Category Archives: equity

blogs and posts on anti-racism

Still We Rise: A Black Carer’s Perspective on Black History Month

By Matthew McKenzie BEM, FRSA

On Monday 26 October 2026, I attended a Black History Month event at Springfield Hospital, where I was also invited to give a presentation about the experiences of Black unpaid carers.

Black History Month at Springfield Hospital, 26 October 2026.

The event was made possible through the combined efforts of Sound Minds, South West London and St George’s Mental Health NHS Trust, the Community Empowerment Network and the Hope Project. Together, they brought people with lived experience, community organisations, mental health professionals, artists and carers into the same space to celebrate Black history and culture. Their contributions showed the value of partnership in creating welcoming spaces where people can share their stories, connect through creativity and support one another’s wellbeing.

The event brought together people with lived experience, mental health professionals, community organisations, artists, poets and supporters. Throughout the day, we heard stories of resilience, creativity and community. We also had opportunities to reflect on what it means to be seen, heard and supported.

Stalls, books and community connections

The stalls provided further opportunities to discover creative work, learn about community support and connect with contributors. Thank you to:

  • Garfield Robinson — Promoting Our Heritage
  • Tundi — bookmarks and cards
  • Jennifer Coleman — House of 22, teas, journals and books
  • Future Medics Forum — 100 Great Black Doctors
  • Juddi A Henry — fine art
  • Hana Stanilaus — Lost Soul Poetry
  • Esua Goldsmith — author
  • Lorraine — Ethnic Minority Health Improvement Project

Thank you also to Richard Simpson of Cummin UP for providing the food.

For me, the event was a reminder that Black History Month is not only about looking back. It is also about recognising the people whose experiences continue to shape our communities today, including the unpaid carers who are often missing from conversations about mental health.

A shared celebration: recognising everyone who contributed

An event like this grows from the work, creativity and commitment of many people. I would like to acknowledge the partners, organisers, speakers, performers, stallholders and supporters who helped make this Black History Month celebration possible.

The event partners were Sound Minds, EMHIP through the Community Empowerment Network, and Hope for Sanctuary, working in co-production with South West London and St George’s Mental Health NHS Trust at Springfield Hospital. Thank you also to Sarah Gibbs, Amanda, Noel Brown and David Moore for their support.

Ian Jordan and Mia Morris OBE FRSA served as Masters of Ceremonies, bringing the programme together and welcoming the different voices represented throughout the day. Noel Brown and Saydia from Talk Wandsworth contributed the icebreaker exercise, encouraging reflection and connection among attendees.

A space for community and connection

Guest contributions included Glenroy from the Hope Project, Lorraine from EMHIP, Chas from Sound Minds, and Devon Marston, co-founder of Sound Minds and Canerows. Alongside my own presentation on Black unpaid carers, these contributions highlighted the importance of community organisations, lived experience and opportunities for people to connect.

The day began with a creative activity called “My Shield of Strength.” We were invited to think about what brings us joy, what resilience means to us and what helps us through difficult times.

People spoke about family, community, freedom and helping others. Listening to those reflections made me think about how important it is for carers to have spaces where they can consider their own needs and strengths.

When you are supporting someone else, it can be easy to become so focused on their wellbeing that you forget to ask what sustains you. A carer might find strength in faith, friendship, creativity, family or simply having time to rest. Those things matter.

The event also highlighted the work of community organisations supporting mental health and wellbeing. We heard about welcoming spaces where people can take part in activities, connect with others and access practical support. Such spaces can help people build trust and find a sense of belonging, particularly when formal services may feel difficult to approach.

Sound Minds shared how creativity, music, art and peer support can help people connect with one another. As someone who uses poetry in my own carer engagement work, I appreciated seeing creativity given such a prominent place in the programme.

Recognising Black unpaid carers

My presentation was called “Still We Rise: Recognising Black Unpaid Carers.” It drew on my experience of caring for my mother, who lived with schizophrenia, and my continuing role supporting my two autistic brothers.

I wanted to speak about the caring that people do not always see: the phone calls after a difficult appointment, the worry that follows you home, the questions you carry into meetings and the knowledge built up over years of supporting someone.

Families and carers can know a great deal about the people they support. They may recognise when something has changed, understand what helps a loved one feel safe or know how best to communicate with them. Yet carers can still struggle to have their concerns heard.

For Black carers, those difficulties can be compounded by racism, stereotyping and assumptions about family life. One assumption is that Black families will always cope because they have strong family or community networks. Those networks can be a source of strength, but their existence should never be used as a reason to overlook a carer’s need for support.

Every family is different. Every carer deserves the opportunity to explain their own situation.

What does it mean for a carer to rise?

Maya Angelou’s Still I Rise provided inspiration for the event and for my own contribution. Her poem speaks powerfully to dignity, resistance and the determination to rise in the face of oppression.

I found myself asking what rising might mean for a carer who has struggled to be heard by health and social care services.

Perhaps it means finding the confidence to ask a question again when the first attempt was dismissed. Perhaps it means finding a community of other carers who understand. It might mean being recognised as a person with needs of your own, as well as someone who provides support.

But I also think we need to be careful about how we speak about resilience. Black carers should not have to carry an ever-growing burden simply because they have shown they can be strong. Recognition should lead to practical support, genuine involvement and a willingness to challenge unfair treatment.

Room for our voices

During my presentation, I shared my poem “Room for Our Voices.” It begins with a carer bringing a notebook to a meeting, filled with names, dates and questions gathered through difficult nights.

Behind those notes is a person the carer wants professionals to understand. The poem asks for space at the table and for those questions to reach the room.

It also makes room for something else: joy, friendship, creativity and life beyond caring. Carers need support when they are tired, but they also need opportunities to be seen as whole people, with their own interests, hopes and identities.

Poetry can open up a conversation in a different way. It can help us describe emotions and experiences that do not always fit neatly into a form, assessment or meeting agenda. At this event, poetry became a way of connecting Black history, mental health and lived experience.

A family story behind an artist’s achievement

One contribution that stood out was a family perspective on the artist Nnena Kalu, who won the 2025 Turner Prize.

Her brother shared his pride in her achievement and spoke about their family history, her communication and the support she needs in everyday life. He also reflected on discovering the scale of her artistic success through a news story.

Watch the Global News report below celebrating Nnena Kalu’s historic Turner Prize win a powerful reminder of the importance of recognising talent and challenging assumptions about autism and learning disability.

What stayed with me was his reminder that needing support in one part of life does not tell us everything about a person’s abilities. His account encouraged us to look beyond labels and consider how people express themselves in different ways.

As someone who supports my own brothers, I connected with the importance of recognising the person behind a diagnosis or description. Families can offer valuable insight, while each person also deserves space to be recognised for their own identity, talents and achievements.

Poetry, music and shared experience

The programme featured poets from the Voices of Resilience Project, with contributors including Antonio Leman, Toni Kay, Elizabeth Mallari and Lenni. Other poetic voices included Hana Stanilaus from the Lost Souls Poets Collective, Linton Cassius and Julian Chisholm.

Ije Amaechi and Kyrstal Ude contributed Lean on Me, while Dr Sandra Agard offered And Still I Rise reflections. Mayo Alugbo Agard shared a journey as a young writer, and Esua Goldsmith contributed a reading from The Space Between Black and White.

The wider line-up also included Queen of Sheba, and Angel Knight and the Bridging Minds participants, with Uduku.

There was also a collective musical performance and an opportunity for people to join in singing together. These moments brought warmth to the day and reminded me that conversations about mental health do not always have to happen in clinical language.

Creativity can give people a way to express pain, pride, memory and hope. It can also bring people together, helping them feel less isolated.

For carers, having access to creative spaces can be especially valuable. It offers a chance to reflect on our experiences, connect with others and be heard in ways that feel meaningful to us.

Heritage, art and stories across generations

Jennifer Coleman contributed an interactive presentation, My Maternal Mother Archive, while Joanna Alexander contributed James Alexander Heritage Archives. Juddi A brought an artistic contribution, Art Made Me.

The Future Medics Forum, represented by Dr Ngozi and Olivia, also contributed, celebrating Black achievement in medicine through their work on Black British doctors.

For me, this range of contributions showed how Black history is carried through family memories, archives, art, books, music and spoken words. These are also ways of recognising people beyond the labels or assumptions they may encounter in everyday life.

Turning recognition into action

Events like this are valuable because they create a space for stories and perspectives that are too often overlooked. However, the conversations should continue beyond Black History Month.

In my presentation, I encouraged services and professionals to:

  • Ask carers what they need in their own right, rather than assuming they are managing.
  • Make space for carers’ knowledge in conversations about the care of the person they support.
  • Challenge assumptions and follow up on concerns, including where racism or bias may be affecting someone’s experience.
  • Offer support that respects culture and individual choice, recognising that no community or family is the same.

These are practical steps towards a more inclusive relationship between services, patients and carers.

Looking beyond October

I was grateful for the opportunity to contribute to the event and to listen to the other voices represented throughout the day. Thank you to Mia, Sound Minds, the community partners, speakers, performers and everyone who helped bring people together.

Black History Month gives us a chance to celebrate the contributions of Black communities and reflect on the inequalities that remain. As a Black carer, I want those reflections to lead to conversations throughout the year: conversations in which carers are welcomed, their knowledge is valued and their concerns are taken seriously.

I ended my presentation with a question that I hope people will continue to consider:

Who could you help to feel heard this week?

Find out more about my carer advocacy, forums and poetry at A Caring Mind.

Tackling Mental Health Inequalities Together: An Evening with Kent and Medway

By Matthew McKenzie – Chair of Ethnic MH Carer forum

On Thursday 15 October 2026, I attended an evening event hosted by Kent and Medway Mental Health NHS Trust, bringing together staff, community representatives, faith voices and people with lived experience to discuss racial inequalities in mental health care, although I attended as Chair of the National ethnic mental health carer forum, It was also lovely to be joined by Beata Bikowska and Tina Stevens from Cygnet Hospital Maidstone, alongside NHS colleagues and community partners, for this important conversation on tackling mental health inequalities.

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Black History Month 2026: Honouring Our Communities and Unpaid Carers

Matthew McKenzie — Carers UK ambassador, author and poet

October is a time to celebrate Black history, culture and achievements, and to reflect on the people whose contributions have shaped Britain. As an unpaid carer and carer activist, I also see Black History Month as an opportunity to recognise the care taking place within our families and communities.

My new video, “Black History Month 2026: Honouring Our Communities and Unpaid Carers,” explores these connections, from celebrating Black British achievements to recognising carers whose work often receives little attention.

Recognising the care within our communities

Althouth History is shaped by more than famous names. It is also shaped by people who support relatives, neighbours and friends through illness, disability, mental health difficulties and older age.

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Language as Comfort – A PCREF Poem About Language, Belonging and Being Understood

By Matthew McKenzie – Carer activist

As I continue developing my poetry collection Unpaid, Unseen and Yet Unbroken: Poetry about Ethnic Mental Health Carers, I wanted to share another poem from the collection called Language as Comfort.

This is Poem 30 and explores something that can easily be overlooked when we talk about involvement in mental health services: the comfort and belonging that can come from being able to communicate in your own language.

Watch the poem below.

For many ethnic minority carers, language is about much more than translating individual words. Our mother tongue can be connected to family, culture, identity, memory and a feeling of safety.

When language becomes part of carer inclusion

Language barriers can affect how confidently carers participate in assessments, consultations and discussions about the person they support.

This is why one part of the poem asks services to record a carer’s language needs:

A carer should not have to start again at every appointment, repeatedly explaining how they need information to be communicated.

This connects strongly with the Patient and Carer Race Equality Framework (PCREF). If we want meaningful involvement from diverse communities, we need to think about whether our usual ways of communicating actually enable people to participate.

The poem ends with the idea of language helping someone to “break free from this cage”.

For me, that is the central message of Language as Comfort. Being understood can create confidence. Being able to communicate can create involvement. And recognising someone’s language can help create a sense of belonging.

Language should not be another barrier between carers and mental health services.

It can instead become part of the bridge.

Poem 30 from the developing collection Unpaid, Unseen and Yet Unbroken: Poetry about Ethnic Mental Health Carers.

Black Maternal Mental Health Week 2026: Black Mothers and Unpaid Carers Must Be Heard

By Matthew McKenzie, A Caring Mind

21–27 September 2026 | Joy • Justice • Journey

Black Maternal Mental Health Week is a chance to celebrate Black mothers and speak honestly about the inequalities they can face when seeking support. This year’s theme, Joy • Justice • Journey, reminds us that a mother’s mental health matters before, during and long after birth.

For some Black mothers, asking for help can mean overcoming stigma, cultural misunderstanding, racism or the fear that their concerns will be dismissed. Support needs to arrive early, and services need to listen to what mothers say about their own lives.

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Why Black Carers Struggle to Access Mental Health Support

By Matthew McKenzie

Black unpaid carers can face significant barriers when trying to access mental health support for themselves or the person they care for.

These difficulties may include long waiting times, financial pressure, cultural stigma, fear of statutory services and a shortage of professionals who understand the effects of racism, racial trauma and culturally specific caring experiences.

In my new video, I examine how misdiagnosis, over-policing and expectations that Black families should simply remain “strong” can create mistrust and discourage carers from asking for help.

Drawing on my perspective as a Black lived-experience carer, I also consider what mental health services can do differently. Genuine improvement requires culturally responsive support, greater representation, safe spaces for carers, accessible community-led services and meaningful partnership with Black carers and families.

PCREF provides an important opportunity to challenge racial inequalities, but its success will depend on whether services listen to lived experience and turn commitments into visible action.

Today I Prayed: A PCREF Spoken Word Poem

By Matthew McKenzie – Chair of ethnic mental health carer forum.

For my latest spoken word video, “Today I Prayed,” I present a piece from my PCREF poetry collection that I am working on, Unpaid, Unseen and Yet Unbroken.

Grounded in the spirit of the Patient Carer Race Equality Framework (PCREF), this poem centers on the often hidden realities faced by unpaid Black mental health carers.

The poem explores spirituality not just as a source of private comfort and endurance, but as a solitary lifeline when formal systems fail and the heavy emotional weight of duty takes its toll.

I think watching this video is an invitation to witness the quiet strength of minority carers, plus raise awareness of systemic gaps in our care frameworks.

I hope the poem ensures that these vital carer voices are finally seen, heard, and respected.

Help Shape Research on the Experiences of South Asian Families Caring for a Loved One with Disabilities

The FOCUS Project, an international research study exploring the experiences of South Asian families who have a family member with intellectual and developmental disabilities.

Researchers are seeking to hear from:

  • South Asian parents and family carers
  • Adult brothers and sisters of people with intellectual and developmental disabilities
  • Professionals who work with South Asian families and children with disabilities
  • Families interested in sharing their experiences through surveys and discussion groups

The study aims to improve understanding of the challenges, strengths, and support needs of South Asian families, helping to inform future services and policies.

Ways to Get Involved

Work Package 1 – Family Survey
Take part in an anonymous online survey exploring family experiences. Each section takes approximately 10–15 minutes, and participants can complete one, two, or all three parts.

Work Package 2 – Professional Survey
Professionals working with children and young people with intellectual and developmental disabilities from South Asian backgrounds are invited to share their views on family-oriented partnership practices.

Work Package 3 – Online Discussion Groups
South Asian parents and adult siblings are invited to join a small online discussion group lasting around one hour to share their experiences in more depth.

Your Voice Matters

Every family’s experience is unique. By taking part, you can help researchers better understand the realities of caring for a loved one with intellectual and developmental disabilities and contribute to improving support for future generations.

For more information about the FOCUS Project, please visit the study website or contact the research team at focus.project@uea.ac.uk.

To hear more about the project, they will present at my National ethnic mental health carers forum for the 26th of June. Book via my forum page.

My Anger Without Permission: PCREF Poetry and the Voices of Unpaid Carers

Poetry has a unique ability to capture experiences that are often absent from reports, datasets, and meeting minutes. My Anger Without Permission explores the emotional reality of being an ethnic minority unpaid carer navigating mental health services while experiencing exclusion, microaggressions, invisibility, and a lack of recognition.

These themes are closely connected to the aims of the Patient and Carer Race Equality Framework (PCREF), NHS England’s anti-racism framework for mental health services, which seeks to improve access, experience, and outcomes for racialised communities by ensuring that patients and carers are listened to, involved, and able to influence change.

Central to PCREF is the belief that lived experience should shape services, and poetry provides a powerful way for carers to share those experiences in their own words.

My poem also highlights why unpaid carers must be visible within conversations about race equality and mental health. Many carers from ethnic minority communities provide significant emotional and practical support while feeling overlooked by the very systems they help sustain. By sharing stories through poetry, carers can challenge assumptions, increase understanding, and contribute to more culturally responsive services.

To help amplify these voices, submissions are now being invited for Unpaid, Unseen and Yet Unbroken, a forthcoming poetry collection edited by Matthew McKenzie FRSA BEM. The anthology will showcase poems from minority ethnic unpaid carers, creating a lasting record of their experiences, resilience, hopes, and challenges.

If you are an unpaid carer with a story to tell, this is an opportunity to have your voice heard, published, and become part of a growing movement for equity, recognition, and change within mental health services.

Advancing Race Equity Across London’s Mental Health Trusts

On Wednesday 3 June 2026, colleagues from all eight London Mental Health Trusts, alongside carers, service users, community organisations, researchers, regulators and system leaders, gathered at ISH Venues in central London for the Pan London Patient and Carer Race Equality Framework (PCREF) Conference.

Chaired by Erica deti from North East London NHS Foundation Trust (NELFT), the conference provided a unique opportunity to showcase progress, share learning and strengthen London’s collective commitment to race equity within mental health services.

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