Tag Archives: mental health

Recommended Carer books

10 Helpful Hints for Carers: Practical Solutions for Carers Living with People with Dementia – June Andrews, Allan House

A Carer's Chaos - Julie Nancy Wiltshire

10 Helpful Hints for Carers is an easy-to-read guide for carers living with people with dementia. It provides simple, practical solutions to the everyday problems family carers can face when looking after a person with dementia.

A Carer’s Chaos – Julie Nancy Wiltshire

10 Helpful Hints for Carers Practical Solutions for Carers Living with People with Dementia

When Julie Wiltshire’s husband, David, was diagnosed with cancer twice, he faced a series of treatments made all the more difficult by multiple complications. In A Carer’s Chaos, Julie records the details of David’s long journey of cancer treatment, but also offers a unique perspective into life as a carer to a loved one, exploring the love, hate, anger, loneliness and fear experienced on a daily basis by a carer.

A Carer’s Odyssey – Anna Chan

A Carer's Odyssey - Anna Chan

In the first part of A Carer’s Odyssey, Anna Chan describes how she and her husband Jeff were devastated 16 years ago by the diagnosis of their daughter Emma’s severe neurological disorder, called Rett Syndrome.

A Gift for Carers – William Long

A Gift for Carers - William Long

This book was written following the author’s personal struggle with the psychological and physical pressures of caring for his mum. His experiences and research led him to develop a solution which counters the devastating effects of what the medical world refers to as “Caregiver Syndrome.” He identifies seven areas that make for a joyful life.

A Gradual Disappearance – Elizabeth Lonseth

A Gradual Disappearance - Elizabeth Lonseth

“Dementia is like a maze. Its victims get lost in the labyrinth of their own minds, bringing confusion and despair to themselves and to others around them. Families watch helplessly as their loved ones drift further and further away from reality, and when decisions are made, emotions often get in the way of what is really necessary.” – Dr. Sameh Elsanadi, MD Geriatric Psychiatrist

An Introduction to Coping with Depression for Carers – Tony Frais

An Introduction to Coping with Depression for Carers

Looking after a person with depression can often leave carers emotionally and physically exhausted. This short, straightforward and easily understandable guide offers valuable advice on how carers can

BMA Carer’s Manual – British Medical Association

BMA Carer's Manual

Endorsed by the British Medical Association, this is the definitive guide to caring for the elderly or sick, offering practical advice and solutions for everyday concerns such as adapting living space and safe movement and handling. Step-by-step sequences explain essential activities such as helping someone in and out of a chair and special features focus on topics relating to common conditions.

Carer’s Bible – Amanda Waring

Carer's Bible

This accessible and detailed guide includes practical tips, checklists for best practice, descriptions of their experience from a wide range of carers that addresses solutions to common problems, and expert advice on how to deliver compassionate and dignified care to older people.

Caring for a Loved One with an Eating Disorder – Jenny Langley, Janet Treasure, Gill Todd

Caring for a Loved One with an Eating Disorder

Caring for a Loved One with an Eating Disorder: The New Maudsley Skills-Based Training Manual provides a framework for carer skills workshops which can be used by anyone working with these conditions.

Confidence to Care: A Resource for Family Caregivers Providing Alzheimer’s Disease Or Other Dementias Care at Home – Molly Carpenter

Confidence to Care A Resource for Family Caregivers Providing Alzheimer's Disease Or Other Dementias Care at Home

Confidence to Care is the essential handbook for the family caregiver offering practical insights to understanding, managing and preventing the behavioral symptoms associated with dementia and Alzheimer’s disease. Touching, personal stories come together with practical and easy-to-access tips and techniques drawn from decades of caregiving experience by internationally-recognized experts.

Guide to Mental Health for Families and Carers of People with Intellectual Disabilities – Geraldine Holt, Anastasia Gratsa, Nick Bouras

Guide to Mental Health for Families and Carers of People with Intellectual Disabilities

A practical and comprehensive introduction for carers to mental health problems, this accessible guide outlines a range of signs and symptoms of mental health problems that can affect people with intellectual disabilities. The guide explains why mental health problems develop, and advises on what can be done to help people with intellectual disabilities and carers themselves.

Living with Dying: A Complete Guide for Caregivers – Jahnna Beecham, Katie Ortlip

Living with Dying A Complete Guide for Caregivers

  • This easy-to-use guide for caregiving instructs you how to:
  • Have the conversation
  • Navigate the emotional and spiritual journey
  • Control pain
  • Address symptoms
  • Work with hospice
  • Care for yourself
  • Get your loved one’s affairs in order

Mindfulness for Carers: How to Manage the Demands of Caregiving While Finding a Place for Yourself – Cheryl Rezek

Mindfulness for Carers How to Manage the Demands of Caregiving While Finding a Place for Yourself

Carers are particularly vulnerable to feeling stressed, worried and worn down by the vast demands that often come with caregiving, be they physical, psychological or emotional. Mindfulness can be enormously beneficial to carers, whether professional or voluntary, as a means of developing greater inner stability, resilience and gaining more control over their thoughts, feelings and emotions.

No Saints Around Here: A Caregiver’s Days – Susan Allen Toth

No Saints Around Here A Caregiver's Days

When we promise “in sickness and in health,” it may be a mercy that we don’t know exactly what lies ahead. Forcing food on an increasingly recalcitrant spouse. Brushing his teeth. Watching someone you love more than ever slip away day by day. As her husband James’s Parkinson’s disease with eventual dementia began to progress, writer Susan Allen Toth decides she intensely wants to keep her husband at home—the home he designed and loved and lived in for a quarter century—until the end.

Self-Care for Caregivers: A Twelve Step Approach – Pat Samples, Diane Larsen, Marvin Larsen

Self-Care for Caregivers A Twelve Step Approach

For those serving as a caregiver for a loved one, the authors of this down-to-earth, encouraging book can help you make the most of the experience without losing yourself in the process.

Supporting Families and Carers: A Nursing Perspective – Mary E. Braine, Julie Wray

Supporting Families and Carers A Nursing Perspective

Understanding the perspective of carers is an essential aspect of nursing. Supporting Families and Carers: A Nursing Perspective offers insights into the fundamental principles of caring for families and carers irrespective of age, gender, ethnicity, sexuality or religion.

Take Care, Son: The Story of My Dad and his Dementia – Tony Husband

Take Care, Son The Story of My Dad and his Dementia

Hi Dad . . . can we have a chat about your dementia . . . Can you remember how it started?
When Ron Husband started to forget things – dates, names, appointments . . . daft things, important things – it took a while to realise that this was ‘a different form of forgetting’. But it was just the first sign of the illness that gradually took him away from the family he loved.

The Carer’s Handbook: Essential Information and Support for All Those in a Caring Role – Jane Matthews

The Carer's Handbook Essential Information and Support for All Those in a Caring Role

This indispensable guide aims to be a one-stop-shop for the huge percentage of the population who, now or later, find themselves in a caring role, whether that involves shopping for a housebound neighbour, or giving up work to care full-time for a disabled child or confused parent.

The Complete Carer’s Guide – Bridget McCall

The Complete Carer's Guide

There are around six million carers in the UK, a figure estimated to reach nine million by 3037. Being a carer can be rewarding, but it is often stressful and exhausting: it involves a range of tasks, such as providing personal care, managing medication and ensuring that the needs of the person being cared for are met. This practical, much needed guide discusses how to ensure that you have a life of your own while caring, how to make informed decisions and, most importantly, how to access the support and help you need.

The Essential Carer’s Guide – Mary Jordan

The Essential Carer_s Guide

Illustrated with individual case stories, this book covers physical, social, and financial needs, across the stages of immediate, intermediate and advanced care. It is useful as a practical companion for those caring for, or responsible for the care of, an elderly friend or relative.
The Selfish Pigs guide to caring – Hugh Marriot

The Selfish Pigs guide to caring

Over six million people in the UK…provide unpaid care for disabled or elderly relatives, friends or neighbours. Their job is long, lonely and hard, yet there is limited support and no formal training. As a result, carers suffer frequent damage to physical and mental health. Oddly, though carers by definition are anything but selfish pigs, they are liable to feelings of guilt, probably brought on by fatigue and isolation.

Where There is No Psychiatrist: A Mental Health Care Manual – Vikram Patel

Where There is No Psychiatrist A Mental Health Care Manual

Even though mental illnesses are common and cause great suffering in every part of the world, many health workers have a limited understanding about mental health and are less comfortable dealing with mental illness. This book is a practical manual for mental health care for the community health worker, the primary care nurse, the social worker and the primary care doctor, particularly in developing countries.

Young Carers and their Families: Working Together for Children, Young People and Their Families – Saul Becker, Jo Aldridge, Chris Dearden

Young Carers and their Families Working Together for Children, Young People and Their Families

Young carers are children and young people under the age of 18 who provide care for an ill or disabled parent or relative in the community, usually within their own home. They perform many of the same domestic, caring and other duties as adult carers but often without the recognition and support received by many adult carers.

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Influential poem from Patrick Lee

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Welcome one and all to a new blog for the month of August. I have to apologise for not putting anything up for some weeks now since I have been really busy doing a lot of carer campaigning. To be honest I have not had much time to provide feedback from the 4 carer forums in South London.

I have also just recently come back from a lovely forum held over in West London, from the West London Collaborative, they do excellent work over there helping to build communities.

Going back to this particular post, I want to dedicate this blog post for its creative content. A while ago I met Patrick who provides peer support for those using the mental health services. He spoke to me how he used the power of poetry to help others express themselves. Poetry can be very creative and powerful in a non-combative way. Sometimes just saying things is hard enough, but if we use the power of poetry then anything is possible.

I have recently created a video about one of his poem’s which is from his book “The Nearly Man”. The Poem from the video is called “Cardboard City Dweller”. You can watch the full video below

 

Patrick has released several books of poetry, let me know if you want to try catch him in order to hear more about his work. I hope to do some more blogging real soon.

Thanks for dropping by.

Lambeth MH Carers Forum update May 2018

IMG_20180531_195653Welcome to the May’s update of the Lambeth Mental Health Carer forum. It has been a while since I did an update for the forum, since I could not attend the previous Lambeth MH carer forum and forgot to blog about the other previous forums.

This forum caters for unpaid carers who are caring for someone with a mental health need, e.g. someone suffering from psychosis, eating disorder, depression, bipolar and other MH illnesses.

The forum is strategic and gives carers the involvement and empowerment to query, question and even compliment the mental health services in Lambeth and sometimes beyond e.g. we are hoping to have a representative from NHS england attend in future.

This Lambeth MH forum was on the 31st of May and was well attended with some very good questions and statements from the forum members. The Lambeth MH Carers forum is run from the 336 building off Brixton road.

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Guest speakers at the forum was Stacey Hemphill from the ‘Living Well Network Hub’ and also Lambeth Police Mental Health lead inspector Mark McLeavery.

Updates from Stacey was on how and why the Lambeth Living Well Network was started up and provides support people’s Mental Health and wellbeing. They liason with Lambeth GPs and those using the services.

Stacey talked about how the network engages with carers and what support they can provide service users. The Living Well network runs at the following places being the Mosaic Clubhouse on Effra Road, Clapham Methodist Church and also at 336 Brixton Road, you can call them on 0203-691-5080 or email them on slm-tr.lwnhub@nhs.net

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Next up was Inspector Mark McLeavery from the Lambeth Met Police. He spoke about how the Lambeth police engages with someone who is in a crisis out in public. The forum were very interested to hear how someone in crisis ends up at the Maudsley’ hospital ‘Central Place of Safety’.

Mark mentioned Lambeth has a challenging and high rate of mental health needs, plus the stigma of mental health can make things even more challenging.

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Mark Spoke about the Crisis Assessment Team ‘CAT’ and the use of ‘street triage’ Mark stressed that there are no use for police custody cells for those in mental distress, although I did mention the problem with beds and he mentioned at worse A&E might be the last option for someone in serve distress.

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The forum moved on to discuss GDPR and updates from Carers Hub Lambeth, it now seems that the charity ‘Help for Carers’ is being disbanded and Carers Hub Lambeth has split from it.

Going on to the minutes of the last forum that took place in April, the updates were from how Lambeth Healthwatch are engaging with its support networks. Updates on the King’s Health Partners ‘Mind & Body’ programme. Updates on C4C visits, plus the good news on the Money and MH Link update with government passing a law that supports those suffering debt from MH illness, which involved one of our very own carer member of the forum helping to lead on the project.

Other updates have been no news on the rota from SLaM regarding guest speakers, but I mentioned the trust were under reorganisation, so we will see what happens after that. There is also a push to have a Lambeth MP engage with the forum to see the wonderful work unpaid carers are trying to do to help their community.

This concludes the update from the Lambeth MH carers forum.

Lewisham MH Carers forum April 2018 update

IMG_20180529_135451Welcome to the Lewisham MH carers forum update for May. Out of all the four Mental Health carer forums in South London, this is the oldest one I chair. The MH carers forum ran on the 29th of May.

Carers Lewisham have been very good in supporting the forum and helping to advertise it, but we still need to reach other mental health carers in the borough of Lewisham. It is very important unpaid mental health carers know what is going on with the mental health services, let alone being engaged and trying to influence them.

For the month of May, we had guest speaker Stephanie Edwards who is the Clinical Team Leader for the Psychosis service in Lewisham. This forum was highly strategic as the forum members got a brief breakdown of the mental health services in Lewisham. The mental health service structure for the borough of Lewisham was complicated due to the current restructuring of SLaM staff, but hopefully we will have Donna Hayward-Sussex at the April forum, she is the Deputy Director of the Crisis Services within the Psychological Medicine Team.

The forum members need to know and query how mental health staff restructuring will affect service user and carers in the borough of Lewisham. As far as the forum knows, there will be be senior management consultations regarding interim posts.

Lewisham Ward Map

The mental health trust that covers 4 boroughs and a few more regarding mental health services is preparing for the CQC visit in July, they have spent a long time preparing services and involving carers and service users in ward/service inspections, which was good to hear. The MH carers forum appreciates staff have worked very hard.

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Regarding future forum engagement, the members look to be updated on the NHS trusts estate developments, governance structure and involvement oppertunities. I queried how many carers does Lewisham MH services have on the books, but it can be difficult to pin down the answer, still heard that around about over 800 Mental health cases are in the books, so it gives us some idea of the number of families and carers we need to reach.

Stephanie Edwards is preparing for Lewisham’s People’s Day, so the forum looks to provide cards, posters and leaflets.

After discussions, I brought out a large map of SLaM’s services and Stephanie took time to explain what the services in Lewisham are about, who was responsible and answered queries from the forum members.

There is concern that not enough carers in the borough know what is going on and are not getting involved. There are plans to have the forum held alternatively in the evenings at the Depford community centre. We also hope the carers support group can be set up in Lewisham Hospital so new carers can gain therapeutic support since there is limited time for carers stories at a Carer MH Forum.

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The forum has requested an MP visit soon from the borough of Lewisham to boost carer empowerment and understand carer issues with the borough

This concludes the update for the Lewisham MH carer forum.

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Southwark MH Carers Forum May 2018

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Here is the update from the forum I run after the BME MH Carer/SU forum in the afternoons.  This forum is aimed at unpaid carers in the borough of Southwark, although mental health professionals are free to attend.

The May carer forum was very well attended with representatives from Southwark CCG, Southwark Healthwatch, Kings Health Partners and nurses from the Southwark inpatient acute wards.

At the start of the forum I presented what a mental health carer is, that being basically an unpaid carer supporting someone with mental health needs.

We then had Eliza Hinchliffe presenting on Kings Health Partners project ” Mind and Body Programme”

She presented on the new Mind and Body programme, which is a Kings Health Partners initiative between Guys&St Thomas, Kings College Hospital and SLaM. The Mind & Body programme looks to close the gap between mental health needs and physical health needs.

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The forum discussed ways engagement can be made with carers in mind. There is an offer to promote the forum via the hospitals in Southwark, which means families and Carers can link up on what is going on.

The forum hoped to have Mick Wright Turner – Head of PMIC Southwark Pathway, but he was unavailable.  However we were very impressed that nurses from the Mental Health unit attended the forum to speak about the carers pathway progress.

Next up to present was Karen Clarke who is the mental health lead at Southwark CCG. The forum is particularly interested in collaborating with her regarding updates on mental health services in the borough of Southwark, especially services that needs to give more thought/involvement and engagement about families and carers.

Karen spoke about her role and an introduction about Southwark’s mental health strategy. There will also be a IAPTs review,  the Southwark wellbeing hub review and more updates.  The forum spent some time comparing it to Lambeth’s Mosaic clubhouse. The forum would like southwark CCG to help promote what we do and let carers know there is a place to be heard.  Karen aims to continually engage with the forum, so carers and carer champions can be involved and spread the word.

Next was Southwark Healthwatch updating on projects regarding carers?

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Southwark Healthwatch spoke about their new initiative to engage with carers about mental health services.

The engagement officers took the time to ask carers on what they think would be a mental health crisis and where would the carers take their loved one during a crisis and would like to interview carers about mental health services in the borough of Southwark.

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The forum again would like Southwark Healthwatch to help promote the forum, which Healthwatch agreed via their community board.

The next part of the forum looked into engagement requests Updates

There was a very short discussion on meeting the MP Neil Coyle, the MP has helped promote the forum and there will be a Southwark MH event in Parliament with members of the forum talking about why such a forum is needed.  All members noted that this will bring much needed awareness of what carers are trying to do while being empowered to do so.

Members are also excited that MP Helen Hayes is due to visit the forum in June.

Lastly we had an update from Carers involved in SLaM Foundation Trust

I have been helping train staff on the wards, one ward was actually done over at the Maudsley, this is in regards to carers & confidentiality. The training is being done with help from the trusts Modern Matrons.

Another member of the forum attended NHS England’s conference and raised if their 5 year plan includes try Triangle of Care.

This concludes the update for the Southwark MH Carers forum, stay tuned for the Lewisham carers forum update and also the Lambeth Carers forum update.

 

Mental Health Awareness week 2018

Welcome to a new blog from a mental health carer in South London. This video helps to raise awareness of mental health. Specifically mental health awareness week 2018.

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What on earth is mental health awareness week you say? I actually have done a few videos on the awareness event some years back, but let me refresh your mind.

As a note, I have also done a video version, press play to watch it.

Mental Health awareness week aims to raise awareness of mental health and mental illness or health needs. Mental illness can affect us all ranging from minor mental health problems to chronic mental health needs. Mental Health Awareness Week runs from 14th to the 20th May. For 2018 the theme is on stress. Research has shown that two thirds of us experience a mental health problem in our lifetimes

Without campaigns or events to raise awareness about stress and mental health, many people would fall victim to stress, which can actually get out of control. We all experience stress and minor levels can actually help us achieve what we are trying to do, but prolonged and high levels of stress can cause damage to our mental and physical health.

Sad man sitting head in hands on his bed in a bedroom at home

Stress can affect your mood, behaviour and body. Stress can cause any or a combination of the following.

  • Headaches
  • Sleep problems
  • Lack of focus
  • Social withdrawal
  • Feeling overwhelmed

Stress can also lead on to other mental health issues being

  • Anxiety
  • Sadness
  • Depression
  • Addiction problems in order to cope with stress
  • Eating issues

Sometimes what we need is to recognize when we are stressed and either stop or behaviour or seek help. Taking time out from stressful situations can do us a world of good, especially speaking to friends in the community.

So what have I done for MH Awareness week 2018? Not only did I promote awareness via this video, but I took part in a Curry & Chaat event over at Southwark carers. It is important not to forget those who try to protect and care for someone with mental health needs.

I hope this blog has been educational to you and hope you have a happy mental health awareness week 2018.

Lewisham MH Carers forum April 2018

Welcome back to my MH carer forum update from the Lewisham carers group. At the Lewisham Mental Health carer forum, we discuss carer engagement from our local mental health trust, 3 party organisations, the council and lewisham based GP surguries.

We also discuss carers rights, reports and learning about the carers role. For the april 2018 meeting. We discussed the report sent back from out local Mental health foundation trust, which is South London & Maudsley.

I usually attend and chair carer forums across South London, so it was important quality improvements for the mental health services get views from Carers. The report is fairly well written and easy to digest. I had printed out some copies for members to read at the Lewisham MH Carers forum.

We spent most of the time discussing the report, especially page 7 of the report, because that is where the write up of the carers forums were placed regarding carer issues. Despite the report being very easy to read, there were some problems. Some members felt the report was too vague and missed some things out. Other members of the Lewisham MH Carers forum felt the report is lacking in a conclusion on what needs to be done to tackle quality issues.

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One of the members of the forum is going to raise their concerns back at the trust, although I am glad the quality project did mention our concerns. We hope SLaMs Head of quality can engage with the forum regarding SLaMs quality priorites.

We also had a guest speaker at the forum who promises to return to the forum again. The head of the Ladywell Mental Health unit based at Lewisham Hospital engaged with the forum. I was delighted that she was able to make it, even though she had to deal with many emergency meetings. Sam Grey spoke about her role and what a Unit manager does. She described around 7 wards and their purpose and gave an update of changing service structures regarding borough based services rather than trust wide services.

I spoke about the need for a carer support group to be set up for the whole of the Unit, mainly because such a support group existed there years ago. Plus families and carers can always make the tuesday evening for a support group. I am fortunate enough to get support from the trust’s modern matrons who themselves focus on quality priorities. The forum wanted updates and engagement from the Ladywell Unit’s phamacist also the psychriatric nurse from Lewisham hospital, unfortunately we are not sure if it is possible to get their time, but the forum is interested on how such staff deal with medication issues and also how Lewisham hospital’s A&E engages with patients and their friends/families.

I hope the update was a useful read, see you next time.