On a brisk November afternoon, unpaid mental health carers across Greenwich gathered once again, not just to share experiences, but to seek answers, influence services, and strengthen community. Facilitated by long-time carer advocate Matthew McKenzie, the forum brought together carers, relatives, professionals, and two guest speakers from Oxleas NHS Foundation Trust.
As I explained when opening the meeting, the purpose of the forum is twofold connection and influence:
November’s session featured two speakers:
✅ Speaker 1 — Lorraine Regan
Director for Community Mental Health, Learning Disabilities & Autism, Oxleas NHS Foundation Trust
✅ Speaker 2 — Janice Williamson
Carer Involvement Lead, Oxleas NHS Foundation Trust
Both provided insight into service pressures, carer involvement, policy development, training, assessments, and support improvements happening across the trust.
Speaker Introduction — Lorraine Regan
Lorraine opened by introducing her background and role:
Why Unpaid Carers Should Connect with Other Carers
Unpaid carers play an essential role in society, often providing support to loved ones with long-term illnesses, both physical and mental. However, the journey of caregiving can be challenging and isolating, making it crucial for carers to connect with others in similar roles. Establishing these connections can provide numerous benefits, including emotional support, practical advice, and a sense of community. In this blog by Matthew McKenzie, we will explore the reasons why unpaid carers should connect with other carers, structured around several key areas: emotional support, reducing isolation, accessing resources, practical advice, and mutual support for self-care.
If you want to watch the 20 minute in depth lecture, the click the video below.
Welcome to another blog post from Matthew McKenzie (who runs the London Cancer carer group) advocating for cervical cancer awareness, prevention, and support in 2025. In this blog you can learn about screenings, HPV vaccinations, and the crucial role of caregivers in the fight against cervical cancer.
To watch the 3 minute Cervical Cancer Awareness Month 2025 video, please click below.
Welcome to another blog post by Carer Activist Matthew McKenzie. This blog and video is from my lived experience caring for a close relative and also supporting my brothers.
To watch the video lecture, please click below.
The holiday season is a time filled with joy, celebration, and connection. However, for unpaid carers, it can also be a period laden with stress, isolation, and heightened responsibilities.
Welcome to another blog by Matthew McKenzie Carer activist. As a lived experienced member of the Race Equality Foundation. I am proud to present an exciting project that seeks to address the inequalities in health.
The London Anti-Racism Collaboration for Health (LARCH) have launched a new tool to help health and care organisations tackle systemic racial health inequalities.
The Race Equity Maturity Index (REMI) is the first framework of its kind, allowing organisations to track, measure and enhance their anti-racist activities using an evidence-based approach.
The REMI was designed with people and communities from across London, reflecting the diversity of both London’s population and its health and care workforce.
The REMI is intended to help all the parts of the health and care ecosystem meaningfully address the inequalities faced by Black, Asian and minoritised ethnic Londoners, which include:
Using the REMI, organisations can self-assess their progress in tackling these inequalities. The tool uses measurable indicators to categorise organisations into one of six stages of racial maturity, with clear pathways for progression between each stage.
Tackling Cancer Health Inequalities in Patients with Serious Mental Illness
Addressing health disparities, especially for patients with serious mental illness (SMI), is crucial in improving cancer treatment outcomes. This post by Matthew Mckenzie who facilitates the National cancer carer forum explores the multifaceted challenges faced by this vulnerable group and the necessary steps to tackle these inequalities.
To watch the video regarding Cancer and Serious Mental Illness, please click below.
Before continuing with the post, South East London Cancer Alliance. have just released their Cancer And Serious Mental Illness Information Resource. These have been co-created by SELCA, South London & Maudsley and the HIN, while working closely with people with lived experience of cancer and serious mental illnesses. You can visit and see the resources here: https://www.selca.nhs.uk/patients-and-carers/cancer-and-serious-mental-illness
The following sections might be of particular interest as they focus on cancer risks and screening.
Welcome back to another Carer Champion interview. Carers play an essential role in our society, often operating behind the scenes and without pay. In this interview, we meet Maz, a volunteer with Carers UK, who sheds light on the nature of unpaid care work, the challenges carers face, and the significant support networks available for them. Let’s dive into her invaluable insights.
To watch the video, please click play on the video below.
The Hidden Army of Carers
Maz describes unpaid carers as a “hidden army” that tirelessly provides care for loved ones, often without much recognition or support. Unlike professional care workers who are trained and compensated for their services, unpaid carers usually step into the role out of necessity and affection for those they care for. Maz herself is an example of a “sandwich carer,” a term used for someone who cares for both their elderly parents and their adult children.
Living with Parkinson’s disease is undeniably challenging, not just for those diagnosed but also for those who support them. During a recent panel discussion from Parkinsons UK, experience of care experts including Matthew McKenzie and volunteers shared their insights and experiences on managing these challenges, offering valuable advice for fellow caregivers. The discussion highlighted key aspects of being on the supporters journey, from communicating diagnoses to seeking support and handling medication concerns. Here, we summarize the essential points covered during the session for a comprehensive guide.
Parkinson’s UK is a leading charity dedicated to improving the lives of people affected by Parkinson’s disease in the United Kingdom. Established in 1969, the organization provides vital support, information, and resources to individuals living with the condition, as well as their families and caregivers. Parkinson’s UK also funds groundbreaking research aimed at finding better treatments and ultimately a cure for the disease.
Parkinson’s UK held a Panel interview to highlight and educate those who are new to the caring role and want to find out more about supporting someone with Parkinsons. Below is a small summary of the panel interview, although if you want to watch the Panel discussion, please click on the video below.
As someone who has lived experience of caring for a close relative who lived with Diabetes, I took it upon myself to raise awareness on World Diabetes day 2024. This blog and video is by carer activist Matthew McKenzie, also volunteer for Carers UK and part of the London Cancer community of Macmillan Cancer Support.
If you wish to watch my short video to learn about the global campaign on World Diabetes Day. See Below.
In this blog post, you can learn about the global campaign on World Diabetes Day to increase awareness, educate on symptoms, promote prevention, and support research for better treatments and a cure. Plus find ways to get involved in activities and initiatives to aid diabetes prevention and management.
Raising Awareness: World Diabetes Day 2024
World Diabetes Day, observed annually on November 14th, serves as a global awareness campaign aimed at increasing understanding of diabetes and the issues faced by those affected by the condition. This significant day was established in 1991 by the International Diabetes Federation and the World Health Organization in response to the growing health threat posed by diabetes. The goals of World Diabetes Day are multifaceted, focusing on awareness, education, prevention, access to treatment, advocacy, and support for research. Let’s delve deeper into these critical aspects to understand the importance of this day and how you can contribute.
Understanding the Goals of World Diabetes Day
Increase Awareness
One of the primary objectives of World Diabetes Day is to increase awareness about diabetes. This involves educating the general public about the condition, its symptoms, prevention methods, and the importance of early diagnosis. Raising awareness helps in demystifying diabetes, reducing stigma, and promoting a collective effort towards a common cause.
Educate on Symptoms and Prevention
Knowledge is power, especially when it comes to managing health conditions like diabetes. World Diabetes Day strives to educate people on the symptoms of diabetes, which can often go unnoticed until they become severe. By promoting awareness of these symptoms, individuals can seek medical advice sooner, leading to early diagnosis and better management.
Prevention is equally important, particularly for type 2 diabetes. The campaign emphasizes lifestyle changes, such as maintaining a balanced diet, regular exercise, and stress management, which can significantly reduce the risk of developing type 2 diabetes.
Importance of Early Diagnosis
Early diagnosis of diabetes is crucial for preventing complications and managing the condition effectively. World Diabetes Day campaigns stress the importance of regular health check-ups and monitoring of blood sugar levels. Early detection allows for timely intervention, which can prevent or delay complications such as cardiovascular disease, nerve damage, and kidney issues.
Improve Access to Treatment
Affordable and quality care for all people with diabetes is a cornerstone goal of World Diabetes Day. This involves advocating for better healthcare policies and increased funding for diabetes care, ensuring that individuals, regardless of their economic status, have access to necessary treatments and medications.
Advocate for Affordable and Quality Care
World Diabetes Day also emphasizes the need for policy changes at both local and global levels. Advocacy efforts aim to influence healthcare policies to ensure that diabetes care is affordable and of high quality. This includes pushing for the availability of essential medications, including insulin, and ensuring that healthcare systems can support people living with diabetes.
Promote Prevention
Preventing diabetes, especially type 2, is a significant focus of World Diabetes Day activities. By encouraging a healthier lifestyle that includes a balanced diet, regular physical activity, and stress management, the campaign aims to reduce the incidence of diabetes globally. Public health initiatives and community programs play a crucial role in promoting these lifestyle changes.
Support Research
Supporting research is vital for the advancement of diabetes treatment and technology, and ultimately, finding a cure. World Diabetes Day encourages individuals and organizations to donate to or volunteer for research initiatives. Continued research not only aids in the development of new treatments but also enhances the understanding of diabetes, leading to better management strategies.
Encourage Advancements in Technology
Technological advancements in diabetes treatment have been revolutionary, from insulin pumps to continuous glucose monitoring systems. World Diabetes Day promotes the adoption and development of such technologies, aiming to improve the quality of life for those living with diabetes. These advancements can make management easier and more efficient, allowing for better control over the condition.
Foster Community Support
Community support is integral to managing diabetes. World Diabetes Day activities often include educational workshops, health screenings, campaigns, and fundraising initiatives. These efforts create a sense of community, providing resources and support to those affected by diabetes and their families.
Types of Activities on World Diabetes Day
Educational Events, Workshops, and Seminars
Educational events such as workshops and seminars are a staple of World Diabetes Day. These events are designed to inform people about diabetes management and prevention strategies. Health professionals often lead these sessions, providing valuable insights and answering questions from the community.
Health Screenings
Health screenings are another crucial activity associated with World Diabetes Day. Community centers, clinics, and organizations frequently offer free blood sugar testing and counseling. These screenings can help identify individuals at risk, providing them with necessary information and guidance on managing their health.
Campaigns and Fundraising Initiatives
Campaigns and fundraising initiatives are essential for supporting diabetes research and providing resources for those affected by the condition. These initiatives can range from community walks and runs to social media campaigns and donation drives. The funds raised play a significant role in advancing diabetes research and supporting public health programs.
Lighting Landmarks Blue
The blue circle is the global symbol for diabetes awareness. On World Diabetes Day, landmarks around the world are often illuminated in blue to show support for diabetes awareness. This visual representation serves as a powerful reminder of the global effort to combat diabetes and show solidarity with those affected by the condition.
How to Participate in World Diabetes Day
Spread Awareness
One of the simplest yet most impactful ways to participate in World Diabetes Day is to spread awareness. Use social media platforms to share facts, resources, and personal stories related to diabetes. Engaging in conversations online can help reach a broader audience and inspire action.
Organize or Attend Events
Participating in or organizing local or virtual diabetes awareness events is another excellent way to contribute. These events can range from educational workshops to community health fairs and fundraising activities. By engaging in these events, you can help spread important information and support those affected by diabetes.
Support a Healthier Lifestyle
Taking steps toward a healthier lifestyle is a proactive way to honor World Diabetes Day. This includes eating a balanced diet, incorporating regular exercise into your routine, and managing stress effectively. By making these positive changes, you not only reduce your own risk of developing type 2 diabetes but also set an example for others in your community.
Support Research Organizations
Supporting organizations dedicated to diabetes research is another meaningful way to participate. This can be done through donations or volunteering your time. These organizations play a crucial role in advancing our understanding of diabetes and developing new treatments and, eventually, a cure.
Conclusion
World Diabetes Day is an essential global campaign that addresses the growing health threat posed by diabetes. By increasing awareness, educating the public, promoting prevention, improving access to treatment, and supporting research, World Diabetes Day aims to make a significant impact on the lives of those affected by diabetes. Your participation can make a difference, whether through spreading awareness, attending events, adopting healthier lifestyle choices, or supporting research initiatives. Together, we can work towards a world where diabetes is managed effectively and, ultimately, prevented.
Welcome to another blog post from Carer activist Matthew McKenzie. THis is a blog post I always wanted to do, since for many years I been running carer groups. If you want to watch the in-depth version regarding carer peer groups, you can watch the hour long video below.
In this blog post, you can explore the diverse landscape of caregiver peer support groups, focusing on building resilience, skill-sharing, and overcoming stigma. You can also discover how these groups provide a safe space for growth, learning, and healing through shared experiences.
Understanding Carer Peer Groups
Carer peer groups are an essential, yet often misunderstood aspect of caregiving. Despite their complexities, they offer a lifeline to many caregivers, providing much-needed support, understanding, and personal growth opportunities. These groups are not just spaces for venting or sharing the challenges of caregiving; they serve a multitude of functions aimed at enhancing the lives of caregivers.
What Are Carer Peer Groups?
At their core, carer peer groups are a collection of individuals, typically caregivers, who share common characteristics and experiences. They come together with specific interests, interact in ways that foster support, understanding, and personal growth. These groups are more than just social gatherings; they are structured environments where caregivers can develop resilience, accountability, and coping skills.
The Importance of Emotional Support
Building Emotional Resilience
One of the primary functions of care peer groups is providing emotional support. Caring for a loved one can be isolating and emotionally draining. Groups focused on emotional support aim to reduce this isolation and help caregivers build coping skills. These groups facilitate a space where caregivers can explore their emotions, such as trauma, anxiety, isolation, depression, and anger. By doing so, they help mitigate the risks of developing mental health issues.
Encouraging Personal Growth
Emotional support groups go beyond mere conversation. They encourage self-discovery and growth, helping caregivers reduce the stigma associated with their role. These groups work to build a sense of community, providing a platform for storytelling and healing. The goal is to turn emotional struggles into opportunities for growth and resilience.
Mutual Aid and Resource Sharing
Collaborative Problem Solving
Another critical type of carer peer group is the mutual aid carer group. These groups are all about collective action and shared responsibility. Caregivers come together to offer advice, support, and understanding based on their shared experiences. They advocate for social change and share resources, knowledge, and skills to better manage their caregiving duties.
Developing Lifelong Skills
Resource-sharing carer groups focus on maximizing the use of resources and skills among caregivers. These groups encourage practical support, such as helping with everyday tasks, and foster a culture of giving and gratitude. By doing so, they help create strong, supportive networks that caregivers can rely on.
The Role of Accountability
Creating a Culture of Accountability
Accountability is a crucial element in many carer peer groups. These groups ensure that caregivers remain motivated and responsible in pursuing their personal and professional goals. They offer consistent check-ins and progress reviews, helping caregivers stay focused and committed.
Encouraging Empathy and Understanding
Accountability groups also emphasize the importance of empathy and understanding. By fostering a non-judgmental environment, these groups help caregivers build compassionate connections and develop deep listening skills. This creates a supportive space where caregivers can feel safe expressing their thoughts and feelings.
Promoting Empathy and Safe Spaces
Safe and Non-Judgmental Environments
Creating a safe, non-judgmental space for caregivers is essential. These groups provide an environment where individuals can freely express themselves without fear of criticism or harm. The focus is on healing and recovery, reducing isolation, and promoting self-compassion.
Enhancing Communication Skills
Such groups put a high priority on confidentiality and empathy, which are vital for building trust among members. They work to improve communication and interpersonal skills, helping caregivers better navigate their caregiving roles and manage conflict within their relationships.
Empowering Caregivers
Building Confidence and Resilience
Caregiver empowerment groups focus on fostering a sense of control and belonging among caregivers. They promote resilience and encourage caregivers to overcome obstacles. These groups help build strong social networks and challenge social norms, providing tools and resources for skill development.
Encouraging Personal Development
These groups often serve as networks of encouragement, where members motivate each other to achieve their goals. They focus on building confidence, self-belief, and resilience through peer mentorship and role modeling. This helps caregivers take on leadership roles and further their personal development.
Specialized Carer Groups
Alternative Therapy and Recovery
Some carer peer groups focus on alternative therapies, providing non-professional and voluntary alternatives to traditional therapy. These groups might use methods such as art therapy, mindfulness practices, or peer coaching. They aim to enhance communication skills and offer a space for healing through creative expression.
Problem Solving and Growth
Problem-solving care groups help caregivers brainstorm solutions to common challenges using shared experiences. They encourage critical thinking and offer emotional and motivational support. These groups also focus on resilience building, helping caregivers develop emotional agility and self-awareness.
Conclusion
Carer peer groups play a vital role in supporting caregivers. They offer emotional support, facilitate resource sharing, promote accountability, create safe spaces, empower individuals, and provide specialized support. These groups are complex and require significant effort to establish and maintain. However, their benefits far outweigh the challenges. By participating in care peer groups, caregivers can find the support, understanding, and personal growth they need to continue their vital roles.
Despite their complexities, carer peer groups are essential in fostering a supportive environment for caregivers. They provide the tools and resources necessary for caregivers to thrive, ultimately enhancing the overall quality of care provided to their loved ones. As the demand for caregiving continues to grow, the importance of these groups cannot be overstated.
A Caring Mind 