Tag Archives: NHS

Caring through the CoronaVirus

Corona VirusThanks for dropping by my carers blog post. This site raises awareness of unpaid carers and mental health. As of this blog post I am caring for someone close and just coping the best I can, while keeping a close eye on events. As of the title, this blog post is about the Corona virus and its implication to carers like myself and those in the community.

If you have been following my tweets on twitter, I have been posting that carers need to take care of themselves. Sometimes I have done a blog post about carer wellbeing and sometimes I will do a video blog or podcast.

Feel free to listen to a podcast on looking after yourself as a carer.


For carer health and wellbeing, it is now a vital challenge that carers must take care during the corona virus, not just for their own health, but also for those who they are caring for be it someone with Mental illness, physical health problems or an older adult.

A brief about the CoronaVirus

If you are still unsure what all the fuss is about. What is the Corona Virus or COVID-19?

The Coronavirus is a large family of viruses that cause illness ranging from the common cold to more severe diseases. It has spread all around the world causing many to become unwell and causing many deaths. You might think that the corona virus is just a health risk, but it is much more than that as it poses an extreme challenge to the economy, functioning of society, trust in others and the community. The corona virus unfortunately has hit via a perfect storm of the flu season where the vulnerable are most at risk.

Still it is not all bad news as if you have a strong immune system or are under 60, most people recover depending on the symptoms. The big problem is carers are caring for those who are usually in the other category and it is a big concern for many carers across the globe. Many in the UK are concerned how governments are fighting the virus, especially in the UK

Carer concerns

Focusing on the UK at the time of this blog post. The government is moving from the ‘Contain phase’ to the ‘Delay phase’ due to the number of Corona virus cases appearing in the country. From what I understand, many experts feel the virus cannot be stopped anymore and that we must now slow the spread of the virus. If a person becomes infected, when they isolate themselves and recover, they become immune to the virus and thus cannot spread the virus to others in the community.

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The aim of the strategy called ‘herd Immunity’ is that eventually much of the population will be immune to the virus. There are big gains with this strategy as the nature of the virus can behave this way, but there are also big risks and gambles. For ‘Herd Immunity’ to work, means that the virus needs to target those who can easily recover and thus the vulnerable can be kept safe. The other aim is to reduce pressure on the health services so those who can recover just isolate themselves while the vulnerable can use the health services.

When many unpaid carers heard the statement from the government about slowing the spread of the virus, there were many concerns because not one carer would want to be infected and bring the infection to those who they are caring for, because it could be a death sentence for the caree.

Many carers would prefer more emphasis on the government to focus on stopping the virus on spreading, but again there is a trade off because that could mean disruption of services, closing schools, lock downs and disruptions across the board. All this of course probably will come about, but the government would want disruption to be minimal, but at what cost?

What is happening for carers during the epidemic

Carers Trust and Carers UK both national charities campaigning for carers also have concerns and have issued a joint statement. From what I understand, the core of the statement is that Carers will come under severe pressure from the current climate. As if unpaid carers were not struggling already.

The Joint statement is aimed at Carers and also those who make important decisions regarding health and social care.

From the joint statement, the information that i focused on was the importance that Services must be in place for the following situations especially during the epidemic.

Other important concerns raised by the joint statement is about The role of mental health services. Please read the joint statement below.

https://www.carersuk.org/images/News_and_campaigns/Coronavirus/Covid-19_Joint_Statement_one.pdf

My views on the current challenges for carers

As if carers were not struggling enough already, even more will be asked of them. The whole situation is not even any carers fault as they are only doing what the community asks of them. To provide care and support for those close to them.

Never before have carers needed to focus on their own health needs because the ‘cared for’ will unfortunately suffer due to health and social services will come under more strain.

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The current climate will test communities to their limit and will cause major heartbreak and unfortunately many will lose their loved ones to the virus.

As a carer, I will do my best to let other carers know about their duties, but no more will it be just about caring, but understanding what the virus is and how it will change things. It will request carers understand what has changed in health services, using your voice as a carer to request support needs. Of course I will continue to run my forums remotely and network with carers who become isolated.

Us carers must come together, be counted and look out not only for who we care for, but also other carers. The challenges are only just beginning and it will be a long one.

To follow up on understanding the virus and what you need to do.  Please check out the following sites.

NHS -Coronavirus (COVID-19) Overview

Coronavirus (COVID-19): UK government response

Good luck on your caring Journey

Lambeth MH Carers Forum update February 2020

20140710_143445Here is the update from the Lambeth Mental Health carers forum. The forum is run over at Brixton 336 building hosted by Lambeth Carers Hub.

Carers’ Hub Lambeth is an independent local charity based in Brixton. They offer advice, information, emotional support, signposting, peer support groups and events to unpaid carers of Lambeth. I often attend their MH carers support groups. Without Lambeth carers hub, many carers in the borough would feel isolated, abandoned and having to cope through a crisis.

The Lambeth MH carers forum aim is to bring Mental Health carers together to inform, educate, offer some form of empowerment in their role to engage with health and social care services.

The main agenda for February was engagement due to worrying concerns about the closure of Lambeth hospital. Some carers are fine that some action will be taken by SLaM (South London & Maudsley), because they feel some wards on the hospital are not fit for purpose. Other carers are not sure what is going on and are happy to attend in order to be informed and feel part of the discussion.

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Some carers from the Southwark area are worried development will further reduce needed space to access services. There are many reasons why unpaid carers need some form of engagement, so we hope the forum can offer some dedicated insight that SLaM takes the views of families and carers seriously.

We had hoped the Service director for Lambeth Hospital would be free to engage with us, but he was unable to make it, although members had a very lengthy and informative discussion about the consultation process regarding Lambeth hospital.

The forum also is awaiting a visit from Kings college hospital NHS trust MH lead regarding the trusts Mental Health Strategy. I have noticed many Acute NHS trusts developing mental health strategies, but members are worrying if there is consultation with carers in the boroughs regarding established forums and groups.

Gavin Smith the MH lead for Kings College hospital could not make both carer forums, but he did manage to attend the Southwark MH carer forum the next day, which was brilliant and showed how much dedication he has in putting mental health at the heart of the NHS trust. I will report the Southwark MH carers forum update soon.

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The Lambeth MH carers forum was kindly co-chaired by myself and another carer who is learning more about the NHS, mental health services and the obligation of social care services. She presented the minutes from the last forum very well.

The carers forum discussed carer awareness at GP centers in the borough of Lambeth and if carer registers are kept up to date, or even if GP surgeries have them, we hope there is engagement from Lambeth Carers Hub towards GP practices in Lambeth.

We also discussed the mental health strategy from Guys and St Thomas NHS Trust as that trust is very busy linking with both the Lambeth and Southwark MH carer forums. There has been some great news as both trusts are inviting carers to involvement in order to raise carer voices even more. I am very impressed with both Kings and GSTT NHS trusts as they have made it clear to work in partnership with the community.

Both NHS trusts MH strategies and Carer strategies will take some reading, but at least there is some way to hold the trusts to account as members get worried if no plan of action is in place or if there are no policies.

Guys and St Thomas NHS Trust are back again over at the Southwark MH carers forum later this year. The forum also discussed updates on Lambeth Healthwatch questionnaire, which I believe is still in development.

I also updated the forum on my plans for the other forums I do and hope other carers have a chance to get educated on the complex system of MH care, health care along with the duties of social care. Plus I updated the forum on CarersUK developments with their new ‘Learning for living’ app and their ‘State of care’ Survey.

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This concludes the February update for the Lambeth MH carers forum.

Lewisham MH Carers forum February 2020

133Hello fellow reader. Welcome to the February edition of the Lewisham Mental Health carers forum. Each of the 4 MH carer forums I run focus on mental health service engagement for MH carers. The forums also seek engagement, updates and involvement from other parties, but usually mental health services come first.

For the Lewisham forum with thanks to SLaM’s public and patient engagement lead for Lewisham & Croydon, we were delighted to have in attendance SLaM’s Lewisham Quality Improvement clinical Nurse.

I also presented the new Carers UK online application to the members and shared this on our Carers Whatsapp group.  If you are a carer and are interested in boosting your skills.  Please check out the following link.

https://www.learning4living.org/login/index.php

I also shared the Carers UK State of Caring online Survey, which you can also fill out below

https://www.surveymonkey.co.uk/r/C8KH7CY

Going back to SLaM QI  I can almost hear the following.

What is Quality Improvement I hear you ask?

There has been a drive at mental health trusts to strengthen services through quality engagement and indicators. The quality improvement drive has unfortunately come from reports due to serious incidents in the past, but it has led to action and families and carers need to know more about NHS Trusts QI.

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Emma Jones who is the SLaM QI clinical Nurse spoke to us about the importance of QI. She spoke about the recent visit from NHS England querying the trust on involvement and co-production. From what I remember, SLaM were good in some areas, but struggled in others. Emma admitted there was still a long way to go.

We were shown a video which can be viewed below.

I felt the video was very good and certainly set the agenda for a good discussion.

The forum felt more carers need to be involved on SLaM’s carers register and more carers need to be involved on SLaM’s projects. The Lewisham MH forum await the focus groups QI are planning. There was a lot of discussion on SLAM’s changing lives strategy.

The core components of the Strategy are

  • Quality – SLaM will get the basics right in every contact and keep improving what matters to services users.
  • Partnership – SLaM will work together with service users, their support networks and whole populations to realise their potential.
  • A great place to work – SLaM will value, support and develop our leaders, managers and staff.
  • Innovation – SLaM will strive to be at the forefront of what is possible, exploiting our unique strengths in research and development, with everyone involved and learning.
  • Value – SLaM will make the best use of our assets, resources, relationships and reputation to support best quality outcomes.

The forum fed back on if the changing lives strategy has a space for carers and was not keen on the word ‘support networks’, although they agreed the word could stay, but certainly wanted the word ‘family and carer’ to be added. The view is even carers are also users of services not as patients but what SLaM can provide.

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There were also talk about other words as in the word ‘Huddle’, which is an american term for taking action and planning strategy instead of consulting.

There was more discussion on Carer & Service User Involvement in QI

Where the forum was presented on how SLaM QI in Lewisham or overall were engaging with those off the Involvement Register. The following was presented.

  • How the Inpatient Care process Model works – A Lewisham Pilot.
  • How each acute ward eventually had a 1 hour group every 2 weeks.
  • How to get patient involvement/feedback.
  • Positive & constructive Feedback from persons supporting group.
  • Pointing out that patients change ideas do make a difference.
  • How patients feel listened to, more informed of what to expect & given feedback from actions.
  • Moving Forward: Each Ward to take ownership of group with IR.

Again the forum pressed QI for carer focus and involvement, however the good thing is that SLaM QI were there to listen. Near the end of the talk, the forum discussed SLaM’s patient discharge follow up regarding SLaM’s suicide policy and touched on the QI projects each ward was working on. A lot of projects were focused on patiet flow, but some looked at the patient and carer experience.

All in all, I was happy that Emma from Lewisham SLaM QI attended, even though she was pregnant I felt this showed dedication to her role and set an example to engaging with carers. I shared the forum notes with carer members to 2 other forums in the hope those members can query Quality Improvement in other SLaM boroughs.

Next up was Carers Lewisham new support worker who has a vast amount of Mental Health knowledge.  He updated the forum on some new groups that Carers Lewisham is running and we look forward to working with him and Carers Lewisham.

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This concludes the update for February Lewisham MH carers forum.

Lewisham MH Carers forum January 2020

133Welcome to the first Lewisham Mental Health carer forum of the year. Before I do a brief update of how the forum went, I must say thank you to Carers Lewisham for hosting the forum for almost 6 years. As a carer I often mention to fellow carers that we must support our carer centres. Without carer centers then it is harder to keep the profile of carers at local and community level. Carers need that safe space, access to activities and a place for support. I am aware that so many carer centers are struggling due to lack funds, staff and resources, but my respect for the ones that keep fighting for carers will continue.

As a reminder the Lewisham MH carer forum works to give carers a chance to find out what the mental health and social services are doing for them in the community. The Lewisham MH carer forum is carer led, which serves as a message of empowerment, I always try to make sure families and carers understand the importance of inclusion, empowerment and a chance at co-production, which should be at the heart of Health and social care.

If someone is making decisions that affects patients and their families then they must include those views, if they cannot include those views then they must present what they are doing. Failure to include, co-produce or present health and social care changes leaves the community being distrustful and avoiding to engage with services.

This is precisely why we had SLaM’s involvement lead for the boroughs of Croydon and Lewisham attend to update the members on how things are getting along for involvement. Members of course were interested on the involvement updates regarding carers.

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Jane Lyon who is SLaM’s involvement lead for Lewisham and Croydon updated us on how services in the community were progressing, she unfortunately had to miss the new Lewisham Mental Health Alliance lunch in order to attend the forum, but we were glad that she sent 2 advisory group members to attend the event.

A lot of discussion centered on the Ladywell unit as we also had Eunice Adeshokan in attendance. Eunice is the modern matron for the inpatient wards at Ladywell Unit. I have known Eunice for more around 8 years or more so it will be interesting to see what developments will take place on the wards.

Eunice took the time to explain to carer members of her role and how the profile of families and carers will be raised at the MH wards. She also updated the forum of the special Carers Champion event and how carer leads on the wards across the trust are working in line with trust carers policies and strategies.

There was a discussion about SLaM PALs (a way to complain, compliment or query), since members wanted to know how carers will have the confidence to ask questions regarding the cared for. There will be work to see how staff deal with carers on the wards. One important start is that myself and another carer will visit the wards to check what is standing out for families & carers as I raised something regarding information at one of the wards.

In the meantime, I also raised the query of when the Lewisham and Croydon Staff Carer leads meeting will start up again, however we are waiting to see if staff can take on specific roles for the groups again, it could be the Lead Occupational therapists.

The second half of the Lewisham MH carers forum focuses on the NHS Trusts draft carers strategy. This is something that could not possibly be discussed at a peer support group as members need to have an interest of NHS carer engagement. It takes quite a while to get carers to have an interest of trust strategy and policies and a longer time for them to query it. The problem is the nature of NHS services can say one thing and do another.

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So we are glad that South London & Maudsley is working with carers to query their strategy, because strategies can be used to hold services to account or at least let interested carers know what the Mental health NHS is doing.

I went through the 7-page strategy with carers and spoke about what carers should have a special interest in.

The following important points of the strategy were discussed

  • The Care Act.
  • What is the Trust’s Changing Lives Strategy, Think Family Strategy and the Trust’s Quality priorities.
  • The importance of the Triangle of Care initiative.
  • Understanding the MH NHS Trusts Carer’s Charter
  • Using the trust’s view of what is a carer – in case someone is told that they are not a carer.
  • Querying number of carers since the draft points this out as a challenge.
  • The importance of diversity and how it relates to the Lewisham BAME MH carer forum priorities.
  • The trusts strategy aims
  • Explaining the trusts priorities
  • How the trust will Increase the number of Carer Champions on wards and in community teams
  • How the NHS trust will support the health and wellbeing of carers (A major challenge).
  • I was glad to see in the draft that the trust is looking to go forward and register in the Triangle of Care membership scheme. This of course will take some work and will be something a trust representative can take to the regional ToC meeting to be held at Central and North West London NHS Foundation Trust.

I would like to thank Carer’s Greenwich for also attending the Lewisham MH carers forum as I am working to set another carer forum for the borough of Greenwich where Oxleas MH NHS trust can engage with carers at community level.

In the meantime I have set up 2 carer led peer support groups for the borough of Greenwich in order to build a carer base.

This concludes the update for the Lewisham MH carers forum.

Lambeth MH Carers Forum update January 2020

20140710_143445Welcome to my first forum update for the new year. The first forum is the Lambeth Mental Health carer forum, which took place over at Brixton 336 on the 23rd of January 2020. The Lambeth carers forum exists to give unpaid carers a chance to know what Health and Social services are doing for them and also what those services have planned.

Lambeth has some of the highest rates of mental health problems in the country and perhaps even further, it is important carers come together and ask why this is the case and what are the authorities doing about it. As you might already know, South London & Maudsley NHS Foundation Trust cover the mental health services in Lambeth and also in Lewisham, Croydon and Southwark, so he forum seeks to engage with the Mental Health Trust over the coming year.

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More importantly, there are other NHS trusts serving the community in Lambeth and we had the opportunity to have Guy’s and St Thomas NHS trust Mental Health lead engage with the forum, more on this later.

The January forum was very well attended and word is spreading about the importance of the Lambeth MH carers forum, with the help of Lambeth Carers hub, unfortunately the forum took place at the same time of the SLaM carers committee, so some members had to send apologies.

At the start of the forum, we took time to go through the minutes of the last forum which was held over at Moasic Clubhouse. The forum was attended by Helen Hayes Labour candidate for Dulwich and West Norwood and also Lambeth Healthwatch who are seeking consultation from Carers on the future of Lambeth Hospital. There was a lot of discussion from the updates from the last forum.

Next we had a presentation from Caroline Sweeney who is the Mental Health Lead for Guys & St Thomas NHS Trust. You might not already know, but Acute NHS Trusts tend to develop, renew or plan mental health strategies, however both Kings NHS trust, SLaM NHS Trust and Guys & St Thomas NHS trust are working on their Carer’s Strategies as well. If you are a carer or are lucky enough to attend a carers forum, certainly inquire if your hospital trust is working on either or both policies and strategies, especially carer engagement/involvement policies.

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For the Lambeth MH carer forum, Caroline updated us on G&STT Mental Health strategy. The strategy was not developed in isolation as the trust held six workshops in the past via the hospital and its community sites.

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Their external workshop had a range of stakeholders including Service Users and carers, London Ambulance service other MH Trusts, CCG’s, Black Thrive, Oasis and Papyrus (youth suicide prevention), Lambeth Alliance and more.

Their Strategy contained many important sections being

Developments and Good Practice.
Linking to National Drivers.
Objectives of the Strategy.
Overview on Patients, People and Partnerships.

There were more, but due to limited time, we could only cover a few areas off the presentation.

GSTT Developments and Good Practice

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The plans and targets for GSTT are

  • Improving partnership working with South London and Maudsley NHS Trust
  • Delivery of training across in-patient and community services
  • Development of improved assessment processes for district nursing
  • Improve experience of patients who receive Enhanced care
  • Development of primary care hub for adolescents
  • Implementation of the Children and Young People Healthy Partnership (CYPHP), probably due to GSTT children’s hospital (Evelina London Children’s Hospital).
  • Mind & Body and IMPARTS service
  • GSTT psychology service

Linking to National Drivers

  • GSTT Long term plan is to
  • Increase Mental Health Liaison capacity e.g. specialised MH nurses in Accute wards
  • Equipping Ambulance staff to deal with MH crisis
  • Importance of improving child and adolescent MH care
  • Commitment to reducing National Suicide rates (Zero Suicide national driver).

Other drivers

GSTT also have internal drivers mentioned in their MH Strategy.

  • These drivers were from audits and reports about Liaison teams and children services experiencing an increase in referrals, this was especially noted in A&E departments and long waiting times for those experiencing MH crisis are not helping.

GSTT Mental Health Strategy Vision and Objectives

A MH Strategy would not be much without its Vision and Objectives.

  • GSTT seeks to improve quality of care that it delivers to Patients, carers and families living with serious mental illness.
  • GSTT also seeks to support patients with long term physical health conditions and manage their MH needs
  • GSTT seeks to ensure their workforce has the right skills, knowledge and attributes to care for patients, their carers and families dealing with MH needs.

There were other things discussed in regards to GSTT MH Strategy, that due to time I have not mentioned in this blog post.

GSTT and carers

  • We did not have GSTT carers engagement on their carers strategy, but Caroline did cover some part of that stategy, that being the introduction of Carers Passport to identify carers.
  • Use of Carer network study days
  • Dementia specific Carer days (which is still under development).
  • Continued work on Alzheimer’s society and Dementia UK.
  • There is more in the pipeline regarding how GSTT engages with Families and carers, but the above is a start.

The rest of the forum was discussing on the rota for chairing the meeting and future attendees for the Lambeth MH carers forum. Many hope for the Helen can update the forum regarding carers later on in the year and for other MPs to engage with the group. Other members want engagement from Lambeth leads who run social services.

This concludes the update from the Lambeth MH Carers forum for January.

A Look back at 2019

10177241_747738765268892_5890142387668348507_nThanks for dropping by. I am in the midst of compiling my new podcast on the experiences of carers, but in the meantime I thought to do a quick blog on looking back at what I have been up to in 2019.

As usual I have been continuing to run four carer forums each month for the past year. We have had a lot of support from the community and I can only hope it continues in 2020, because the groups will increase to another 4 and an extra borough.

However from each of the 4 carer engagement forums here is the list of those who engaged with carers

Lewisham MH carers forum (2019 speakers)

  • SLaM Hoarding Service
  • Roslyn Byfield is a trained Counseller and therapist,
  • Kathryn Hill (Director of England for Carers Trust)
  • SLaM Engagement lead for Lewisham and Croydon
  • SLaM Patient Advice Liason Service
  • Lewisham Healthwatch
  • Lewisham CCG
  • Ruth Morgan – Clinical Psychologist
  • Aaron Brewer – SLaM Quality Improvement
  • Cllr James Rathborne – Lewisham Mental Health Champion
  • SLaM Head of Nursing

Lambeth MH Carers forum (2019 speakers)

  • Lambeth Healthwatch
  • Eva Klamerus on CoPE online resource for carers
  • Lead for Lambeth Hospital
  • Helen Hayes MP for Dulwich & West Norwood
  • Rebecca Martland researcher from the Institute of Psychiatry, Psychology and Neuroscience
  • Robert Stebbings the Policy and Communications Officer from Adfam
  • Older Adults and Dementia Operations Directorate

Southwark MH carers forum (2019 speakers)

  • Eva Klamerus on CoPE online resource for carers
  • Southwark Healthwatch
  • Kings College Hospital Carers Lead
  • NHS Serious Incident investigator
  • Nicola Gunn Solicitors
  • Southwark CCG on their carers strategy
  • Southwark Council
  • Rebecca Martland researcher from the Institute of Psychiatry, Psychology and Neuroscience

Lewisham BAME MH carers forum (2019 speakers)

  • Lewisham Police MH engagement lead
  • Eva Klamerus on CoPE online resource for carers
  • Lewisham CCG – queries on Lewisham carers strategy
  • Lewisham Council
  • SLaM PALs on SLaM Carers strategy
  • Table Talk on Older Adult community support
  • SLaM pharmacist
  • South Lewisham GP Practice PPG chair
  • SLaM Equality Lead
  • Errol Chambers SLaM Inpatient social worker
  • Clinical Team Leader for Lewisham Community Services

I would like to thank those who took their time out from work to engage with carers and carer representatives in those boroughs.  Special thanks to fellow carers also managing to attend.

Just a quick note that there have been quite a few more attendees particular for Lambeth borough, but I had not managed to always blog those meetings in time.

Other things I have been busy doing in 2019.

Below are a list of events and activities I have been up to in 2019.  The list is not in-depth because there are a lot of things I have missed out, but there is a link below each title which you can click on to read more about different events.

Lewisham Stakeholder event

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Near the end of the year, I was happy to set up a workshop about carers at the Lewisham CCG stakeholder event. It took a bit of work, but many carers from Carers Lewisham supported each other and we all felt the workshop empowered us all. The Lewisham Mental Health Stakeholder event went very well and was attended by many stakeholders, partners and organisations also running their workshops.

Lewisham MH Stakeholder event Link

ADASS Carer celebration festival 2019

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The first London Carers festival took place over in the London Borough of Tower Hamlets. The event was planned by the Directors of Adult Social Services and other partners. The carers festival was very well planned with many community activites throughout the day. As we all know carers do much for almost next to nothing, so I was proud to attend and observe the festival. I hope the 2020 carers festival will go well and I am wondering what London borough will run it.

ADASS Carer celebration festival 2019 link

HSJ Award Ceremony 2019

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The Health Service Journal awards was a long time in the making, but I am not surprised because the awards cover the whole of the NHS. I was delighted to be one of the judges on picking which part of the UKs System Led Support for Carers and how those systems would incorporate, identify and empower carers. All applicants had excellent case studies, but can be only one winner which was West Yorkshire and Harrogate Health and Care Partnership, although Manchester Healthcare partnership was highly reccomended.

HSJ Award Ceremony 2019 Link

Carers UK annual conference 2019

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Carers UK (I often mention them) also had their annual conference on developments around the country for carers. I was delighted to be given a chance to speak at the conference in regards to carers empowerment, which I feel is a much needed thing for carers. Carers UK gave me that extra voice for that day and will continue to give carers that needed voice.

Carers UK annual conference 2019 Link

St Andrews Black History Month event

I was not able to blog the event, but I was happy to speak about the “Importance of BAME NHS Staff and the relation to BAME carers in the community”. The event took place of at St Andrews healthcare site. The site was massive and I felt like I walked 3 parks to get to their head quarters. The turnout was very good and the event was planned well. I am awaiting what the outcome is for 2020.

Service User Advocacy Exhibition

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Bethlem’s Museum of the mind has recently put up an exhibition celebrating experiences and voices from the service user and carer community. Part of the exhibition showed my views on why carers should be involved in the NHS and helping to shape mental health services. After all, I have been involved at SLaM for close to 5 years or more, plus I am involved at other mental health trusts and probably counting. The Exhibition opening went smoothly and I have visited the exhibition several times.

Service User Advocacy Exhibition Link

Royal College of Nursing involvement group

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The Royal College of Nursing has taken up the Triangle of Care a policy that aims to connect Health professional, Patient and Carer. The majority of input does come from MH carers as the culture of the health service centers around the patient, this can go double for the mental health system, so a policy from a carers perspective is a welcome result. Due to the RCN taking on the Triangle of Care, other avenues have opened up and one of them is the RCN’s involvement group, which I am a member of.

Royal College of Nursing involvement group Link

Reform of the Mental Health Act Debate

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The reform of the Mental Health Act 1983 has been a long time coming and it was with pleasure to attend the debate of the reform of the MH act over at parliament.  The speaker who led the debate was Neil Coyle MP for Bermondsey and Old Southwark (also a carer) . I hope MPs to engage with carers regarding the Mental Health Act as many carers worry the reform act still ignores their concerns.

Reform of the Mental Health Act Debate Link

National MH Nurses director forum at Warwick University

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The National Mental Health Nurses director forum (sorry its quite a long title) is a major event in the stakes of Mental Health Trusts. I was happy to speak at the event and got a chance to meet England’s most senior Nurse Ruth May.

The facilities at Warwick University were excellent and I think I was very spoilt. I spoke about the importance of mental health carers and the influence families and carers can bring to the NHS. For 2020 it will be a very important year for NHS England especially with the promises government will bring to the table and the World Health Organisation’s Year of the Nurse and Midwife……watch this space.

National MH Nurses director forum at Warwick University Link

Trauma Matters event

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I have very close links to the WeCoproduce CiC and have known them for a very long time. It is one of the many Patient and carer forums that has similar aspects to the forums I run.

I have known Jane McGrath for many years and she always amazes me with the sheer dedication and organisation of running national events. Due to the terrible events at Glenfield Tower, many people were traumatised from the incident and it was only a matter of time before West London community asked what an earth is Trauma. I attended part of the Trauma Matters event and you can see my blog about it below.

Trauma Matters event Link

SLaM Annual Trust Psychology and Psychotherapy event

Psychology and Psychotherapy mean a lot to me and as far as I know SLaM runs an annual Trust Psychology and Psychotherapy event. I was happy to speak about the importance of Psychology and Psychotherapy at the event along with a patient I have known for a very long time.

SLaM Annual Trust Psychology and Psychotherapy event Link

Triangle of Care regional meetings (Kent & Medway / SWLSG )

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NHS Mental Health trusts involved in the Triangle of Care policy often meet and discuss regional developments. Since I am on the steering group of the Triangle of Care policy, I feel it is so important to attend such meetings to hear updates on how many of the mental health trusts are working towards the triangle of care and engaging with Carers.

One of the regional events impressed me so much that I blogged about it, this meeting was chaired by Kent & Medway Trust.

Central and North West London NHS Foundation Trust host the next meeting, so I am looking forward to how things turn out.

Triangle of Care regional meetings Link

Conclusion

As you can see this has been a busy year for me and I have only mentioned half of what I have been up to as a carer.  Year 2020 looks to be an event bigger year for carer involvement and empowerment and I hope carer engagement to the forums I run continue, because without carers becoming empowered to query how services are, then the family and carer voice goes missing……

Thank you all that believed in me and other unpaid carers.

Lewisham BAME MH Carer Forum November 2019

Carers Nov2019Hello again!! Here is the Lewisham BAME Mental Health Carer forum update for November. This is usually the last forum I run out of all the 4 forums per month. The forum is quite unique as the other forums promote mental health carer inclusion and awareness in the other London Boroughs, but this one focuses on Black Asian Minority Ethnic queries. BAME carers and service users suffer a whole different set of issues in regards to mental health services. Most are complex, cultural and historic, but there MUST be some platform for important parties to discuss, network and work on these issues.

Another thing different between this forum and the 3 others is sometimes this forum is a mix of patients and unpaid carers. I often try and leave space for the Service user Rep or chair to update the forum.

Who Attended and spoke

For the November update we had a discussion from Pharmacist Della Bishara in regards to medication and its affects on the patient and how unpaid carers could and should be involved.

We also had a detailed presentation from Rachel Ellis who is from Table Talk, which is a new initiative that aims to help inform senior residents throughout the borough, with the help of volunteers. Table Talk provides leaflets, information and a table in order to engage with the older population.

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We were also joined by a number of unpaid carers and patients, along with a representative from Lewisham Homes, plus Metro’s Representative who provide one-to-one counselling for people who identify as LGBTQ and/or those experiencing issues relating to diversity, equality and identity. We were also joined by Lewisham CCG Engagement Teresa and also Natasha from Greenwich Carers who I approached to set up some carer groups. We were also joined by the rep from Community wellbeing from BLG-Mind who I will also bet setting up a peer support group.

On Medication

We had a very lengthy discussion on medication with Della. Many questions from the attendees she took away to raise at SLaM especially in regards to clinical trials and reporting on side affects. Carers need to be involved because of the patient might not always be able to advocate for their need, especially if dementia takes hold. I raised with Della if there were studies looking at medication effects on BAME groups and if there is a SLaM trust wide forum that engages pharmacist issues.

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It was mentioned that Lewisham Integrated Medicines Optimisation Service (LIMOS) is working in improving medication safety for older people. Basically LIMOS is integrated across the hospital, local care homes and community settings, which means that, if a care home resident is admitted to hospital, or vice versa, there is a seamless approach to managing medication.

As with the psychiatrists bible being the DSM, the pharmacists have an important book, that being the British National Formulary (BNF), the book is not easy to get hold of and is the UKs pharmaceutical reference book that contains a wide spectrum of information and advice on prescribing and pharmacology, along with specific facts and details about many medicines available.

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Della discussed the BNF in detail and how it can help pharmacists, which the forum played close attention to. The forum also discussed the issue of miscommunication of medication between hospitals, covert medication and the issue of control & release medication.

Table Talk presentation

After the discussion with the pharmacist, we moved on to another topic regading older ages people. This was the Table Talk project, which was presented by Rachel Ellis. Rachel has been an outstanding promoter of senior citizen’s causes throughout the borough of Lewisham and has visited a large number different venus in Lewisham this year alone. As mentioned before Table Talk engage with the public on raising awareness of activities, information and support for senior citizens. This is specially important due to the population is ageing as we all are living longer.

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Table Talk work closely with Lewisham council and with Age UK. The Lewisham BAME MH carer forum were shown several leaflets, which can help older people in regards to meter readings, warm homes, fire alarm checks and transport. We discussed how isolated older people can be in the community as Rachel described more information and leaflets.

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Carer led Support Groups

Lastly for the Lewisham BAME MH Carers forum. I discussed the importance of carer-led peer support groups. I will be setting up several carer support groups in a few boroughs. Usually the forums are strategic and engagement focused and there is not enough time to hear carer stories. In fact carer support groups are meant to feed into the carer forums for empowerment purposes, but there were only a few carer support groups in the borough and none carer-led, which means there is not much motivation for carers to connect with each other.

I will be setting a BAME and a general MH carer peer support group with the help of Greenwich carers for that borough and I was so glad Greenwich carers engagement and community officer (Natasha) came along and support me at the Lewisham BAME forum.

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This will be the same for Lewisham as we will work closely with the CCGs. The forum talked about how they felt about the Bromley, Lewisham and Greenwich Mind peer support group event that was held on wednesday the 27th over at York Hall in Beckhenham. We are very glad that they are able to fund that startups of the groups, however I pressed that we do not really need the funding, it will be the passion, drive and connection that can help, not to say funding will not be helpful.

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With Lewisham CCG engagement, the forum has been aware of NHS England’s long term plan and we have made it clear they need to involve patients and carers in that plan. The good news is that the NHS England’s long term plan is beginning to take shape and involve us, but no matter what I do, I want to connect with carers and make them aware that the health system is trying hard to involve them. I am not sure about the social care element, but at least with NHS England, there looks to be some very good and exciting projects coming our way.

BAME Carer experiences Research

As promised I promoted a trainee psychologist’s study into African Caribbean experiences of supporting an individual with MH needs in a forensic setting. She contacted me after reading my blogs to see other researchers were engaging with forums about their own research. The researcher feels there is not enough literature or research papers detailing such experiences and Lewisham CCG will follow this up with the trainee Psychologist studying at the University of East London.

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As usual I thank Kelvin (one of the proactive members) for setting up the talk with the pharmacist.  I also thanks Community wellbeing and BLG Mind for hosting the Lewisham BAME forum and thank Greenwich Carers for the support they have given me and look forward to exciting projects ahead.  I would lastly like to thank Lewisham CCG engagement officer (Teressa) and the other CCGs for engaging with the Carer forums and I am very impressed with the plans they are looking to involve us in.

This concludes the update for November and I will be preparing for the groups with the support of Oxleas and Greenwich carers.