Tag Archives: mental health

Service User Advocacy Exhibition

Thanks for stopping by at another carer blog post. I thought to quickly drum up a page on my latest visit to the Bethlem’s Museum of the mind. I was excited to be part of their new exhibition “Impatient! Stories of Service User Advocacy”.

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The exhibition which is over at the Bethlem Museum just inside the Bethlem Royal Hospital, celebrates the history of Service User advocacy. There is history on how the groups and organisations projected their causes and how they relate to psychiatry. I felt that sometimes when it comes to NHS exhibitions they tend to promote much of what has taken place in the hospitals, but showing what the community or inpatients have done, can give more of a holistic picture.

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Lambeth MH Carers Forum update August 2019

Welcome to the August update of the Lambeth Mental Health Carers forum. As a reminder the Mental Health carers forums are not primarily focused on discussing mental health benefits, but are aimed at carers supporting those with mental health needs. The forum usually has organisation who either provide mental health services, commission them or oversee the services e.g. Lambeth Council, South London & Maudsley, Lambeth CCG and Lambeth healthwatch besides others.

For the August forum we were fortunate to members and representatives from Maudsleys Older Adults and Dementia Advisory group. They presented to the forum what the group does over at South London & Maudsley and how they work with unpaid carers who are caring for those suffering Dementia, Alzheimers, Parkinson and so forth.

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Before I continue on with a brief update of the work of the older adults Clinical Academic Group, we also had on the August agenda the following.

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Royal College of Nursing involvement day

Rcn-logoThanks for stopping by. Here is another blog post by unpaid carer Matthew Mckenzie. This blog post is about involvement, but I have added to this post my involvement with another organisation the Royal College of Nursing. Usually I spend most my time at carer or community centres running family and carer strategy forums. We aim to engage with hospital trusts, healthwatch, health commissioners and councils. Most forums look to increase education and engagement on mental health and the health services.

Still, education is not enough and there should be involvement and empowerment for services users and carers. Anyway, I would like to put a bit of background into the RCN otherwise known as Royal college of Nursing. I have been hinting about nursing and the Royal college of Nursing from my previous blog posts, although there are many other organisations I will post about soon.

The RCN represents nurses and nursing, promotes excellence in practice and shapes health policies. It is the biggest and well known union for nursing in the UK. They do not just represent nurses, but also midwives, Mental Health nurses, health care assistants, assistant practitioners, student nurses and trainee nursing associates.

They have around half a million members and are growing in number every day. The RCN also have a vast history in the field of nursing and have made major impacts in advocating for the field of nursing in the UK. The RCN also runs forums, consultations, conferences and allows members to get involved or even become an RCN Rep.

It has not been an easy time for nurses or the NHS at present, I am not going to get too political today, but never has there been a greater need for the RCN to vouch for nursing as pressure is brought to bear on nurses via lack of funds, bursaries and incentives to stay in the industry.

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The RCN now wishes to expand its involvement and has been honest that in its prestigious history, it has lacked the drive to engage with its mental health patients, however many a large organisation can fall into this situation, although some are worse than others.

I have noticed that the RCN looks to take on engagement and involvement policies regarding its mental health programme, but to do this it must feed into its patient forum and also draw from Triangle of Care representatives. Of course no one is going to say such a drive is not without its challenges, but the sooner work begins on involvement, then the better the outcome.

Early this august I was invited to the first of many reference groups to collectively figure out inclusion and co-production within the RCN. I was joined by many patients and carers like myself. I did hear that reps from a mental health forum could not make it, but hope they are free next time.

The group was chaired and facilitated by both Catherine Gamble and Tim Coupland. Catherine is a RCN Mental health lead & Head of Nursing. She is also proactive in eduction practice & research at South West London and ST Georges NHS Trust. Tim Coupland is the RCN Programme Lead for Parity of Esteem and promotes many policies on mental wellness for all including nurses themselves.

I will not go into too much detail on how the group went, but I felt I was very looked after at the group and I felt everyone got their chance to have their say. We had many passionate and rich experiences from the members of the group, everyone truly deserved their place there. I was amazed that some members have had an impact promoting nursing and service user experience in other countries.

We each also asked what our involvement and interests lie, where mine was on the NHS Long term plan, mental health act and Suicide prevention due to my involvement at South London and Maudsley Suicide prevention group. I was excited to hear that the RCN have representatives engaging in the areas I have raised.

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There is however a lot I can say regarding involvement, inclusion, engagement, co-design and co-production, but I think I will leave that to another blog post. There is much out there that carers like myself can get involved with. We never have enough carers getting involved at an exciting and challenging time in the health services.

You can find out more about the Royal College of Nursing from the link below

https://www.rcn.org.uk/

My summing up of the day is that there is a lot of work to do, but I feel that the RCN as a body is massive and offers many opportunities even if it is just to understand its core principles and the future of nursing.

Carers and GP Surgeries

me_edited-1Welcome back to another blog post by unpaid Mental Health carer Matthew Mckenzie. I often write blog posts that try to focus on carer issues, but sometimes I stray into areas of mental health, events and the field of psychology, sociology and maybe psychiatry. Of course I don’t stop there. I run carer engagement/strategy forums in south London and every so often I tend to update how they went on this site. Feel free to check out my Youtube channel or twitter channels where one channel focuses on the carer experience and the other channel on mental health developments.

Enough with the shameless advertising, this particular post is on a much needed subject and it is aimed at unpaid carers, however I hope GP surgeries get the time to read considering at the last Lambeth forum there was major discussion on the Lambeth Patient Participation group network. I have also arranged for the Lewisham PPG chair of South Lewisham Practice to present and update the members of Lewisham BAME Carers forum.

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Lewisham BME MH Carer/SU Forum July Update 2019

965946_fa217b70Welcome to the July 2019 update of the Lewisham BAME Mental Health carer forum. The forum is one of the 4 carer strategy forums I run in the community and has a focus on BAME carers and sometimes Service user issues. As a reminder, the London borough of Lewisham is a diverse community, with many health and wellbeing challanges, but also some successes.

Although it is good we have carer support groups, there must be a physical platform where families and unpaid carers can come together for empowerment purposes. Carers should have a right to have a say about Health and well-being services. For the July Lewisham BAME Carers mental health forum, I had to run it earlier in the month due to a meeting I have at the end of the month.

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Usually the forum would be packed, but a lot of members had sent apologies and this is one of the reasons I have blogged about the forum as a way to report back to members who can then feed into their networks.

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National MH Nurses director forum – Building Resilience

D_BbtpdXYAEqkWdThanks for stopping by my blog-site. I thought to try and note down a lovely conference I was involved in as a guest speaker, but before I begin explaining more about the National directors nurses forum 2019. I want to pitch some ideas for any unpaid carer reading this blog post. Have you ever wondered what inspires team leaders on hospital wards? Have you wondered about how senior nurses inspire their staff? What makes nurses tick and how do they become more resilient in there roles?

As carers, I often try and get families and carers to become excited about the NHS. If not that, then try to inquire what the NHS is doing for you or what you can help the NHS in regards to promotion and co-production. We carers are unique in our roles and sometimes we stay silent and get on with it, but we should try use our voices to influence health services.

About the National MH Nurses director forum

I now want to talk about the forum which runs each year, I think the one for 2019 was the fourth of its kind. The NMHND forum aims to focus on leadership for mental health and learning disability nursing. It also wants to help spread best practice in mental health and learning disability nursing. It helps bring together those who work in the field of nursing to help raise the voices in regards to the pressures of nursing.

You can find out more about the National Mental Health Directors Forum (NMHND) off their site shown below.

https://mhforum.org.uk/

Plus you can find out about Directors of Nursing for the UK through the forum site.

https://mhforum.org.uk/trust-breakdown

The 2019 National MH Nurses Directors forum was held at Warwick University. I was impressed by the conference center and the facilities, which also had a bar, large canteen and many conference rooms. I was told Warwick University had many conference centers and as a carer guest speaker, I felt I was really spoilt since I was provided a room at the center, the Dinner, Breakfast and lunch was fantastic.

The theme of the 2019 NMHND forum was on “Building Resilience”, which was fitting due to the pressures the NHS is under. Plus if the NHS is facing large challenges, it will filter down from leaders, to senior staff and front line staff and guess what? The patient and carer will be next in line. So I was glad that the National MH Nurses forum raised the theme, but it was not moaning and groaning, we sought to find answers, solutions and inspirations into building resiliance. We do not want nurses to struggle and leave the profession.

About the Forum Chair and Organisers

To open the event we had Mel Coombs who is the Director of Nursing at Cambridge and Peterborough NHS Foundation Trust. I felt comfortable with her chairing style and that put me at ease as I felt welcomed. I was fascinated by her inspirational story into the role of Nursing and felt she was ever so dedicated in her field, but more on that later.

You can find out more about Cambridge and Peterborough NHS trust and their board of directors below.

https://www.cpft.nhs.uk/about-us/board-of-directors.htm

I was also welcomed by Professor Hilary McCallion CBE and was shocked that she remembered me from when I spoke at South London and Maudsley carer conference almost 6 years ago.

If it was not for Hilary, I doubt I would be speaking at the Nurses forum that day and thank her for involving me at such a level. Prof Hilary is the Director of Nursing and Lead Nurses National forum, plus she is also a Trustee of Dementia UK and Bethlem Museum of the Mind, which I aim to get involved on Bethlem museum latest project soon, watch this space.

Last but certainly not least was Peter Hasler who I have known for a very long time and has inspired me to get involved at South London and Maudsley as a carer when I first started out learning more about the NHS. Peter has many roles, but he is the Forum Development Officer.

What happened throughout the day

After the welcome by the chair, I spoke about resilience as a Carer and the impact of mental health needs in the family. I spoke passionately and from the heart as I wish to lead by example when I want to raise the profile of families & carers in the NHS.

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My talk consisted of the importance of Carers being empowered to network
My background and the Triangle of Care, plus the Health Service Journal.
Carers Navigating the NHS
The need for support from nurses and also resilience of carers.

I hope my message was inspirational and I felt those who work within the NHS have families and patients in mind. I want to inspire nurses to join and avoid leaving the profession, especially in the mental health field, which is very challenging.

We then had Ruth May who Chief Nurse of NHS England speaking about “Nursing Resilience in delivering the NHS Long Term Plan”. I am looking forward to hearing more on how she can help educate us on the NHS Long term plan. She answered many challenging questions from the audience and I noticed she has her work cut out, but her passion and drive shows that she will make great progress.

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After the break Prof Hilary McCallion spoke about patient Observations on inpatient wards. As a carer, her talk was easy to understand and there was an interest in psychiatry as she provided many insights as to why patient observations in hospital mental health wards was so important.

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I admired her knowledge and energy and I felt jealous when someone in the audience got her the questions correct and won a box of chocolates.

After the lecture the forum split up into 3 work-group sessions. The first session was presented by Learning disability nurses Simon Jones and Alison Williamson from Oxford Health NHS Foundation Trust on PBS in Forensic Services.

You can find out more about Oxford NHS Trust below

https://www.oxfordhealth.nhs.uk/

The second Session was on Stepping Up via Resilience through the CQC, which was presentation by Amanda Griffiths and Jane Fullard from the Hertfordshire Partnership University NHS Trust, which recently got an Outstanding ranking from the CQC on their mental health services.

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This was the session I joined, probably due to the CQC paying even more attention to the Triangle of Care and being active on twitter, plus engaging with my Carer strategy forums. Amanda and Jane spent a lot of time education myself and other trusts in the room, which an impressive presentation. As a side note, I met nurse from SLaM based in Lewisham who spoke kindly about my presentation. I was glad we had more SLaM staff at the forum and hope they will also continue to engage with the carer forums.

You can find out more about Hertfordshire Partnership University NHS Trust below

https://www.hpft.nhs.uk/

The third and final session was on How do mental health practitioners understand & experience resilience which was presented by Simon Wharne of Sussex Partnership NHS Foundation Trust. I have nothing but admiration for Sussex staff and their CEO Sam Allen who has supported my work for quite while and they are heavy advocates of Triangle of Care. I will never forget Sussex involving me as a carer at their event a while ago.

You can find more about Sussex Partnership NHS Foundation Trust

https://www.sussexpartnership.nhs.uk/

After a tasty lunch at the conference center, I got the feeliing at ate too much and it made me sleepy, but I couldnt help myself as I networked with NHS staff from other trusts. There are going to be some exciting projects coming up soon.

The forum moved on to Resilience in your NHS Career Journey, were we got to hear personal stories from Mel Coombs, Christine Hutchinson who is the Nurse on Learning Disability at Lancashire Care NHS Foundation Trust and Francis Adzinku who is the Service Delivery Director at Oxleas NHS Foundation trust.

You can find out more about Lancashire and Oxleas below.

https://www.lancashirecare.nhs.uk/

http://oxleas.nhs.uk/

I would like to give Special thanks to Warwick university and Radcliff conference center as I found the food, facilities and guest room excellent.

How I felt about the event.

I was delighted to be invited to participate in such an influencial nursing forum. If I did not blog on such a forum, it really would have been a missed opertunity. I felt the event was very well organised and kept to time.

I enjoyed the art work of the event done by Dr Pen Mendonca.  The art really summed up the day as words cannot always be the best representation of describing things.

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I hope to meet up again with Prof Hilary McCallion again over at SLaM and most of all I was impressed by the caring attitude of the audience making me feel welcomed as a carer among friends.

I would like to mention Lookout for my next blog which will be a video timeline of UK nursing throughout the ages.

Thank you for reading.

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Health and well-being in the community

https___cdn.evbuc.com_images_50751415_246297577353_1_originalI recently came back from an event held by an award winning social consultancy called “We Coproduce”. The event was a 2 day look at Trauma and its causes due to the tragady of Grenfell Tower, it was one of the best times for the community over in the London borough of Kensington and Chelsea. When I arrived at the event, I was amazed to see how many of the public turned up and how many were interested in the talks.

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Sometimes us unpaid carers need to step up

smallerHello again, I have not blogged in a while, because being so active in my area due to attending events, running carer strategy forums and networking like hell. I know the title might seem a little off putting, but in my long experience of being involved in health and mental health services as an unpaid carer, there are a few things I have noticed.

Just to note, I am writing as an unpaid mental health carer, basically a carer supporting someone close who has mental health needs. Unpaid carers struggle quite a bit to get noticed, their culture is to put the ‘cared for first’ and themselves last. Perhaps it is a respected human trait, carers come with a big heart, but it does come with some risks. This is what I will be blogging about today.

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Poem – She Never Gave up

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Welcome back to my carer blog.   I guess it has been a while, but it is creative corner time.  I have received a lovely poem from an unpaid carer who networks with our forums from the NHS Oxleas services.

SHE NEVER GAVE UP

The challenges were bad
They were ever so mad
A Son she loved – lost
In the abyss of madness – tossed
To and fro from pillar to post
The Son she once knew now a ghost

SHE NEVER GAVE UP

Despite being banished from the lips of her Son
She faced the choice and won
Won the many fights but not the War
Against his brain so horribly sore
Deep inside she could see
The ghost of her Son fighting to be free

SHE NEVER GAVE UP

Poem by – Elsie Cronin

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Carer engagement – What works?

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Welcome back to another blog post from an unpaid mental Health carer. Just a day ago of this blog post, I attended and spoke at the South London & Maudsley trust Psychology and Psychotherapy conference 2019. It’s theme for this year was on involving families and carers. I was excited to be part of the event to get my thoughts out to the audience and on reflection, I felt I pulled no punches. With over 20 years of unpaid carer experience, I have seen and experienced quite a lot in regards to carer involvement and I expect there is more to come. One day I should write a book about it, but this is probably a very long way off.

Still, I feel a lot is at stake and there are times we have to be passionate because we are dealing in peoples lives, since that is the nature of business. Connecting with others at a deep, but difficult level. However when things work out, the rewards pay very high because we can reuse what we have learnt. Yes, I am talking about psychology and psychotherapy. I am no expert in these subjects, but being involved at the NHS trust and in the community for long, I suspect that I have been exposed to such powerful, wonderful and mysterious methods.

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