been known for staff to move into the field of becoming temporary since it pays more. Care forums should query if the trust is spending vast sums of money on bank staff, because without a doubt other MH services will suffer funding shortages and skilled professions.

  • Cover ups

Very difficult to tackle and this might be down to serious incidents being confidential. Mental Health trusts do not like being investigated or being fined, no one likes their reputation damaged. Unfortunately families and carers cannot sit around and have a MH trust culture to become silent. MP’s, councilors, Trust governors and other agencies can aide Carer forums if something is not right with the trust. To make matters worse there can even be collusion as everyone is trying to save money.

No one is usually in a rush to highlight cover ups, but if they are not tackled then every one suffers. There are usually signs when something is not right or investigations are taking too long.

  • Poor excuses

Ever heard of the term “Lessons learned?”. I will perhaps create a blog to poor excuses. If a trust fails to provide care to a large number of patients repeatedly then a carer forum should have space to work out why this keeps happening.

Carer forums and members of the trust should be engaged at trust events and space given to query what the trust actually have learnt from successes of failures.

The issues listed are very basic and some items have been missed due to lack of time. I can only hope whoever is reading has the strength, time and conviction to engage with their carer forum if one has been set up around their mental health trust.

Thanks for reading


The book you should be reading this month

my face plus book‘Please Hear What I’m Not Saying’ is a poetry anthology featuring 116 poets, all writing about mental health. The profits from this book go to UK Charity, Mind.

Editor Isabelle Kenyon compiled the anthology following an international submission call out. Contributors were enthused by a common goal to raise money for the charity, Mind.

With poems focusing on mental health from a wide range of experiences (covering topics such as grief, trauma, anxiety, poverty, Alzheimer’s and therapy), the book aims to continue the worldwide conversation about mental health.


Isabelle comments: ‘As an editor, I have not been afraid to shy away from the ugly or the abstract, but I believe that the anthology as a whole is a journey – with each section the perspective changes. I hope that the end of the book reflects the ‘light at the end of the tunnel’ for mental health and that the outcome of these last sections express positivity and hope.’’

You can buy the book on Amazon here: Please Here What I am Not Saying

Reader Photos

And more information about the project here: https://www.flyonthewallpoetry.co.uk/mind-poetry-project

Mind Anthology

Self Harm Awareness 2018

siadAlthough Self Harm awareness day has just gone. I thought to do a quick post about mental health needs regarding self harm.

Self Harm awareness day 2018 is celebrated to bring awareness to self injury or self harm. Not all self-harmers are in need of help, but if harming gets out of control, there needs to be adequate care and safety for sufferers. Friends, family and the self-harmers carer can also be affected, especially psychologically.

Self Harm or self injury awareness day usually runs on the 1st of March each year. Raising awareness about self harm can also help educate the public and lessen the stigma affecting those who self harm.

What causes self-harm?

There are many reasons why someone would self harm, not all reasons are simple and can become very complex.


Not all people suffer from mental illness from grieving a death of someone close, but then death affects everyone differently. A sudden bereavement can cause someone to self harm because they cannot cope with the loss and use self harm to deal with such loss.


Being seriously ill

Other illnesses can lead to self harming, especially when the person might be unhappy how their life is heading, they may hate themselves or how they feel and could take self harming out on themselves


Bullying can damage someone physically and also psychologically, if nothing is done to combat bullying then the victim might lead to self harming in order to cope.

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Quite similar to bullying, many who recieve discrimination could self harm due to isolation, stigma or being misunderstood.

Domestic violence

Those suffering under domestic violence might see no other way hate and see themselves as to blame from being attacked by their partner, if nothing is there to stop the violence then its possible self harm could lead to suicide or accidental death.

melancholy and sad young  woman  at the window in the rain

Drug and alcohol misuse

Addiction regarding drug and alcohol use can being a person high, but when the effects wears off, then self harm might become apparent as a way of coping during the lows.

Family breakdown and conflict

Not all families are alike especially on how families can deal with conflict. Family breakdowns can affect the adults as well as the children. Self harm can lead to children using it as a coping method especially if they cannot cope with the negative feelings.

Feelings of rejection

Constant or sudden rejection can possibly need to self harming as a way to cope and forget about rejection, either from a girl/boyfriend or from someone close. Self harm might be a way for the person to hate themselves.

Isolation and loneliness

Some people can actually cope with isolation and loneliness, but this can vary due to having close friends and family only for them to move on and not being able to form new relations. Some self-harmers may use self harm as a coping mechanism.

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Low self-esteem

Low self-esteem and self worth can also be the cause of self harming where the person loathes themselves and ends up taking out physical harm against themselves.

Money worries

Money worries is another common cause of self harm, especially when money issues spiral out of control. This can lead to the person finding themselves trapped and having self harm as a form of release.

Poor body image

Self harmers may cause damage due to how they feel about their bodies, this can lead to a spiral downfall as someone might hate noticing the physical brusies on themselves from self harming and in turn self harm again.

Relationship problems

Again, not all relationships are alike. Some relationships come with complex emotions dealing with complex issues, failure to secure a difficult relationship can sometimes lead to self harm.

Work pressures

One of the common causes of self harm, we all spend a large majority of time at work and when work pressures amount without adequate support, self harm can become apparent.

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Please take time to check out organisations listed below if any of the above items affects you.

Self Harm UK – https://www.selfharm.co.uk/
Harmless – email info@harmless.org.uk
Samaritans – call 116 123
LifeSIGNS – http://www.lifesigns.org.uk
National Self Harm Network – http://www.nshn.co.uk
PAPYRUS – http://www.papyrus-uk.org
Recover Your Life – http://www.recoveryourlife.com

The importance of community spirit

Welcome back to the first blog post of 2018. It has been a while since I last wrote a post, the last one I made was on the fantastic arts event held over in London borough of Lambeth.


Group of people together holding hands

So it is now 2018 and a beginning of new year, with new opportunities, challenges and awareness projects to raise regarding unpaid carers, mental health events and topics about psychology. Some people wonder why I have created such a blog site and why I cover mental health events and carer forums. I feel these specific issues need a lot of awareness raising. Mental health still struggles to get a decent platform and any help I can contribute to the awareness of unpaid carers and service users should continue.

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STELEO Art Exhibition


Welcome, on this blog I talk about the art event that took place over at The Coffee Lovers Cafe’. The art exhibition was a joint work of the patients / service users of the STEP and LEO mental health team.

If you wish to see the video version please click the video below

A bit about The Coffee Lovers Cafe. The Coffee Lovers Cafe is a lovely Moroccan themed cafe situated in Lambeth, the staff are friendly and the prices are very reasonable. If you ever get the chance, it is worth dropping by for the lovely atmosphere.


The art exhibition title ‘STELEO’ was hosted by Arts therapist Paula Moclair who provides art therapy at South London & Maudsley. As I arrived at the Cafe, Paula greeted me and showed me some of the works on display. I was glad to be in from the cold and the warmth of the cafe certainly made a difference. Plus there was lots of refreshments on offer.


It was not long before some of the artists turned up to speak and present some of their work. First to chat about her work was Marian Saidik who produced the work “Hub of Roses”.


Mariam mentioned that the work produced made her happy and felt the work’s aim was to be a gift to others. She started art at a very young age, but has interests in the environment, language and fitness. Mariam explained to me about the use of colours and the importance of expressing the art work.

Paula then spoke to me about her art, each of her art work had a theme and focus. The first work shown was titled “Lurly-Lurley”, which seems to express the use of words and the relation with her sister.


Paula then spoke about three other pieces of work shown here. One showing the toliet and her cat focused on the patron saint of miracles. The other picture shown in blue was to do with Yoga and the last being about the experiences with her sister at a young age.

Soon I spoke to another artist who talked about the flower they made and how they liked flowers, plus the flower represents life



The next service user spoke about the work she produced, which I noticed a visitor spoke kindly about. The visitor felt that the patterns from the work produced called out to him. When I asked the artist to explain more about her work, she mentioned how she enjoyed creating patterns.


More artists arrived and spoke about how Paula helped them produce the work and how they appreciated the help. They felt that art was a positive force in their life and a good hobby. They was not too worried about their art work selling since they could always take it home later.

The artist also showed more of his work off his mobile phone.


Near the end of the art exhibition we got to hear from the art therapist who explained the latest developments from the past year and how it was good to see people’s work framed. One of the artists also spoke about how good it was to see his art on show and how it overwhelmed him.

I also made a speech stating that I was proud to see the end results of all the hard work patients and staff from the LEO and STEP team had put in and I was happy to see the end results of the funding by the Mausley ‘Lets Smile’ charity.

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All in all, the event inviting, inspiring and it felt great to talk to friendly people. I hope more work can be produced for the next exhibition.

Why you care

Mother comforts her teen daughterIf you are a non paid carer of someone suffering from mental illness, there will be times that you question yourself on why you care. Especially during the toughest part of a crisis. It might be that you constantly fear loosing that person through an eating disorder, addiction or psychotic episode. It may be that you are having difficultly getting your point across to mental health professionals especially when the NHS is in its time of crisis.

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