Although I run many carer groups focused on those caring for someone with a mental illness. I also facilitate the London Cancer carer forum. The group is based online to allow caregivers a chance to network, share ideas and be informed.
The are several reasons for such a group. The first is a platform to be heard or at least to reduce isolation.
It is not easy when you find out that someone close to you have developed cancer. There is shock, disbelief and confusion. How could this happen? Why them? Why me? Why now?
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You are not sure where to turn, but for sure you will certainly listen to the health professionals. You will also do your best to be there for then person diagnoised with cancer. Still in the back of your mind, you might feel powerless. You are almost dependant on how hard the person you care for will fight.
So in the end you must remain confident, but the waves of emotions can keep flooding back. It is as if your life is put on hold because you are unsure about the future. Yet, you will try your best to plan as it is perhaps the best way forward. You do your best to listen to the fears your loved one might express, you will try and be there for them.
Still, deep down you dare not express your fears, concerns or worries to the person you care for. So who do you express them to? Who could understand? Would the health professional have the time to listen to you? How about counselling? There is excellent counselling out there, but it is not forever and you need to belong somewhere quickly. Even if it is just for a moment.
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For carers who feel vulnerable there should be a platform where they can feel connected and to express their experience. There should be a place to learn from others and feel less isolated. As carers there should be a chance to try to share our journey because caring for someone can be a maze of complications and difficult emotions.
Since Carers Week 2024 takes place from Monday 10th June until Sunday 16th June 2024, The London cancer carer forum will focus on what support carers should seek for 26th of June – 5 pm till 6 pm.
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