Thanks for dropping by. Welcome to a blog post raising awareness of caring and caregiving. World Suicide Prevention day might have already finished by the time I posted this blog, but it is always helpful to continue raising awareness.
Many people around the world unfortunately take their lives due to suicide every day. This is a sad fact, but we also need to remember those who try their best to help support and care for those struggling with suicide.
It is also important to remember friends, families and communities affected by suicide. I have made this video to help raise awareness, which you can watch below.
Welcome back to another blog post from carer activist Matthew McKenzie. I have just recently watched a news piece regarding Carers UK latest campaign. For those who do not know, Carers UK is one of the UK’s biggest national charities that focuses on support for carers.
You might have already seen a couple of blog posts about previous campaigns from Carers UK and other carer support charities. At the time of this post, there are around 5.7 million carers around the country caring for someone with long term illness.
Most people want to provide unpaid care, they want a better outcome for those with long term illness, but what people do not want is to provide unpaid care with little or non support.
Each year, support for carers has been reduced within the health and social care sector. Important decisions have to be made and in the end this lies with the new government. Still, it does not hurt to provide some guidance on what Carers UK have heard from carers.
There are 8 priorities which Carers UK want the government to be accountable for.
Reform and significantly increase Carer’s Allowance and other social security payments for carers.
Deliver an ambitious and fully funded National Carers Strategy.
Invest in breaks, respite services, and introduce new legislation so all carers have the right to regular and meaningful breaks.
Make the NHS the most carer-friendly health service in the world.
Introduce a right to paid Carer’s Leave for working carers.
Recognise caring as the 10th protected characteristic under the Equality Act 2010.
Invest in social care services so no one has to care alone, and so Local Authorities are able to meet their existing duties to unpaid carers.
Provide more support to help carers manage their health and wellbeing.
The letter was signed by 10,611 people who feel passionately about the plight of carers. A lot of promotion went into the importance of the letter, but you can also watch the report from London Live news which was reported by Sachelle Connor.
Welcome back to a quick update of an event I participated in. As you might already know, I have a Carers Stall which I use for raising awareness of unpaid carers. The stall is often located at hospitals or events.
This time I took the stall to a festival over in the London Borough of Southwark. The Camberwell Feel Good Festival returned for Summer 2024 with two Saturday festival events, packed full of fun and engaging health and wellbeing activities, free food and music, and vital support services for all ages.
With support from Catherine Gamble who is a fellow at the Royal College of Nursing, there was various stalls promoting wellbeing, information and information to make attendees feel good. Unfortunately the weather had other ideas, but I was amazed at the turnout.
However my stall contained information from Carers UK, Macmillan Cancer Support, Parkinsons UK and Southwark Carers which provides support to unpaid carers in the borough of Southwark.
The Event Highlights at the festival are listed below:
Yoga, tai chi and physical exercise for all ages
Mindful arts and crafts stalls
Children’s active fun and games
Free lunch and pantry from local food charities
Children’s no-cook food workshop
Live music and choirs
Health support services stands
Gardening & food growing workshops
NHS physical and mental health advice and support
We also had some Members of the RCN lived experience group helping our with their own stalls and I was delighted to meet Hannah Cadogan who showed me the quilt she made during the pandemic to raise awareness. She also showed the book that promoted the quilt called “The Making of the Cassel Quilt”
It was not long before I checked out some other stalls located next to my carer stall which I shared with Catherine.
The Maudsley NHS and Kings college NHS stalls were out promoting health and wellbeing. This stall was smoking cessation and I actually took a CO2 lung test to see how healthy my lungs were.
Also at the feel good festival was the Maudsley Gallery, which provided arts and crafts for young children. Children were making shakers to go along with the music at the festival.
I then explored other stalls located at Camberwell Green park.
All in all, I had an excellent time helping to promote wellbeing, advice and information. I would like to thank Catherine for involving me and SE5 Forum for putting on an excellent festival.
Welcome to another carer awareness post from carer activist Matthew McKenzie. This post was done during Carers Week 2024, the theme “Putting Carers on the Map”.
Many up and down the country were busy putting carers on the map, but quite a few were also rewarding those who helped put carers on the map.
I was over in the London borough of Harrow to help celebrate the amazing work Harrow carers does for the community of Harrow for their Carers Week Family Celebration.
Harrow Carers was easy to get to and despite the slight rain, everyone was in a good mood.
Harrow Carers centre supports carers of all ages over the phone, through face-to-face contact, support groups and workshops.
Their services include support groups, counselling, wellbeing sessions, hospital discharge, befreinding, events, advice and information. They also work closely with local and national agencies and can signpost carers to specialised sources of support.
On thursday 13th of June, I attend Harrow Carer’s “Family Fun Day”. A place where carers and the community can come together and celebrate, but also forget about their daily struggles.
While visiting the Harrow Carers site, I was shown around the festivities and facilities that they have built up over the years. Harrow carers have a large park area and have built a Barbecue
I was also shown their wellbeing garden.
I was greated by the CEO of Harrow Carers “Charmian Boyd” who showed me around the facilities. She talked about the special day and my role as one of the 3 judges to judge the “Harrow Carers Awards”.
The nominations for the awards were as follows
Young Carer Award for someone under the age of 18 who goes out of their way to help and support others.
Young Carer Award for someone under the age of 18-25 who goes out of their way to help and support others.
Carer going above and beyond Award for someone who goes out of their way to help and support others.
Longest serving / lifetime achievement Award – A carer who has faced big challenges themselves but has continued to care for someone a long time.
Outstanding contribution to the community Award – For someone who spends their spare time volunteering to support carers and fundraises.
General Practitioner Award – Award for a GP Pratice that has made a concerted effort to support carers.
Social Worker of the year Award
While judging for the awards, I was amazed at how the community of Harrow supported each other and setting up the facilities for the event.
The staff at Harrow were welcoming and supportive. Everyone was so friendly and the food served was very tasty.
I also enjoyed judging and helping to present the awards, as you can see below
Plus enjoyed the music and taking part in the raffle
All in all, I enjoyed spending time with the caring community of Harrow, everyone there has the focus on creating a caring community and I look forward to collaborating with the community in future.
Welcome back to another of my carer blogs during Carers Week 2024. Lots of carer engagement and awareness events are still taking place as we are midway through Carers Week.
As a Cygnet Carers network ambassador, I was proud to be invited to present on my thoughts for Carers Week and the focus as to why families, friends and carers are important to Cygnet. The event was the “National Carers, Families and Friends Network Event”. This event took place over at Cygnet Churchill on Thursday 13th June 2024.
As I entered the premises the Cygnet staff were friendly and welcoming, I felt relaxed but excited at the same time. Looking at the event agenda, we had some excellent speakers for attendees both professional and families and carers.
David Willmott who is cygnet’s Director of Nursing opened the event. David spoke about Cygnet’s passion to engage with carers, but to get it right we need to consider families and carers as the experts.
With the ideas of cygnet’s Carer lead Laura Sheridan, Cygnet has made lots of progress, but there are still many things to develop.
David spoke how important it is to develop ideas with the audience and introduced who was going to speak.
Matthew McKenzie presents the importance of Carers Week
When David introuced my session to present to the audience, I spoke about the importance of Carers Week 2024. I have been a carer most of my life regarding my two brothers, but things became immensely difficult when my mother became diagnoised with schizophrenia. For many years I cared alone for 3 people and the impact it had on me was horrendous. I still suffer the scars of unpaid caring experience, but with the support of Carers UK and Carers Trust I feel I can cope.
My caring role led to carer activism, a powerful role that helps engage with whole communities and charity organisations. I spoke how busy I was doing Carers Week and even provided a poem or two which you can see below.
Also speaking at the event was Dr Neil Churchill who is NHS England’s Director of People and Communities. Due to the election Dr Neil could not say much, but did speak about his own carer experiences and the importance of the NHS. Dr Neil also mentioned what is currently available for carers under the NHS, but things could change.
Next up to speak was Nisha Cunnane who is Cygnet head of Pharmacy Services. Nisha spent 25 years working in Various phamacy settings, including hospitals and prisons. She is passionate about patient education and empowerment, this includes caregivers as she promotes they have a pivotal role in enhancing the overall well-being of the cared for.
Nisha spoke about Empowering Carers when guiding them through medication management. She spoke about what medication management actually means and their challenges to unpaid caers.
These challenges would be carers being overwhelmed with multiple medical factors and trying to avoid the risk to potential medication errors. Spotting side effects are also very important to caregivers of those with mental illness, but it also helps to tackle communication barriers with healthcare providers.
Nisha also spoke about medication adherence and top tips for carers and families. She answered questions about medication safety and medication side effects and she also pointed out the importance of collaboration and access to information.
We then had a carers story and her focus to engage with other carers. This was Veronica Kamerling and you might have remember her from the series of carer activist interviews I am currently running.
Veronica spoke passionately about caring for her two daughters who both have an eating disorder, verconica also spoke about caring for her brother who was diagnoised with schizophrenia. Due to her lived experience and carer activism, she runs her own organisation “Eating disorders & Carers”. She has been associted with Triangle of Care for many years as Cygnet strives to embed the Triangle of care in their hospitals.
Listening to Veronica drove home the memories and experience of my own caring situation. It reminded me why I try so hard to engage and involve unpaid carers in my network and also Cygnet carer’s network.
Other speakers were Julian De Takats who is a Parent and Carer. He is also a Cygnet Expert by Experience Carer Ambassador and helps provide carer awareness training at many of Cygnet hospital sites. Julian’s talk helped remind why it is so important to involve carers in shaing services.
We also had Juliana Onwumere from the Institute of Psychiatry, Psychology and Neuroscience speaking about their focus on families and carers, especially with the new online course for training carers about Caring for People with Psychosis and Schizophrenia
Unfortunately I could not stay for the full event as I was required as a judge for Harrow Carer’s Awards for 2024. Harrow carers ran their “Carers Family Fun Day” for Carers Week 2024. That is another blog for another day.
However for the National Carers, Families and Friends Network Conference, I felt Cygnet put a lot of work into presenting why they do an amazing amount of energy to set the standard of involving unpaid carers.
Welcome back to another update of carer engagement at Cygnet’s Carers, Families and Friends network event.
As one of the carer ambassadors for cygnet, I find these events an excellent way of engaging and networking with staff and carers whose loved ones use the services of Cygnet. There is always a great line up of speakers and I enjoy hearing questions and experiences of staff and carers.
We have done many carer network events so far and it was time to visit Cygnet Kewstoke based over at Weston-Super-Mare.
The journey was pleasant getting to the Premier Inn hotel where staff were friendly and the room was super relaxing were I felt prepared for the next day. Julian another carer ambassador along with myself went exploring the area for a while to see what the community is like.
Apart from the rain, I certainly enjoyed walking around to explore. It was not long until we headed back to the hotel to prepare for the big event tomorrow.
It was not long before we headed to Kewstoke which sits on a massive site. The area is far from the noise of city where you are surrounded by peace and nature. You can see how massive the site is by the picture I took from the car.
Once inside the hospital, we noticed the staff eagerly waiting to see how the event would progress. I was glad to see a good turnout including carers.
The event was opened by David Wilmott who is cygnet’s Director of Nursing. He has a passion to include families and carers as we heard from David why such events are so important. Cygnet was working hard on the triangle of care and want their hospitals and sites to make a difference for families and carers. Its about following the guidelines of the triangle of care and applying it to Cygnet services.
Next to speak was Laura Sheridan who is the group service improvement manager she has done amazing work bringing carer ambassadors together and she has an excellent focus on connecting to the community. Its not only about families and carers, its all about community in the end. We want better health and mental wellbeing for the community, but we have to listen and in order to listen we need to connect.
Laura spoke about more initiatives that Cygnet was working hard to archieve. We then heard from Josh who is the hospital manager for cygnet kewstoke.
As the first speaker I spoke about the importance of carer empowerment. Health services cannot always lay down rules and policies. Families and carers must be empowered to give views, ideas and opinions, but before that they must be empowered to do so. I have always thought the those who connect to others tend to cope better as carers. Carer empowerment is not an easy task, in fact carer networking is a lot easier to focus on, but if a carer chooses they can learn from each other, form groups and work along with health care services.
One form of carer empowerment is through creativity. I use poems to connect to carers and sometimes professionals. You dont have to read a whole book to understand the mental health carer’s experience. A good poem can lead to solidarity where there should be a common interest, a common experience and a a place where we belong and feel invited.
Speaking about my journey as carer ambassador I felt supported as staff and carer engaged and feedback to questions I raised at the event. I ended my talk with a poem aimed at carers, which is quite a dark be realistic poem on the need to care for someone with mental ill health. The poem is not meant to frighten carers, but does appeal to urgency regarding the task a carer will have to take up.
Still there is hope, that hope is down to how professionals engage with the carer. The hope is making sure the carer understands what services are provided, but also the carer needs to be empowered.
YOU BETTER LEARN
You better learn There is not much time You just don’t want to be left behind
You better learn Just do it fast Provide that care and better do it fast
You better learn When they fall sick The pain of failure will hit you like a brick
You better learn About the system It might not work, so develop all that wisdom
You better learn Just look around Prepare to complain and refuse to back down
You better learn Beware of the cost The person you care for life could be at loss
You better learn Just don’t sit there I am warning you and trying to be clear
You better learn Just learn from me Unpaid carers can so suffer easily
You better learn Take up the fight A little learning can help with foresight
You better learn Just better learn Just keeping on learning Learning and Learning
Dr Sharon Collins and Josh Jones presents
We then had a focus on Psychology and Occupational therapy. This was presented by Dr Sharon Collins who is Head of Psychology and also Josh Jones who is Head of Occupational therapy. Both presenters are regional leads.
The presentation outline was on what are these two fields and how can they assist the patient and family. Dr Sharon mentioned that psychologists are actively involved in studying and understanding mental processes, brain functions and behaviour. Psychology is not Psychiatry, which is a branch of medicine.
Dr Sharon spoke about the role psychologists play and what they offer which is listed below.
Aimed at Service users/patients Assessments Psychometrics Individual therapy Group Therapy
Aimed at Staff Reflective Practice Additional support Supervision
Dr Sharon also spoke about the types of therapies
CBT – Cognitive behaviour therapy DBT – dialectical behavioural therapy EMDR – Eye movement desensitisation and reprocessing Psychodynamic CFT – Compassion focussed therapy MBT – Mentalisation based therapy BFT – behavioural family therapy
There was lots for families and carers to learn about the mental health profession. We then had a talk from Josh Jones on occupational therapy. Josh explained and example of Occupational therapy in that it is not just about doing things, it is enabling the person to be themselves and find meanding and purpose in life.
We were presented with the toolkits of Occupational therapy on individual therapy techniques
Lesley Mellor the next carer amabassador presented
There are four carer ambassadors at Cygnet who are all very talented with their lived experience backgrounds. Lesley Mellor was next to present on her journey as a carer. Lesley is the founder and chair of the Dorset Parent Council. This is a charity aimed at parent carers of young people with special educational needs.
Lesley understand a common experience of carers, this is down to trying to understanding about the conditions of their loved ones. She understands carers can feel isolated with the cared for’s condition. With Carers Week 2024 fast approaching Lesley will be launching the Cygnet Carers Peer group and Cygnet staff carer network. We then had more updates from Laura on cygnet services for carers.
We then had a lunch break and a chance to network with carers and cygnet staff before we heard from Kate Mercer who provides advocacy for carers at cygnet. Kate Mercer ran an interactive discussion session on the importance of human rights and why it is so important to offer carers the choice of advocacy
The last to present was the third Cygnet carer amabassador Julian Dr Takats. Julian spoke about the importance of the carer network, his journey as a carer and an explanation of what Carer Ambassadors do in their role.
All in all I enjoyed being part of the event. I will never forget how I felt welcomed by the staff at Cygnet, there is much work to do and even more to understand. We need ideas, views and opinions from families and carers whose loved ones use Cygnet services. I want carers to feel empowered and more.
It is mental health awareness week 2024. The theme for this year is “Movement: moving for our mental health.”.
The charity Mental Health Foundation has been running Mental Health Awareness Week for 20 years and it continues to grow stronger in raising awareness.
Please watch my video on the importance of Mental Health Awareness week.
To help promote and celebrate mental health awareness week 2024
1. Sign-up for an active challenge event! 2. Wear a green ribbon to show everyone that you care about mental health. 3. Learn about mental health by attend events online or locally.
Mental Health is every ones business and we must recognise and support our own mental wellbeing
Welcome to an update of the Cygnet Annual Nursing Conference and awards ceremony that took place over at the National Conference Centre.
Just to let you know the perspective of the Nursing conference is from a carer’s perspective. I will not always repeat what took place, but might review its importance or my understanding of the event.
The Cygnet Nursing Conference took place on the 9th of May 2024 from 10:00 am till 4:30 pm, so the event was packed with updates, keynote speakers, Breakout Sessions and Awards along with certificate graduations.
You can also watch the video promotion of the event below.
I would just like to mention that in my carer engagement role, I have never been to a nursing conference before, so I was not sure what to expect. I was worried a lot of things would go over my head or there would be too much Jargon. This is important if involved patient and carers from expert by experience are attending professional events.
The evening before carer ambassadors and expert by experience were treated to a lovely meal at the Premier Inn hotel over in Birmingham.
I had not seen a few Cygnet carer ambassadors for a while, so it was great to connect and hear updates. With support from Cygnet Carer lead Laura Sheridan I was made to feel welcome. In fact we all were welcomed by David Wilmott who is Cygnet’s Director of Nursing. David has a strong nursing background and has a focus and passion for making nursing a special career for Cygnet staff.
I have to admit I did not pay too much attention to the Conference agenda beforehand, but to my surprise, it turned out some of the Keynote speakers were at premier inn meal. I had a chat with Stephen Jones who is the Head of nursing practice for mental health at the Royal College of Nursing. Did you know I am involved in a few RCN projects?
I also had a chat to Jane Murkin who is the Deputy Director of Safety and Improvement at NHS England.
It was great to see two professionals passionate about the nursing profession and I was interested to hear what they were going to say.
On the day of the conference the weather was pleasant and so was the atmosphere of the conference. Everyone was friendly and welcoming as they looked forward to the agenda. It was not long before we had welcome and introductions from David Wilmott who thanked those in attendance and mentioned how important it is to congratulate each other. David mentioned that it takes a lot to not only help others who are vulnerable, but also to help each other and ourselves.
We then had a welcome from Dr Tony Romero who is the CEO of Cygnet. Tony showed his support for those in attendance as he prepared staff for a special day.
Next to present from a video message was Prof Deborah Sturdy who is the Chief Nurse for Adult Social care at the Department of Health and Social Care. She also thanked those in attendance, but made note that we must join networks with people and their communities.
Stephen Jones presents
It was not long before we had our first Keynote speaker. This was Stephen Jones who I met the day before and had an interesting discussion about carer involvement.
Stephen spoke about Psychosocial Interventions in Mental Health Nursing. Interventions along with coproduction and codesign are the things I am involved in at the RCN. Stephen spoke about these very things and how these programmes are developed at the Royal College of Nursing.
Stephen spoke about those who promote these programmes at the RCN and the work they do.
He also mentioned why Mental Health Nursing is so important regarding psychosocial interventions. Stephen stressed that Psychosocial interventions are not a replacement for structured psychological therapy, medication or other evidence-based treatments, but work with and inform these treatments to provide a conprehensive approach to mental health care.
Stephen made his presentation easy to understand as he broke down the roles of mental health nursing. Stephen also spoke about the The Nursing and Midwifery Council, which is the regulator for nursing and midwifery professions in the UK. The NMC maintains a register of all nurses, midwives and specialist community public health nurses and nursing associates eligible to practise within the UK.
Jane Murkin NHS – Keynote Speaker
We then heard from Jane Murkin who is the deputy director of Safety and Improvement in Nursing at NHS England
Jane spoke about her reflection on nursing and delivering the best outcomes for people. She also promoted that we should consider our roles and responsibility when it comes to improving services. Jane touched on some of NHS England’s improvement approach and impact. Plus she finished up by providing an overview of the national strategic nursing priorities.
It was refreshing to hear Jane mention the importance of families, carers and patients being involved to help change systems of service delivery.
Rebecca Burgess-Dawson Presents
The third keynote speaker was Rebecca who is the National clinical lead at South West Yorkshire Parnership NHS Foundation trust.
Her presentatation was a passionate talk about mental health nursing and its overview. She challenged the audience to think closely on what mental health nursing is percived to be and why she feels cygnet has carefully thought about its identity and service when it comes to mental health nursing.
We then had a coffee break with a chance to network which then led onto how Quality Improvement helped services at one of Cygnet sites. This was presented by Rosie Hodgson-Whittle who is the Interim Hospital Manager at Cygnet Appletree.
Rosie talked about the implementation of the 7Cs Tool which aid and improve services regarding patient observations, collaboration and identifying not only the problems, but also the solutions.
Cygnet Nursing strategy
It was then back to David Wilmott who introduced Laura Sheridan and Raf Hamza on the co-production of Cygnets Nursing strategy. We heard from Raf Hamza on why lived experience should be included in developments on such strategies.
Next was more networking and lunch, where I took the time to speak to some staff and catch up with keynote speakers. I glanced through the Cygnet annual nursing conference booklet and felt the design, feel and presentation was inviting. It was easy to understand and had a professional feel to it.
Ellie Gordon presents
After lunch we heard from more keynote speakers. The first being Ellie Gordon who is the Senior Nurse for Learning disability at NHS England. Ellie talked about the importance of education and the inclusion of Nursing Associates.
Oxleas presents on Embedding Relational Security – See Think Act.
I have close links with Oxleas due to my carer forums and groups. So it was a delight to see Oxleas support the Cygnet Nursing Conference.
We got to hear from Naidoo Armoordon who is the Head of Nursing at Oxleas.
Naidoo was joined by Emma Hopkins who is the practice development nurse in the Accute & Crisis Directorate. Oxleas wanted to Showcase the transformative power of ( See Think Act ) relational secutiy knowledge and how this can be applied through a trauma informed lens.
This would be done through strong leadership within the acute inpatient setting and help enchance staff and patient well-being with a culture of excellence at Oxleas Wards.
Naidoo spoke about why such tools are needed especially when nurses face difficult challenges on the wards. As you can see from the chart below.
Emma provided a case study of a patient and how those tools produce better outcomes.
Nursing in the United states
This section was presentated by Karen Johnson who is the Chief Clinical Officer and Senior Vice Presendent in Behavioural Health at UHS. Karen was joined by Valerie Devereaux who is the Vice President of Nursing and Behavioural Health at UHS.
Cygnet is a subsidiary of Universal Health Services, which is based in the states. UHS owns and operates 400 facilities across 39 US states including Washington D.C, Puerto Rico and of course the UK. These sites include
Acute Care Hospitals Ambulatory Surgery Centers Behavioral Health Facilities Freestanding Emergency Departments
Karen spoke about the state of US health care, which included the length of stay within inpatient facilities and residential facilities. She focused on the importance of the US 2024 National Suicide Strategy and the focus on
Community-Based Suicide Prevention Treatment and Crisis Services Surveilance, Quality Improvement and Research Health Equity in Suicide Prevention
It was interesting to hear what the Nursing Trends and challenges are in the US as there seems to be similar challenges over in the states as well as in the UK.
Breakout sessions
Next we had a choice of 4 Breakout sessions where I attened 2 of those sessions
Caring for a person with Diabetes Intervention and escalation of an unwell person Role of engagement when performing observations Support and engagement in social care
I was interested in the session regarding diabetes, since my mother suffered greatly with the illness.
I remember the difficult challanges of trying to care not only for her mental health, but how her physical health was in a serious situation.
Cygnet Nursing awards
This section of the conference was one of the events I was looking forward to. I wanted to see what the nursing staff were celebrated for and how they were celebrated. You get to hear the works Cygnet Nursing staff carry out during such awards.
I was not disappointed as I watched David present awards. I heard how Julie won her award for the work she does with carers at the Cygnet Hexham site
I also observed not only the nursing awards. but also graduation certificates which was presented by Mandy ianchard who is Cygnet’s Head of Learning & Development.
Overall I enjoyed the day and felt I was not only watching the conference, but was also a part of it.
Welcome to another update of the series of exciting Carer network events from Cygnet. Cygnet healthcare are a private provide of mental health services. I am one of the carer network ambassadors for cygnet where I engage, network and involve those whose loved ones use the services of cygnet.
This time I was over at Cygnet Colchester to help promote Cygnets focus for unpaid carers.
This Carers network event took place on the 26th of April 2024. The carers event had a great line up of speakers and presenters who wanted to educate and raise carer awareness with those who attended. We had a number of carers and professionals who attended and engaged with the presentations.
You can also watch a video promotion of the event off my YouTube channel
As usual I was interested in the hospital layout on what was on offer for carers and noticed the carers board. It is so important hospitals have a board display for carers and also a board of staff contacts. This is so carers know what is on offer.
We were greated by carers lead Paul Metcalfe. Paul who told us about the work he does to support carers. He also mentioned how it is his responsibility that staff at the site are carer aware. Paul was excited that the carer event will promote for carer awareness to the Cygnet staff on site.
It was not long before the event started, which is where David Wilmott who is Cygnet’s Director of Nursing opened the event. David presented how carers are so important to Cygnet and that Cygnet strives to do their best to make sure carers are aware of the support on offer. David requested that carers do feedback on what is useful. Cygnet does not want to second guess what carers want, even if carers complain then any information is good feedback.
Laura Sheredan who leads on Carers for Cygnet also updated what is on offer for carers. These include online feedback sessions, carers passport, carer packs and so much more. Laura did not want to spoil what else is available for carers as some updates would be presented throughout the day.
After a quick update from Laura and David, I helped open the event and presented my philosophy on why carer networking is so important. I left the Carers right section for the other Cygnet Care Ambassador Julian De Takats who was due to present later on at the event.
As someone who seeks a connection with carers, I know how difficult it is to be isolated, undervalued and lost in the system. Carers actually learn from each other, but they need the platform, confidence and voice to network. It takes time to do all of this, I should know since I have been promoting carer empowerment for many years.
I spoke about why I promote carer awareness and how I do this via my poetry books, online media, carer groups and even on national TV. Carers need to connect and learn from each other so they can avoid isolation. There are many carers around the country all wondering what it is like to be counted at a carers event. Cygnet does a lot of carer event hosting, so I will be looking forward to meeting more carers and how professionals present what is on offer for carers.
I also spoke about the importance of carer activism. It is not enough to provide a carers assessment, support group and a cup of tea. Carers should be counted and be given the confidence to lead. Far too often carers are told what is or what is not available for them. If you have lived experience then it is still experience that can other can learn from. I was delighted to see carers at the event who ran their own carers group and sought to engage with providers and services. I do understand being a carer activist is not everyones cup of tea, but because there are very few activists there is lots of potential if more carers want to be heard.
One last note on carer activism, it does not mean being an angry carer and looking for the nearest shopping window to smash, it is a way of direct engagement. Known who is responsible and running a campaign that never tires. Carers UK and Carers trust have many events that promotes activism, especially carers rights day. Make sure to become a member at those charities and get involved.
Next to speak at the Colchester carers event was Jasmine Damant. It is so important that there is an opportunity to learn more about the roles that support patients and their families. Jasmine spoke about the importance of Occupational therapy. The presentation was educational and interactive as the audience were encouraged to respond to questions and give their views.
Taken from the Royal College of Occupational therapy.
“Occupational therapists see beyond diagnoses and limitations to hopes and aspirations. They look at relationships between the activities you do every day – your occupations – alongside the challenges you face and your environment.”
Jasmine easily broke down the tasks of what Occupational therapists do and how their work can benefit not only the patient but also the carer.
Continuing the focus on learning about health professional roles we had Dr Rajesh Rama Lyer present. Dr Rajesh is the medical director for cygnet Colchester. He spoke about how medicine is important and why it is used.
Dr Rajest stressed there are always ways to include the families and carers in decisions even if there were challenges.
We then had another quick update from Laura who spoke about what was on offer for carers including being part of the cygnet carers network.
After a quick Lunch and more networking. I spoke to some carers about how they found the event so far. I also heard from their own stories of caring and why they decided to provide care. Each story I learnt so much from their lived experiences.
As mentioned earlier on in my blog. I touched on Carers rights day. It is so important that carers know about their carers rights. So we were very fortunate to hear about Carer advocacy and carer rights from Jane Perks. Jane is one of the team providing carer advocacy for Cygnet.
Jane from Black Belt Advocacy spoke about how advocacy can help carers navigate the complex maze of mental health services, especially if their are challenges that carers need help deciding what to do. If options are not presented to carers then there is a risk of people being neglected and this in turn affect the quality of services.
It would be unrealistic to say that only adults provide mental health care, when many children or young adults are also doing this role. We were foruntate to have Andy McGowan who is Policy and Practice Manager at Carers Trust present about young carers.
Again Andy’s presentation was interactive where the audience was asked a few questions about young carers and the roles they play. It was sad to hear that many young carers do not know about their role as a carer and this leads to them not understanding their carers rights. Young carers are also prone to missing out on their futures due to lack of support in education. Young carers can also miss out on social activities and sacrificing so much that their own mental and physical wellbeing are at risk.
This is one of the reasons why Cygnet are signing up to the Young Carers Covenant. The Young Carers Covenant is a UK-wide commitment to young carers and young adult carers. It sets out ten key outcomes that young carers from across the UK have said are key to improving their lives.
Below is are the ten outcomes Cygnet will seek to improve when encountering young carers.
Are identified at the earliest opportunity
Are able to thrive in education
Can access and succeedin employment/training opportunities
Have time for themselves
Are safe and secure
Can access support for themselves and their family
Feel they have choices in their lives
Have good physical and mental health
Can access and benefit from the rights they have
Live free from poverty
Last but not least was carer Julian de Takat who spoke about why he had became a Carers Ambassador for cygnet. Julian admitted how he used to be an angry carer, but chose to channel his energies to reaching out to others. It was both a credit to Laura supporting Julian in the role and Julian promoting that carers should try to work with health professionals.
Julian promoted what carer ambassadors have done for cygnet and what is on offer for carers whose loved ones are using those services. There are many more things on offer for carers and more exciting events to come. I would like to say thanks to Cygnet Colchester for being so welcoming and hosting such an excellent carers event
Welcome to another blog post from carer activist Matthew McKenzie. Did you know I am a stakeholder member of NHS England’s “Cancer Improvement Collaborative (CiC)” cohort 5? We had our Cancer Experience of Care Improvement Collaborative event, which was held over at Coin Street Neighbourhood Centre on the 5th of March.
The event was to recognise the work carried out by participants who were part of the cohort, these being the Cancer Alliances in England.
CiC Cohort 5 focus is on improving experience of cancer care for patients with a pre-existing condition (mental health, learning disability, autism and dementia) and their families and unpaid carers.
As a carer of lived experience, I was included in welcoming attendees and helping to promote the event. The recognition event was well attended and facilities were excellent. To start off with the event, we had a welcome Carl Shaw (Learning Disability & Autism Adviser NHS England) and Anna Rarity (Cancer Experience of Care Programme Manager of the National Cancer Programme) gave an Introduction to the Cancer Improvement Collaborative, which was easy to follow.
We were provided with a welcome pack which included the agenda for the day, which also included the commonly used Acronyms of the cancer programme.
We then had an introduction of the National Cancer Programme from Jodie Moffat who is the Deputy Director, Policy and Strategy of the NHS Cancer Programme.
Throughout the day there were several Project team presentations from the following
South East London Cancer Alliance East Midlands Cancer Alliance Humber & North Yorkshire Cancer Alliance March Primary Care Network Birmingham & Solihull ICB Blackpool Teaching hospitals North East & North Cumbria Bristol, North Somerset & South Gloucestershire ICB Coventry & Warwickshire
Highlights of the event was watching the carer story to show NHS England’s commitment to carers. Since I focus on unpaid carers, it was good to hear the impact of caring and how the carer managed their role as a cancer caregiver.
Another highlight was on recognising the archievements of Claire Marshall (Experience of Care Lead, Experience & Partnerships Team, People & Communities at NHS England) as she is moving on to another role.
I noticed some of the presentations allowed those with a learning disability or mental health to co-present and be part of the recognition. As the focus should allow those who use the services to co-produce and co-present the successes.
There was also a chance to network with others at the event during Lunch. I noticed some attendees were given different coloured badges to show if they were ok to chat or socialise. We cannot assume everyone is in the best mood to talk as they could be going through painful and stigmatising experiences.
The lunch provided was very good, which included vegan food. I also caught up with a few attendees and representatives from cancer alliances.
There was also a special presentation from the Quality Improvement Team from Great Ormond Street Hospital – Caitlin McGovern and Nuwanthi Yapa Mahathanthila. They presented on how Quality improvement proceeded at the hospital
The last update was from Dr Neil Churchill OBE who is the director for people and communities at NHS England. Neil spoke about the importance of the Cancer Improvement programme, raising awareness and including people’s experiences.
All in all, I found the CiC Recognition event an important way to update those involved in cancer improvement. It is important we include those who go though lived experience of cancer, but especially include those who take that extra step to use their experience to improve cancer care. That being both patient and those providing care.
I would also like to say “Well done” to Marsh Primary Care Network – Kent and Medway on winning the Great Idea Award for their project “Improving Cancer Awareness for Care Home Staff”
A Caring Mind 