SW London MH Carer Forum April 2022

Hello fellow unpaid carers. Welcome to a brief update of my South West London mental health carers forum. I am very behind on my updates because I have been busy working on my new poetry book on carer experiences. I am also developing online courses for carers. So if you want a bit of education, try some of my courses out.

Carer Identity

Carer Networking

Going back to my SW London carers forum. This one is for April and the following speaker from Hull University was


Dr David Barrett – Empathy and Nurse Education.

Dr David presents to the SW London carers forum

Dr David Barrett from the Department of Paramedical, Perioperative and Advanced Practice at Hull University wrote a paper on “Effectiveness of empathy education for undergraduate nursing students”.

David started out describing to the group on what is empathy. David felt that we would have our own thoughts on the term and what it means to us and why it’s important. David felt that it’s a tricky one, because there’s lots of people who have lots of different ideas on exactly what it is.

Dr David felt that empathy is about being aware of, and understanding what somebody else is feeling. Plus empathy is being able to demonstrate to them, that understanding as well. This mean’t that empathy awareness is not just not just internalising, but also demonstrating to the person that you understand how they’re feeling. Empathy is using that willingness to respond appropriately to those needs. David mentioned about a term “walking in someone else’s shoes, or it’s someone else’s pain”. David felt it was that as a concept.

There seems to be a problem on just how far you can take it as possible to understand what somebody else needs are? This is because everybody is an individual, we’ve all got our own backgrounds or experiences, our own ways of dealing with things. So whether it’s truly possible to ever understand what somebody else is feeling, He thinks it is a discussion that the group could looking into afterwards.

The reason why empathy is so important is that in an health care setting, it can provide some important benefits for people that nurses and other health care providers care for. There is good research that if somebody is empathetic as a health care provider, then the person they provide care for is likely to have a better experience might see higher levels of service user satisfaction.

If there is a healthcare team is demonstrating empathy, and it can, for example, reduce infection rates, improve what you’re feeling yourself, it can even reduce other complications, e.g. diabetes and other things. So in the end we can see improved physical health outcomes. Dr David stated that most importantly you can also see improvements in mental health and well being. This is where you can see lower rates of depression related distress or anxiety. It is also worth mentioning that improved mental health can also sometimes be seen in the healthcare professionals themselves.

Dr David Barrett started talk about how nurses were trained in Empathy at the course and on the importance of families and carers being involved education from an authentic perspective.

Just to note, I missed a month by Jumping to April, but will add the blog for my SW London carer peer group for March later on.

You can get hold of Dr David’s paper from the link below.

https://www.researchgate.net/publication/353763640_Effectiveness_of_empathy_education_for_undergraduate_nursing_students

Joint Southwark & Lambeth MH Carers forum April 2022

Hello fellow carers. A quick update from my past carer forums. This is the April update of my Joint Southwark and Lambeth mental health carers forum.

Speakers for this forum were

Naomi Good – Engagement from Guys & St Thomas NHS FT

Rachel Braverman – Expert by experience at Royal College of Psychiatrists

Just a quick note, I cannot remember if Rachel managed to attend this forum. I think should could not make it and attended my south west London carers group at a later date.

It was however good that Naomi engaged with carers who look after someone with a mental illness. The thing is that patients also use physical health services. So it was important to get stakeholder engagement from Guys & St Thomas hospitals.

Naomi Good Presents to the forum.

I know Naomi very well when she used to work at NSUN, this being the National Service User Network. Naomi did a lot for developing the 4PI involvement standards at mental health NHS trusts. These standards are still very much in use today, although there still needs to be a lot of work done.

Naomi is now the stakeholder engagement at GSTT and is also a carer herself and spoke on the following.

  1. Joint Programme for Carers and Patients in Covid Recovery
  2. Surgical Strategy – delivery workshops and steering group
  3. Apollo Programme – Electronic Health Care Record
  4. Carers Strategy – development

Naomi started by presenting the Joint Program for Carers and Patients.

Basically the programme aims to make sure the views of patients, carers and the public help with future service changes during the pandemic especially those who have been most affected by the pandemic. GSTT want to continue to improve and provide the very best care to patients, especially to those who are:-

Waiting for treatment
Virtual access to care
Struggling with Long COVID

There actually were some workshops back in April and May which Naomi presented on the surgical strategy

The Apollo Programme

The Apollo Programme

Naomi then spoke about how Apollo will be the most ambitious programme of transformation they have undertaken. GSTT will be replacing many of the systems (both digital and paper). GSTT currently use with a single, integrated and comprehensive source of information across Guys and St Thomas’ (including Royal Brompton and Harefield) and
Kings College Hospital Trusts. Epic is a US-based provider of electronic health records (EHR). It is used in some of the best hospitals around the world including the majority of top-ranked US hospitals, and UK trust’s such as Great Ormand Street and Cambridge.

GSTT Carer Strategy

I asked a quick question regarding GSTT’s carer’s strategy in which Naomi responded they do have one. The GSTT carer’s strategy is embedded within each of the different strategies, but there is an effort in refreshing that and making sure it is available across the trust, which is seen as priority area.

GSTT involvement

Naomi talked about how others could have the opportunity to make a huge impact to the care of patients and the experience of carers across Guy’s and St Thomas’ and King’s College London. During the programme to date, the carer’s voice has been integral to shaping how they will support carer’s to access care on their loved ones behalf’s. In future phases of the programme, patients and carers will help GSTT to user test the patient-facing applications, and design their patient communications and training programmes.

• Reimbursement of time spent in workshops and meetings in line with Trust policy
• Reimbursement of travel expenses, childcare costs, and carer costs
• Access to various IT training opportunities
• Foundation Trust Membership (for those 18 years of over).
• Job references

New poems by Matthew McKenzie

Here are two more poems from my upcoming book “The Poetry book of mental health caring”.

The first poem focuses on wellbeing for carers who are caring for someone suffering mental illness. To be fair it does not actually have to be mental illness, but the main point is the person is thrown into becoming a carer.

The next poem is more psychological. The poem called “The Mirror” asks the carer to reflection on their identity, especially when the carer is judgemental about themselves. I certainly was very judgemental about trying to provide unpaid care and at times I still am critical.

June Carer News Updates 2022

The latest edition of my online carer, mental health and ethnic mental health news is out for June.

Click below to view latest carer news by Matthew Mckenzie for June

JUNE 2022 Carer & Mental Health news

For the June edition we have

Carers’ Hub – Supporting carers wellbeing – Video from Carers Hub Lambeth on the Better Mental Health Fund that enabled Carers’ Hub to offer additional wellbeing activities for carers in Lambeth.

Unpaid carers in England need ‘Recovery and Respite’ plan – News update on how Carers UK has welcomed the publication of the report by NHS Digital, but highlights deep concerns about the support thousands of unpaid carers across the country are getting.

Rutland carers asked to share their views on new joint plan – Carers in Rutland are being asked to share their views on a new plan that will guide the support available to them locally.

Carers Trust carers stories – Carers Trust host blogs from unpaid carers are personal views

Detentions under the Mental Health Act (breakdown via ethnicity) – The data measures rates of detention under the Mental Health Act 1983. The data includes people who were detained (or ‘sectioned’) in hospital for assessment or treatment under the act.

SIGN UP TO NEWS SITE HERE

Joint Southwark & Lambeth MH Carers forum March 2022

Welcome to a brief update on my joint Southwark & Lambeth mental health carers forum. I run this forum online via zoom once a month. It used to run from Maudsley hospital, but had to move it online due to the covid situation. I am guess I am so lazy to move the forum back to the mental health hospital. Will have to see.

Another update is I have started my volunteering at my local accute hospital trust, so I will be having a carer stall for families of patients to visit me. Lewisham & Greenwich trust have been helpful in giving me a spot to engage with families and carers. There will be lots to work towards, but it certainly is a good start.

Going back to my Joint Southwark and Lambeth mental health carers forum. The speakers for March 2022

  • Claire Parry – Maudsley Psychotherapist on updates at psychotherapy projects at the NHS Trust
  • Rebecca Davies & David Meyrick – Developments for families & carers in the borough of Southwark
  • Annette Davies – Carer peer groups and PCREF.
  • Natalie Marshall – Community peer lead and support for unpaid carers

Claire Parry presents to the group

Clare Parry is a family therapist. She took up the post in June 2021. This being the role of lead family therapist in Soutwark. This includes being a trusted advisor around family therapy and family work across the NHS trust. So part of her role is looking at where services may have family therapy and family work and where they don’t. Her focus is on more of the psychotherapy side rather than kind of carers assessment side. A lot is done to make family members and carers comfortable with the service they provide.

Part of her role over the last year, was working really hard in the psychotherapy services and reduce waiting times. There has been an acknowledgement that waiting times for therapies are far too long. So they have been piloting a project, which means that they are offering other interventions, while individuals, couples or families are on the waiting list for therapy

Clare is very interested in the stories that many carers have to tell, So she wants more carer engagement to events. Claire hopes that psychotherapy can make a different to others who don’t get to talk when someone’s unwell. Clare talked about how some major carer systems have been influcing the NHS trust services, those being the Tree of Life and the Triangle of Care. She also talked about Open Dialogue.

Rebecca and David presents on community transformation project

A lot had been covered by Clare on community transformation, but it was also included at this part of the forum. Rebecca mentioned that a new team, that being a low intensity team has just started. It has just been open for a couple of weeks and the rest of the services will be moving over. There was also more talk about the new mental health hospital build from Lambeth to Southwark.

Rebecca also mentioned that there will be a north and south primary care mental health teams, and the four CMHT’s which will work with most of the service users across them across the borough of Southwark. Rebecca moved on to talk about complex care services, which will include assertive outreach, rehab teams, low intensity team and early intervention team. Plus community mental health teams are going to be merging a lot of the other services.

David who is the maudsley inpatient carer lead for Southwark talked more about Triangle of Care. He admitted things had been slow due to the previous covid-19 epidemic, but with South London & Maudsley working towards their first star in the triangle of care membership, things are picking up. David mentioned how each ward has a carers champion and how they are engaging with families and carers on the wards. David had a strict regime of carers being included in patient notes especially in surguries. Support for patients had to be increased and families & carers are an important factor. David also talked in-depth of the self assessment dashboard which helps to work towards the triangle of care standard.

Next we had a carer who is championed in Southwark for helping to run groups for carers. Her name is Annette and she also run’s her ethnic carers peer group. To be honest, I am a member of her ethnic carers group and is was great to here how she empowers and links other mental health carers. Most if not all carer groups are online due to covid and travel restrictions, but I am sure when things settle down, there might be a room which can host the groups.

Annette also spoke how she was South London and Maudsley’s co-chair for their Patient Carer Race Equality Framework, something I myself have a very close eye on, but not really involved in. To be honest, I usually provide updates regarding race and mental health off my online news site

A caring community?

Welcome to my latest blog. I decided to post something different this time and I want those who read this blog to reflect. I want people to reflect on what makes a community?

Well to be honest many things actually make a community, sometimes it can be hard to pin down. After all community is a large concept, but for me I think people make a community. My thoughts on this does not stop there, I was wondering what makes a caring community? This kind of question makes things tricky, but these days a caring community is something we are still working towards.

Embed from Getty Images

I do not think a caring community can be pinned down to one thing e.g. People. I think many concepts can influence and motivate others to care about each other. If you go through my website, I often talk and promote the ideals of unpaid caring. I promote how important families care for members of that family. I promote how friends can stay connected and ask how someone is doing. I promote how neighbours check in on each other, even if to miss the latest episode of EastEnders.

The thing is to make others aware of such ideals, because I am sure when the time comes, we all would want a community that cares for us. Unfortunately it is not that simple. Those in the community all have different values, culture and different identities. How can we work towards the common value that is important to everyone in the community? There will be times when those in the community cannot understand each other or do not recognise the value of each other. This is why it is so important we continue to connect, learn and share with the community.

Embed from Getty Images

It is true that values, culture and identities are different within the community. However we can celebrate our uniqueness as a common goal and continue to share the common values we all cherish. As a community we must continue to recognise those values and build on them, everyone’s voice will be important although there will be some things we need to avoid. Not everyone wants a community, but I know deep down the majority cherish the importance of connecting, sharing, learning and building on culture. These are the great values for the community and these values can help a community that cares for its people.

New carer identity course by Matthew McKenzie

Welcome carers. I am soon about to launch my first online learning course aimed at carers. I thought to try challenge myself to work towards the field of lecturing online and it had to be a course aimed at carers.

The course “Carer Identity” covers the following

  • What is a carer?
  • Why be identified
  • Stigma and labels
  • Holding to account
  • Whose job is it to identify carers
  • Types of carer identification systems
  • What happens after Identification and more

The course can be accessed by clicking on the course section off my website.

Lewisham & Greenwich NHS Trust The Improvement Showcase Event

Hello fellow carers of Lewisham and Greenwich. Registration for the Lewisham & Greenwich NHS trust’s Improvement Showcase Event is now open.

The event looks to present on bridging the gap between on improving quality healthcare for all.

The event will be opened by CEO Ben Travis

Speakers throughout the day will be LGT Improvement journey so far Louise Crosby, Chief Nurse

“Bridging the gaps in health inequalities- the national picture” presented by Dr Dianne Addei who is Senior Public Health Advisor for the National Healthcare Inequalities Improvement Programme by NHS England & Improvement

We also have “What does it truly take to embed a culture of continuous improvement?” This will be presented by Dr Amar Shah, Consultant forensic psychiatrist & Chief Quality Officer from East London NHS FT

Of interest to carers will be a session on “Co-producing improvements” where people can hear about examples of co-production from some of the hospitals patient and carer representatives.

You can register for the event below

https://us06web.zoom.us/meeting/register/tZYtd-2vrjwiGtFCKetZJlyRPeCwzJBa_y43

Lewisham Mental Health Carers forum March 2022

Welcome to another quick update from my carer forums that I host. The forums are aimed at friends, families and unpaid carers who care for someone suffering mental illness. Here is the update from my Lewisham mental health carer forum for March 2022.

Speakers

Annie Dransfield – Carer Author of the book Releasing the Compassion.

  • Annie Dransfield presents.

Before I update on Annie’s presentation. I am developing a carer author circle, I only started the group this week for carer’s week and it is a little quiet, but the group has started. There are at least 5 to 6 of us and evetually we will try our best to support each other and promote the cause of caring.

Annie mentioned that her son was born with a lack of oxygen, which resulted in him having cerebral palsy down his left side and having special needs. She didn’t realise that she was a carer at that time, because it never crosses your mind, she just knew that she has a baby, and he needs looking after. Everyone knew he needed a lot of care and attention, and needed to find out how they were going to deal with the cerebral palsy.

In fact it wasn’t that severe that he needed to be in a wheelchair, but as he got older, due to the complications at birth, he was also diagnosed with schizophrenia. So, all through these years that she has been caring, she has come up against a lot of injustices. These injustices drove her to write the book.

Ann just felt it was a constant battle when you are caring and that you’re dealing with every single aspect of a person’s life. So you’re dealing with so many organisations like benefits, like Social Security, like housing, all these things, every single aspect of a person’s life. One of the bigger challenges was her son getting into debt quite often and having to deal with the banks. The banks seemed to not be too carer friendly and this made life very difficult for Ann and her son.

Ann was very involved with Leeds partnership NHS Foundation Trust. She was a governor for the mental health trust, but this all started when her son became more unwell. As Annie has been caring, she got involved with care support groups. She then got onto different boards, anything to do with caring, carer involvement, parent participation, participation groups, then she became a governor for the leads and York partnership NHS Foundation trust. Annie then became a trustee for carers UK, which she has just since retired.

Annie feels that she has got more of an understanding of the complexities due to expericing all the injustices that she has had to deal with for 43 years. In the end it prompted her to write the book. It’s been bubbling up inside of her for three years. She felt that she had to get this message out, even if it’s just to give hope to new carers that can pick up some hints and tips from the book.

The book “Releasing the Compassion: An expose of the threat that is binding the hands of our community’s most needed carers” is intended as a learning resource as well for NHS students in mental health. It’s intended as a learning resource for professionals like corporate independent businesses e.g. the banks.

You can buy Annie Dransfield’s book on the link below

https://www.waterstones.com/book/releasing-the-compassion/annie-dransfield//9781919606309

  • Questions and comments from carer members

How can we protect our loved ones from financial problems and abuse?

What is that lasting power of attorney or warranty?

I think if with COVID, there was ripe opportunity for some fraudulent behaviour to go on, because people couldn’t leave their house. They did put measures in place and other post office did saying you could nominate someone to go and collect your money

I cannot wait to order your book. I can also say I have experience in trying to deal with banks and the problems of them struggling to secure the debts of someone suffering mental ill health.