Tag Archives: carers

Critical Support to Carers During a Cost-of-Living

Hello fellow carers, another blog from carer activist Matthew McKenzie. A lot of my groups focus on those caring for someone with mental ill health or caring for someone going through the stages of cancer. As you probably know, caring for someone should be a role that we look towards. This does come with challenges, but most carers can even expect to go through tough times. These challenges could mean adapting to a role that could be isolating, difficult to understand and emotionally as well as physically taxing.

Being an unpaid carer means you doing what you do because you love and care for the persons health and wellbeing. It is unfortunate that the cost of living has made the unpaid caring role an increasing challenge. With reports from National carer organisations like Carers Trust and Carers UK, the cost of living has pushed carers towards a more vulnerable position. Struggling financially to make ends meet could be the last straw that breaks the back of many carers.

We all know the sad desperate story. We want a society that emphasis the importance of caring for one another. It should not be left to someone else. Health and social care are under resourced and are under increased pressure, this means the role of the carer is a crucial cog in the wheel. The NHS cannot expect to care for us all and we will have to face the fact that carers will have to be supported as a vital part of the health and social care system.

Awareness of the carer role is not enough as more discussion, debate and finally action should be taken up at the highest level. A lot of the awareness is down to education. As in educating others that they should not have to cope in caring for a difficult role. There needs to be education and research on what could make life easier for carers. Policies will need careful consideration to serve the ever increasing society of carers.

Fortunately we have a high quality platform looking to provide a debate on this issue.

Public Policy Exchange produces and delivers high quality conferences and interactive seminars which provide an invaluable interface for policy discussion, debate and networking.

Their speakers are unrivalled in calibre, ranging from Government Ministers and Senior Whitehall Officials to leading Local Authority figures and Voluntary Sector representatives.

For August the 17th they have an exciting event titled “Informal Carers:
Providing Critical Support to Carers During a Cost-of-Living Crisis and Beyond”.

There will be the following speakers, where some are from my carers network

Key Speakers

  • Wendy Chamberlain MP, Liberal Democrat Spokesperson for Work and Pensions & Sponsor of the Carer’s Leave Bill, now the Carer’s Leave Act 2023
  • Krista Sharp, Chief Executive of MYTIME Young Carers
  • Professor Michele Peters, Associate Professor at the Health Services Research Unit, University of Oxford (Event Chair)
  • Dr Sally Wilson, Principal Research Fellow at the Institute for Employment Studies (IES)
  • Dr Siobhan O’Dwyer, Associate Professor in Adult Social Care at the University of Birmingham
  • Richard Meade, Director of Carers Scotland and Northern Ireland
  • Zarina Camal, Carer
  • Faith Smith, Carer

With such a high range of speakers, it is a shame I cannot be present to hear thoughts and views that affect the caring role. So I am hoping those in attendance feedback to our carer network. I am glad that those who are to present at the webinar speak highly of the caring role.

If you want to hear more about this important debate affecting unpaid carers. See the link below.

https://publicpolicyexchange.co.uk/event.php?eventUID=NH17-PPE

Carers across the nation look to those who can hear our call. Carers want and policies that can support them and make a caring society.

July Monthly Carer & Health News Updates 2023

Latest carer and mental health news for July by carer activist and author Matthew McKenzie

July 2023 Carer and Mental Health news <- read more news items here

For the July edition on unpaid caring and mental health we have

Carer Videos

Carer Support Transitioning to managing on your own – Gloucestershire Carers Hub

A Creative Carers story-Anne – Carers Oxfordshire

Northamptonshire Carers – Episode 5 – Dementia

Latest Carer News

Caring for carers – Blog on NHS and Carers

Should you be doing more to support employees balancing carer responsibilities?

Letter from Minister of State for Social Care – Gov

Unpaid carers: ‘I had to choose to care for my husband or my sister

Caring for the Caregivers: The Critical Link Between Parent and Teen Mental Health – Harvard University

Triangle of Care accreditation shows we value carers – Tees, Esk and Wear Valleys NHS Foundation Trust.

National Organisation updates

Current Lived Experience Advisor Roles – Carers Trust

State of Caring Survey 2023 – Carers UK

Give feedback on care – CQC

Carer Research Papers

Online Education and Cognitive Behavior Therapy Improve Dementia Caregivers’ Mental Health: A Randomized Trial.

The impact of having a carer on adult health and social care utilisation across five settings of care: A matched cohort study

Diversity ethnic Mental health news updates

NELFT launches Patient and Carer Race Equality Framework

Carers UK  good practice briefing for supporting Black, Asian and minority ethnic carers

Exploring the relationship between mental health and dialect use among Chinese older adults

South Asian Heritage Month – Birmingham and Solihull NHS FT

Carers UK – State of Caring Survey

Welcome to another carer blogpost by carer activist and chair of Carers Uk ethnic advisory group. I have been meaning to blog about the new State of Caring survey, but before I do. I want to give a little introduction to Carers UK. If you are new to the caring role as in caring for someone unpaid like a family member or friend, then Carers UK can help with advice and information.

Carers UK is a national membership charity for carers, Carers UK is both a supportive community and a movement for change. Still, with over 5 to 6 million carers in the UK, it is hard to know the challenges carers face. This is why Carers UK launches its “State of Caring” survey to hear what carers face.

I suspect I can hear groans and moans from carers thinking “Oh no! Not another survey!”. However hold for just a moment. The UK has been hit with a cost of living crisis, recovering from a pandemic it was not fully prepared for. This in turn has led to an impact on the most vulnerable where carers are isolated and services are struggling. Despite health and social care resources facing challenges, there have been new problems affecting carers, but without carers feeding back then it is difficult for Carers UK to lobby.

Some people tend to think they are not carers and that is fine. I know some out there feel they are just doing their duty caring for someone affected by long term illness. Some people provide care out of love and concern. These reasons are all important, but is it fair that people have to struggle when there is help out there? Especially being identified as a carer and having that extra useful carer awareness.

Providing unpaid care can be a most isolating and private affair, but should it be so private that no one knows when that carer of the person being cared for is suffering needlessly?

I ask carers especially those from minority groups to take just a few minutes to fill in the “State of Caring” Survey. The more information provided, the more carers do not have to cope alone. You might feel you will not get anything out of it, but letting those who make important decisions regarding the nation should be aware that carers need that extra support.

You can access the State of Caring survey in the link below

https://www.carersuk.org/policy-and-research/state-of-caring-survey/

Bringing the Lambeth community together for health and wellbeing.

Welcome back to another blog by carer activist Matthew McKenzie. I run many groups aimed at those caring for someone unpaid. They could be caring for someone suffering mental illness or caring for someone affected by cancer. One of the groups I run is the Joint Southwark & Lambeth mental health carers forum.

So I was delighted to attend a fun filled community event over in Lambeth.

The weather was perfect for the health event. The event focused on the Lambeth community and beyond. It was a way to bring the community together.

We all have something in common, just as we all have importance in health and wellbeing. So it was a fun afternoon where everyone could come together and learn what the borough of Lambeth if providing for the community.

The event was called “Thriving Vassall and Coldharbour Health Day”. It took place over at Wyck Gardens on the 21 July 2023 from 3pm to 7pm.

When I attended the wellbeing festival, the first thing I noticed was how everyone was enjoying themselves. There was no fussing or fighting, people were relaxing, enjoying the music, learning about health and eating the food provided.

I met up and chatted with Karen Hooper who is a carer and does so much to promote community links in Lambeth.

I then spoke to stall holders at Age UK Lambeth, Disability UK Lambeth, Kooth stall, SHARP Gallery and more.

The Wellbeing Festival provided fun for all the family. Workshops and activities to help attendees stay fit and healthy. It was great to see a focus on young people’s mental health from the Kooth stall.

We also had stalls from South London & Maudsley regarding mental wellbeing services.

Involvement and providing feedback on health services is so important. So it was great to see Lambeth Healthwatch giving advice and information at their stall.

I noticed there was Jewellery Making and Face painting for children attending as it is great for young people to get creative. There was also a bouncy castle.

There were other Stall holders including Lambeth Childhood, Active Lambeth, Primary Care Network engagement (especially from the social perscribers). We also had stall information from Moasaic Club House, Certitude, Loughborough Farm, Buzwakk Recording Studio, Big Kid Foundation, Repowering London and Lambeth Libraries.

We also had some great singing performances on the day.

With so much bringing the community together, I enjoyed my visit to the Health and Wellbeing day, everyone was friendly and many wanted to chat about their services to help the community.

A big thank you to the main organisers Anthea, at Thriving Vassall & Coldhabour (Fiveways), Surjit from Ecosystem Coldharbour and Kamika from Chips and to everyone who came to the event.

June Monthly Carer & Health News Updates 2023

Latest carer and mental health news for June by carer activist and author Matthew McKenzie

June 2023 Carer and Mental Health news <- read more news items here

For the May edition on unpaid caring and mental health we have

Carer Videos

Carers Week: Lambeth Young Carers

Carers Week – Lanakshire Carers

Carers Week 2023 Wrap Up and Thank You! – Solihull Carers

Latest Carer News

Thousands of deprived unpaid carers in south east London

UK Gov announces cross-government action to support carers

Rapid review into data on mental health inpatient settings: final report and recommendations

Why are Lasting Powers of Attorney important to unpaid carers?

Carer’s Leave – the new law explained

State of Caring conference 2023 – Carers UK

NHS Long Term Workforce Plan

Other news updates

Cancer – NHS England

Carers UK  good practice briefing for supporting Black, Asian and minority ethnic carers

Greater Manchester black patients 3 times as likely to be detained

Macmillan Cancer Support – Carers Week

Caring for someone with a terminal illness

Allied Health Professions Strategy for England Easy Read Version

Cancer Survivors Day – Guy’s Cancer Centre

Welcome to another blog by carer activist and author Matthew McKenzie. I raise awareness of mental health carers and those caring for someone affected by Cancer. With my focus on cancer awareness, I paid a visit to guy’s cancer centre. On Sunday 25th of June they put on a lovely event “Cancer Survivors Day – A celebration of Hope”.

There are currently 3 million people living with cancer in the UK. With such an event there is always hope to battle and survive cancer. The event focused not only on the importance of hope, but also to acknowledge the clinical and research skills that is offered to the community.

The event was supported by Guys Cancer centre, Kings College London, Kings Health Partners, South East London Cancer Alliance and Guy’s Cancer Charity.

However on such a hot day, what things did I see at the event?

A fair amount of my time I was chatting to stall holders about what they were presenting. One of the most important stalls was the Cancer Care Map Stall.

Cancer Care Map is a simple, online resource that aims to help you find cancer support services in your local area wherever you are in the UK. Cancer Care Map is run by The Richard Dimbleby Cancer Fund charity.

So why is that stall important for me? Two reasons to be honest. I am known for running carer groups, plus I network with unpaid carers a lot. With my links to health and social care services, it is about time I started a cancer carer group. I have always wondered what happens to those caring for someone with cancer. Where do hospitals send them? Are carer centres focused on cancer carers?

With Cancer Care Map, I can advertise my group although I still would need support of the hospitals. It is important carers are given a voice and they should not be forgotten. The other reason is Cancer Care Map team will provide resources for my carer information stall.

I also visited a few other other stalls, but here is a small list of the ones I visited.

Speech and Language stall
Physiotherapy stall
Tree of Hope
Cancer Research UK
Dietitians
Occupational Therapy stall

At the start of the event, we were given an opening speech by David Cheeseman who is director of strategy at Royal Free Charity. Plus an opening speech from Anne Rigg who is consultant medical oncologist and medical director for Cancer & Surgery.

After the inspirational talk, it was on the the fashion show. I was inspired by the models energy and creativity.

The audience certainly enjoyed the show and it was a great turnout.

After speaking to more stall holders, I bumped into Jannike Nordlund who is the Patient Involvement Lead and Cancer Improvement Manager South East London Cancer Alliance. There will be some good focus for carers so watch this space. I still need to chat to the 3 other London cancer alliance leads, but that will take time.

Eventually I came back to the main stage to listen to the string Orchestra, which I found relaxing.

All in all, I really enjoyed the event and felt the message so important for those living with cancer and beyond. We need to celebrate the importance of hope, there is always a chance and everyone plays a part.

Thanks for reading.

Carer reception at No 10 for Carers Awareness week 2023

Welcome back fellow carer readers. Another blog post from Carer activist and author Matthew McKenzie. At the time of this post, it is Carers Awareness week. This is the week where awareness and support for carers is promoted from the 5th to 11th June 2023. Carers Awareness week is an annual awareness campaign. It helps to remind others that even caring for someone unwell does not have to go unrecognised.

Caring for someone close can be a hidden and isolating reality for millions across the UK. So it helps to know what the promise is from decision makers.

I was fortunate enough to be included at a reception for carers and carer representatives at 10 Downing street. Just so you know, that address is the official residence and office of the prime minister of the United Kingdom.

Everyone was friendly and welcoming. Even Larry the Cat

I have always said to others that if you are going to be an activist it would be wise to raise the profile of what you are campaigning for. Of course, most of the time I am trying to network carers together. It helps to understand what we all go through and why we go through challenges as carers.

The reception led by Carers UK for Carers Week was also supported by Age UK, Carers Trust, MND Association, the Lewy Body Society, Rethink Mental Illness and Oxfam. We are all partners in raising awareness for unpaid carers.

It was not just a reception, as we were greated by Minister for Care, Helen Whately.

The minister announced a cross-government roundtable to champion carers’ needs across Whitehall. Helen also introduced more measures to support carers across the country. Despite the challenges the government is under, it is important that there is a focus on carers doing so much to care for those close to them. Unpaid carers asking for hardly anything except to be noticed for their struggle and sacrifice as health and social care face great challenges.

I am grateful to have attended and network with fellow carers and those doing so much to support caring. We want a caring community and it is only fair to promote and support this. You can read more about the fuction below.

https://www.gov.uk/government/news/cross-government-action-announced-to-champion-carers

Thanks for reading.

Carers Week – NHS Toolkit launch at St Georges university hospital trust.

Welcome to a special carers week 2023 blog from Matthew McKenzie carer activist and author. As a carer’s activist, I often try raise awarness of unpaid carers. I even try to raise awareness at hospital NHS Trusts. One of the hospital NHS Trusts is based over in South West London. This hospital is St George’s University hospital.

Basically it is one of the country’s principal teaching hospitals, which is shared with St George’s, University of London, which trains medical students and carries out advanced medical research. The NHS trust has more than 9,000 staff and is one of the four major trauma centres for London.

I actually run a carers information stall at the hospital to remind staff and carers about the carer’s role.

It was great to hear that I was invited to the London discharge toolkit which is being rolled out across all NHS acute trusts in London. The toolkit was developed by Debbie Hustings involving many carer organisations and carers with co-production.

With my involvement in NHS England, I have a keen interest to see how the toolkit increases the focus on unpaid carers.

The toolkit serves many purposes, as in educating NHS staff, raising carers rights and examining challenges in the health system.

I have fedback my thoughts to NHS England regarding the toolkit and a few other things. Below is the link to the toolkit

https://carers.org/resources/all-resources/142-carers-and-hospital-discharge-toolkit-for-london-hospitals-and-community-providers

So on 8th of June I attended the Launch of the toolkit at St Georges university hospital

I was joined by NHS England carer lead for London as we spoke to NHS staff working so hard to make changes for unpaid carers.

We also spoke to carer centre representatives, carers and third party organisations. I picked up a number of leaflets for my carer’s stall, but also spoke to a few people about the information provided.

All in all, staff at St Georges were confident of rising to the challenge to engage and support unpaid carers.

Regional Carer event – Cygnet Hospital Bierley

Welcome to another blog post from Carer activist Matthew McKenzie. I do many roles to connect with unpaid carers and I am now a Expert by Experience Carer Ambassador for Cygnet. I want to keep carers at the heart of healthcare services and one of the best ways to do this is speak at conferences.

Cygnet Health Care is taking on the challenge of and striving to make sure mental health carers get the best support possible. Cygnet are running “Regional Carer Network events”.

This recent Carer Network Event took place at one of Cygnet’s sites. That being Cygnet Hospital Bierley.

Before the event, Cygnet’s Group Service Improvement Manager Lauran Sheridan provided support to make sure Carer Ambassador’s were looked after. It was thanks to Laura that we were given a voice and place to reach out to carers who often feel they are forgotten.

We had a lovely stay at Premier Inn and the food was lovely. It was important to get a good nights rest to feel refreshed and ready to engage with staff at Cygnet and unpaid carers.

Just before the event, I took the time to explore the wonderful City of Bradford and event went walking along some rocks to watch the sunset.

AT THE EVENT

As usual, the first thing I look for when I enter a hospital is to examine what is displayed for unpaid carers. I was glad to see a Carer’s board and advertisements for carer events and initiatives e.g.

  • Events Calendar,
  • Awareness of Carers Week 2023,
  • who is the Carer’s Lead
  • Triangle of Care
  • Family & Carer strategy
    …..and lots more..

I opened the event with a focus on why I think carer networks are so important. I often write books on why carers need to connect and also why services should provide the empowerment and platform for carers to connect. If we connect, we can listen and try to understand the complex world of unpaid carers.

The speakers for the Regional Carer Network event were as follows.

Kate Mercer who is a Family Advocate from Black Belt Advocacy. Kate spoke about carer’s rights. She has worked on national projects with NICE, CSIP, NDTi and NHS England, most recently looking into the quality and availability of advocacy within in-patient settings for people with a learning disability and autistic people.

We also had Christian Young who is the General Counsel at Cygnet Health Care. Christian qualified as a lawyer in 1998, he then joined NHS England as Deputy Head of Legal Services before moving on to Cygnet.

Next to present was Philip Winterbottom who is Head of Safeguarding at Cygnet Health Care. Philip did an excellent presentation on the importance of safeguarding at health services. It is important we all know our duties to provide the best care of those who use our services.

We also was joined by Jo-Ann McAuliffe who is Deputy Director of Nursing. Jo spoke about the importance of recognising carers and how Cygnet can work with unpaid carers.

Lesley Mellor who is the other Expert by Experience Carer Ambassador for Cygnet spoke about her experience of providing care. Lesley is the is the chair of Dorset Parent Carer Council.

During the event, attendees were certainly looked after. We had a lovely lunch and I actually took some of the food home with me.

Cygnet also provided carers we lots of information, where Laura and Jo promoted Cygnet’s new Carers Strategy with more carer information to take home after the event.

All in all I enjoyed the regional carer network event and have connected to a few carers. The network will take time to develop, but we can all learn from each other. As the core of the Triangle of Care, we need to balance the connection so carers are not shut out.

Thanks for reading. More blogs to come for Carers Week 2023

May Carer & Mental Health News Updates 2023

Latest carer and mental health news for May by carer activist and author Matthew McKenzie

May 2023 Carer and Mental Health news <- read more news items here

For the May edition on unpaid caring and mental health we have

Write to your MP – Carers Week – Stop asking your MP about potholes in the road, ask them something about the state of social care.

Carers’ Assessments webinar 16 May 2023 – Carers UK webinar on Carers Assessments

Somerset Carers Week 2023 – Somerset Carers centre promotion of Carers Week 2023

Northamptonshire Carers Podcast Episode 3 – Spring is in the air – Podcast about the caring and unpaid carers.

Carers Trust Heart of England once again awarded Coventry young carers contract – Well done Carers Trust Heart of England

Right to unpaid leave for carers set to become law – Splended campaign from Wendy Chamberlin.

Richmond Carer’s Centre – Supporting young carers – Richond carers campaign.

Give feedback on care – CQC – Important to give to CQC if you are a carer

Facilitators’guide: NHS@75 – Guide to help explain NHS England;s campaign

POhWER – Got a complaint? Need an Advocate? PohWER can help

RESEARCH PAPERS

Caregiver wellbeing during Covid-19: does being hopeful play a role? – Paper written by Juliana Onwumere, Elizabeth Kuipers, Emilie Wildman, Ava Mason, Daniel Stahl

Family intervention for psychosis: Impact of training on clinicians’ attitudes, knowledge and behaviour – Paper written by Jacqueline Sin, Steven Livingstone, Maria Griffiths, Catherine Gamble

In one’s own time: Contesting the temporality and linearity of bereavement – Paper done by Katherine Kenny, Alex Broom, Emma Kirby and Damien Ridge

Diversity BAME Mental health news updates

  1. Carers UK  good practice briefing for supporting Black, Asian and minority ethnic carers
  2. Caring for the carers: ITV Meridian presenter Sangeeta Bhabra’s letter to her younger self
  3. Black, Asian And Ethnically Diverse Carers – Carers Manchester