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Joint Southwark & Lambeth MH Carers forum March 2021

Welcome to the March 2021 update of the joint Southwark & Lambeth Mental Health carers forum. I know its a mouthfull of a title, but just consider its an open forum for those who care for someone suffering mental distress.

For the month of March, the guest invites were the following.

  • Jessica powell – Researcher from Imperial College London
  • Ros cumberbatch – South London & Maudsley NHS trust carer lead for Southwark
  • Annette Davis – Carer peer, activist and BAME carer support.
  • Claire Parry – Psychotherapist leading on trust psycho therapy
  • Debika – SLaM Assistant Psychologist for Family and Carers Support in Southwark

PRESENTATION FROM JESSICA POWELL

Jessica is currently carrying out a research project for her master’s at Imperial College London. The research she is doing aims to understand interactions between informal caregivers and their care receivers who are elderly. So an informal caregiver is someone who isn’t officially employed for their services that could be a family member, a friend. Jessica is currently looking at carers from 65 years and up, by having an understanding of these interactions with who they are looking after. The project aims is to understand and better implement features within digital systems that are currently being created for Geriatric Care roles. This being monitoring devices, health devices, etc.

So at this stage of her project, She is at the recruiting stage for the study, to understand interactions between the care receiver and the caregiver. Jessica is eagerly looking for participants who would be able to help her conduct a remote observation study or an interview. Within homes, She of course wouldn’t be visiting their homes personally. At this stage, she was there to see if there’s any issues in the forum that would be up to be involved or if there were any contacts or people she could be put in contact with, to participate in this study with her.

QUESTIONS FROM MEMBERS

I asked if the study was restricted to Tower Hamelets and has she had many participants so far?

Jessica responded that reaching out has been very difficult at the moment because of the pandemic, She has had a couple, but unfortunately, one of the participants passed away. And the second one wasn’t comfortable with the study. So she feels she has exhausted quite a few of her methods for recruiting people, which is why she is here today.

Members were interested in what care giver tasks Jessica was reffering to.

Jessica replied it was down to everyday tasks, e.g. administering medication, helping the care receiver to move around the home. So that could be from the bed to the wheelchair from that bed out of that bed and into a chair upstairs. It all could be defined in the study via a conversation.

Ros cumberbatch presents updates for MH Carers in Southwark

Ros explained she was the clinical service leads in SLaM in Southwark. She works with most staff in the recovery teams. She is also the carers lead for service as well. Ros was her to give us some updates and go through a few things aimed at carers. The first thing is she just wanted to mention that the SLaM Family and Carers Strategy is now in place. Ros was not sure if everyone would have seen that, but it has been agreed by the SLaM board and hopefully it will be circulated.

What services has been asked is for each borough (Lewisham, Lambeth, Croydon and Southwark) to localize the trust carer’s strategy and put things in place as a way of making sure that all teams are aware of the expectations. We need to work according to the carer strategy. Its based around the key thing about making sure that teams identify who carer is or was and making sure that engagement happens.

The aim is with SLaM’s carers strategy it will strengthen supporting carers along with the needs that carers require. Of course things SLaM cannot provide then carers will be signposted to relevant support and services. Ros pointed out that we need to make sure that teams are aware of various resources and in terms of staff we need to make sure that they’re trained, that they feel confident to work with carers, as well around different issues. Ros mentioned an ongoing issue which staff have often struggled with is around confidentiality.

Ros pointed out that it’s making sure that we those kind of discussions with staff, so they feel competent, in terms of when they have to work with unpaid carers. One of the ways that SLaM staff help to fulfill the things in the carers strategy is by having “Staff carer champions”, so these are staff members, who can be on an inpatient Ward or in a community team. They take on an additional role in terms of supporting and communicating and engaging with carers. However it’s not their sole responsibility, but they take the lead on carer engagement in terms of working with the team, to make sure that the teams are up to date with any needs around carers and making sure that team members are identifying carers and supporting them.

Ros also mentioned SLaM’s carer engagement and support plan, since it also strengthens support that carers have in conjunction with the Care Act 2014, so carer identification is not left the the Local authority alone.

Annette Davis presents on carer initiatives.

Annette wanted to give everybody a little bit of information about herself and how she engages with mental health services. She feels as a carer it is important to try and give something back. I think it’s really important that in her ‘cared for’s journey and her own journey that she has become more involved in a number of carer groups and that she feels that it’s been so beneficial to be involved in quite of these carer few groups. Annette co-facilities one of the carer groups with SLaM’s inpatient carer lead.

Annette continued to mention that if you have a loved one that’s on an inpatient Ward, as a carer, you’d would be welcome to come and attend the carer peer support she co-facilitates. It is a very confidential space where carers get to kind of unload and express how they’re feeling and how they’re managing with their loved ones being in hospital. The numbers of carers attending are constantly increasing, which is really exciting and it is also an opportunity for us to also learn new skills and learn the role of a carer which is forever changing.

Annette is also involved with the SLaM “step team” which is a Southwark team on Early invention where they identify and also help support carers, because she feels since she has been through that journey there is so much to share. Annette is aware many carers are in desperate situations, but as carers we should not have to cope in isolation.

Claire Parry – Psychotherapist presents on new psychotherapy projects

Claire felt that it was amazing how carers networked and formed groups together and felt that’s what it should be as it’s real inspiration to other carers looking for empowerment and a special connection. Claire was thinking that other london boroughs could learn from the model of what we are doing and how we doing it.

Clarire was going to tell the carers forum a little bit about what her role currently is, and the new role that she is going to be sort of stepping into, She has worked in mental health for probably about 27 years, and I started off her career as an Occupational Therapist. So it’s really nice to see Ross because actually, Claire has worked with Ross several years ago, where during that time, she worked in inpatient services and Community Services, Claire has also worked in addiction services. Plus she worked in a family intervention service which was also a great service as well as working in therapy services.

Claire found it really hard to focus on a kind of individual model and she was thinking, it just doesn’t make sense to her that we don’t understand people in their relationships, in their communities, in their contexts. So it really didn’t make sense to her that over the years, we have had only little bits of individual models, and that we haven’t really thought about how do we include individuals, communities, networks, families, in a much more inclusive co-produced way. So she kind of retrained as a family therapist, but that it’s still means that its not open to everyone.

Alongside her clinical work, she has just taken on a new post from somebody called Isabel Ekdawi who was a kind of a trust advisor around family therapy and family inclusive practice. So she is going to be stepping into that post in June, but she knows from Isabel worked very hard to think about how the trust can embed family inclusiveness into the NHS trust culture. This is so families are seen as a resource and that families are part of the dialogue, especially at times of change, so maybe at transitions into services. Claire mentioned how Isabel was very passionate about the this kind of model, and so she herself has become passionate through how we in a really meaningful way start to kind of embed more of a family inclusive practice at the NHS Trust.

Claire felt that sometimes it’s about dialogue and trying things out. She wanted to have a little bit of a focus group with everyone at this joint Southwark & Lambeth forum to hear people’s experiences and stories and think about where are the points of transition that are really difficult? And what, from a kind of psychotherapy perspective, can we think about doing a little bit differently? And what what are the things that might make a difference? She is also excited about the triangle of care, because she thinks the triangle of care is really setting a framework to think about how do we work in collaboration. On the back of the triangle of care, there’s some fantastic work that other trusts have done, e.g. an NHS trust in Somerset was given as an example.

Joint Southwark & Lambeth MH Carers forum February 2021

Welcome to february’s Southwark & Lambeth MH carers forum update. This forum is aimed at those who care for someone with a mental illness. The forum gives families and carers a chance to understand the complexities of mental health and social care services.

For February, we had the following speakers who were kind enough to have a chance and engage with carers, even if it ended up as a friendly debate. Although the forum represents Lambeth & Southwark carers, membership is open to many carers outside those boroughs, because I feel carers should network, connect and learn from each other.

The following speakers for February were.

  • Lee Roach who is the SLaM’s Occupational Therapist and carer lead for Lambeth inpatient wards
  • Rebecca Martland who is a PhD Researcher and Physio engaging with carers on the High intensity treatment exercise
  • Sam McGavin & Sophia Stevens from Southwark Council developing Southwark’s carers partnership
  • Annette Davies who is a carer working towards developing stronger networks to carers including a BAME carer group.
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Joint Southwark & Lambeth MH Carers forum August 2020

Welcome to the august update of the Joint Lambeth & Southwark MH carers forum. This forum is run online due to covid-19 restrictions. The forum is aimed at those who are caring for someone with a mental illness. It is important carers understand what the mental health, health and local authority services has set aside for them and their loved ones.

For the month of August we were delighted to have John Lavelle the service director for Lambeth mental health services. We were also joined by Lee Roach who is the Head Occupational Therapist for Lambeth. In attendance were the carer members from both Southwark & Lambeth, Healthwatch Southwark and the chair of trustee’s from Southwark Carers.

The maim talking point for the August meeting was the Lambeth Hospital consultation. John spoke about how they want to improve the quality of the inpatient wards so that they can meet the most basic needs of the clients/patients. John stated that SLaM are committed to supporting people who are in distress because of their mental illness, they have an opportunity to build a new purpose, new mental health unit and SLaM are planning around how can they can make the service sustainable essentially for the future. I could certainly say most if not all members agreed with what John said.

It is well known that there has been number of periods of consultation for 12 weeks between March and May 2020. In the presentation to the forum from John, there were 2 options. Option 1 being that nothing is done about the state of Lambeth hospital or Option 2 where SLaM looks to relocate 4 acute wards and the Psychiatric Intensive Care Unit (PICU) to a new purpose-built facility on the Maudsley site, Denmark Hill.

There was another option to develop a new facility on the existing Lambeth Hospital site, but it failed to meet 2 key affordability tests.

These were that the option required additional capital of between £30 million and £35 million due to additonal infrastructure and loss of capital receipts, coupled with a need to decant at least one ward to the Bethlem and another to the Maudsley, causing significan disruption.

So eventually planning permission was granted in January 2020 by Southwark Council to replace the existing vacant Douglas Bennett House facility on the Maudsley Hospital site. It was also mentioned in John’s presentation that Service Users, Clinicians and Carers from a number of boroughs attended workshops to help shape the design so that a service user voice was present from the beginning of the design process.

The facility includes 72 acute beds for Lambeth patients across four 18 bedded wards. The wards will be single gender, compliant with modern standards and ventilated with direct unsupervised access to outside space. The facility will also include a Psychiatric intensive care unit and a rehabilitation ward designed to support the needs of these services.

Lastly two national specialist wards, neuropsychiatry and eating disorders will be transferred from the Bethlem Royal Hospital.

The carer forum were then showed their first visual of what one of the rooms would look like.

John Lavelle mentioned the mock ups are designed to give a with an idea what we think the rooms would look like. It is based on the drawings of that the architects came up with so the forum saw then would be things like flooring, textures and colors and even then those things might change.

John showed us what the dining space consisted of. He explained in the dining space there are two gentlemen sitting through the window and to the left is that kind of living space as you will see in the top left hand corner, one of our wards, current dining room on the London hospital site.

The carers forum were shown some figures in where

  • There were 235 responses regarding the consultation
  • 48 people participated in focus groups and public event
  • 148 responses in the online survey
  • 24 people then also commented on facebook
  • 171,189 were reached through the facebook adverts
  • 12 email responses regarding the consultation

One thing noted was even though SLaM had the intention to have some face to face meetings, they ended up having to move everything to virtual because of the COVID-19 issues. There also was a focus on making sure new services would target hard to reach communities especially those from BAME background who often would feel they were being let down or having to miss out on services.

Of the response to the proposals with about 84 % of responses were being being in favor of the change. Plus of that 64% were positive in the move of the wards to Maudsley.

SLam also did a specific work with a black male group around the consultation, and I found that there needs to be some further work to do around culturally appropriate inpatient clinical offer.

A good example was that one member of that particular group mentioned that the ward looks great, but actually, it’s what happens within that Ward is most important. So John mentioned in regards to BAME communities that maybe we arent getting it right for the moment. There is still a lot of work to do.

There will be a piece of work that is going to start in September, which is going to be supported by black thrive, which then will have SLaM think about what their offer is to black men as an example, when they are using patient services. This is work in progress, but SLaM are committed to that as part of the feedback from the consultation process.

John mentioned that they will be analyzing that the data that they got back done by the trust or by the CCG. And it’s just a bit of worth reminder that the consultation was actually a CCG consultation, because they are the people that ask slam on their behalf to provide the services to Lambeth. So the CCG led on the consultation and now SLaM’s healthcare consulting team is going to do the consultation and they have produced a report on the Lambeth’s Together website.

At the end of the presentation I stated it was an excellent presentation and it always helps when you’re describing something that seems really complex. This is one of the reasons for this forum is to get carers in the community and those who’s going to be affected by those changes to get at least an idea and get a chance to ask queries or comments or even compliments if you think this is something that’s really needed

Questions from the forum members

First to ask queries where representatives from Healthwatch Southwark.

Healthwatch felt it was really interesting to see and wondered if SLaM had like a Lamberth versus Southwark resident breakdown, because they were a bit concerned that maybe less people from Southwark had been heard from because the presentation was kind of titled as like improving services for Lambeth.

Another interesting query was on how wide the consultation going to be? as in numbers wide. A carer queried on is it just the local community because the impression they got from the report is its the local community. Plus it’s a Lambeth hospital and it should go to the whole Lambeth and and what does it now offer to the whole of Lambeth rather than the local area. The carer felt that it seems to present sort of housing project and, and and who’s going to administer that, for instance, who’s going to have The freehold at that particular site?

One other carer stated they came across the survey document in May, but they wasn’t aware then that the there was no provision being made for the Leo Ward and the early onset for psychosis Ward that is currently at Lambeth hospital. They felt according to the one of the therapists from the Leo community mental health team, which has been caring for the person they are looking after. That ward was the only early onset ward in the whole of the country.

The carer felt the ward was fit for purpose when their ‘loved one’ was there and the ward had an en suite bathroom. It was basic, but it was fine. It had an outside exercise area, and it was all on ground level. There was a separate male and female words with communal are. There were separate rooms for visitors to explore and visitors to meet a family members the carer felt that her ‘cared for’ had a good experience in that ward.

We also had another carer talk about their daughters experiences in those wards. The carers daugher did not go into Leo Ward and still the Carer did agree with what was said Leo was a good word. As the carer felt it gave both communal areas and it gave privacy for people as well and they had access to outside to meet each other in for games. The carer concluded that access to outside is important, and they don’t think that can be really possible in the tower block. On the other hand the carer agreed that the other wards are not fit for purpose at all. They’re dreadful!!

I mentioned it was good to hear that there is a push towards engaging the black community, particularly in the sense that certain things are just not quite getting there. I asked John that although he mentioned Black Thrive, I have noticed they are quite active in Lambeth. I continued to state that I’m not sure who’s the lead or use the contact for black thrive in Southwark, so I wondered who is contact overall regarding consultation under black thrive, be good to get their perspective in this forum.

Some contacts were mentioned, but also there might be at some point an opportunity for somebody to come and talk to us about the race equality framework standards that piece of work which essentially, is about assessing SLaM against some standards that have been set nationally.

Southwark Healthwatch mentioned in response to another carer’s concern about a blog they did. They had a previous presentation about the kind of safety of the ward and the architecture where someone asked a question, kind of related to what the carer was concerned about, which is shown below.

https://www.healthwatchsouthwark.org/blog/2020-04-30/whats-happening-lambeth-hospital-blog-southwark-mental-health-carers-forum

Conclusion

John finished up saying that they do have a communications and engagement group that was originally set up to think about the consultation processes and what material they might want to use and who they needs to engage with as part of the consultation processes.

SLaM are moving on the journey of the new build and providing samples and giving sign off really soon. So they will continue to think about how they can keep engaging with our communities in understanding what’s happening with the new build and what they are doing around whether it’s working with black men or whatever the different possibilities. SLam are going to keep engagement for the next few years.

Lambeth Lead for Occupational therapy presents

Lee Roach has been busy and presented a set of initatives regarding carers. Lee admitted that they have a particular challenge in the patient information system. Especially on recording information about carers.

So what they have decided to do in Lambeth is focus one week initially on carers as a is focused week. Lamberth are undertaking a number of different events during that week.

Lee thanked one of the carer members who’s agreed to come and talk to a couple of teams about her experiences as a carer.

When Lee was thinking about what what to do for those carer events, he really felt personally that the biggest impact on himself as a clinician is hearing the kind of narratives of people that his worked with and that usually has the biggest impact in terms of people reflecting on what they’re doing and so changing their practice. So in terms of hearing the experience of a carer, Lee think that’s quite an effective way of actually impacting change.

What Lee want to see as a result of the week’s events is a greater awareness of the resources that are available to carers that staff can refer people onto. Lee also wants to run a greater awareness of some of the resources that our staff can show carers on the wards. There also has been sign off of that they want more carers involved in the involvement register.

Breakdown of events

Lee spoke about the plan of the carer focused events. Where a carer agreed to talk to the to one of their teams on Monday so that’s the low intensity treatment team about her experience.

They are currently working across two sites. While they are working across a number of sites the majority the mental health teams are working on two sites. There will be another carer who will be talking to the team there about her experience on Tuesday afternoon.

The inpatient Lamberth inpatient care his group will meet virtually that started two weeks ago. Where they had 12 people attend that group. One of one of whom was was attending from another country. On Wednesday afternoon Lee is hosting a roundtable talk with possible Lambeth CCG, carers and Lambeth healthwatch. Then on thursday is the Leo ward community carers group. Then on Friday they are launching the ward lockers project from one of the involved carers who has been active inputting ideas.

This concludes the update for the August Joint Southwark & Lambeth MH carers forum. The September forum will have Kings College hospital feeding back updates on their Mental Health strategy.

Joint Southwark & Lambeth MH Carers forum June 2020

Maudsley_Hospital_Main_BuildingWelcome to the month of June joint Southwark and Lambeth MH carers forum.  I usually run this forum at the Maudsley hospital. As a reminder the carer forums are aimed at carers who care for someone with a mental health need. I run around 5 carer groups each month and most of the groups work towards engagement, co-production, involvement, education and querying about mental health and social care services.

The Joint Southwark and Lambeth carers forum runs online due to the corona virus. Carers from either Southwark or Lambeth will need a free application called Zoom either on their computer, laptop or mobile phone to attend the meeting.

For the June meeting we were Joined by Southwark Healthwatch, Lambeth Healthwatch, Lewisham Healthwatch and also Greenwich Healthwatch where they traded ideas about carer projects. We were also joined by the trustees of Southwark Carers, Southwark impatient carer lead and also a carer who is a carer peer supporter. Both SLaM Southwark and Lambeth advisory group carer members attended and we were also jointed by Cllr Jasmine Ali who is Southwark Council’s Cabinet Member for Children, Schools and Adult Care. In attendance was Cllr Danial Adilypour who is the Lambeth Cabinet Member for Health and Social Care and Finally the main speaker to engage with carers is MP Helen Hayes.

Coming off the back of carers week, the forum was interested to hear what Southwark and Lambeth council had been doing for carers in both boroughs. First we heard from Southwark Healthwatch from all the work they have been doing to highlight the situation unpaid carers face in the borough.

Southwark Healthwatch update on carers

Southwark Healthwatch spoke about listening to peoples experiences of health and social care and trying to make change to the wider community. Over the years Southwark Healthwatch spoke about the priority areas and one of them being unpaid carers. In 2019 their project on unpaid carers looked at surveys, focus groups and interviews with carers.

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Results of the project looked at the daily life of carers with themes being on qualitative experiences. The project looked looked at the Impact of caring, which was reported to be very extensive, emotional and intense.

Other findings were

  • Carers felt they were going on beyond the roles of caring – especially on care coordination.
  • It was noted some carers were doing 69 hrs of unpaid care each week.
  • Stress levels, tiredness a strain on carers Mental Health.
  • Financial situation under strain due to multiple levels of care.

Southwark Healthwatch looked at the support carers were getting through social care services, this became an additional challenge for carers due to chasing people on the phone. Bureaucracy led to isolation of carers. Carers reported back that interaction with social workers or GP was not always a positive about the experience. Many felt the levels of service was inconsistent, lacking support and empathy, which led to distrust of council provision.

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Carers did value one off support for benefits applications, carer assessments. Carers also felt activity groups were useful along with respite, but must be flexible. Counselling was hugely important for carers.

Carer members at the forum queried carer counselling services either from Southwark Carers, SLaM or Southwark council.

Southwark HW are going to raise this at Southwark Council’s “Carers Board”, hopefully the forum will get some feedback on this. The forum is worried about funding and accessiblity of counselling since Southwark carers lost their counselling service due to funding.

greenwich healthwatch

Greenwich Healthwatch fed back that on young carers awareness day they visited some schools and wrote a report on the experience of young carers, they felt that young carers are not heard in the borough and will be learning from others on what could be needed.

MP Helen Hayes engagement with forum

Helen gave overview of issues raised from when she the last attend our forum back in November 2019 . Helen updated the forum on how COVID-19 affected both Southwark and Lambeth boroughs. She noted that COVID-19 has shone a spotlight on inequalities in Health and social care. Corona virus has impacted the community’s mental health due to lose of income and difficulties accessing food and medicine. Helen’s email inbox is hitting over 1000 emails a week due to the coronavirus alone

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MP Helen Hayes

She wants to take back views of Mental Health carers back to parliament and spoke how one of Labour’s previous election pledges was on increase of carer allowance. There is also a focus on the need for paid leave for carers, which they will continue to work on.

Helen spoke on how Carers assessments under carers act and how the Care Act a welcome reform, but was not supported by levels of funding. Helen mentioned that she is the Co-Chair of the All Party Parliament Group on Adult Social Care and they were working hard to reduce the fragmentation of the care sector.

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She stressed that both Southwark and Lambeth council have been working very hard to address those needs and although she has been MP for Dulwich and Norwood for 5 years, she felt that MH issues will rise due to the problems corona virus has impacted on the communities.

The forum raised the issue of care homes especially the problem of how COVID impacted them as many carers have loved ones in support housing or care homes.

I also asked Helen about involvement for carers at the highest levels, where Helen phrased the importance of “Nothing about me without me”. She agrees that those who are expert by experience should be involved in policy or carers be allowed to co-design and co-produce.

Update from Cllr Jasmine Ali on Southwark Council commitment to carers

Jasmine thanked Helen Hayes for her support when COVID caused so much distress in the borough of Southwark.

Cllr Jasmine Ali

Cllr Jasmine Ali

Jasmine was not a fan of the work Matt Hancock has done so far, but at least we are slowly getting in a better place. Jasmine noted that adult social care and carers are a big priority in the borough. She reported that there are around 26,000 carers in Soutwark alone, but she was proud of the work that Southwark’s Wellbeing hub, Southwark carers and older peoples hub were doing. Jasmine talked to the forum about Southwark’s future plans and that there will be a strong emphasis on advocacy, guidence and signposting.

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She spoke about the importance of SLaM’s recovery college and how a focus needs to look at increasing the caring relationship between cared for and carer. There are plans to Link carers with Universal services e.g. public health, learning and leisure and the developing work on Southwark’s Carers joint strategy, need assessments and the carers pathway board. She wanted to hear what are issues being raised from the forum.

Jasmine spoke on the importance and need for the Ethical care charter and carers charter, although a lot of work has stopped she fedback that by the end of June things will start up again.

Update from Cllr Danial Adilypour on Lambeth Council’s commitment to carers

Danial agreed with what both speakers raised at the forum and mentioned carers are a very important issue in the borough of Lambeth. There are big pieces of work from the boroughs “carers card” scheme which came out of Lambeth Carers Strategy. First part of the launch was actually off carers week 2020. The Second part of the ‘carers card’ launch will be at the end of the year, where businesses will provide a range of discounts to carers.

Cllr Danial Adilypour

Cllr Danial Adilypour

Daniel gave out stats and showed there are around 20,000 carers in Lambeth. He mentioned that the Lambeth carers card is not the end of what is being offered off Lambeth Carers strategy, there will be more to come.

Currently there is a helpline open during the corona crisis. Lambeth council will work on several strands being.

  • A&E services (the problem of people not accessing services due to MH), but will work with Lambeth’s ‘Living well network alliance’ to increase access to A&E.
  • The problem of Social isolation is another strand Lambeth is going to work on where they will develop a strategy.
  • Lastly Daniel stated that Mental Health will hit Lambeth due to the COVID situation, Lambeth will continue to engage with groups on this topic, especially the MH carers forum.

Carers from the forum were queried Cllr Danial regarding the SLaMs Lambeth hospital consultation. There will be wider plans over the coming years involved with Lambeth carers strategy to engage with forum.

Healthwatch Lambeth Update

The forum was joined by Lambeth’s Healthwatch Natalia Sali​​​​​​ who is their Engagement Manager. She Updated us on the 80 page report of Lambeth Hospital consultation recommendations.

lambeth healthwatch

She reported that over the month carers were fearful of using services. So because of this, Lambeth Healthwatch put on an webinar event where Speakers from Kings college hospital and a GP from a surgery presented what services are available for users.

Consultations are online at least and Lambeth HW will expect changes to face to face appointments, but this depends on virus

Lambeth Healthwatch will continue to speak to carers, older adults and young people regarding experiences in care packages during pandemic. As of this moment Lambeth HW are runing webinar’s every 2 weeks, the latest one on pregnancy, which did interest a member of the forum.

Updates from SLaM and forum carer members

David Meyrick SLaM’s carer inpatient rep fed back on how SLaM’s wards were

  • Allowing visitors back on ward, but visitors need to respect social distancing.
  • Developing a ‘missing in action’ project on female wards.
  • Looking into wards becoming more family friendly during visiting hours.
  • Carers strategy is in a draft.
  • Webinar course at SLaM recovery in July.
  • How the Peer support groups were continuing to run online.

The SLaM carer peer support runs every Wednesday from 6 till 7 online, where the carer peer support updated the forum on how the carers group was getting along.

We also had Updates from Southwark Advisory group members on

  • Producing a video for SLaM website on what Service user involvement does
  • What can be learnt from COVID-19
  • Qualification courses for patients

Updates from Lambeth Advisory group

  • Richie QI peer lead asked the group on what patients expect from services
  • Met with the Head of Lambeth Alliance chair on regarding how their Covid-19 strategy would be developing.

This concludes the update for June.

Southwark MH Carers forum May 2020

logo and coverHere is May’s update of the Southwark mental health carers forum. This is one of the 4 to 5 carer groups I run each month. All carer forums and support groups are run online via Zoom due to social distancing because of COVID-19. I feel families and carers still need to know what is happening with services especially when health and social care is under strain.

In attendance for the forum we had carers from Southwark and also from Lambeth since the Lambeth carers forum is not running at the moment. We were also joined by trustees of Southwark Carers, plus Southwark Healthwatch were in attendance. We were also joined by Maudsley’s NHS Southwark inpatient carer lead, plus a carer who co-runs their carer groups. The main presentation was from Bernadette Pickerell who is SLaM’s Mental Health Act Team Leader and Senior MHA Co-ordinator.

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Southwark MH Carers forum October 2019

untitled-2Welcome back for the October update of the Southwark Mental Health Carers forum. Just so those to the blog understand. The term mental health carer does not mean the mental health of carers, it is a term to describe an unpaid carer supporting someone close who has mental health needs.

I would like to kindly thank Southwark CCG and Southwark Healthwatch in helping to advertise and publicise the carers forum.

The Southwark MH carers forum aims to allow unpaid carers to have a chance to understand and forum a relationship with mental health services in the borough of Southwark, we do not stop there. It is a right for unpaid carers to query health services and voice their opinions. Most members seek to understand why the social care and health services are the way they are. It does not help that the NHS changes rapidly and can be complex to adapt to local needs.

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The Southwark Mental Health carers forum had engagement from Kings NHS mental health strategy lead Gavin Smith to explain his mental health strategy. We also had Rebecca Martland from the Institute of Psychiatry, Psychology and Neuroscience attend to talk about her new study, plus we were hoping Zenette Abrahams could update us on Southwark Council’s carers strategy.

Before we continued on with the forum which runs from Southwark Carers. I noticed there was a lot of pictures and items on show. I had just caught the Southwark Carers Black History month exhibition and celebration, which was put on by one of the Southwark Carers Trustee. I spoke to her about the importance of Black history, which takes place in the month of October.

Just so you know Southwark Carers provides several services, one being the enabling service, which encompasses active listening, advocacy, signposting and support in tackling stressful issues outside of the caring role. The other being empowering carers with information and knowledge about their rights.

There were lots of photos on display regarding heros of black history and what it was like to live in those times. The CEO of Southwark Carers kindly showed me one of the costume cut outs.

 

We had a good turn out at the carers forum as I explained the agenda and unfortunately Gavin could not stay, but would be back again in future. I explained to the members of the forum as to why it was important to have a platform for carers to at least be interested on what their borough was doing for them. It should be a right for carers to come together and share what is working for them and what is not working.

The forum still needs to grow further so I have some work to do. I spoke on the updates provided by Southwark council in regards to the Carers Pathways Project Board. The Carers Pathways Project Board was established at the end of July, and work being undertaken around the carers pathway. I was given a contact to at least find out how the board was getting along. It is important carers be updated on what will be provided for them, rather than systems being designed where there is little or no carer input. It does not matter if it is bad news, but carers should know about it.

Next we had Rebecca talk about her project regarding improving physical health of patients on the inpatient wards. Basically they are starting a feasibility to see whether High intensity interval training (HIIT) might be acceptable and helpful for inpatients with Serious mental illness.

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Eligible patients who consent to take part would be randomly allocated to HIIT or to Treatment as usual. The HIIT involves alternating short bursts of high intensity exercise (1 minute intervals) with recovery periods of light exercise (90 second intervals) (Each session will take 11 minutes overall + warm-up and cool-down) and will take place in the Bethlem and Maudsley Hospitals on a stationary bike – People will be asked to attend for up to 12 weeks, even after their discharge, but they’ll start as inpatients.

The group discussed how important exercise is for those suffering mental ill health and felt physical health support was not focused on enough. Some members signed up to be part of Rebecca’s focus group.

I then updated members on the following being Guys & St Thomas carer’s policy and it means for both Kings NHS trust and Guys and St thomas NHS Trust.

I then updated the members about the Carers UK conference and what I spoke about at the conference, then I spoke about my visit to South West London & St George inpatient ward to speak to staff about carer involvement. I then spoke about the Lewisham CCG Mental Health stakeholder event with some members querying if Southwark CCG are doing something like that.

I then updated members regarding the carers support group and also that there will be a joint Southwark and Lambeth MH carers forum next month where MP Helen Hayes will be attending.

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MP Helen Hayes

We then heard updates from members who attended the SLaM NHS Southwark Advisory group, where plans to redevelop a ward were shown, plus a few other updates. Some members also registered to be on Southwark’s carers members list.

For Black History month I will be speaking at St Andrews healthcare on a carers view of BAME inclusion in the NHS and will probably write a blog before then.

Overall the Southwark MH Carers forum was empowering and there is plenty of work to do to raise carer focus, awareness and empowerment in the borough of Southwark.

Southwark MH Carers forum September 2019

MH Forum 20-09-19-page-001Welcome to the September 2019 update of the Southwark Mental Health Carers forum. The forum is aimed at unpaid carers who carer or support those with mental health needs. For example as in a relative or friend suffering schizophrenia, bipolar, ADHD, serve depression, self harming and so on. We even have families attending supporting someone with learning disabilities.

The forum runs once every 3rd thursday month from Southwark Carers. Southwark Carers is a carers centre that Enables, empowers and enriches the lives of carers in the London borough of Southwark.

For the September forum there was a push to get carer members to understand Maudsley’s Carer Strategy. Just like over at the Lewisham MH Carers forum, we hope carers can understand what a carer strategy means, how it could help them as a carer and why NHS trusts work towards a carers strategy. Still, its no good having a strategy done in isolation. Mental Health trusts need to listen to those supporting patients in their services. Carers need to feel valued by being listened to, even if some issues cannot be resolved.

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Unfortunately the SLaM member of staff could not make it, but I managed to go through the strategy some weeks before and developed a presentation on it. Oddly enough, we could not fit in as much about the carers strategy and I am hoping we could cover the rest in October.

I did break down a few things regarding what South London & Maudsley regards as a carer, the issue of identifying carers and training SLaM staff to be carer aware. There are other queries from carers especially about the Triangle of Care policy and also the impact of the Care Act 2014 and if it has done any good for families and carers.

I also presented the new Physical Health project from KingsHealthPartners, which focuses on improving mental and physical well-being for people with mental illnesses. There was excitement that a focus group looks to be developed involvement patients, doctors, researchers and carers on the new a high intensity interval training (HIIT) program for inpatients with mental illnesses.

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Carers are understandably upset that their loved ones are being given medication that although controls the mental illness, can add physical weight to the patient. It can get so bad that it could contribute to the 20 year Mortality Gap in service users. It is about time there should be a controlled exercise program in conjuction with mental health treatment. King’s Health Partners is an Academic Health Sciences Centre where world-class research, education and clinical practice are brought together for the benefit of patients. They bring together a world-leading research led university and three successful NHS Foundation Trusts.

You can find out more about them on the link below

https://www.kingshealthpartners.org/

Talking about NHS trusts. It was good to at least have South London and Maudsley NHS Trust work to engaging with carers regarding its carers strategy, we also had Kings College NHS Trust getting views from carers over in Lambeth and sometimes Southwark, but there still needs to be an update from Guys & St Thomas on their Carer’s policies. We had an update on progress regarding engagement.

I updated the members on the new Carer support group, which I aim to set up in Southwark. The group needs to be carer-led and will receive funding from the mental health organisation Mind. I am awaiting peer support training, since it is a new avenue for me being a peer supporter, but I have unfortunately have carers chat with me regarding serious NHS incidents and they are not so trusting of NHS staff due to being so distruate if their ‘loved one’ has died or come to serious harm. The carer peer support group, will need to have protected space for carers where we can support and learn from each other.

The forum members also discussed several exciting events, one of them being the Celebrating the role of carers across the Capital festival held over at Bromley by Bow Centre. The festival was organised by LondonADASS and the festival was being hosted over in London Borough of Tower Hamlets, East London. More on that festival later in another blog post.

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At the Southwark forum we celebrated the update of Carer member Ana who is developing her skills as a therapist. She has been nominated for awards by The London Awards Brazilian Guide 2019 which is intended to support and support projects and initiatives that empower entrepreneurs.

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Ana has several projects that help those in the Latin community and has set up a project that helps hundreds of children over in Brazil. The members of the Southwark Carers forum are aware of the contribution the Latin community make and are aware of how communities feel pushed out by development in the area.

https://brasileirosnainglaterra.com/eventos/guia-londres-awards-woman-2019/

Ana invited members of the carers forum to the Brazilian embassey for a wellbeing festival and we look forward to being part of how the Latin community are inviting of others even if they are feeling welcomed.

I will update the Southwark Carer members on how the Carer festival went in October.

Southwark MH Carers Forum June 2018

Dg3QQzpUYAAo2uyWelcome to June 2018 update from the Southwark mental health carers forum. As a reminder the mint of carers forums give unpaid carers in care for someone suffering mental health needs a chance to get updates and query mental health services and also services aimed at unpaid carers. One of the things that is important to note is that the forms allow empowerment to unpaid carers.

For this particular form over at Southwark carers, we were lucky to have the Labour MP helen Hayes attend the forum to present a new report published jointly by the Health & Social Care and the Housing, Communities & Local Government Select Committees on the long term funding of adult social care.

At the forum we all admitted that the social care system is broken. There are quite a few reasons why social care is struggling to support those in desperate need. One of the things that has been causing a lot of problems is the austerity effect. We felt that the current government seems to be dragging its heels on supporting and protecting the rights of unpaid carers.

If that wasn’t hard enough we have a double blow in regards to the ‘cared for’ where hospitals are struggling with funding, delayed hospital discharges, difficulty with mental health patients getting support and the rotating door system. All of this applies added pressure on families and unpaid carers who are trying their best to care for their loved ones.

Comforting friend. Woman consoling her sad friend.

The select committee which Helen Hayes is a member of is a cross party initiative that includes a Citizens jury. The committee looked at funding and who should fund social care. The committee also queried what social care should look like.

Too often the poorest in Society are asked to pay for social care that cannot often reach them. Above all they should be transparency not just in social care but within the NHS. It is so important that families and carers are given the support in order to care for their loved ones rather than being pushed out by care workers.

The forum also discussed the integrated social care system where are the city of Manchester has set an example for others to follow.

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The MP felt glad that such a forum is up and running since she felt the current government has failed to give unpaid carers a voice and she will do all she can in order to support the mental health carers forum. We also discussed carers assessments and who should attend the forum.  Unfortunately Southwark Council representatives were due to attend the forum, but were unaware the time had changed.

In future we can send out posters where the MPs can help publicise and support the forum.

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This concludes the update for June 2018 Southwark mental health carers forum.

Southwark MH Carers Forum May 2018

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Here is the update from the forum I run after the BME MH Carer/SU forum in the afternoons.  This forum is aimed at unpaid carers in the borough of Southwark, although mental health professionals are free to attend.

The May carer forum was very well attended with representatives from Southwark CCG, Southwark Healthwatch, Kings Health Partners and nurses from the Southwark inpatient acute wards.

At the start of the forum I presented what a mental health carer is, that being basically an unpaid carer supporting someone with mental health needs.

We then had Eliza Hinchliffe presenting on Kings Health Partners project ” Mind and Body Programme”

She presented on the new Mind and Body programme, which is a Kings Health Partners initiative between Guys&St Thomas, Kings College Hospital and SLaM. The Mind & Body programme looks to close the gap between mental health needs and physical health needs.

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The forum discussed ways engagement can be made with carers in mind. There is an offer to promote the forum via the hospitals in Southwark, which means families and Carers can link up on what is going on.

The forum hoped to have Mick Wright Turner – Head of PMIC Southwark Pathway, but he was unavailable.  However we were very impressed that nurses from the Mental Health unit attended the forum to speak about the carers pathway progress.

Next up to present was Karen Clarke who is the mental health lead at Southwark CCG. The forum is particularly interested in collaborating with her regarding updates on mental health services in the borough of Southwark, especially services that needs to give more thought/involvement and engagement about families and carers.

Karen spoke about her role and an introduction about Southwark’s mental health strategy. There will also be a IAPTs review,  the Southwark wellbeing hub review and more updates.  The forum spent some time comparing it to Lambeth’s Mosaic clubhouse. The forum would like southwark CCG to help promote what we do and let carers know there is a place to be heard.  Karen aims to continually engage with the forum, so carers and carer champions can be involved and spread the word.

Next was Southwark Healthwatch updating on projects regarding carers?

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Southwark Healthwatch spoke about their new initiative to engage with carers about mental health services.

The engagement officers took the time to ask carers on what they think would be a mental health crisis and where would the carers take their loved one during a crisis and would like to interview carers about mental health services in the borough of Southwark.

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The forum again would like Southwark Healthwatch to help promote the forum, which Healthwatch agreed via their community board.

The next part of the forum looked into engagement requests Updates

There was a very short discussion on meeting the MP Neil Coyle, the MP has helped promote the forum and there will be a Southwark MH event in Parliament with members of the forum talking about why such a forum is needed.  All members noted that this will bring much needed awareness of what carers are trying to do while being empowered to do so.

Members are also excited that MP Helen Hayes is due to visit the forum in June.

Lastly we had an update from Carers involved in SLaM Foundation Trust

I have been helping train staff on the wards, one ward was actually done over at the Maudsley, this is in regards to carers & confidentiality. The training is being done with help from the trusts Modern Matrons.

Another member of the forum attended NHS England’s conference and raised if their 5 year plan includes try Triangle of Care.

This concludes the update for the Southwark MH Carers forum, stay tuned for the Lewisham carers forum update and also the Lambeth Carers forum update.

 

Some journeys are fun in the dark

20150620_234208Welcome to another blog post by Matthew Mckenzie a Carer from the London borough of Lewisham. For this blog post, I want to write about a fun event I attended. This event was a walk, which took place on the 20th of June starting late at night till the 21st on sunday morning. The event was a fun filled, healthy and educational.

This walk I took part in was called the Largactyl Midnight Summer Solastice walk, which usually lasts around 5 hours. This walk was held by Cooltan Arts. Cooltan Arts is an Arts and Mental Health Charity based in London and they have been doing walks around the city for around 6 or 7 years. The walks are free to join, but donations are welcome.

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