Tag Archives: cancer caregiver

Lung Cancer Awareness Month 2024: Risks, Symptoms, and Support for cancer caregivers

Welcome to another blog post by Matthew McKenzie, author of of “The Experience of Cancer Caregiving” and facilitator of the National Cancer carer forum.

As of November 2024, it is Lung Cancer Awareness Month. I have done a short video to help raise awareness. From the video you can learn about the key risk factors, symptoms, and ways to support those affected by lung cancer. Unite for lung cancer awareness month and make a difference in spreading awareness and care.

Raising Awareness for Lung Cancer: Stronger Together, United for Lung Cancer Awareness

Lung cancer remains one of the most significant health challenges we face today. As we join forces during Lung Cancer Awareness Month 2024, it’s essential to spread knowledge and support those affected by this formidable disease. The theme for this year, “Stronger Together: United for Lung Cancer Awareness month,” underscores the importance of unity in combating lung cancer. Let’s delve into the crucial aspects of lung cancer, from understanding its risk factors and symptoms to prevention strategies and support for caregivers.

Understanding Lung Cancer Risk Factors

Lung cancer can affect anyone, but several key risk factors can increase an individual’s susceptibility to this disease. Recognizing these factors is a fundamental step in raising awareness and encouraging preventative measures.

1.Smoking

Topping the list of risk factors, smoking is the leading cause of lung cancer. The harmful chemicals present in tobacco smoke damage the lung cells, leading to cancerous changes. If you are a smoker, quitting is the most significant step you can take to reduce your risk of developing lung cancer.

2.Family History

Genetics also play a role in lung cancer risk. If lung cancer runs in your family, you should be more vigilant and possibly undergo regular screening. Knowing your family medical history can help you take proactive steps toward early detection and prevention.

3.Secondhand Smoke

Even if you don’t smoke, being around those who do can still put you at risk. Secondhand smoke is also dangerous and can lead to lung cancer. Avoiding environments where you might be exposed to smoking and advocating for smoke-free spaces are crucial.

4.Occupational Exposure

Certain jobs may expose individuals to harmful substances like asbestos and specific chemicals, which are known lung cancer risk factors. Protecting workers through safety regulations and the use of protective gear can help minimize this risk.

5.Environmental Exposure

Air pollution is another significant risk factor for lung cancer. Living in areas with high levels of pollution can increase your susceptibility to the disease. Advocating for cleaner air policies and taking precautions to reduce exposure to polluted air can be beneficial.

Recognizing Lung Cancer Symptoms – Get tested!

Lung cancer often does not show signs in the early stages, making it challenging to detect. However, being aware of the symptoms can lead to earlier diagnosis and better treatment outcomes.

1.Persistent Cough

A cough lasting three weeks or more is a common symptom of lung cancer. Any persistent or worsening cough should prompt a visit to the doctor.

2.Changes in a Chronic Cough

If you have a long-standing cough due to smoking or other reasons, note any changes. New characteristics, such as increased frequency or severity, can be concerning.

3.Recurrent Chest Infections

Frequent chest infections that don’t clear up with usual treatment could be a sign of lung cancer and should not be ignored.

4.Unexplained Breathlessness

Shortness of breath or wheezing without an apparent cause is another symptom to watch for. It may indicate that the cancer is affecting lung function.

5.Coughing Up Blood

The presence of blood in coughed-up mucus is alarming and warrants immediate medical attention.

6.Unexplained Weight Loss

Losing weight without trying can be a sign of various cancers, including lung cancer. It’s essential to monitor your weight and report any unexplained losses to your doctor.

7.Persistent Tiredness

Chronic fatigue that doesn’t seem to have an obvious cause might be associated with lung cancer, among other conditions.

8.Chest or Shoulder Pain

Ongoing chest or shoulder pain that doesn’t improve can also be a warning sign, especially if it is accompanied by other symptoms.

9.Hoarse Voice

A hoarse voice lasting more than three weeks should be checked by a healthcare provider.

Prevention and Maintenance of Lung Health

Preventing lung cancer is far better than treating it. Here are several steps to keep your lungs healthy and minimize the risk of lung cancer.

1.Don’t Smoke or Quit

The most effective prevention strategy is to never start smoking. If you do smoke, quitting as soon as possible can significantly reduce your risk.

2.Avoid Indoor Pollutants

Steer clear of secondhand smoke, certain chemicals, and materials like radon that can pollute indoor air and harm your lungs.

3.Minimize Exposure to Outdoor Pollution

Taking steps to reduce your exposure to outdoor air pollution, such as staying indoors on high pollution days, can help protect your lungs.

4.Prevent Respiratory Infections

Maintaining good hygiene to avoid infections, like washing hands regularly and staying up to date with vaccines, is crucial for lung health.

5.Regular Medical Checkups

Routine health screenings can catch problems early, including lung cancer. Discuss with your doctor how often you should get checked, especially if you have risk factors.

6.Exercise Regularly

Physical activity helps maintain lung health and overall well-being. Engaging in regular exercise keeps your respiratory system strong.

7.Maintain a Nutritious Diet

A healthy diet supports your body’s immune system and can aid in the prevention of various diseases, including lung cancer.

Supporting Someone with Lung Cancer

Caring for someone with lung cancer can be incredibly challenging but also rewarding. With the right support, you can make a significant difference in their journey.

1.Educate Yourself

Understanding lung cancer and the available treatment options enables you to provide better support. Staying informed about the disease helps you navigate the complexities of care.

2.Manage Symptoms and Side Effects

Helping manage symptoms and side effects ensures that your loved one’s quality of life remains as high as possible. This might involve medication management, dietary adjustments, and more.

3.Provide Emotional Support

Emotional and psychological support is crucial. Being there to listen and offer a comforting presence can drastically impact their mental and emotional well-being.

4.Assist with Medical Management

Accompanying your loved one to medical appointments, keeping track of treatment schedules, and communicating effectively with healthcare providers are all vital roles you can play.

5.Create a Comfortable Home Environment

Ensuring that the home is a comforting and supportive space can help improve their quality of life. This includes facilitating easy access to necessities and creating a restful environment.

6.Offer Social and Practical Support

Helping with day-to-day tasks, such as cooking, cleaning, and transportation, can relieve the burden on someone struggling with lung cancer.

7.Take Care of Yourself

It’s important to also take care of your well-being when you’re a caregiver. Seek support when needed and ensure you have time to rest and recharge.

8.Stay Informed About New Treatments

New treatments and resources for lung cancer continue to emerge. Keeping up to date on these developments allows you to provide the best possible care and advocacy for your loved one.

Prepare for End-of-Life Care

If the situation calls for it, preparing for end-of-life care with compassion and dignity is essential. This ensures that your loved one’s final days are as comfortable and meaningful as possible.

Conclusion

Lung Cancer Awareness Month reminds us of the importance of uniting to fight against lung cancer. Whether through prevention, recognizing symptoms early, supporting those battling the disease, or joining in advocacy efforts, every action counts. Remember, we are indeed stronger together. Let’s continue to spread awareness and support each other in the fight against lung cancer. Stay strong, stay informed, and take good care of yourselves and each other.

London cancer caregiver forum – January 2024 update

Here is the brief update of my London Cancer caregiver forum. This is the only group I run aimed at those caring for someone with a physical illness. Cancer can strike at any time and it not only affects the patient, but also the family, friend or unpaid carer.

The London Cancer carer forum gets support from Macmillan Cancer Support and also the hospitals in London. A number of the hospitals have been helpful to advertise a carer led community group, which I run voluntarly.

Lewisham and Greenwich NHS Trust

Macmillan Cancer Support

Kingston Hospital

The speakers for the January London Cancer caregiver group were as follows.

  • Rachel Waddon – Macmillian community updates
  • Professor Sue Later – Supporting carers to manage pain medication in cancer patients
  • Caitlin Spooner RN – How does receiving a survival estimate affect the general health and wellbeing of people living with terminal cancer and their carers

  • Rachel from Macmillian Cancer Support presents

Rachel Waddon who is the new Macmillian Communities Manager for London and South East Regions has been very supportive for community groups. Rachel has provided engagement support and also helped support my cancer carer stall for front line engagement.

With the cancer carergiver network developing, it was great to have Rachel engage with the group. Rachel provided and summary of Macmillians Cancer Support services.

She took the group through the following support and information services.

  • Macmillan Website and Online Community
  • Macmillan Support Line (Nurses and Advisers)
  • Email campaign
  • Volunteer Services
  • Information from professionals
  • Information Centres
  • Wellbeing Coaches

Rachel also spoke about the impact of Money and Work when someone develops cancer, she mentioned what support is provided and also included the importance of Care Planning and Navigation, End of Life Care and Emotional and Practical support.

Rachel talked about Why there is a need to evolve Macmillan and how people will not settle for anything other than the best possible support for people living with cancer. As a charity, they can’t afford to stand still. Now more than ever, Macmillian need to evolve, taking every chance to make a difference.

If you are someone in London or the South-East of England who is living with or whose life is affected by cancer then please consider joining the Macmillan London Cancer Community. You’ll have opportunities to feed into cancer support services if you would like to and receive updates on information and cancer support in your local area. Join the Macmillan Cancer Networks.

  • Professor Sue Later from University of Southampton presents

There are lots of research into the experiences of patients, but did you know there is research which involves the experiences of those caring for someone with cancer?

Prof Sue Later presented her paper on “A community nurse-led intervention to support carers to manage pain medication in cancer patients at end of life” She spoke about what was known about unpaid carers.

  • Carers Play an important role in managing patients’ pain medicines at end of life.
  • Evidence suggests carers have concerns about pain medicines, and they feel they lack information and support.
  • Structured support for carers have not been adequately developed or tested for effectiveness.

Professor Sue paper presents what supports carers in managing medications at the end of life. The paper looks to raise the importance of intervention, which is acceptable, feasible and beneficial for patients and their carers. There is also identification of aspects of research design that could be tried on a larger scale.

The context of the paper looked at

  • How pain affects most people at end of life and can be severe for some.
  • Many patients at end of life report their preferred place of care.
  • Unpaid carers can be critical to medicines management and help patients to stay at home. This is done through knowledge and skills, monitoring and interpreting symptoms and also selecting, administering medicines effectiveness.

Prof Sue presented the objective of the research, which also led to a pathway of Cancer carer’s Medicines Management (CCMM) that is aimed at nurses.

Consent: Explain purpose, your role and consent from patient to discuss pain management with carer.
Assess: Explore beliefs & previous experiences, assess support and prioritise skills needs.
Review: Prescribe and review medicines chart
Education: Provide coaching for educational and information
Review: Make plans for review and provide resources
Support: Naming of what has been learnt.

All in all, the purpose was to equip carers to support their loved ones at end of life.

  • Caitlin Spooner RN from University College London (Marie Curie Palliative Care Research Department) Presents

The next presenter to speak was Caitlin on the impact of diagnosis when someone is told how long to end of life. This is called Prognostication. Caitlin wanted to measure the outcomes and develop standards.

She also wanted to compare other studies, but also wanted to involve patients and their caregivers and what was important to them. When comparing previous studies, this had to be done through online databases. Caitlin used 5 online databases that included

  • Patients with advanced cancer or those caring for someone with advanced cancer
  • Different definitions of Prognostication “Estimating length of survival”
  • Quantitive studies reported outcomes of prognostication

From searching the online databases Caitlin extracted the following outcomes and grouped into 5 key areas.

  • Death
  • Physiological/clinical outcomes
  • Life Impact
  • Resource use
  • Adverse events

Through a systematic review the most common outcomes of prognostication were

  • Treatment preferences
  • prognostic awareness
  • Quality of life
  • Depression.

It is important to note diagnosis of cancer especially length of survival not only affects the patient, but those supporting the patient especially the carer. It is important to note the impact of diagnosis on the carer.