Tag Archives: Lewisham

Lewisham MH Carers forum September 2019 update

133Welcome to the September update of the Lewisham Mental Health Carers forum. I guess you might already know, that I facilitate two carer strategy forums in the borough of Lewisham.

 

 

However one of the forums focuses more on BAME queries/issues with families and unpaid carers. The one that runs at Lewisham Carers tends to focus on unpaid MH carers as a whole.

Mental Health Open Forum

Just as a reminder, the term ‘mental health carers’ refers to unpaid carers supporting those with mental health needs. I know not many people are happy with labels, but on some level it just helps with identification and at best helps to lessen isolation as people know they have something in common with each other.

For the September Lewisham Mental Health Carers forum, we were lucky to have Lewisham’s latest mental health Champion James Rathbone, who is also the Labour Councillor for Lee Green. As unpaid MH carers, we were also joined by South London & Maudsley’s Quality Improvement QI Facilitator. It is important NHS mental health trusts engage with families and carers at grassroots level.

We first heard from Cllr James Rathbone who has lived experience of mental health. He spoke about how he became a mental health champion and why he would like to make a difference in the community regarding mental health needs. Not every service user can speak out when addressing mental health issues and it helps when someone is high profile enough to raise mental health at important meetings.

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James specified he does not control how Lewisham health services run, but he will bring mental health to attention when the issue arises. It is important that a mental health champion gets out and engages with the community. It is important to hear what the community says about the issue of mental health needs. James raised the situation of mental health needs from the BAME community and felt there needs to be more priority due to a high level of BAME using mental health services.

James was critical with the term ‘parity of esteem’, because he felt the term itself does nothing to address the real issues. He felt the main issue was funding and the new term should be ‘parity of funding’. He felt what are services bringing to the table? It is easy to talk, but funding matters in the end, plus how the funding is used.

James talked about the big launch of the Lewisham suicide prevention strategy held on the 11th of September 2019. I am not fully aware of the suicide stats in Lewisham or other London boroughs, so it would be interesting to chase that up. Especially since I am a carer member of SLaM’s suicide prevention group.

The next and last point raise by Lewisham’s Mental Health Champion was on how Families and carers can be involved in shaping Lewisham’s mental health services. I asked this query, because families and carers should feel part of the system, they should have their views and experiences taken into account and feel empowered they have the chance to be involved.

James spoke of how carers can become members of their NHS trust and have a greater say on what is going on. James spoke that we should pay attention to what SLaM governors are doing and try query what they are involved in. James mentioned that Lewisham CCG have their public reference group, which allows for involvement and it helps to understand the important health policies affecting the community.

We were glad James mentioned the important Lewisham stakeholder event on the 14th of October, since members of the MH Carers forum will be holding a workshop there about carers.  The link has been added below.

https://www.eventbrite.co.uk/e/lewisham-mental-health-stakeholder-event-me-and-my-community-tickets-72248203321

On the 16th of October will be Lewisham Child & Adolescent event, although not sure where it will be.

Some questions from the forum asked at James were on the merger of the six CCGs, the use of the Joint Health and Safety Committee and James returning for the Lewisham BAME forum.

Next up was Aaron Brewer who is SLaM’s quality improvement facilitor. Many NHS trusts around the country have quality improvement projects to work out how to improve services for patient and carer (yes, thats right! carers also use services). They want to ensure that the people that access our services experience the same standards of care no matter which borough they live in or which service they com are under.

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Aaron spoke about SLaM’s Inpatient Care Process Model. The model is broken down in to six phases of an admission. Lewisham are currently implementing three phases. The decision made to admit and first 24 hours, First 24 to 72 hours in
hospital and Final discharge preparation and discharge.

The model is broken down in the following sections.

– Decision made to admit and first 24 hours
– First 24 to 72 hours in hospital
– Getting better
– Getting ready to leave
– Final discharge preparation and discharge
– Staying well

Aaron then spoke about Lewisham’s Hospital patient system ‘I Care’ and how data can be used to focus on quality issues and quality behaviour. The group were shown some graphs and quality data to help educate members on how hospital data can help make decisions. We were shown nothing confidential, but numbers and figures. It was pointed out that the graphs look very complex, but I always stress carers MUST get used to poking their noses on data and quality. We need to understand how NHS systems work and how they make decisions on services.

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The following graphs were shown on

Hospital Length of Stay
Discharges by directorate
Readmissions within 30 days
Admissions and Transfers into External Overspill

The next discussion was on how the Hospital’s patient system can help in improving care and outcomes. These will follow on from the Red2Green tool. The Red2Green is a tool to aid daily multi disciplinary team decision making to ensure that every day spent in hospital is meaningful and contributing to a person’s recovery. Red2Green was developed in an acute general hospital but has since been adapted for mental health settings, multiple NHS trusts are now using it and having success in reducing unnecessary delays, length of stay and bed occupancy.

The Ladywell unit based at Lewisham hospital has several mental health wards. We were shown how one of the wards operates in regards to the Red2Green tool. The ward chosen was the ‘Powell Ward’, where we were explained the following

180 Green Days and 4 Red Days for 18 patients in August.
No Delayed Discharges.
Targetted Theme: Awaiting Social Services

The last part of the discussion was on Standard Operating Procedures (SOP). The aim is to agree Standard Operating Procedures (SOP) to unblock common barriers to discharges between community and inpatient services. The more I looked at who was involved at the SOP, the more my head began to spin because I felt they need to engage with the forum somehow or the risk is the community would not always know what is going on, however we did mention we have invited Lewisham’s head of social care to attend.

This concludes the update for the September Lewisham MH Carers forum. As a note due to resources, I cannot always update on the 4 forums, but will try every so often.

The next Lewisham MH Carers forum is on the 29th of October

Lewisham BAME MH Carer Forum August 2019

me_edited-1Welcome to another update from an unpaid carer who is involved in their local mental health trust and communities. I often try and engage with communities as much as possible, be it through running carer strategy groups, giving my views and engaging with events.

For the August Lewisham BAME Mental Health Carers forum, we focused on Patient Participation Groups and also updates from the South London and Maudsley Inpatient Social worker over at Lewisham hospital.

The Lewisham Black Asian Minority Ethnic Carers group is one of the 4 groups that not only focuses on carers, but makes a distinction on their background, culture and ethnicity.

BAME groups are more likely to experience stigma and distress due to cultural interpretations and systems set up or designed that does not take into account BAME communities. Lewisham is certainly one of the most diverse London boroughs around so it really helps that communities get together to discuss and educate each other on issues regarding health.

Lewisham Ward Map

The Lewisham BAME carers forums also accommodates those using services, but there still needs to be a drive to engage with more BAME carers who are very uncertain of their role and perhaps lack peer support and identity.

The carers forum runs from Lewisham, Bromley and Greenwich Mind under the Community Wellbeing umbrella.

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Lewisham Community Wellbeing is delivered in partnership with several other local charities and public sector organisations. We have been very lucky to get the support of Mind who probably have a lot on as it is and there will be some very exciting community projects coming up soon.

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We have around 45 to 50 doctor’s practices in Lewisham and I was fortunate enough to have the chair of one of the largest doctors practice in Lewisham. Alexandra Camies does an immense amount of work engaging with patients for the doctors practice she helps with. The doctors surgery is also a member of the National Association Of Patient Participation or N.A.P.P. I have always said to carers and patients that doctors are usually the gatekeeper to services, if you feel your doctors practice could do more for you or the community, perhaps look into how their Patient Participation group works.

So what is a PPG anyway? What do they do?

  • PPGs offer patients an opportunity to be involved with and support their local General Practice. For the South Lewisham Health Centre. Here are some of the following things that PPG involves.
  • Patients wishing to join must, in order to comply with General Data Protection Regulation (GDPR), complete an application form.
  • They currently have a committee of 8 patients, including aChair and Secretary.Committee members are provided with written details of their roles, responsibilities and key relationships.
  • They have the assistance of the surgery Patient Liaison Officer, who attends each meeting and provides us with any help needed at the surgery.
  • They have a GP representative (usually a partner), and the Patient Services Manager that attends the meeting.
  • All members are invited to general meeting, held quarterly, and asked if they have any agenda items to put forward for discussion.
  • Members that are unable to attend are able to have a virtual input via email. Virtual members are sent copies of the minutes, which are also placed on the practice web site for all to view.
  • Committee members take on a little more responsibility at the South Lewisham PPG, taking a part in organising events or projects, or helping with various admin tasks. Committee meetings take place as and when needed.
  • Members may be being asked to help out for such things as events.

Take note not all doctor’s surgeries are alike. Some do not have the resources to have a PPG, but it does not stop patients from helping set one up. I explained to the forum that your doctors surgery is only as good as the community that cares for it and uses it.

How can a success for Patient participation group operate?

  • The PPG should try monitor progress against objectives
  • Publicise their successes
  • Involve people and not that would mean patients, especially those whose voice is not often heard.
  • Learn from other groups, usually other PPGs hence the PPG Network.
  • Build on and work with their network of health and wellbeing groups and organisations.
  • Expand activity where possible
  • Make sure to review our objectives regularly

There are only a very small part of what a PPG doctors surgery should work towards. Alex gave the group an excellent presentation and we both learnt and picked up ideas from each other. I reminded the group that they could start their own projects and inquire about their local doctors patient participation group.

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If you want more information about South Lewisham GP Practice, check out their website below.

http://www.southlewishamgrouppractice.co.uk/

Next up was Errol Chambers who is the social work for the Lewisham Hospital Ladywell unit. It was great that SLaM engages with the BAME forum, because I have always stressed the the forum represents empowerment when we form as a group. If SLaM staff recognise this, then they can support us, although we try hard not to be antagonistic. Errol gave us a choice on what information the group would want be it on benefits or on how the Ladywell unit is operating currently. The group wanted updates on the ladywell unit and we discussed changes and progress regarding patients experience of the mental health unit.

Lewisham CCG was mentioned quite a lot as they invest in the services and are keen to see if the hospital is working to the best of its abilities. Many members pressed for a relationship with the units, but also felt that staff development must be key as a good quality service. This is mainly down to how staff engage with patients and their carers.

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At the end of the forum, I updated on the planning meeting for Lewisham CCG’s stakeholder event and also for Lewisham’s Carers conference requested by my MP Janet Daby who is a carer herself. I also pointed out that the Lewisham HR lead will be at the BAME forum for September. I have asked we are updated on the following.

BME staff engagement – What else is happening to engage with BAME community.

Plus small updates on the following.

  • SLaM’s Health and well-being strategy
  • SLaM’s Talent management programme
  • The South London Partnership collaboration (South west london & St georges, South London & Maudsley and Oxleas NHS Trust)

Plus an update on whats been done for staff to tackle.

  • Equal opportunity for career progression
  • Violence
  • Bullying & harassment
  • Discrimination
  • Stress
  • Flexible working

I guess as a carer, I do not ask for much. Still, I mentioned to the group…knowledge is power.

That is the August update for the Lewisham BAME MH carers forum.

Lewisham BME MH Carer/SU Forum August Update 2018

Welcome to the latest update of the Lewisham BME MH carer/SU forum for august. This is the first time that the forum took place in the evening, so to allow other carer members Who cannot always attends during friday morning.

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For the August forum, we hoped to have the Mental Health Act officer attend and give a presentation regarding the Mental Health Act and how south London and Maudsley were going to adapt to the latest changes to the mental Health Act. Unfortunately he could not make it, so we decided to discuss south London and Maudsley carer strategy.

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Lewisham MH Carers forum August 2018 update

IMG_20180828_141300Hello everyone, welcome to the latest update from the Lewisham mental health carers forum, which took place on August the 28th carers Lewisham. I know I have missed a few updates regarding the other forums that took place in July, I am hoping to add those at a later date.

As a quick reminder, the MH carers forums give a chance for carers to get updates, engagement, empowerment and also query NHS services and policies. We had some good attendance for the latest lewisham carers forum.

The forum usually runs for 2 hours, however so much was discussed at this particular forum we actually overran. I gave updates from our local mental health trust, which is South London and Maudsley. The NHS Trust has been really good in engaging with carers forums from the Boroughs of Lambeth, Southwark, Croydon and Lewisham.

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Lewisham MH Carers forum April 2018 update

IMG_20180529_135451Welcome to the Lewisham MH carers forum update for May. Out of all the four Mental Health carer forums in South London, this is the oldest one I chair. The MH carers forum ran on the 29th of May.

Carers Lewisham have been very good in supporting the forum and helping to advertise it, but we still need to reach other mental health carers in the borough of Lewisham. It is very important unpaid mental health carers know what is going on with the mental health services, let alone being engaged and trying to influence them.

For the month of May, we had guest speaker Stephanie Edwards who is the Clinical Team Leader for the Psychosis service in Lewisham. This forum was highly strategic as the forum members got a brief breakdown of the mental health services in Lewisham. The mental health service structure for the borough of Lewisham was complicated due to the current restructuring of SLaM staff, but hopefully we will have Donna Hayward-Sussex at the April forum, she is the Deputy Director of the Crisis Services within the Psychological Medicine Team.

The forum members need to know and query how mental health staff restructuring will affect service user and carers in the borough of Lewisham. As far as the forum knows, there will be be senior management consultations regarding interim posts.

Lewisham Ward Map

The mental health trust that covers 4 boroughs and a few more regarding mental health services is preparing for the CQC visit in July, they have spent a long time preparing services and involving carers and service users in ward/service inspections, which was good to hear. The MH carers forum appreciates staff have worked very hard.

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Regarding future forum engagement, the members look to be updated on the NHS trusts estate developments, governance structure and involvement oppertunities. I queried how many carers does Lewisham MH services have on the books, but it can be difficult to pin down the answer, still heard that around about over 800 Mental health cases are in the books, so it gives us some idea of the number of families and carers we need to reach.

Stephanie Edwards is preparing for Lewisham’s People’s Day, so the forum looks to provide cards, posters and leaflets.

After discussions, I brought out a large map of SLaM’s services and Stephanie took time to explain what the services in Lewisham are about, who was responsible and answered queries from the forum members.

There is concern that not enough carers in the borough know what is going on and are not getting involved. There are plans to have the forum held alternatively in the evenings at the Depford community centre. We also hope the carers support group can be set up in Lewisham Hospital so new carers can gain therapeutic support since there is limited time for carers stories at a Carer MH Forum.

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The forum has requested an MP visit soon from the borough of Lewisham to boost carer empowerment and understand carer issues with the borough

This concludes the update for the Lewisham MH carer forum.

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Lewisham BME MH Carer/SU Forum May Update

Welcome back to a quick update on one of the mental health carer forums I chair. This particular forum involves unpaid BME carers and those using or have used the mental health system. This is the only forum which involves ethnicity at it’s core.

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Lewisham is a very diverse borough and there is a high rate of mental health representation amongst the afro/carribean population. The forum has been running since last year and we have made a lot of progress, especially through engagement.

The forum runs once a month, usually on a Friday. The main topic for the May BME forum was on the SLaM quality report on the “Quality Priority setting for 2018/19”. All 4 of the Mental Health forums had a chance to give feedback on the mental health services South London & Maudsley provides regarding quality improvement. Despite feedback having to be rushed, I am grateful that the board has given the forums opportunity to provide feedback.

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The report is an 8 page breakdown of where feedback is given in regards to improving quality of services at the trust. The BME MH forum meeting held on the 25th of May focused on page 7 of the report. I allowed each member of the forum to speak about how they felt was raised in the report.
– Quite a few had opinions about how medication could be improved and wondered how the forum would be updated on progress.

– It was mentioned that some people would not have time to read the report and it should have pictures, but I felt at least we can have a discussion about the report so members can hear other’s views who had read the report.

– A lot of the members felt it was very important that the board take the suggestion of including familes in services, especially on the ward. One member felt comforted that family visited them on the ward, because they had a difficult time with staff.

– Another member wanted more information booklets, since I had handed them the new carers handbook, the confidentiality handbook and they queried why they had not seen those before.

– Some members want engagement regarding what compliants and compliments are made across the trust

– Lastly a discussion was raised on the problem of training staff to be empathic, especially staff from BME backgrounds who still lack empathy towards BME service users. This requires more discussion.

The forum members look forward to the Police along with the Central Place of Safety attending the June forum, especially since there was concern due to the recent death in Catford.

One important note is the members wish to have a mental health act officer engage with them to understand not only the mental health act, but also how the trust will adopt any new changes to Mental Health Law.

Lewisham MH Carers forum April 2018

Welcome back to my MH carer forum update from the Lewisham carers group. At the Lewisham Mental Health carer forum, we discuss carer engagement from our local mental health trust, 3 party organisations, the council and lewisham based GP surguries.

We also discuss carers rights, reports and learning about the carers role. For the april 2018 meeting. We discussed the report sent back from out local Mental health foundation trust, which is South London & Maudsley.

I usually attend and chair carer forums across South London, so it was important quality improvements for the mental health services get views from Carers. The report is fairly well written and easy to digest. I had printed out some copies for members to read at the Lewisham MH Carers forum.

We spent most of the time discussing the report, especially page 7 of the report, because that is where the write up of the carers forums were placed regarding carer issues. Despite the report being very easy to read, there were some problems. Some members felt the report was too vague and missed some things out. Other members of the Lewisham MH Carers forum felt the report is lacking in a conclusion on what needs to be done to tackle quality issues.

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One of the members of the forum is going to raise their concerns back at the trust, although I am glad the quality project did mention our concerns. We hope SLaMs Head of quality can engage with the forum regarding SLaMs quality priorites.

We also had a guest speaker at the forum who promises to return to the forum again. The head of the Ladywell Mental Health unit based at Lewisham Hospital engaged with the forum. I was delighted that she was able to make it, even though she had to deal with many emergency meetings. Sam Grey spoke about her role and what a Unit manager does. She described around 7 wards and their purpose and gave an update of changing service structures regarding borough based services rather than trust wide services.

I spoke about the need for a carer support group to be set up for the whole of the Unit, mainly because such a support group existed there years ago. Plus families and carers can always make the tuesday evening for a support group. I am fortunate enough to get support from the trust’s modern matrons who themselves focus on quality priorities. The forum wanted updates and engagement from the Ladywell Unit’s phamacist also the psychriatric nurse from Lewisham hospital, unfortunately we are not sure if it is possible to get their time, but the forum is interested on how such staff deal with medication issues and also how Lewisham hospital’s A&E engages with patients and their friends/families.

I hope the update was a useful read, see you next time.