When you spend much of your time looking after someone else, it can be difficult to make space for your own health and wellbeing. Opportunities to access support, meet others and take a little time for yourself can make a difference.
I’m pleased to share an upcoming event from Carers Support West Sussex, bringing together NHS and local wellbeing services in a welcoming community setting.
Health Matters: Promoting Health Equality takes place in Worthing on Wednesday 2 December 2026. The event is open to all unpaid carers, with a particular welcome for people from African, Caribbean, Global Majority and other communities currently less well represented at health-related events.
When and where
Date: Wednesday 2 December 2026 Time: 10am–3pm Venue: AudioActive Worthing, 85–87 Montague Street, Worthing, West Sussex, BN11 3BN Cost: Free
What’s happening?
Visitors will have the opportunity to:
Access free NHS health checks and screening information.
Meet local health professionals and community organisations.
Find out about health, wellbeing and community support.
Take part in a creative wellbeing workshop.
Enjoy free refreshments and receive a wellbeing bag to take home.
Award-winning poet, writer and spoken word artist Akila Richards will lead the creative wellbeing workshop, focusing on rest, reflection and self-care.
No artistic experience is needed. It is an opportunity to get involved in creative activities and conversation, unwind and connect with others.
As someone who uses poetry to bring carers together, I’m particularly pleased to see creativity included alongside practical health information and support.
Why this matters for carers
Carers’ health deserves attention in its own right. Caring responsibilities can leave little time to arrange appointments, seek advice or recognise when our own wellbeing needs support.
People may also face barriers connected with language, cultural understanding or knowing where to turn. This event aims to reach people who may be missing out on health and wellbeing opportunities and help them connect with local services.
You may not use the word “carer” to describe yourself. You might simply see yourself as a relative, partner or friend supporting someone who needs help. Your wellbeing matters too.
Register and drop in
The organisers encourage advance registration so they can provide health check updates and hear about any dietary or interpreter requirements. Once registered, you can drop in at any time between 10am and 3pm.
As International Stress Awareness Week 2026 draws to a close, I want to highlight the pressures carried by unpaid carers and why their wellbeing must remain part of the conversation throughout the year.
Supporting a relative or friend can mean balancing appointments, employment, financial worries and disrupted sleep. Even during a quiet moment, a carer’s mind may still be on duty, thinking about what might happen next.
In my latest Caring Mind video, I explore these pressures and share some practical ways carers can find support.
Recognising the person behind the caring role
Carers need opportunities to speak honestly about stress without feeling guilty or judged. For some ethnic minority carers, racism, language barriers and having their concerns dismissed can add further pressure.
Taking a short break, enjoying poetry or music, or talking with someone supportive may help. Asking for specific practical assistance such as shopping or help with a caring task can also make space to rest.
However, reducing carer stress requires more than individual coping strategies. Reliable services, understanding employers, accessible information and meaningful involvement in care decisions all matter.
Please watch and share the video, and take a moment to ask an unpaid carer how they are coping. Listen to the answer, and consider what help you could offer.
The awareness week may be ending, but our responsibility to support unpaid carers continues.
By Matthew McKenzie BEM FRSA – Unpaid Carer, Author, Poet and Mental Health Carer Advocate
Introduction – Bringing Mental Health Nurses, Carers and Lived Experience Together
On Monday 2 November 2026, I had the pleasure of attending and contributing to the Royal College of Nursing (RCN) Psychosocial Interventions (PSI) Alumni Conference.
The conference brought together mental health nurses, PSI course alumni, educators, researchers, facilitators, people with lived experience and unpaid carers from different parts of the country.
For me, it was another valuable opportunity to contribute the experiences of unpaid carers and families to the development of mental health nursing.
Having spent many years supporting my mother through her experiences of schizophrenia, alongside my responsibilities involving my two autistic brothers, I understand how important compassionate, skilled and knowledgeable mental health professionals can be to families.
I was particularly pleased to participate in the conference’s lived-experience co-production panel, where we explored how working relationships develop between professionals, patients and carers, and why meaningful involvement must extend beyond simply inviting people to share their stories.
Throughout the day, I was reminded that mental health nursing is not only about clinical interventions, assessments or medication. It is also about understanding the person, their relationships, their cultural background and the people supporting them outside services.
Understanding Psychosocial Interventions and Their Importance
Psychosocial interventions provide mental health nurses with approaches and skills to understand and support people experiencing mental health difficulties.
These approaches encourage practitioners to think beyond symptoms and diagnoses, considering the psychological, social, emotional and environmental circumstances affecting an individual’s wellbeing.
The RCN PSI programme is a nine-month professional development course designed to strengthen registered mental health nurses’ therapeutic skills and evidence-informed practice.
An important message throughout the conference was that nurses should have the confidence and skills to develop therapeutic relationships, recognise trauma, engage families and help individuals participate in decisions about their care.
This particularly interests me as a carer advocate.
Families may spend years supporting someone through periods of crisis, admission, discharge and recovery. Yet their knowledge and observations are not always fully recognised within services.
PSI offers an opportunity to strengthen that relationship between the person receiving care, their family and the professionals supporting them.
I was encouraged by the number of nurses attending who were passionate about improving their practice and sharing what they had learned with colleagues.
Opening Reflections – Listening to Lived Experience
The opening session placed lived experience at the centre of the conference.
Hannah Cadogan reflected on her involvement in lived-experience work and the importance of psychosocial approaches in understanding experiences that people may struggle to communicate.
She discussed a collaborative quilt created through the involvement of patients, staff and carers associated with Castle Hospital.
The quilt provided a powerful example of how creativity can bring different people together.
It also demonstrated that people do not always communicate their experiences through conversation alone. Sometimes art, creative expression and shared activities provide different opportunities for people to explain what they are feeling.
This particularly resonated with my own interests in poetry and creative wellbeing.
Through the poetry groups I facilitate for unpaid carers, I have seen how creative expression can help people communicate emotions that may otherwise remain hidden.
Another opening contribution came from Sinead, a bereaved parent who spoke movingly about her daughter and the importance of services understanding the different aspects of a person’s life.
She highlighted the value of bringing together families, communities and professionals who each hold different knowledge about an individual.
Her contribution was a reminder that no single professional, service or family member necessarily understands every aspect of someone’s experiences.
It is through listening and collaboration that a fuller picture can emerge.
For me, this reinforced the importance of meaningful co-production and involving families before difficulties escalate.
Learning From a Personal Recovery Journey
Ashley Knight, a PSI alumnus, shared the experiences of patient whose journey involved neurocysticercosis, neurological complications and a period of severe psychosis that resulted in psychiatric hospital treatment.
The presentation explored how physical and mental health problems can overlap, and why assumptions about someone’s condition can have serious consequences.
What particularly interested me was Lowri’s reflections on what had helped her recovery.
She valued professionals who made time to sit with her, listened to her concerns and recognised who she had been before becoming unwell.
She also highlighted the importance of honest communication, avoiding premature conclusions and including her family in discussions, particularly when she was unable to participate fully herself.
This was a significant learning point.
Sometimes carers and families are given limited information or find themselves excluded from discussions, even when they have been supporting someone for many years.
While confidentiality remains important, services must also consider how they can communicate effectively and appropriately with families.
Listening, compassion and taking time to understand someone’s circumstances should never be underestimated.
My Contribution to the Lived-Experience Co-production Panel
One of the most meaningful parts of the conference for me was participating in the co-production panel alongside other lived-experience contributors, including Simon and Antonia, with Catherine helping guide the discussion.
The panel explored how partnerships develop, what builds trust and how involvement contributes to both personal and professional growth.
I spoke from my experiences of being an unpaid carer and from my wider involvement in mental health carer forums, service development and training.
For many years, I have witnessed the pressures experienced by families supporting relatives with complex mental health needs.
I have also recognised the considerable pressures experienced by mental health nurses, particularly during periods of increasing service demand and limited resources.
My message was that carers and professionals need opportunities to learn from one another.
Nurses bring clinical expertise, therapeutic skills and professional knowledge.
Carers bring observations and experiences gained from supporting relatives in everyday life, often over many years.
Both forms of knowledge are important.
Building trust through involvement
During the panel, we discussed the importance of developing relationships beyond traditional professional boundaries.
Trust cannot simply be expected because someone holds a professional role.
It develops when people are listened to, treated with respect and given opportunities to contribute.
For carers, this may mean being invited into discussions about care planning, participating in service improvement or contributing to the training of mental health professionals.
I explained that being involved in organisations and learning from professionals has contributed greatly to my own understanding of mental health services.
I am continually learning about the challenges nurses face, the approaches they use and the developments taking place within mental health care.
In turn, I try to share that knowledge with other families and unpaid carers through my forums, presentations, blogs and wider advocacy work.
Supporting professional growth through shared learning
Another question explored how involvement had supported recovery or professional growth.
I reflected on the value of learning from others and being part of organisations that are helping shape mental health services.
Although my experiences as a carer have involved considerable challenges, they have also given me opportunities to contribute to training, service development and national discussions.
I believe that meaningful involvement can encourage other carers to recognise that their experiences are valuable.
When people with lived experience see others contributing to conferences, workshops and professional education, it can demonstrate that their voices matter.
This should not be about providing a personal story and then being forgotten.
It should be about developing continuing partnerships in which carers and people with lived experience can influence how services operate.
What Makes Co-production Successful?
An audience member asked the panel for advice about establishing groups and encouraging people to participate.
This was a question I found particularly interesting because I facilitate several mental health carer forums and understand the difficulties involved in building participation.
I explained that it is important to listen to carers who are passionate about change and encourage those who wish to work constructively with others.
People often come to forums carrying years of frustration or disappointment about services.
Their experiences should be recognised, but there must also be opportunities to turn concerns into learning and practical improvements.
I also reflected on the importance of persistence.
A group may begin with only a handful of participants. Over time, as people hear about the work being undertaken and begin to see its value, further involvement can develop.
Other panel members highlighted the importance of psychological safety, recognising people’s vulnerability and ensuring that nobody’s contribution is treated as less important than another’s.
There was also an important reminder that success should not simply be measured by attendance numbers.
A small group of committed participants can still make a meaningful difference.
Another valuable suggestion was to involve carers or people with lived experience as co-facilitators rather than expecting one professional to lead every aspect of a group alone.
For me, this reflects the fundamental principle of co-production.
Co-production is not simply asking people for their opinions. It is about sharing responsibility, recognising different forms of expertise and working together towards meaningful change.
Networking With Mental Health Nurses and Sharing Carer Resources
Following the panel, I had opportunities to speak individually with several conference participants.
One particularly valuable conversation was with Hazel, a mental health nurse and PSI facilitator involved in teaching about working with families.
We discussed how her educational work had developed through contributions from parents and carers.
Rather than limiting participation to personal testimonies, she described how carers had helped design learning activities, provide feedback to students and contribute to reviewing the teaching module.
I was particularly encouraged by this approach.
I explained that one of the next stages of meaningful involvement should be enabling carers to contribute not only their stories but also to teaching, evaluating learning and shaping how courses develop.
This gives carers a stronger role in professional education.
Moving beyond telling a story
Sharing lived experience can be powerful, but there is a risk that organisations become too dependent on asking carers to repeatedly describe difficult experiences.
I believe there are further opportunities for carers to contribute through:
Co-designing learning materials and training sessions.
Participating in role-play and simulated assessments.
Giving structured feedback to professionals.
Reviewing educational programmes and service developments.
Supporting evaluation and identifying areas for improvement.
Our conversation reinforced how valuable this approach can be.
I also shared information about my Caring Mind Blog, my books, poetry and videos, including my work on the Patient and Carer Race Equality Framework (PCREF).
We discussed my recent involvement in the Sussex PSI event and how blogging can help promote good practice, share learning and encourage other organisations to become involved.
It was encouraging to hear about further conference activity being developed and the possibility of continuing these conversations.
From Voice to Impact – Addressing Inequality in PSI Training
One of the workshops I attended was titled From Voice to Impact, facilitated by Cheryl Mbando and colleagues.
This session explored representation and the barriers affecting participation in PSI professional development, particularly among nurses from Black and minority ethnic and Global Majority backgrounds.
The discussion was particularly relevant to my work around PCREF and tackling racial inequalities in mental health services.
The workshop explored why some groups of staff may have fewer opportunities to participate in professional development, despite the value that training can bring to both staff and patients.
Participants discussed several potential barriers, including limited awareness of courses, unequal access to training opportunities, lack of support from managers, staffing pressures, unclear information about benefits and insufficient representation in senior or mentoring roles.
It was interesting to hear participants share how some had discovered PSI training almost by chance, rather than through a consistent process of encouraging professional development.
The workshop also explored how organisational cultures and assumptions can influence who is supported to undertake additional training.
Moving towards practical solutions
Rather than simply identifying barriers, participants were encouraged to consider what individuals, teams and organisations could do differently.
Suggestions included clearer communication about training opportunities, better support for staff undertaking courses, stronger leadership commitment and sharing learning across teams.
Another important suggestion was embedding PSI knowledge and competencies into organisational structures, rather than treating the training as an isolated opportunity.
I was particularly interested in the discussion about representation.
When organisations want to improve culturally responsive mental health services, they must also consider whether development opportunities are accessible and equitable for the workforce.
A diverse workforce needs equitable opportunities to progress, develop and influence professional practice.
There is also an important connection with PCREF.
Improving racial equity in mental health care requires attention not only to the experiences of patients and carers, but also to how staff are supported, trained and valued.
What Does the PSI Evaluation Tell Us?
Another significant session focused on an independent evaluation of the RCN PSI programme.
The presentation explored how the course had influenced nurses’ confidence, professional identity, attitudes towards evidence-based practice and experiences of learning.
The evaluation included survey responses from 82 participants, alongside a smaller number of qualitative interviews.
The findings presented were encouraging.
Participants reported high levels of satisfaction with their learning and confidence in the skills developed through the course.
The evaluation also identified an important relationship between openness to evidence-based practice and reported confidence.
Qualitative feedback suggested that the course helped some nurses reconnect with their professional identity and reminded them of the value of therapeutic relationships and psychologically informed care.
However, the presentation also highlighted limitations.
The findings relied partly on self-reported experiences and did not establish long-term improvements in patient outcomes.
Participants also raised concerns about whether newly developed skills could be sustained without appropriate organisational support.
This is an important distinction.
Training can strengthen knowledge and confidence, but professionals also need opportunities to apply what they have learned.
From a carer’s perspective, I would welcome future evaluation that also explores what patients and families notice when nurses receive PSI training.
Are families more involved?
Do carers feel listened to?
Are patients better supported to understand their treatment and recovery?
Do services provide more opportunities for therapeutic conversations?
These are some of the questions I believe would help demonstrate the wider impact of PSI.
Making Psychosocial Interventions Sustainable
Further conference discussions examined how PSI could become embedded within everyday mental health services.
Participants explored the responsibilities of individual professionals, clinical teams and organisations.
Examples from Berkshire Healthcare demonstrated approaches to integrating PSI skills into clinical pathways, supervision, mentoring, competencies and staff development.
There was particular discussion about supporting nurses to maintain their skills after completing training.
This included protected time, opportunities to practise therapeutic approaches, clinical supervision and support from senior leaders.
Participants also discussed the value of tailoring training to different services, including inpatient wards, crisis teams and community mental health settings.
I found this particularly important.
The pressures experienced by a nurse working on an inpatient ward may differ from those experienced by someone working in community services.
Similarly, the needs of families can differ depending on the circumstances of their relatives and the support available.
A flexible approach is therefore important, while maintaining the quality of evidence-informed interventions.
The wider message was that responsibility for maintaining PSI skills should be shared.
Nurses must continue developing their practice, but organisations must provide the conditions that make good practice possible.
Looking Beyond the UK – Opportunities for International Collaboration
The conference also considered opportunities to strengthen international connections around psychosocial interventions.
Martin Jones discussed work involving an international psychosocial interventions research network and the potential for greater collaboration between practitioners, academics and other stakeholders.
This was an interesting reminder that many of the challenges affecting mental health services are not unique to the United Kingdom.
Developing relationships between countries may create opportunities to share research, professional learning and examples of effective practice.
It also raises important questions about how psychosocial approaches can be adapted to different cultural and service contexts.
For me, this links to the importance of cultural competency and recognising that people interpret mental health, illness, family responsibility and recovery in different ways.
Mental health practice should always consider those differences rather than assuming that one approach will be appropriate for everyone.
Celebrating Learning, Creativity and the PSI Community
The conference also provided opportunities for participants to share posters, resources and learning from different PSI cohorts.
The networking and exhibition sessions offered space to discuss practice, ask questions and learn about developments taking place across mental health services.
It was encouraging to see how people were sharing their experiences and celebrating the work undertaken through PSI training.
Towards the end of the conference, participants and organisers were recognised for their contributions.
The closing session also brought creativity back into focus through poetry.
One poem explored the experiences of unpaid carers, including the emotional pressures of caring and the importance of nurses recognising carers as individuals with their own needs.
I Am a Carer, Hear My Voice
Poem shared by a carer at the RCN PSI Alumni Conference, 2 November 2026
Am I doing too much? Am I not doing enough? Am I the only one who finds this so tough? They ask me how they are but forget about me, As the cracks start to show, I’ve forgotten how to be.
The sleepless nights, the endless fear, I wonder what would happen if I wasn’t here. I know they really need me, there’s too much at stake, But what I’d give for just five minutes, what I’d give for a break.
Here we are again in that waiting room, Hoping that recovery may come soon. I’m left here alone as they whisk them away, To get them some help. It’s Groundhog Day.
Why does no one ask? Can’t they see my pain? Can I keep them safe? They ask me again. So off we go home, tears fall in my eyes, I try to be positive but it feels like lies.
We return the next day but something’s new, As a nurse kindly asks, how are you? I finally feel seen, it suddenly seems fairer, That finally I was more than somebody’s carer.
The nurse looked into my eyes and with a reassuring smile, Encouraged me to chat about me for a while. The tears came soon after and the truth began to flow, I feel trapped and helpless with nowhere to go.
They listened with understanding, respected my point of view, They could see the wider picture of what us carers do. So all of you nurses in all walks of life, Please look for those carers, they’re hiding their strife.
They need your compassion as much as patients do, Their job is 24-7, please acknowledge what they do. There’s such power in a smile and hope with a listening ear, Don’t make them invisible. Say we see you. We’re here.
Reproduced with the poet’s permission.
Another reflected on mental health nursing and how PSI learning could strengthen compassion, professional identity and therapeutic relationships.
To Nurse With My Heart
Poem shared by a mental health nurse at the RCN PSI Alumni Conference, 2 November 2026
Between the high-pressure shifts and the ticking clock, Both brain lights can fracture and double doors lock. I hold fast to a promise I swore from the start, To lead with my mind but to nurse with my heart.
For every soul walking in from the rain Was once someone’s child, now in crisis or pain. I measure my care by a simple clear line: How will I want you to treat what is mine?
PSI learning has opened the door To evidence tools and the science of more. Psychosocial pathways that listen and guide, Where the person, not the diagnosis, sits by my side.
It validated all that I felt in my bones, That healing takes power and no one’s alone. It gave language to empathy, structure to grace, And a framework of hope in a chaotic place.
The service goes on, the resources are thin, We get ready for battle before we begin. Yet despite every barrier, shortage and strain, The human connection is what will remain.
So I’ll carry these skills as a shield and a light, To stand in the gap and to advocate right. With compassionate hands and a practice made whole, I will honour the person, the family, the soul.
Reproduced with the poet’s permission.
I found it especially fitting that poetry formed part of the closing reflections.
As someone who uses poetry to raise awareness of mental health caring, inequality and lived experience, I strongly believe creative approaches can provide an important way of communicating messages that might otherwise be difficult to express.
The closing contributions reminded us that compassion, listening and human connection remain essential elements of mental health care.
My Reflections – What Does This Mean for Unpaid Carers?
Leaving the RCN PSI Alumni Conference, I reflected on how far mental health nursing has developed and how important it is that carers continue to be involved in shaping that development.
The conference demonstrated that many nurses are committed to improving the way they work with patients and families.
I also came away with a greater appreciation of the challenges they face.
Staffing pressures, competing responsibilities, limited development opportunities and organisational demands can all affect the time available for therapeutic work.
For families, however, the experience of mental health services often depends on the quality of individual interactions.
A nurse taking time to explain what is happening can reduce anxiety.
A professional listening to a carer’s observations can help build trust.
A family being appropriately involved in discussions can contribute knowledge that might otherwise be overlooked.
And a service that recognises culture, identity and lived experience may be better placed to understand the people it supports.
This is why I believe psychosocial interventions and co-production complement one another.
They both encourage us to see people in the wider context of their lives and relationships.
Conclusion – Learning Together to Make Mental Health Care Better
The RCN PSI Alumni Conference 2026 provided an important opportunity for mental health professionals, carers and people with lived experience to learn from one another.
It demonstrated the value of psychosocial interventions, meaningful co-production, professional development and the importance of maintaining compassionate relationships within mental health care.
I was grateful for the opportunity to contribute to the co-production panel and to hear directly from nurses about their experiences of PSI training.
I was also encouraged by the conversations around inclusion, professional identity, family involvement and the practical challenges of maintaining therapeutic skills within services.
For me, the message is clear.
We need skilled and supported mental health nurses. We need patients and families whose experiences are respected. And we need organisations willing to bring these different forms of expertise together.
When carers and professionals learn from one another, we create opportunities to improve understanding, strengthen relationships and ultimately deliver better mental health care.
My thanks go to the RCN, the PSI organisers and facilitators, fellow lived-experience contributors, mental health nurses, researchers and everyone who made the conference possible.
I look forward to continuing these important conversations and sharing what I have learned with the unpaid carers and mental health networks I work alongside.
I’m pleased to share two creative opportunities from SHARP Art Gallery: a new term of its online Drawing Club and an invitation to contribute to its winter exhibition, The Philosophy of Evergreen.
Through my work with unpaid carers and poetry groups, I value opportunities for people to express themselves without pressure. Sometimes words come easily; at other times, a drawing, a colour or an image can offer another way to explore what we are feeling.
These opportunities may interest carers, people with lived experience of mental health difficulties, and anyone looking for time to be creative.
The Drawing Club returns this November
SHARP Gallery’s Drawing Club offers an online space to relax, draw and explore your creativity. Whether you want to find your voice through drawing or simply set aside some time for yourself, you are welcome to take part.
There is no need to have attended previous terms. Each session stands alone, so newcomers can join this term.
Sessions include:
Time and space to spend drawing.
An optional drawing prompt for inspiration.
An optional technique to try.
An optional theme to guide your work.
The emphasis is on having an opportunity to create, with suggestions available if you would find them helpful.
Dates and how to join
All sessions take place on Microsoft Teams, from 2–3:30 pm, on the following Tuesdays:
3 November 2026
10 November 2026
17 November 2026
24 November 2026
1 December 2026
8 December 2026
Places are free. To book, scan the booking QR code on the Drawing Club flyer or email Anna-Maria.Amato@slam.nhs.uk for booking and joining details.
Anna-Maria explains that the group is for anyone who feels art could help with their mental health. Please share the flyer with someone who might appreciate the opportunity.
The Philosophy of Evergreen exhibition open call
SHARP Gallery is also inviting expressions of interest for its winter exhibition:
The Philosophy of Evergreen — What do we retain in a world of impermanence?
It is a theme that opens up many possibilities. What stays with us when circumstances change? Perhaps a memory, a relationship, a cultural tradition, a sense of identity or something we have learned about ourselves.
For unpaid carers, it might prompt reflection on the parts of ourselves we hold onto through changing caring responsibilities. These are simply possible starting points; contributors can explore their own response to the exhibition’s question.
To express an interest in exhibiting, email Anna-Maria.Amato@slam.nhs.uk with an image or an idea of what you would like to submit.
The deadline is Friday 27 November 2026.
The exhibition is planned to run from the third week of December 2026 until mid-February 2027. Contact Anna-Maria for further information about submissions and arrangements.
More creative opportunities for carers
In her update, Anna-Maria also shared that SHARP Gallery held its first workshop for carers at my Carer event in October and is planning further sessions.
There are also plans for an exhibition of carers’ artwork, alongside an award-winning piece by a carers’ advocate. Carers interested in these opportunities can contact Anna-Maria directly to find out more.
I’m pleased to see creative spaces being developed where carers can contribute their own ideas and experiences. Alongside the responsibilities of caring, having time to make something for ourselves can be valuable.
Find out more
For Drawing Club bookings, exhibition enquiries or information about future carer workshops, contact:
Thank you to Anna-Maria and SHARP Gallery for sharing these opportunities. Please pass them on to carers, friends and community groups who may be interested.
By Matthew McKenzie – Carer Lived experienced member of Royal College of Nursing
On Friday 23 October 2026, I joined Sussex Partnership NHS Foundation Trust’s Psychosocial Interventions for Nurses conference at the University of Sussex in Falmer.
The day brought together mental health nurses, educators and people with lived experience to explore psychosocial interventions, often shortened to PSI, and their place in everyday nursing practice.
I contributed through poetry, a conversation about lived experience and an afternoon carers and families workshop. As a carer activist, I wanted to bring attention to the relatives and friends whose knowledge, concerns and wellbeing can become overlooked within mental health services.
Across the day, one theme kept returning: the importance of relationships. What does it mean to stay alongside someone in distress? How do we build trust with families? And how can staff protect that work when services face competing pressures?
Opening with poetry and lived experience
The conference began with poems and reflections from Royal College of Nursing Lived Exprience group including myelf.
Hannah, the Royal College of Nursing’s Lead Nurse for Lived Experience, shared a poem about moving from being a nurse to receiving mental health care, and eventually returning to nursing.
Her words explored the loss of identity, fear and vulnerability that can accompany becoming a patient. They also recognised the nurses who continued trying to connect with her, including through small, ordinary acts of kindness.
That opening placed lived experience at the centre of the conference. Before discussing approaches and training, we heard about what receiving care can feel like.
Another lived experienced poem explored his personal history and experiences of treatment at the Cassel Hospital. His account highlighted the importance of community, boundaries, everyday activities and relationships with nurses.
Together, these contributions reminded us that care is experienced through how people listen, respond and remain alongside someone.
“The Carer They Didn’t See”
In my opening contribution, I explained that I did not immediately recognise myself as a carer. I was my mother’s son, trying to support someone I loved.
It took time before someone helped me recognise that caring role. Meanwhile, my own needs could easily slip into the background.
I shared my video poem, “The Carer They Didn’t See,” connecting that experience with the workshop planned for later in the day.
For me, poetry offers a way to communicate the emotional reality behind carer inclusion: being present, listening, remembering information and worrying about what happens next, while feeling that nobody has asked how you are managing.
Hannah’s embroidery: finding a way through together
Hannah also explained the meaning behind her embroidered butterfly imagery, used in connection with the PSI programme.
She described recovery as a journey made through relationships, with each person needing space to find their own way. Her explanation connected creativity with identity, trust and the experience of being supported to become yourself.
This stayed with me because creative activity can provide opportunities for connection when words are difficult. Poetry, embroidery, drawing and other forms of expression can give people another way to communicate what matters to them.
Geoff Brennan: where the PSI programme came from
Geoff Brennan presented the session on the development of PSI, explaining that Cath Gamble was unable to attend because she was caring for her mother.
For a conference that included carers’ experiences, that was a reminder that caring responsibilities also sit within professional lives.
Geoff traced the programme’s roots to concerns in the 1990s about how mental health nurses were supported to work with people experiencing serious mental illness.
He described the development of the Thorn programme, including its emphasis on working with families and helping nurses develop practical therapeutic skills.
An important part of his message was that nurses need both skills and permission to use them. Training has limited value if staff return to environments where they lack time, supervision or encouragement to put their learning into practice.
He also reflected on the difficulty of sustaining progress when courses disappear or experienced practitioners move on. That helped explain the day’s emphasis on building a community of practice.
Protecting the therapeutic role of mental health nurses
The discussion included questions about what PSI adds to work already happening in services.
Some participants described established psychological and group-based approaches within Sussex. Others spoke about pressures that left them feeling increasingly occupied with risk assessment and tasks, with less room for meaningful connection.
Hannah brought this back to the experience of needing support at two o’clock in the morning. The mental health nurse is often the professional present at that moment.
Her point was powerful: nurses need confidence and support to respond to emotional distress, rather than feeling that every therapeutic conversation belongs elsewhere.
For me, this also matters to families. Carers need to know that someone can hear their concerns, help them make sense of a situation and respond with understanding.
Our conversation: what happens when carers are excluded?
During the morning conversation, I was asked what happens when a carer is overlooked or excluded.
I spoke about feeling unheard and outside the team, even while trying hard to support someone who is struggling.
Exclusion can leave carers uncertain about their role. Some withdraw because they feel their contribution is unwanted. Others keep pushing to be heard, often at a cost to their own wellbeing.
I connected this with the Triangle of Care: the person receiving support, their unpaid carer and professionals working in partnership.
The discussion also recognised that family involvement can be complicated. People may have different wishes, relationships may be strained, and relatives may fear being blamed.
That calls for thoughtful engagement. Sometimes a less formal conversation can provide a starting point for trust.
Hannah’s account: a nurse who did not give up
Hannah described the sustained support of a psychiatric nurse who worked alongside her over several years.
She explained that she had not initially been able to engage with psychological therapy. Her nurse helped her move towards a point where that became possible.
What stood out was his persistence. He kept returning, believed in her and continued trying to understand what she needed.
Her account showed the significance of work that may be difficult to capture in a short appointment or a checklist: building enough trust for someone to accept support.
The conversation also recognised the emotional demands of this work and the importance of supervision. Staff need opportunities to reflect on what they are holding and to receive support themselves.
Jim Turner: tracing the history of mental health nursing
Dr James “Jim” Turner led an interactive exploration of how mental health nursing had developed alongside changing psychological ideas, treatments and service structures.
Although his programme slot was titled “Five Stages Intervention,” the recorded session included a much broader historical timeline.
Jim invited the room to think across roughly a century, beginning around the early twentieth century and moving towards contemporary practice. Participants contributed ideas as he connected different influences on the profession.
His central message was that psychosocial nursing has a history. It draws on generations of learning about distress, behaviour, relationships and the circumstances in which people live.
Beginning with an encounter, rather than a theory
Jim opened with an example from his early nursing career involving a person who was frightened by what he believed he could see outside.
He described going outside with him, exploring what was there and offering another interpretation. They did not arrive at the same explanation, but they were able to remain together and share a calmer moment.
Looking back, Jim recognised therapeutic elements within that encounter: listening, exploring someone’s understanding and gently considering another perspective.
For me, the significance was in his willingness to spend time with the person and take the fear seriously. The relationship made that exploration possible.
Psychological ideas and the understanding of relationships
Jim’s timeline considered the influence of psychoanalysis, including Freud and later thinkers concerned with relationships and emotional development.
He discussed ideas such as defence mechanisms, projection and the ways people respond to anxiety or difficult feelings.
He approached these theories critically, questioning some of their assumptions while considering what they contributed to understanding human relationships.
A recurring theme was that people bring earlier experiences into present encounters. Trust, fear, closeness and rejection can affect how someone experiences support.
For nursing, Jim connected this with being curious about the person and working collaboratively, rather than assuming a professional interpretation must be the whole answer.
Behavioural approaches and group work
The discussion moved through the influence of behavioural approaches, including reinforcement and token economies.
Jim explored how these approaches helped nurses identify and describe particular therapeutic interventions.
He also referred to Annie Altschul and the importance of group work. His discussion connected groups with families, encouraging participants to think about how people relate to one another within both.
From my perspective, that connection mattered. Mental health difficulties affect relationships, and relationships can also become sources of support. Understanding the wider picture requires attention to the people around someone.
Medication and the changing responsibilities of nurses
Jim included the arrival of medicines such as chlorpromazine within his account of changes in mental health care.
He connected medication with nursing responsibilities around helping people understand treatment, discussing its effects and supporting them with difficulties they experience.
The conversation also touched on ECT and the tensions nurses can encounter when treatment, distress, consent and maintaining trust come together.
For me, this part raised the importance of honest communication. People receiving care and their families need opportunities to ask questions and explain their experiences.
Cognitive approaches and integrating knowledge
Jim went on to discuss cognitive and behavioural approaches, including CBT, and referred to Eric Berne’s Transactional Analysis.
He explored how different approaches contributed ways of understanding thoughts, feelings, behaviour and interactions.
A distinction he emphasised was between selecting an approach with a clear understanding of its purpose and trying different techniques without knowing why.
That linked his historical discussion directly to training and supervision. Nurses need opportunities to understand the approaches they use and reflect on how they fit the person and situation.
From institutions to community care
Another part of Jim’s timeline considered the movement away from large institutions towards community services.
He questioned whether changing the location of care always changed the experience of it. His examples invited reflection on whether institutional habits could continue in smaller settings.
He also discussed changes in service organisation, care coordination and the development of more specialised approaches.
As a carer activist, I found this relevant to what happens when care moves into the community. Families may take on substantial responsibilities, so services need to understand what support is actually available at home.
The “golden thread”: relationship and hope
Throughout the historical discussion, Jim returned to the therapeutic relationship as a “golden thread.”
Models, treatments and service structures change, but the ability to build a relationship remains central to mental health nursing.
He also spoke about hope: the importance of entering a situation believing that progress is possible and helping someone hold onto that possibility.
Towards the end, the discussion returned to creativity, imagery, drawing, music and shared activity. This connected with Hannah’s embroidery and the poetry that opened the day.
For me, Jim’s session explained why the history mattered. It encouraged nurses to understand the foundations of their work, recognise the value of their therapeutic role and use their knowledge deliberately.
My afternoon carers and families workshop
After lunch, I led a workshop using three fictional scenarios.
I wanted participants to explore situations that many families will recognise: uncertainty about confidentiality, assumptions about a relative’s behaviour and expectations placed on carers when someone returns home.
The scenarios encouraged discussion about what staff could do, what they needed to understand and whose voice might be missing.
Confidentiality and a mother’s concerns
One scenario explored a mother’s concerns alongside her son’s wish for independence and limits on family involvement.
Participants discussed how to understand his preferences while still making space to hear her observations and offer support.
They considered the distinction between receiving information from a relative and sharing someone’s confidential information.
The feedback also recognised the mother’s own wellbeing. Supporting her meant acknowledging her relationship with her son and the strain she might be experiencing.
Questioning the word “demanding”
Another scenario explored assumptions about a family, unfamiliar clinical language and the importance of faith.
Participants challenged the description of a relative as “demanding.” They asked what might be behind repeated requests for information or meetings.
Fear, confusion and a need for reassurance could all be relevant. Describing someone negatively too quickly could prevent those concerns from being understood.
The discussion also considered asking someone what their faith means to them, using clearer language and arranging conversations around practical circumstances such as employment.
This connected closely with my work on culturally responsive carer inclusion: understanding the individual and questioning the assumptions shaping our response.
Discharge planning and sustainable support
The third scenario concerned a wife facing substantial expectations when her husband returned home.
She had work commitments, health difficulties and disrupted sleep, yet the proposed arrangements relied heavily on her.
Participants questioned that assumption and discussed the need to understand both partners’ concerns, identify professional responsibilities and consider support for the carer herself.
For me, this was an essential message: discharge planning needs an honest conversation about what a carer is willing and able to do.
Love and concern do not remove exhaustion or create unlimited capacity.
Keeping the learning going
The wider afternoon programme included PSI in Sussex, the Sussex Partnership Recovery College and discussion about a community of practice and peer support.
These themes connected with concerns raised earlier: staff need support to continue developing and using their skills after training ends.
I hope that ongoing learning also continues to include the experiences of people receiving care and the relatives and friends supporting them.
Thank you
My thanks to Dr Ali Smith, the organising team, the Royal College of Nursing contributors and everyone who took part.
I appreciated the opportunity to bring poetry, caring experience and practical scenarios into the day.
The conference offered space to consider where mental health nursing has come from and what needs protecting as it develops.
For me, that includes time to listen, the confidence to build relationships and a commitment to seeing carers as people whose knowledge and wellbeing matter.
On Tuesday 20 October 2026, we came together at Cygnet Churchill and online for our third Voices & Verses poetry and art event — and our first delivered in a hybrid format.
I led the afternoon with the support of Jo Lambert, Faith Smth, Ana Maira, Nadine Knight and the other contributors, who helped co-facilitate the creative activities and made the event a shared experience.
For me, this event was about creating space for people to be seen beyond their caring responsibilities. We are carers, but we are also writers, artists, music lovers, storytellers and people with our own hopes and ambitions.
With Cygnet’s support, the afternoon brought together poetry, art, music and lived experience. Joining online meant that people who could not travel could still contribute, create and share in the occasion.
Beginning with our voices
We opened with introductions and a grounding activity, inviting everyone to share a word describing how they arrived. Togetherness, gratitude, curiosity and openness helped set the tone.
My opening readings included Our Stories Matter and The Carer They Didn’t See. These explored the knowledge and emotions that carers carry, and how easily our contributions can remain unseen.
The discussion that followed reminded us why creative spaces matter. Poetry can communicate something that an assessment or formal meeting may struggle to capture. It allows room for love, uncertainty, frustration and hope, without expecting caring to be presented as an entirely positive experience.
Turning kindness towards ourselves
Jo Lambert led an art activity inspired by the idea that carers often spend so much time giving love and support to others that we can forget to offer the same kindness to ourselves.
Jo shared research she had read about the potential connection between speaking kindly to ourselves and inflammatory markers in people living with autoimmune conditions. This had encouraged her to explore self-compassion in her own life and to share the idea with the group.
Holding out a heart, Jo invited us to think about bringing some of that love back towards ourselves. We then created personal messages using paper hearts, postcards, colours and decorations. People joining online could also take part using materials they had at home.
The activity encouraged us to pause, reflect and speak to ourselves with the same warmth we might offer someone we love. Each creation was different, but the message was shared: our own wellbeing and feelings matter too.
Finding poetry in unexpected places
Next came the word-hat poetry activity, using prompts, colours, images and words to spark ideas.
Starting points included autumn, a favourite colour, a happy place and the way music makes us feel. Short poems emerged about nature, memories, everyday life and imagined scenes.
There was laughter as well as reflection. Nobody needed to produce a polished poem or make their words rhyme. A few lines were enough to begin.
One of the prompts invited us to begin with “Music helps me…” This was my response:
Music helps me to feel fine, As long as the right rhythm is on time. My emotions will be mine, No longer feel bad. It helps the sun to shine, Now and for all time.
— Matthew McKenzie
A simple starting line became an opportunity to express something personal. That is part of what Voices & Verses offers: space to discover our creativity and be seen beyond our caring responsibilities.
This part of the afternoon captured something I want Voices & Verses to encourage: our creativity does not have to revolve entirely around caring. We can write about whatever interests, moves or amuses us.
Making space for connection and inclusion
A break and refreshments kindly provided by Churchill gave those in the room time to talk and appreciate the work taking shape around them.
Running through the programme was the importance of voice, identity and respect, reflected in the planned Patient and Carer Race Equality Framework (PCREF) poetry prompts. What helps us feel heard? What do we wish others understood? What hopes do we bring to care?
From my lived experience perspective, inclusion means making room for people to express themselves in their own way. Culture, background and personal experience all shape our stories. Creative activities offer another way for those stories to be recognised.
Sharing music and creating the covers of our lives
The music section brought us together for a singalong to You Are My Sunshine, welcoming voices from the room and online.
We then moved into the cover-art activity. Participants thought about songs that resonated with their lives or reflected how they were feeling, before creating artwork for an imagined personal playlist.
Some used recognisable images; others expressed themselves through colour and abstract patterns. Conversations about favourite songs opened up memories and connections between people.
The activity showed how closely poetry, music and visual art can speak to one another — and how differently each of us can interpret the same starting point.
Closing with reflection
The final sharing and closing circle gave us time to look at the artwork, hear reflections and consider what we would take away.
Participants valued the variety of activities and the opportunity to try something unexpected. Online contributions also highlighted why access matters: travelling can be difficult alongside caring, work and other commitments.
Our first hybrid event involved learning as we went, but it opened another route into the group. People could be part of the afternoon without being physically at Cygnet Churchill.
I left feeling proud of what we had created together. This was lived experience expressed through imagination, humour, culture and connection. It was a reminder that carers have talents and identities that deserve space to grow.
Poetry by Matthew McKenzie — exploring caring, identity, belonging and the need to be heard.
Welcome to my PCREF poetry project. Through poetry and filmed readings, I explore the experiences of unpaid carers, particularly Black and other ethnic minority carers supporting someone with mental ill health.
The poems open conversations about racism, cultural understanding, trust and the relationships between families and mental health services. They also celebrate creativity, community and the people behind the caring role.
Why PCREF and Poetry?
PCREF stands for the Patient and Carer Race Equality Framework.
For me, connecting poetry with PCREF means making space for experiences that can be difficult to express in meetings, assessments or formal feedback. A poem offers another way to speak about feeling excluded, finding support or wanting services to understand your family.
These are personal and creative contributions to conversations about race equality and carer inclusion. My hope is that they encourage people to listen, reflect and consider what needs to change.
Start Here: A Featured Poem
Creativity as the Expression — Poem 41
How do we explain our caring experiences when the words used in meetings, assessments and care plans do not quite capture what we want to say?
This poem explores creativity as a way of finding a voice and sharing experiences of caring.
Reflect: How can we make more room for carers to express themselves in their own way?
Explore the PCREF Poetry Collection
Explore my published poetry about race, mental health and unpaid caring. Click a poem’s title to watch it on YouTube.
You can find a particular reading by searching for its title within my channel.
More Poetry and Shared Readings
Alongside the numbered poems above, you can also find:
Unpaid, Unseen and Yet Unbroken
The Carer They Didn’t See
Hope That Feels Real — Poem 80, performed by Matthew McKenzie and Jo Lambert
These readings form part of my wider work using poetry to recognise unpaid carers’ experiences and create opportunities for expression.
Poetry in Action: Voices & Verses
Poetry can bring carers together as well as help individuals find their voice.
My channel also includes poetry event recordings and community activities, including Voices & Verses — Carers Poetry Event: PCREF in Action.
If you would like to find out about joining a carer poetry group or referring carers to a session, please get in touch.
Use a Poem to Begin a Conversation
Carer groups, PCREF networks, staff teams, libraries and community organisations may find these poems useful as starting points for reflection.
Choose a poem, watch or listen together, and consider:
What words or images stayed with you?
What does the poem prompt you to consider about carers’ experiences?
Whose voices might be missing from your service or group?
What practical change could help carers feel heard and included?
Allow people to choose whether to share their own experiences. Listening is a valuable form of participation too.
Further Learning
For those interested in exploring the wider issues, my YouTube channel also includes:
Listening Differently to Black Carers with Poetry, and PCREF
Putting the C (Carer) into PCREF — Triangle of Care & Racial Equity in NHS Mental Health
Triangle of Care Through an Anti-Racist Lens: Are All Carers Equally Heard?
Hard to Reach or Easy to Ignore — Ethnic Mental Health Carers
Why Black Carers Struggle to Access Mental Health Support
These presentations offer further opportunities to consider race equality, lived experience and meaningful carer involvement.
About Matthew McKenzie
I am Matthew McKenzie, an unpaid carer, carer advocate, author and poet.
My work draws on my lived experience of supporting family members and my commitment to improving recognition and inclusion for unpaid carers. Through A Caring Mind, I bring together caring, mental health, race equality and creative expression.
Poetry gives me another way to raise questions, share experiences and encourage conversations that might otherwise remain unheard.
Sharing, Enquiries and Getting Involved
You can support the project by sharing this page or links to the original videos with carers, colleagues and community networks.
Please credit Matthew McKenzie / A Caring Mind when sharing links. For permission to reproduce poems, include them in publications or training materials, or arrange a reading or workshop, please contact me through this website.
I welcome enquiries from carer centres, NHS teams, PCREF leads, libraries, arts organisations and others interested in creating more space for carers’ voices.
By Matthew McKenzie BEM, FRSA – Carer Activist, Unpaid Carer and Triangle of Care Community Chair
On Thursday 8 October 2026, I was delighted to attend, present and support the East London NHS Foundation Trust (ELFT) Annual Social Work Conference, held at Regent Hall, Salvation Army, Oxford Street, London.
It was an opportunity to celebrate the important work of social workers, hear their professional journeys and share my own experiences as an unpaid mental health carer.
On Monday 5 October 2026 at the ORTUS, I shared my carer story at South London and Maudsley NHS Foundation Trust’s staff induction. I attended as a carer member of SUITE — Service User and Carer Involvement in Training and Education, managed by Angela Mitchell. The presentation was warmly received, and I was particularly pleased that my poetry video connected with staff.
I spoke about caring for my mother, who lived with schizophrenia, and my continuing role supporting my brothers. I reflected on the uncertainty of becoming a carer, the responsibilities that followed, and the difference it made when someone listened, explained things and recognised my own support needs. My message to staff was simple: carers bring knowledge, relationships and experience that deserve to be heard.
As I continue developing my poetry collection Unpaid, Unseen and Yet Unbroken: Poetry about Ethnic Mental Health Carers, I wanted to share another poem from the collection called Fear Has Roots.
The poem explores something I feel mental health services need to understand more deeply: mistrust does not always begin with the person standing in front of you.
Sometimes it has a history.
A carer may have experienced years of being dismissed, misunderstood or having their concerns minimised. They may have watched other carers from their community struggle to be heard. Experiences of discrimination can also travel through families and communities, influencing how safe people feel when approaching services.