Category Archives: Event reviews

Reviews of events I have been to

National Co-Production week 2019

10177241_747738765268892_5890142387668348507_nWelcome to another blog by Matthew Mckenzie unpaid carer for someone close. Most of my website focuses on unpaid carers caring for someone with mental health needs and healthcare in general. I do not just often blog and post, I try to be active out in the community. I have been runinng carer strategy forums close to 4 years to seek co-production and engagement from those who provide health and social care.

Engagement from my local mental health trust has been fairly good, although getting people’s time is not easy, but engagement from commissioners is even more difficult, perhaps not enough staff perhaps. Co-production with the CCG’s and council has been very slow and sometimes I am wondering if it is valued, although I hear of some good works, I still feel its lacking.

Did you know that from the 5th of July it is National Co-Production week? This is the week were those who use services and their unpaid carers can use their voices to express what they know or want to understand about co-production. It is also a chance for health professionals to showcase their co-production examples and also learn how to increase co-production.

What is co-production?

Unfortunately co-production can be a loose term and is used all too frequently. To strip it down to its basic premise. It could be defined as “users of a system joining together to influence the way that services are designed, commissioned and delivered”. Still, such a term cannot be agreed by everyone and the meaning of co-production might chance over time.

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Even more importantly, co-production aims to shift the culture of power towards the end users, because the problem is what health commissioners and designers feel on who is experienced to create policies and commission services. It sometimes is not always health professionals and commissioners fault, as co-production becomes difficult if only a few users want to be involved.

This is one of the reasons why National co-production week helps to try educate others on the importance of co-production. It should be a time where patients and carers focus on what we can do, rather than what is always being done to us.

A culture problem

Health services, social care and psychiatry often suffer from a problem of a top down organisational structure. Only the experts know best and there is pressure for them to produce results. If its not about saving costs and producing quality results, its also the culture of the health professionals being highly educated to know what is best. History unfortunately has shown the mistakes where the culture of who knows best can do untold amount of damage to the community. The culture barrier can stop/limit the end user or community from using their voices to get involved and tackle inequalities of health and social care.

Co-production-ladder

Too often health professionals and commissioners have the idea that because the end user was not educated about health and social care, that some health experts feel end users do not have anything to contribute. The policies, practices and principles are guarded for dear life and the impact on the community is limited.

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Health and well-being in the community

https___cdn.evbuc.com_images_50751415_246297577353_1_originalI recently came back from an event held by an award winning social consultancy called “We Coproduce”. The event was a 2 day look at Trauma and its causes due to the tragady of Grenfell Tower, it was one of the best times for the community over in the London borough of Kensington and Chelsea. When I arrived at the event, I was amazed to see how many of the public turned up and how many were interested in the talks.

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Triangle of Care – Learning from each other

Giving helpWelcome back to another blog post from unpaid carer Matthew Mckenzie. I often blog about the situation many mental health carers face up and down the UK, however not only do i write about the caring journey, I get involved and take the initiative to network with many other unpaid carers supporting ‘loved ones’ with mental health needs.

I champion and praise many projects that work towards the good of the community, especially health care projects and the ones that take note of families and carers have my keen interest. One of these projects looks to create good practice and work towards culture change in regards to the carer journey. This policy is the called Triangle of Care, which I have blogged about a while back.

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The triangle of care works towards bringing together unpaid carers, carers’ centres, third sector organisations and mental health service providers to work together to insure best practice for mental health services.

When I attend triangle of care meetings I am often amazed at the dedication and work that many NHS mental health service providers share with each other. The lastest triangle of care meeting was hosted by Kent and Medway NHS trust over at Dartford, we were joined by many other NHS trusts where some already were members, while other are working towards joining, we also were joined by other other carers and third party community charities.

As a carer, I learnt so much about the work mental health trusts were doing and i am impressed to see many london NHS trusts attend and share knowledge about the work they do including Central and North West London NHS Foundation Trust, Oxleas, South West London St Georges, Surry & Boarders NHS Trust, Berkshire NHS trust, the Sussex Partnership NHS Foundation Trust and many more.

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One of the strong points of The triangle of care is self-assessments for existing service provision, this was achieved by Kent and Medway two years ago and I have learnt that KMPT has been awared their second star for for completing self-assessments for all community services (all mental health, learning disability, older people and dementia and substance misuse services). I would like to offer my congratulations to Kent and Medway NHS trust and hope they keep building on their success.

You can learn more about KMPT from their site https://www.kmpt.nhs.uk/

Plus feel free to check out Kent & Medways work on the triangle of care below.

https://www.kmpt.nhs.uk/carers/triangle-of-care/

Another strong point of the triangle of care is principles. Principles are usually things people can often try and remember and the triangle of care has six.

These being :

1) Carers and the essential role they play are identified at first contact or as soon
as possible thereafter.

2) Staff are ‘carer aware’ and trained in carer engagement strategies.

3) Policy and practice protocols re confidentiality and sharing information are in place.

4) Defined post(s) responsible for carers are in place.

5) A carer introduction to the service and staff is available, with a relevant range of information across the acute care pathway.

6) A range of carer support services is available

More details can be found on the triangle of care below.

No one is saying such principles are easy to achieve and a lot of hard work and dedication has gone into culture change in the mental health services. We need input from all involved being staff, patient and carers.

You can learn more about the triangle of care here.

https://carers.org/article/triangle-care

One thing I want to note is that every time I attend such meetings, I have always felt I managed to contribute as a carer, especially since I network and hold forums with other carers in South London, I feel us carers can work together and feel part of the system, rather than battling the system.

I look forward to the next Triangle of Care meeting hosted by South West London st Georges NHS trust.

One last thing to mention is we are due to hear some exciting news from the Royal College of Nursing and I hope carers will be a strong focus point in the work they will do.

I would like to thank KPMT for letting me use the photos and well done Kent and Medway NHS trust for their 2nd award.

Happy Nurses day 2019 everyone.

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World Suicide Prevention Day 2018

wspd_candleWelcome everyone, This blog post is about World Suicide Prevention day.

World Suicide Prevention Day is held each year on 10 September. It’s an annual awareness raising event organised by International Association for Suicide Prevention (IASP) and the World Health Organisation (WHO).

World Suicide Prevention Day gives organizations, government agencies and individuals a chance to promote awareness about suicide, mental illnesses associated with suicide.

If you would like to see the video version of this blog post, please click on the video below.

This year the theme for World Suicide Prevention Day is “Working Together to Prevent Suicide.”

Although it is difficult news to share, More than 800,000 people take their lives each year across the world. In the UK, more than 6,000 people die by suicide a year.

  • Feeling hopelessness and that there is no point
  • Consumed by negative thoughts
  • Feeling unwanted by others
  • Thinking or feeling that you have no other choice
  • Assuming everyone would be better off without you

Suicide or those suffering from illnesses that can lead to suicide can affect more than the victim or person themselves. A death of a loved one can affect the family, friend or their carer. Unpaid carers can play an important role in providing support for someone suffering suicide thoughts.

What to do if you are suffering from suicide thoughts

  • Speak to some close you can trust.
  • Contact the Samaritans on freephone 116 123.
  • Contact your GP.
  • Call NHS 111 (England).
  • Contact your local crisis team.

What can you or others do to help raise awareness?

  • Raise awareness that suicide is preventable.
  • Improve education about suicide.
  • Spread information about suicide awareness.
  • Decrease stigmatization regarding suicide.

 

Mental Health Awareness week 2018

Welcome to a new blog from a mental health carer in South London. This video helps to raise awareness of mental health. Specifically mental health awareness week 2018.

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What on earth is mental health awareness week you say? I actually have done a few videos on the awareness event some years back, but let me refresh your mind.

As a note, I have also done a video version, press play to watch it.

Mental Health awareness week aims to raise awareness of mental health and mental illness or health needs. Mental illness can affect us all ranging from minor mental health problems to chronic mental health needs. Mental Health Awareness Week runs from 14th to the 20th May. For 2018 the theme is on stress. Research has shown that two thirds of us experience a mental health problem in our lifetimes

Without campaigns or events to raise awareness about stress and mental health, many people would fall victim to stress, which can actually get out of control. We all experience stress and minor levels can actually help us achieve what we are trying to do, but prolonged and high levels of stress can cause damage to our mental and physical health.

Sad man sitting head in hands on his bed in a bedroom at home

Stress can affect your mood, behaviour and body. Stress can cause any or a combination of the following.

  • Headaches
  • Sleep problems
  • Lack of focus
  • Social withdrawal
  • Feeling overwhelmed

Stress can also lead on to other mental health issues being

  • Anxiety
  • Sadness
  • Depression
  • Addiction problems in order to cope with stress
  • Eating issues

Sometimes what we need is to recognize when we are stressed and either stop or behaviour or seek help. Taking time out from stressful situations can do us a world of good, especially speaking to friends in the community.

So what have I done for MH Awareness week 2018? Not only did I promote awareness via this video, but I took part in a Curry & Chaat event over at Southwark carers. It is important not to forget those who try to protect and care for someone with mental health needs.

I hope this blog has been educational to you and hope you have a happy mental health awareness week 2018.

Self Harm Awareness 2018

siadAlthough Self Harm awareness day has just gone. I thought to do a quick post about mental health needs regarding self harm.

Self Harm awareness day 2018 is celebrated to bring awareness to self injury or self harm. Not all self-harmers are in need of help, but if harming gets out of control, there needs to be adequate care and safety for sufferers. Friends, family and the self-harmers carer can also be affected, especially psychologically.

Self Harm or self injury awareness day usually runs on the 1st of March each year. Raising awareness about self harm can also help educate the public and lessen the stigma affecting those who self harm.

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STELEO Art Exhibition

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Welcome, on this blog I talk about the art event that took place over at The Coffee Lovers Cafe’. The art exhibition was a joint work of the patients / service users of the STEP and LEO mental health team.

If you wish to see the video version please click the video below

A bit about The Coffee Lovers Cafe. The Coffee Lovers Cafe is a lovely Moroccan themed cafe situated in Lambeth, the staff are friendly and the prices are very reasonable. If you ever get the chance, it is worth dropping by for the lovely atmosphere.

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The art exhibition title ‘STELEO’ was hosted by Arts therapist Paula Moclair who provides art therapy at South London & Maudsley. As I arrived at the Cafe, Paula greeted me and showed me some of the works on display. I was glad to be in from the cold and the warmth of the cafe certainly made a difference. Plus there was lots of refreshments on offer.

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It was not long before some of the artists turned up to speak and present some of their work. First to chat about her work was Marian Saidik who produced the work “Hub of Roses”.

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Mariam mentioned that the work produced made her happy and felt the work’s aim was to be a gift to others. She started art at a very young age, but has interests in the environment, language and fitness. Mariam explained to me about the use of colours and the importance of expressing the art work.

Paula then spoke to me about her art, each of her art work had a theme and focus. The first work shown was titled “Lurly-Lurley”, which seems to express the use of words and the relation with her sister.

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Paula then spoke about three other pieces of work shown here. One showing the toliet and her cat focused on the patron saint of miracles. The other picture shown in blue was to do with Yoga and the last being about the experiences with her sister at a young age.

Soon I spoke to another artist who talked about the flower they made and how they liked flowers, plus the flower represents life

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The next service user spoke about the work she produced, which I noticed a visitor spoke kindly about. The visitor felt that the patterns from the work produced called out to him. When I asked the artist to explain more about her work, she mentioned how she enjoyed creating patterns.

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More artists arrived and spoke about how Paula helped them produce the work and how they appreciated the help. They felt that art was a positive force in their life and a good hobby. They was not too worried about their art work selling since they could always take it home later.

The artist also showed more of his work off his mobile phone.

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Near the end of the art exhibition we got to hear from the art therapist who explained the latest developments from the past year and how it was good to see people’s work framed. One of the artists also spoke about how good it was to see his art on show and how it overwhelmed him.

I also made a speech stating that I was proud to see the end results of all the hard work patients and staff from the LEO and STEP team had put in and I was happy to see the end results of the funding by the Mausley ‘Lets Smile’ charity.

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All in all, the event inviting, inspiring and it felt great to talk to friendly people. I hope more work can be produced for the next exhibition.