An exciting new research opportunity for Caribbean heritage dementia carers. Feyi Abraham a PhD student researcher at London Metropolitan University is looking for carers to share their experiences.
Please view the poster below or contact fer0077@my.londonmet.ac.uk for more details.
Welcome back to another blog post from carer activist Matthew McKenzie. I am involved in quite a few things to raise awareness of unpaid mental health carers. One of them is Carers Trusts Triangle of Care Framework.
Triangle of Care is a framework developed to improve collaboration between mental health services, service users (patients), and carers. It was created by the Carers Trust in the UK, focusing on involving carers (family members or friends who support individuals with mental health issues) in care and treatment decisions, while ensuring they receive the support and recognition they need.
We have many mental health trusts who are members of the Triangle of Care. One of them is Avon and Wiltshire Mental Health Partnership NHS Trust or AWP for short.
Avon and Wiltshire Mental Health Partnership NHS Trust (AWP) is the lead provider of healthcare for people with serious mental illness, learning disabilities and autism across Bath and North East Somerset (BaNES), Swindon and Wiltshire, and Bristol, North Somerset and South Gloucestershire.
With support from Laura Sheridan who leads on carers at Cygnet. We both attended and supported the event at the mental health partnership trust. I took the time to explore the wonderful area of Bristol. Everyone I met was welcoming and friendly.
AWP have taken up the challenge to implement the Triangle of care and listen to carers. One of the best ways to listen to carers is through engagement and celebration events.
So on Thursday 3rd of October Avon and Wiltshire Mental Health Partnership NHS Trust (AWP) ran their #LetsHearCarers event. The event was held over at Somerdale Pavilion, Keynsham.
The day started off with a welcome from Sarah Jones, Director of Nursing and Quality at AWP.
We then got to hear from Ayesha Ahmed-Mendoza on the Black2Nature campaign to enable minorty ethnic children to have better access to nature camps. Next I was impressed with the presentation from Elaine Bennett regarding experiences of deaf carers.
Then we had the panel of carers giving their experiences of involvement at the NHS trust. I personally feel involvement of carers shaping services is a powerful way of allowing carers to have their say.
After the break, we got to hear from Debbie Hustings who is the new Triangle of Care lead for Carers Trust. Debbie used to be the former NHS England carers lead for London and has a wealth of experience when it comes to unpaid carers. Debbie presented on carers rights as she presented with her carers hat on. Next there was a comedy session from Angie Betcher who is a comedian at Bristol university, she is also skilled as a poet as well as a comedy performer.
Next was Lunch and workshops to cater for the wellbeing of carers who attended.
Have lunch I was up to read out 2 poems. One of the poems you can see from Avon and Wiltshire Mental Health Partnership NHS Trust’s video of the carer event below.
After more performances and networking with carers, I headed home. I would like to thank Avon and Whiltshire for the excellent event they put on for the community. Everything was planned brilliantly and I did not hear any grumbling from carers. I look forward to more events in future.
Welcome to another deep dive into the pressing issues faced by unpaid carers, brought to you by Matthew McKenzie, a dedicated carer activist. In today’s discussion, we confront the grim reality of how poverty exacerbates the struggles of unpaid carers.
If you want to see the short video version of this blog post, watch below
These unsung heroes often sacrifice their personal well-being to look after loved ones. However, when poverty is added to the equation, the challenges they face multiply exponentially. Throughout this article, we will explore various dimensions of the caregiving crisis, touching upon financial hardships, mental and physical health issues, social isolation, generational poverty, and more. The goal is to raise awareness and advocate for targeted support systems that can alleviate these burdens.
Many unpaid carers find themselves in a predicament where they have to reduce their working hours or quit their jobs altogether to provide adequate care for their loved ones. This significant drop in income makes it difficult to meet everyday expenses, let alone the additional costs that caregiving entails, such as medical supplies and transportation.
It is troubling to note that many carers are unaware they might qualify for financial aid or benefits. This lack of awareness leaves them in a precarious financial situation, struggling to make ends meet.
Balancing caregiving responsibilities with financial insecurity takes a severe toll on mental health. Chronic stress, anxiety, and depression become constant companions for many unpaid carers. This emotional strain can lead to a devastating cycle of mental health issues that are hard to break.
Due to their all-consuming caregiving duties, many carers neglect their own physical health. They often face barriers to accessing healthcare, making it nearly impossible to afford basic medical services. This neglect further compounds their stress levels and deteriorates their overall well-being.
Imagine being on duty 24/7 with no opportunity for a break. The inability to afford respite care leads to inevitable burnout. This constant state of exhaustion further compromises the carer’s ability to provide quality care.
Poverty significantly limits social interactions for carers. The costs associated with transportation and social activities create barriers that are hard to overcome. Consequently, many carers find themselves socially isolated, worsening their emotional well-being.
The social isolation is often compounded by feelings of shame and stigma related to their financial situation. These feelings make it even harder for carers to seek help, exacerbating their sense of loneliness.
When resources are limited, carers struggle to provide the best possible care for their loved ones. This situation often leads to feelings of guilt and distress, knowing they cannot do more. The quality of care inevitably suffers, affecting both the carer and the care recipient.
Stress and burnout diminish the emotional availability needed for providing quality care. When carers are overwhelmed, they cannot offer the emotional support that is crucial for the well-being of their loved ones.
Generational poverty is another facet of this issue. Many carers look after older family members who have also faced financial hardships, creating a cycle of poverty. This intergenerational strain further depletes already limited resources, especially in households where young carers are involved.
Financial constraints and time demands make it incredibly challenging for carers to pursue education or training. Job flexibility is rarely an option, making it difficult for carers to find or keep employment. These barriers hinder their ability to break free from the cycle of poverty.
Emotionally, carers often carry a heavy burden of guilt and stress. Feeling inadequate or ashamed of their financial situation adds to a sense of hopelessness. The constant worry about bills, care, and personal needs can lead to overwhelming exhaustion.
Navigating the complex systems for financial aid and support is another layer of stress. The time and energy required to deal with bureaucratic hurdles can be overwhelming, adding yet another burden to the already strained carers.
Many carers face the grim prospect of poverty in their old age, having sacrificed their careers and savings to provide care. Chronic stress and poor health further reduce their life expectancy and quality of life.
Poverty significantly amplifies the struggles of unpaid carers. To improve their well-being, there is a pressing need for:
By shedding light on these critical issues, we can advocate for changes that will make a tangible difference in the lives of unpaid carers. Let’s work together to ensure that these unsung heroes get the support they desperately need.
Remember to take care of yourselves, and for more insightful discussions, please like, share, and subscribe. God bless.
Welcome to another blog post off my carer and mental health website.
Caring for a loved one is a profoundly rewarding experience, but it can also be an incredibly challenging journey. The role often comes with feelings of isolation and overwhelming responsibility.
Fortunately, networking with fellow caregivers can make a significant difference in the lives of unpaid carers. Connectivity fosters emotional support, practical advice, resource sharing, community building, resilience, and even advocacy. In this article, we’ll explore the importance of networking for unpaid carers and how it can enrich their caregiving journey.
Video Version
To watch a brief video of the blog please view the video below
One of the most significant benefits of networking is emotional support. Caring for a loved one can often feel isolating, and the weight of responsibilities can be heavy. Connecting with other caregivers who truly understand your experiences can lighten this emotional load. Sharing your stories, challenges, and triumphs with those who “get it” provides comfort and a sense of belonging. Knowing you are not alone in this journey can significantly improve mental health and resilience.
Networking allows carers to exchange invaluable tips and strategies. Each caregiving situation is unique, but many challenges are universal. Experienced carers can offer practical advice on managing specific conditions, navigating healthcare systems, or handling day-to-day tasks. This shared knowledge acts as a collective wisdom pool, making the caregiving process more manageable for everyone involved.
In addition to practical advice, networking facilitates the sharing of resources. Information about local services, support groups, and community resources can be invaluable. Imagine having a treasure map that leads you to various forms of support tailored for carers—this is what resource sharing can achieve. These exchanges can lead to discovering programs, grants, respite care options, and other services that ease the caregiving burden.
Establishing connections with other caregivers fosters a sense of community and belonging. In many ways, caregiving can be a lonely journey, but community building changes this narrative. Community groups provide a space where carers can interact and engage in meaningful conversations. For example, caregiver groups run locally can offer a support system where members can share experiences, support each other, and even socialize. Such communities act as pillars of strength for carers, reinforcing that they are part of a larger, caring network.
Resilience is a necessary trait for carers. The demands of caregiving require constant adaptation and emotional strength. By networking, carers can learn effective coping strategies from one another. These shared strategies can empower carers, building their resilience and enhancing their ability to provide care. Learning from others’ experiences offers new insights and techniques, reinforcing the carer’s own skills and capacities.
When caregivers come together, their collective voice becomes stronger. Networking can boost advocacy and awareness of the issues that matter most to carers. Advocacy can lead to policy changes, more resources, and greater recognition of the challenges faced by carers. Whether it’s campaigning for more support services or raising awareness about the realities of caregiving, a united front can make a substantial impact.
Together, caregivers can amplify their voices to influence change. Advocacy efforts become more effective when carers unite. These collective efforts can bring about policy changes, increased funding for caregiving resources, and greater public awareness of the importance of supporting unpaid carers. By networking and working together, carers can drive systemic changes that benefit the entire caregiving community.
Consider joining or forming caregiver support groups in your local community or online. These groups create a space for regular interactions, exchanges of advice, and mutual support. You might want to check out the carer forums I run off my website.
Workshops, seminars, and conferences are excellent opportunities to meet other carers and professionals in the field. These events often provide both educational content and networking opportunities.
Social media platforms can also serve as networking tools. Joining caregiver groups on platforms like Facebook or participating in Twitter chats can connect you with a broad community of caregivers worldwide.
Local nonprofits and organizations often have resources and networks specifically designed for carers. Engage with these entities to tap into their resources and support networks.
Online forums and communities, such as Reddit or specialized caregiving forums, allow for the exchange of advice, experiences, and support. These platforms can be especially beneficial for those who may not have access to local groups. I even utilise Whatsapp to provide a network for carers to connect.
Healthcare providers often have connections to support groups and resources for carers. Don’t hesitate to ask your loved one’s doctor or nurse for referrals to local or online caregiver networks.
Keep a list of contacts that you can reach out to for different types of support. This can include other carers, healthcare professionals, and service providers. A well-maintained list can be a quick reference for resources and advice when needed.
Networking for unpaid carers is more than just a beneficial activity—it’s a necessary lifeline. Emotional support, practical advice, resource sharing, community building, resilience, and advocacy are some of the many advantages that come from connecting with fellow carers. By fostering these connections, carers can significantly enrich their caregiving experience and improve their well-being and the quality of care they provide. Remember, you are not alone in this journey. Reach out, connect, and together, we can create a supportive and empowered caregiving community. Take care!
Welcome to another blog post on carer / caregiver awareness from carer activist Matthew McKenzie. To see the video of this blog post, watch below.
Caring for a loved one is often a rewarding experience filled with deep connection and personal satisfaction. However, it can also become overwhelming, exhausting, and challenging. Acknowledging that you need help is a crucial step in providing the best care for both your loved one and yourself. Here, we’ll explore 10 important signs that indicate it may be time to ask for help in your caregiving role.
Caregiving involves juggling numerous responsibilities, which can lead to constant stress and anxiety. If you often feel like you’re unable to cope, it’s a clear indication that you need support. Feeling overwhelmed is not a sign of weakness; it’s a human response to a heavy load. Remember, it’s perfectly okay to ask for help and share the burden.
The physical demands of caregiving can be immense. Lifting, moving, and assisting your loved one can take a toll on your body. If you find yourself frequently fatigued, or if you experience chronic pain or other health issues, it’s important to seek help. Ignoring these symptoms can lead to caregiver burnout, which ultimately benefits no one.
Caregiving can also be emotionally taxing. Signs of depression, irritability, or frequent mood swings may indicate that you need emotional support. Friends, family, or professional counselors can provide the necessary outlet for your feelings and help you manage the emotional strain that comes with caregiving.
Your loved one’s condition may worsen over time, increasing their care needs. When this happens, don’t hesitate to ask for assistance. Professional help can be crucial during periods of significant change, ensuring your loved one receives the best care possible while you adapt to new demands.
It can be easy to lose sight of your own health, relationships, and hobbies when you’re focused on caregiving. However, neglecting your personal needs can lead to serious health and emotional issues. Seeking help can give you the space to take care of yourself, restoring balance and allowing you to be a stronger caregiver.
Feeling lonely or disconnected is a common experience among caregivers. This isolation can exacerbate stress and make the caregiving role even more challenging. Reaching out for support, whether from family, friends, or caregiver support groups, can help you reconnect and remind you that you’re not alone in this journey.
In times of emergency or when faced with making tough decisions about your loved one’s care, seeking help is essential. Attempting to navigate these moments alone can be risky. Professional advice and support can provide the guidance you need to make the best possible decisions during a crisis.
Caregiving often involves tasks that require specific knowledge or skills, such as medical care or managing medications. If you encounter tasks you’re unsure how to handle, it’s crucial to seek guidance. Professional help can ensure that these tasks are performed correctly, safeguarding your loved one’s health.
Maintaining a consistent daily routine is vital for both you and your loved one. If you find that daily routines are regularly disrupted and you’re struggling to manage time, consider asking for assistance. A little help can go a long way in restoring structure and reducing stress.
Everyone needs a break occasionally. If you feel the need to take time for self-care or to recharge, don’t hesitate to ask for help. Whether this comes from family, friends, or respite care services, taking the time to rest is essential for maintaining your well-being and being an effective caregiver.
Recognizing and acting on these signs doesn’t mean you’re failing as a caregiver; it means you’re taking necessary steps to ensure the best care for your loved one and yourself. Asking for help is an act of strength and responsibility. Take the initiative today to reach out and seek the support you need in your caregiving journey.
Welcome back to another blog post from carer activist Matthew McKenzie. Did you know it is ADHD Awareness Month?
To watch the video of the blog, please view below.
Attention Deficit Hyperactivity Disorder (ADHD) affects millions of individuals worldwide, impacting not only those diagnosed but their families, friends, and caregivers. ADHD is characterized by symptoms of inattention, hyperactivity, and impulsiveness, which can significantly impair daily functioning in various spheres of life, including school, work, and relationships. Every October, ADHD Awareness Month is observed to shed light on this condition, promote understanding, and advocate for better support systems. The theme for 2024 is “Awareness is Key,” emphasizing the importance of knowledge in fostering support and empathy.
One of the most crucial steps in supporting someone with ADHD is to educate yourself about the condition. Understanding ADHD, its symptoms, and its challenges can foster empathy, patience, and a supportive attitude. Knowledge truly is power. The more you know about ADHD, the better equipped you are to provide the necessary support. This includes learning about common behaviors, the impact of ADHD in daily life, and effective management strategies.
Families, schools, and workplaces should prioritize awareness and education about ADHD. Regular training sessions, workshops, and informational resources can significantly improve how people understand and interact with those affected by ADHD. When communities are informed, they can collectively create more supportive environments.
Establishing routines and daily schedules offers predictability and stability for individuals with ADHD. Structure can provide a sense of security, helping to manage time more effectively and reduce feelings of overwhelm. Visual aids such as calendars, planners, or to-do lists can be extremely helpful in keeping track of tasks and responsibilities. These tools can serve as constant reminders and help individuals prioritize their actions.
Regular short breaks are crucial during tasks. These breaks allow individuals with ADHD to recharge and maintain their focus. It’s not about working less, but about finding a balance that promotes productivity and reduces fatigue. Identifying the optimal schedule for breaks can make a significant difference in performance and overall well-being.
When giving instructions to someone with ADHD, it’s important to be concise and specific. Using clear and simple language, avoiding unnecessary details, and breaking tasks into smaller, manageable steps can make a huge difference. This approach ensures that instructions are understood and followed more easily, leading to better outcomes.
Creating a calm and focused environment is paramount. Reducing noise, limiting visual distractions, and providing a quiet space can significantly improve the ability of individuals with ADHD to concentrate. Environmental modifications might include soundproofing a room, using noise-canceling headphones, or setting up a dedicated workspace that is free from interruptions.
Personal stories are incredibly powerful in understanding ADHD. Hearing from individuals with ADHD and their caregivers can provide valuable insights and foster empathy. These stories highlight the real-world challenges and successes of living with ADHD, offering practical advice and hope.
This ADHD Awareness Month, let’s commit to raising awareness and advocating for those with ADHD. Small actions, such as sharing information, participating in community events, and supporting advocacy groups, can lead to significant changes. Community engagement helps build a support system that is informed, compassionate, and proactive.
Supporting ongoing educational campaigns and providing resources can help spread awareness and understanding. Schools, workplaces, and community centers can play a pivotal role by organizing seminars, distributing literature, and facilitating support groups.
ADHD Awareness Month serves as a crucial period for promoting understanding and support for individuals with ADHD. By educating ourselves, creating structured and supportive environments, and listening to personal stories, we can become better allies. Let’s take this opportunity to make a positive impact. Awareness indeed is key—it opens doors to empathy, effective support, and advocacy.
If you found this content helpful, consider sharing it to spread awareness further. By working together, we can make a significant difference in the lives of those affected by ADHD.
Welcome back to another blog post by carer activist Matthew McKenzie. Since I run an ethnic carer group, I wanted to promote Black History Month. Black History Month is celebrated in both America and UK, although the UK promotes Black History month in October.
There are 2 themes for Black History month one being “African Americans and the Arts”, the other being “Reclaiming Narratives”. I decided to go for the first theme, but did a mention on how the UK celebrates Black History Month.
Here are the highlights of my video.
If you are interested to watch my video please via the view below.
Thanks for dropping by my carer blog site. For those interested I am doing a Black History Month event with Carers UK. This will take place October 16th at 4 pm via zoom
The Link to sign up is below.
https://us02web.zoom.us/meeting/register/tZYtcOCtrD8tHNH8VQpLitUXVy2lGGRY6Omq#/registration
When caring for someone, it is only a matter of time before you use the NHS. The National Health Service was set up to provide health no matter what your background. We all deserve the best healthcare provided for us.
Times have changed and feedback regarding the NHS is very important. This is especially important if you are an unpaid carer. You will have a different perspective when it comes to hold the NHS to account.
I have made a short video on ways to hold the NHS to account. It is not about always complaining, it is about helping to steer the NHS to include the carer’s voice.
We are all in this together although I do understand that there will be times you cannot feedback. The NHS is a massive complex set of systems, but we have a duty to be vocal because we deserve the best. Be that change and use your voice. As a carer it is your right.
As a carer of lived experience, I have always found it important to seek information to help my caring role. My caring duties are not so heavy now, but there is expectation to share knowledge.
I helped and supported a dear old friend living with cancer and since it is Breast Cancer Awareness month. I want to support those caring for someone with Breast cancer.
October is Breast Cancer Awareness month and being part of the Macmillan Cancer Support network, I want to raise awareness.
Obviously my focus is on cancer caregivers and I have included the video below to provide “Top 10 tips for supporting someone with Breast Cancer”.
Welcome back caregivers. I have some exciting research involvement for you.
Melika who is a PhD student at Northeastern University London & University of Kent. Is currently conducting a study on AI-facilitated emotion regulation, which focuses on co-designing AI prompts with input from clinicians, developers, and support community (caregivers).
click on the posters below for more details about the study
A Caring Mind 