Tag Archives: mental health

Black History Month 2023 – What it means to me

Welcome to another blog post by Matthew McKenzie carer activist and one of the carer network ambassdors for Cygnet.

As of this month for October 2023 it is Black History month. This month is a special theme for me since the theme is ‘Saluting our Sisters’. The theme highlights the crucial role Black women have played throughout history.

There are so many famous black women throughout history

Rosa Parks – for her courageous participation in the Montgomery Bus Boycott to push forward the civil rights movement against racial segregation on public transport.

Maya Angelou – who was famous for poetry and also a civil rights activist.

Mary Seacole – Contributing to medicine and nursing where she even helped British soldiers being injured in the Crimean war while fighting discrimination.

There are of course many more famous black sisters who are far too numerous to mention, but the above have shows the importance history plays in shaping our lives.

Still, I want to focus on someone very special and dear to me as she has not only shaped my life, but in a strange way inspired many others. Around 2019 during the pandemic the country was fighting an unknown and dangerous virus. That virus turned out to be COVID-19 and the outcome changed my life. My mother struggled with her mental illness in her later years, which in turn led her to also struggle with her physical health. With resources running low in the health service my mother was the unfortunate casualty of dwindling health resources during the pandemic.

Like so many other vulnerable groups. My mother did not actually die of virus, but just could not access emergency healthcare as resources were focused on covid victims.

The impact left me wondering what could I learn from my many years of caring for my mother. I had a choice either to share my story to other carers or completely move in another direction of my life. I made the former choice, because it helped me heal and also pay rememberance not only to my mother, but to myself.

So around 2020 I wrote my first book about my experiences as a mental health carer. The book was called “A caring Mind”, which was named after my blogsite which was born raising carer awareness after writing blogs for South London & Maudsley NHS trust.

Even when caring for my mother, I was also helping to care for an old friend who also inspired me to write. However it was my mother Rosemarie McKenzie who spent so much time writing poetry. My mother also wrote stories and even managed to get a story published in a magazine while she was struggling with mental illness.

My mother enjoyed singing and used to sing at our local African/Carribean community centre (family Health ISIS) that catered for those struggling with mental illnes.

Rosemarie McKenzie to the left dressed in white

My mother inspired many other clients at the community centre to be creative with poetry, singing and writing. It did not matter the mental struggle other clients was going through at the centre. They saw my mothers, as long as they could be creative, it helped them express traumatic feelings in a positive way. This was one of my mother’s strengths. No matter how many times she was would suffer with her health, she always found strength to be more than her illness. She made me find cause in highlighting awareness for vulnerable groups. This in turn led me to continue writing and using creative ways to express my lived experience.

Of course I could never fully understand my mother’s illness and could only express my mothers creativity as a dutiful son and a mental health carer. In the end I feel we cannot always look to the famous and fortunate of our black sisters. We all contribute to history in our own way. My mother used her own creativity to tell her story and I will continue that story hoping to contribute to black history.

Thank you for reading.

Healthwatch Lambeth – World Mental Health Day 2023

Live in Lambeth? Healthwatch Lambeth are marking World Mental Health Day for Wednesday 18th of October. The aim of Healthwatch is to give citizens and communities a stronger voice to influence and challenge how health and social care services are provided within their locality.

World Mental Health Day 2023 is an opportunity for people and communities to unite behind the theme ‘Mental health is a universal human right” to improve knowledge, raise awareness and drive actions that promote and protect everyone’s mental health as a universal human right.

North West London Cygnet Carers, Families and Friends Network Event

Welcome to another blog post from carer activist Matthew McKenzie. As a carer I find it vital that carers of those going through mental ill health get a chance for engagement from services. Friends and families tend to hidden away supporting their loved ones. They want the best support, but often struggle to be heard.

As one of the carer ambassadors for Cygnet health care, I was delighted to attend and support their latest carer network event. There have been a series of carer network events taking place around Cygnet sites and the latest one was held over at Cygnet Hospital over in Harrow. The event was planned in coproduction by Laura Sheridan Group Service Improvement Manager for Cygnet. Laura helps lead on the carer network programme and triangle of care focus at Cygnet.

For our latest carer event we had a fantastic line up of speakers. Cygnet health care want carers to be part of their network and want carers to be involved by leading from the front. Our first speaker was Lesley Mellor who is Parent Carer. She is also one of the carer ambassadors for Cygnet health care. Lesley shared her knowledge about the importance of including carers and the promise that Cygnet health care will be there to support unpaid carers.

The next speaker was Sharon Spurling who is the Triangle of Care Programme Lead at Carers Trust. Cygnet Health care wants to strenghen its policies to have that carer focus. The triangle of care programme offers that chance to raise carer identification and engagement to the highest standard. Several of Cygnet hospitals are working on triangle of care standards at their sites. With carers at our latest network event, it was a chance to promote what triangle of care is all about.

We also had Julie Garbett present about Julie is a Regional Nurse Director (London and South), Cygnet Julie is a registered mental health nurse of 20 years, with a vast range of experience gained working for NHS Mental Health Trusts and CMHTS in the South East. Julie spoke about how important carers are to Cygnet. Julie helped identify how carers are not just one group, unpaid carers can be anyone.

At the event carers were looked after with a lovely meal and a chance to network with speakers and with other carers.

We then heard from Matthew Gill who is Director of Psychology Services Midlands at Cygnet. He is a Consultant Forensic Psychologist with over 20 years of experience. Matthew is a committee member for the British Psychological Society and an AIMS assessor for the Royal College of Psychiatry. Matthew spoke about the importance of talking therapies. You can see from one of the slides on what Matthew covered below.

It was important we get to hear from the lived experience voice of the carer. Julian de Takats – Parent carer told his story and his thoughts about the carer experience. Julian as another carer ambassodor for cygnet health is passionate about carers being able to network and working together in a peer environment. Julian worked in the music industry before accidentally becoming a carer. Julian has been an active member of the Cygnet Carers Network since 2022 and is now proudly an Expert by Experience Carer Ambassador.

Next up to present at the carer network event was Dr Richard Church who is the Medical Director, Cygnet Hospital Woking. Dr Church studied medicine at the University of Cambridge and undertook general psychiatric training at South London and Maudsley NHS Foundation Trust. After working in the NHS for over 15 years, in November 2017, Dr Church joined Cygnet Woking as Medical Director and Consultant Forensic Psychiatrist. Dr Richard spoke about the barriers carers face when speaking to services. Richard gave an honest presentation that cygnet also faces challenges when working with carers, but he also gave thoughts on how cygnet with working with those challenges.

My thoughts summing up the event

The location, theme, presentations and speakers were excellent. Time and time again I state it is important the mental health, social care and health providers hold engagement events on what they offer to carers. It is not enough to promote an offer to carers as unpaid carers need to be involved and also need empowered to network, develop peer skills and work with providers.

Cygnet health care are setting an example that carers play an important part of recovery. Carers should not be hidden away struggling to support and provide care. I do admit that health and social care is struggling with the challenges they face, but we all need to work together. I hope we continue to reach out to carers, promote carer focused policies and be held to account on our promise to carers. This is a new journey for cygnet, but we want to share the journey with our carers.

Triangle of care – What is your mental health NHS trust doing for carers?

Welcome fellow unpaid carers. This blog focuses on those caring for someone suffering through mental illness. I chair the Triangle of Care community meeting. You might have already heard about Triangle of Care from national carers charity Carers Trust.

Basically the Triangle of Care describes a therapeutic relationship between the patient, staff member and carer that promotes safety, supports communication and sustains wellbeing. Many NHS Mental health trusts across the country have taken up the challenge and signed up to the scheme.

However if you are a carer, knowing about the triangle of care is not enough. You should try work out what your NHS trust is doing with triangle of care policy.

Some questions you could ask

  1. Have you as an NHS organisation signed up to the triangle of care?
  2. What are your plans to get feedback from carers to help shape triangle of care at your organisation?
  3. How do you promote triangle of care to unpaid carers?
  4. How is triangle of care helping to change the experiences of carers at your NHS organisation?

There are many more questions to ask senior NHS staff at your local mental health trust, but it is so important carers do not just blindly accept carer policies without some scrutiny.

We have our next Triangle of Care community meeting for 21st of september. See below.

Remember, unpaid carers also use services and it is their right influence or feedback experiences of health care.

Targeting Aggression in caReGiving rElaTionships (TARGET)

Another blog from carer activist Matthew McKenzie highlighting an opportunity of joining a research project at Kings College London.

What is the purpose of the project?

Many people with a severe mental illness (SMI) may live with or be supported by a close
relative or friend, whom can often be referred to as informal carers.

We know that caring for a relative with lived experience of SMI is an important and valued role that can be associated with many rewarding and positive experiences. We also know, however, that it can be associated with different challenges for which some can include exposure to aggression from their relative.

The purpose of the project is to trial a new group training programme for informal carers who have had times in their relationship when they have been exposed to aggression from the person they care for with SMI.

The researcher is inviting informal carers in SMI who have been exposed to aggression in their caregiving relationship, from the person they provide care for.

If you are happy to take part and the research team have answered any questions you
have, you will be given an information sheet to keep and asked to sign a consent form.

Here is a brief outline of what you can expect from the group training:

  • An opportunity to meet other carers with similar experiences
  • Understanding of severe mental illness
  • Discussing communication skills
  • Discussing problem-solving and de-escalation skills
  • Discussing of strategies to promote positive wellbeing, support, and safety
  • Discussing of helpful resources and strategies to access support

If you have any questions or require more information about this study, please contact the researcher using the following contact details:

Lee Zi Min Beatrice, Clinical Psychologist in Training, ASB,
Institute of Psychiatry,
4 Windsor Walk, London, SE5 8AZ

Email: beatrice.lee@kcl.ac.uk

July Monthly Carer & Health News Updates 2023

Latest carer and mental health news for July by carer activist and author Matthew McKenzie

July 2023 Carer and Mental Health news <- read more news items here

For the July edition on unpaid caring and mental health we have

Carer Videos

Carer Support Transitioning to managing on your own – Gloucestershire Carers Hub

A Creative Carers story-Anne – Carers Oxfordshire

Northamptonshire Carers – Episode 5 – Dementia

Latest Carer News

Caring for carers – Blog on NHS and Carers

Should you be doing more to support employees balancing carer responsibilities?

Letter from Minister of State for Social Care – Gov

Unpaid carers: ‘I had to choose to care for my husband or my sister

Caring for the Caregivers: The Critical Link Between Parent and Teen Mental Health – Harvard University

Triangle of Care accreditation shows we value carers – Tees, Esk and Wear Valleys NHS Foundation Trust.

National Organisation updates

Current Lived Experience Advisor Roles – Carers Trust

State of Caring Survey 2023 – Carers UK

Give feedback on care – CQC

Carer Research Papers

Online Education and Cognitive Behavior Therapy Improve Dementia Caregivers’ Mental Health: A Randomized Trial.

The impact of having a carer on adult health and social care utilisation across five settings of care: A matched cohort study

Diversity ethnic Mental health news updates

NELFT launches Patient and Carer Race Equality Framework

Carers UK  good practice briefing for supporting Black, Asian and minority ethnic carers

Exploring the relationship between mental health and dialect use among Chinese older adults

South Asian Heritage Month – Birmingham and Solihull NHS FT

VR training for informal carers of those with psychosis

Welcome to another blog post by Matthew McKenzie promoting research from psychiatry and psychology.

There is new research taking place at the institute of Psychiatry, Psychology and Neuroscience. They are working on a new way of Virtual training for unpaid mental health carers.

People with lived experiences of mental health problems, such as psychosis, can have a range of experiences that might include worrying or unusual beliefs about other people, themselves and events. These experiences can sometimes influence their styles of communication with other people, including close friends and relatives. Families and friends (sometimes collectively described as carers) are an important source of support to people living with psychosis. This caring role can be challenging, especially when communication might feel confusing and difficult. As such, carers understandably often want their own help on how best to provide support particularly in terms of identifying helpful communication styles.

In the study the IOPPN will look at whether it is possible to use a new virtual reality (VR) training programme designed specifically for carers of people with lived experiences of psychosis. By carrying out a smaller study, the research will want to see if a larger study would work in the future. The training will aim to guide a carer’s development and use of helpful communication styles with their relative with psychosis.

For more details see poster below.

If interested please contact

Laurence Rogers (Trainee Clinical Psychologist; Laurence.p.rogers@kcl.ac.uk)
Department of Psychology, King’s College London
Institute of Psychiatry, Psychology and Neuroscience
De Crespigny Park
Denmark Hill
London SE5 8A

June Monthly Carer & Health News Updates 2023

Latest carer and mental health news for June by carer activist and author Matthew McKenzie

June 2023 Carer and Mental Health news <- read more news items here

For the May edition on unpaid caring and mental health we have

Carer Videos

Carers Week: Lambeth Young Carers

Carers Week – Lanakshire Carers

Carers Week 2023 Wrap Up and Thank You! – Solihull Carers

Latest Carer News

Thousands of deprived unpaid carers in south east London

UK Gov announces cross-government action to support carers

Rapid review into data on mental health inpatient settings: final report and recommendations

Why are Lasting Powers of Attorney important to unpaid carers?

Carer’s Leave – the new law explained

State of Caring conference 2023 – Carers UK

NHS Long Term Workforce Plan

Other news updates

Cancer – NHS England

Carers UK  good practice briefing for supporting Black, Asian and minority ethnic carers

Greater Manchester black patients 3 times as likely to be detained

Macmillan Cancer Support – Carers Week

Caring for someone with a terminal illness

Allied Health Professions Strategy for England Easy Read Version

Regional Carer event – Cygnet Hospital Bierley

Welcome to another blog post from Carer activist Matthew McKenzie. I do many roles to connect with unpaid carers and I am now a Expert by Experience Carer Ambassador for Cygnet. I want to keep carers at the heart of healthcare services and one of the best ways to do this is speak at conferences.

Cygnet Health Care is taking on the challenge of and striving to make sure mental health carers get the best support possible. Cygnet are running “Regional Carer Network events”.

This recent Carer Network Event took place at one of Cygnet’s sites. That being Cygnet Hospital Bierley.

Before the event, Cygnet’s Group Service Improvement Manager Lauran Sheridan provided support to make sure Carer Ambassador’s were looked after. It was thanks to Laura that we were given a voice and place to reach out to carers who often feel they are forgotten.

We had a lovely stay at Premier Inn and the food was lovely. It was important to get a good nights rest to feel refreshed and ready to engage with staff at Cygnet and unpaid carers.

Just before the event, I took the time to explore the wonderful City of Bradford and event went walking along some rocks to watch the sunset.

AT THE EVENT

As usual, the first thing I look for when I enter a hospital is to examine what is displayed for unpaid carers. I was glad to see a Carer’s board and advertisements for carer events and initiatives e.g.

  • Events Calendar,
  • Awareness of Carers Week 2023,
  • who is the Carer’s Lead
  • Triangle of Care
  • Family & Carer strategy
    …..and lots more..

I opened the event with a focus on why I think carer networks are so important. I often write books on why carers need to connect and also why services should provide the empowerment and platform for carers to connect. If we connect, we can listen and try to understand the complex world of unpaid carers.

The speakers for the Regional Carer Network event were as follows.

Kate Mercer who is a Family Advocate from Black Belt Advocacy. Kate spoke about carer’s rights. She has worked on national projects with NICE, CSIP, NDTi and NHS England, most recently looking into the quality and availability of advocacy within in-patient settings for people with a learning disability and autistic people.

We also had Christian Young who is the General Counsel at Cygnet Health Care. Christian qualified as a lawyer in 1998, he then joined NHS England as Deputy Head of Legal Services before moving on to Cygnet.

Next to present was Philip Winterbottom who is Head of Safeguarding at Cygnet Health Care. Philip did an excellent presentation on the importance of safeguarding at health services. It is important we all know our duties to provide the best care of those who use our services.

We also was joined by Jo-Ann McAuliffe who is Deputy Director of Nursing. Jo spoke about the importance of recognising carers and how Cygnet can work with unpaid carers.

Lesley Mellor who is the other Expert by Experience Carer Ambassador for Cygnet spoke about her experience of providing care. Lesley is the is the chair of Dorset Parent Carer Council.

During the event, attendees were certainly looked after. We had a lovely lunch and I actually took some of the food home with me.

Cygnet also provided carers we lots of information, where Laura and Jo promoted Cygnet’s new Carers Strategy with more carer information to take home after the event.

All in all I enjoyed the regional carer network event and have connected to a few carers. The network will take time to develop, but we can all learn from each other. As the core of the Triangle of Care, we need to balance the connection so carers are not shut out.

Thanks for reading. More blogs to come for Carers Week 2023

Promo of Discriminated by Matthew McKenzie

Welcome back fellow carers. Carer Story number 8 is nearly finished. As promised, I am continuing to write carer fictional stories. These stories are based on those caring for someone suffering mental illness.

All audio and video stories are from the book I am working on “Providing Care & Other short stories”. I aim to write 20 short carer stories and add them to an audio book. The quality of the audio stories are increasing each time.

Story number 8 is unfortunately very difficult to listen to. Not because of any quality issues, but due to the nature of the story. As a carer campaigner, I often raise awareness of mental health carers. This time I am focusing on ethnic mental health carers. The story discriminated looks at the challenges a young black woman called Jennifer will face when caring for her brother Darren.

The story also follows Darren’s traumatic journey through the mental health system and the fragmented role of the NHS and the Police.

At the time of the release of this story, you might have heard the police refusing to take mental health calls.

https://www.bbc.co.uk/news/uk-65741824

Once you have watched this story, you will probably understand why. With mental illness increasing at rapid levels, health and social care are struggling to catch up. It is now the family, friends who are caring that will have to step in.

The question remains on if unpaid mental health carers have the resources to cope.

Story number 8 – Discriminated to be release soon.

Listen to the promo below.