Elizabeth Tuudah is looking for unpaid carers from the Maudsley for her PHD study. The study is to better understand your experiences of holistic care at the Maudsley clozapine clinic. Holistic care is care that addresses the whole person’s needs (e.g., mental and physical health) and involves different health professionals working together with you to provide person-centred care.
The experienced-based co-design (EBCD) approach involves bringing together service users, carers, and staff in a series of events to improve healthcare services. The EBCD approach has previously been used to redesign both mental health and diabetes services to improve service user and staff experiences.
Welcome to another brief update of my BAME mental health carers forum for October 2021. I have not been reporting off my carer forums that much due to finishing up my latest book about mental health carer experiences.
You can by my latest book on the link below.
You can also find an overview of chapter 1 from my YouTube channel below.
I am now working on my 3rd book which will be a large number of poems also on the carer experiences. It is not set for release until 2022, although I have been reading out my poems at carer groups for preparation.
The carers forum usually runs once a month and its focus is on ethnic diverse carers who are caring for someone with a mental health issue, although the forum started in Lewisham, it has expanded with the support of mental health services of Oxleas, so it has extended to Bromley, Greenwich and Bexley.
Speakers for September 2021
George Hosking OBE CEO of Wave Trust – Wave Trust on Young black wellbeing
Dr Tim Ojo – Psychiatrist on Black History Month Reflections
Doreen McKenzie – Black History month Poetry
Emilie Wildeman – Patient Research project at Institute of Psychology, Psychiatry and Neuroscience
Lara Sengupte – Breakfast Clubs again Racism.
This particular forum focused a lot on Black History month which ran for October 2021. One of the speakers from NHS England & Improvement could not make it, but they did attend my BAME carers group for Novemeber, which I will blog about soon.
George Hosking OBE presents on his project for youth mental health
George Hosking CEO of Wave Trust spoke about his charity, which helps to prevent children suffering child abuse, neglect, and those witnessing domestic violence in their homes. Over a number of years, the charity has become very aware of the impact on mental health, which has led to people suffering childhood trauma in some kind or other. George mentioned a huge number of mental health problems can be traced back to childhood experiences in that way. George stated the charity has experts on trauma. He himself is a clinical criminologists, psychologist, and traumatic stress counselor, his charity supports organizations and individuals to learn how to support people who have suffered trauma in their lives.
George included that one of the things they do is they help set up trauma informed communities around the UK. These are communities which really try and provide the best possible support to people who have suffered some form of trauma in their lives. This includes a lot of people with with mental health issues and these communities can be of two types. They can either be created top down by working with the NHS and local authorities and police to create a rather statutory based organization, or else it can be created from the grassroots working away from individuals in the community. They have been working now for about two years with the Black and ethnic Community where the charity is based, leading to creating a trauma informed community.
George was thinking about the possibility of doing some trauma informed community work in Lewisham, due to Lewisham Council recently inviting organizations to make an application to provide emotional health and well-being training to those working with young people in leadership.
What his charity is looking for is people who will help young people to spot the signs of poor mental health, and guide those young people towards mental health support especially in the black community. WAVE charity has got a background on this because of their knowledge of trauma and mental health, that they can provide that kind of guidance and support. They have got the facilities to train people to be more adept at doing this sort of thing. Unfortunately what they don’t have is the links in Lewisham to people who are working with young people, particularly people who are working with young people with an interest in mental health. George did realize that our forum’s focus is very much on carers rather than supporting young people. He did do a Google search to look for an organizations in Lewisham with interest in mental health and thus Matthew’s forums came up.
So George contacted Matthew who kindly invited him along today just in case, someone from within carers forum is aware of or are even interested in what that charity could potentially allow involvement in.
Lara Sengupte presents on Breakfast Clubs again Racism in Lewisham
It was Lara’s turn to speak about her project and how it came about. They are currently in the pilot scheme phase. So they have been running projects since July, and the piloting finishes in December. By then they are going to be analyzing the results of the clubs. They run two breakfast clubs, one in Catford, and one in Peckham (Southwark). The goal is basically to educate young people on racism, how it shows up in society, and how to combat it. This particularly on internal racism.
Lara knows for a lot of young people of color, which relates to mental health, that can carry around a lot of negative self talk and negativity, all the negativity that we see in the media, and through like school exclusions there is a lot of racism against young people of color. The big challenge is that young people and children don’t exactly know how to process it. So that’s one thing that our clubs want to tackle. So they are running educational Saturday breakfast clubs for young people throughout autumn term. This is not just for Black History Month since they have been running them since September, and will finish them in December. Our clubs have got about 10 weeks with the kids where the purpose of the breakfast clubs is to teach young people about racism, how to challenge it in a safe space surrounded by like minded peers.
So all the kids that are signing up to the Breakfast Club all care about racism, and all care about combating it. So they can share ideas in a safe space, that perhaps in a school it would be different. The clubs don’t just cover personal racism, they also look at deep institutional racism, and internal racism that is often carried around by young people of color. This can show up as negative self talk or self destructive behavior. So the clubs give the students an understanding of the societal problems that we have in this country. The clubs also work on self confidence and leadership skills to empower the young people and children to take action where they can.
The breakfast clubs next session was in October where the clubs work with young people from around like 10 to 14, but they are also quite flexible and ages.
Dr Tim has been very busy promoting equality through the power of psychiatry and I felt it important to invite him to engage with BAME carers and even NHS staff.
Dr Tim felt it was a pleasure and a surprise for Matthew to connect. Dr Tim spoke about the piece he wrote for Black History Month in 2019. He is a psychiatrist by background of British born, But his heritage is in southwestern Nigeria and as part of the Royal college of Psychiarists celebration of Black History Month, which became something only a few years ago, he was invited to write a blog. Dr Tim is an associate Registrar for policy support the college. That means the things around the Royal College of Psychiatry led to reports and statements that they make, in addition to supporting people with mental illness, their families, and communities. This includes Improving the mental wellness of society in private colleges, professional body for all qualified psychologists.
Dr Tim felt what was the important facets for Black History Month is a special where we come to terms with the fact of needing to understand history from the perspective of recent events. This has happened after his blog has shown that reflection point where it’s absolutely necessary, where people of color and their white allies think about history from a different perspective, because for too long, it’s been written from the perspective of one vantage point, that vantage point unfortunately positions, people of color, black folk, particularly at a disadvantage in producing narratives that arent helpful, realistic, and are incomplete. So what he thought Black History Month now takes upon an additional layer of importance, because first of all, it is about a celebration, about the fact that across the world cultures, black people have come together even in the face of suffering, can celebrate on resilience and psychological robustness that is happening through the facets of our history, and throughout our communities. Dr Tim felt we can find people, individuals and communities doing great things where it reminds us that we have a history of a human or a connected global trajectories of history that we assume we have music culture, we have literature is important for all of us as human beings to function make no apologies for our issues about how do we use structural position to address questions of inequity and problems inclusivity in society. Dr Tim feels as carers we can speak to a very important aspect of the black community in terms of inadequacy of access narrative support.
Dr Tim also thinks having four electives is important to come together to illustrate actually, every month, although Black History Month appears once a year. it’s important for people to focus on sharing stories, not as a disadvantage, but through the use of positivity. Dr Tim mentioned where his blog gave a historical link between psychiatry in Nigeria, where the Western world in how we have trained psychiatrists who took it upon themselves to negate the negative picture over history in psychiatry, and came up with a very good book, which is called “black skin, white coats” by Matthew M. Heaton.
The book is a legend and looks at psychiatrist colonization, and the globalization of psychiatry, this led to an informed decision of him becoming a psychiatrist.
Dr Tim thinks it’s important also to recognize people like African Caribbean senior psychiatrists, who retired, but stood firm in the face of strong opposition to actually question what was happening, vision and mental services of color in this country. Dr Tim spoke more about Matthew M. Heaton on his work since the 60s and 70s, which was very important in shaping the new agenda around a shared understanding of how history is restricted, which is advantageous, specifically why he was talking about Black History Month being symbolic.
Doreen McKenzie poet and author on Black History Month poem.
I invited my aunt Doreen to read a poem for my carer group. She had two poems that she wanted to read to us. Doreen read the shorter one first. The poem was called “Proud to be black”
This woman is so darn proud to be back. Despite the fact that she’s very aware that her color is constantly under attack. Black is the color achievers with pride. Nothing will ever entice her, her beautiful black skin to hide.
She was born black, and will die the same color. And she knows many people whose thoughts are similar. She hears people talk about the blonde bombshell. But she repairs the curvaceous black hair.
Black skin really wrinkles with age. Therefore, the age of a black person can hardly be gauged. It is a mystery how many elderly people look so good, despite the fact that they are plagued with a magnitude of challenging evidences.
And when it comes to her hair, please don’t even bother to go there. It is so unique and versatile. That in just one day, it can be crafted into a variety of magnificent styles.
The Bible says that man is made from clay. So claiming to be made in God’s own image is nothing outrageous to say. Claim your blackness with gladness and pride. Because the beauty of blackness, one must never tried to hide.
You can check out Doreen’s book “The Purpose of My Life: Now, Then, and in the Future”
Emilie Wildeman presents on her Research project
Last to present was Emilie on her research project. She usually attends my groups a couple of times over the past year. She was here today to push for recruitment and to raise a bit of awareness about her study that she is conducting as part of her PhD project. Emilie is a PhD student at King’s College London. Her research is all about informal family carers for people living with severe mental illness. Emilie gave us a bit of background to the study, in many health conditions, including mental health, we know that people living with these conditions will often live with or be supported by a close family member or friend, who mental health services refer to as informal or unpaid carers.
Emilie continued to mentioend that they also know that in some relationships, there can be difficult periods that might include sort of episodes of disagreement, and in some cases, can include active aggressive behavior from one person towards another. Her research is focused on carers of relatives living with severe mental health conditions and for her study, she is looking to speak with family carers who have experienced any type of aggressive behavior from the relative that they care for. So that could include sort of episodes of verbal disagreement and verbal conflict, conflict, verbal aggression, emotional and psychological. It could be physical, it could be some sort of destruction to a property. It’s very broad. She knows that this can be a very sensitive topic, and that there can be a lot of stigma around mental illness as well as aggressive behavior. So she really want to emphasize that this project is not about passing any judgment or making any assumptions about relationships. she is just interested in exploring carers lived experiences.
Emilie hopes that through doing this research, they can help to reduce that stigma. Participation is on carers completing an interview with herself. This is around giving carers the opportunity to voice their experiences and their opinions about what impact these experiences can have on themselves personally, on their relationship with the relative to their care and also for the family.
She is also really interested to learn about “What support families and carers have received in relation to dealing with experiences of aggression”. So that could be from personal support networks, but also professional services because she wants to identify what aspects have been helpful, but also maybe where support might be lacking.
This concludes my brief update of a special Black History Month special for October 2021.
Research at the London School of Economics and Political Science want to understand what impact covid19 coronavirus has on mentalhealth, wellbeing and loneliness of carers supporting people with poor mentalhealth. If you are an unpaid carer help LSE by filling in their brief
The survey should take about 15 minutes. All information will be treated in confidence. You can change answers until you submit the questionnaire. It has received ethical clearance from the London School of Economics and Political Science. If you have questions please contact David McDaid Email: firstname.lastname@example.org More information at http://eufami.org/2020/04/28/covid-19/