Category Archives: Uncategorized

Share Your Hospital Discharge Experience – Healthwatch Lambeth Survey 2026

Healthwatch Lambeth is inviting patients and unpaid carers to share their experiences of leaving hospital.

The survey is part of a nationwide Healthwatch England project examining hospital discharge. Healthwatch Lambeth is particularly seeking responses from people living in Lambeth who have experienced a difficult hospital discharge within the past 12 months.

This may include situations where:

  • Discharge was delayed.
  • The patient was sent home before they felt ready.
  • Information about the discharge was unclear or incomplete.
  • Essential equipment or support was not available.
  • Follow-up care had not been properly arranged.
  • An unpaid carer was not sufficiently involved, informed or prepared.

The survey can be completed by patients themselves or by an unpaid carer describing the experience of someone they care for.

Healthwatch Lambeth is especially interested in hearing from people whose experiences may not always be represented in health and care feedback, including men and people from ethnic minority communities.

Hospital discharge can place significant responsibility on families and unpaid carers. When carers are not recognised, involved or given the right information, they may suddenly find themselves managing medication, personal care, appointments and recovery without adequate preparation.

Sharing these experiences can help identify what needs to improve and highlight the importance of involving carers as genuine partners throughout discharge planning.

Take part in the survey:

https://www.smartsurvey.co.uk/s/hwlambeth

You can also scan the QR code on the accompanying Healthwatch Lambeth flyer.

For further information, contact Healthwatch Lambeth:

Email: info@healthwatchlambeth.org.uk
Telephone: 020 7274 8522

Please share this survey with Lambeth residents, patients and unpaid carers who may have had a difficult hospital discharge experience during the past year.

The Heart of Care – Ealing Carers Online Poetry Group August 2026

By Matthew McKenzie – Poetry group facilitator

The Ealing Carers Online Poetry Group returned in August for another warm and creative evening of poetry, reflection and peer support. Delivered with the support of Ealing Carers Partnership, the group has now been running for two years and continues to provide carers with a welcoming space in which they can express themselves, meet others and take some valuable time away from the pressures of their caring roles.

Carers joined the session for different reasons. Some wanted inspiration to write, while others valued the opportunity to relax, listen and spend time with people who understood the realities of caring. One member described how they often begin an exercise believing they will not be able to write anything, only to be surprised by the words and emotions that emerge.

This is an important part of the poetry group. Nobody needs to be an experienced poet, and there is no pressure to read aloud. People are welcome to participate at their own pace, listen to other carers and gradually build their confidence.

Exploring “The Heart of Care”

The main writing exercise was called “The Heart of Care”. Carers were given the beginnings of lines and invited to complete them using words drawn from their own experiences. They could choose whether or not to use rhyme.

The poems explored dedication, courage, memories, exhaustion, prayer, quiet reflection and the determination required to continue caring through difficult days. Familiar moments, including sharing a laugh, shedding a tear or simply making a cup of tea, became meaningful images within the poems.

Although everyone worked from the same starting point, each poem developed its own character and voice. One contribution focused on the strength needed to continue walking along the “winding road” of caring. Another described finding a voice and taking a stance, while another ended by recognising that small moments of reflection can help build the core of a carer’s wellbeing.

The exercise reminded us that poetry does not need to be complicated. A few carefully chosen words can express feelings that may otherwise be difficult to explain.

Listening, reflecting and encouraging one another

After each poem was shared, group members were encouraged to ask thoughtful questions and reflect on what they had heard. This created some powerful conversations about finding your voice, managing negative thoughts and recognising your own efforts.

One carer spoke about replacing late-night self-criticism with positive affirmations: reminding themselves that they had done their best and did not need to solve everything before allowing themselves to rest.

Another spoke about the “will” carers must find each morning to get up and continue. Even though they felt nervous about reading aloud, the encouragement they received demonstrated the peer-support element at the heart of the group.

Carers were encouraged to keep their poems together in a folder or notebook. Returning to words about hope, warmth, identity and resilience can offer reassurance during times when someone is feeling low or overwhelmed.

When a carer’s poem becomes a song

A particularly moving part of the evening came when one member shared a song developed from their own poem about caring. The piece was originally inspired by the theme “A Carer Is” and offered a heartfelt message to other carers: you are seen, you matter and the contribution you make deserves to be recognised.

Members described the song as a love letter to carers. They felt it was something from which carers could draw comfort and strength, particularly because recognition does not always come from services or even from the people receiving care.

The writer generously gave permission for the song to be shared with other carer groups, forums and events.

Listen to the carer’s song here:
https://www.mureka.ai/song-detail/125940401242114

Carers helping to shape future poetry events

The session was also an opportunity to ask carers what they would like to experience at upcoming in-person and hybrid poetry events.

Ideas included combining poetry with art, drawing and music; creative activities based on hope, wellbeing and resilience; choosing unexpected words from a hat and using them to write a poem or short story; and using simple unfinished lines to help people try poetry for the first time.

Members also suggested introducing relaxation, breathing and gentle body-awareness activities. These could help carers settle their minds, release some tension and feel ready to write.

Most importantly, carers wanted opportunities to perform their own work and help lead parts of future workshops. One member volunteered to lead a creative word-picking exercise at a future event. This is an exciting step towards making the programme increasingly carer-led and co-produced.

Upcoming activities discussed during the session included an Ealing Central Library workshop on 8 October, a future workshop at Greenford Library and an event at Manor House Library in Lewisham on 4 November. Further details will be shared once all arrangements have been confirmed.

Join the Ealing Carers Online Poetry Group

The Ealing Carers Online Poetry Group is more than a writing workshop. It is a friendly and supportive community where carers can connect, develop their creativity and have their experiences heard and valued.

You do not need to consider yourself a poet. You can write in rhyme or free verse, share something you have already created or simply attend and listen. Carers from Ealing and beyond are welcome to take part.

The next online meeting is planned for Friday 25 September 2026. Please contact the group organiser for the joining details and to be added to the mailing list.

info@ealingcarerspartnership.org

Whether you are looking for creative inspiration, companionship, a little relaxation or a safe way to express your caring experiences, you will be warmly welcomed.

Discover Your Story Through Photography: Free Workshops & Community Exhibition

Posted by Matthew McKenzie – Carer activist

A fantastic new opportunity from King’s College London is inviting unpaid carers and members of the public to capture these experiences through photography.

Free Online Photography Workshops

Whether you’ve never taken a photograph beyond snapping pictures on your phone or you already enjoy photography, these free online workshops are designed for everyone.

You’ll learn how to:

  • Use your smartphone to take more meaningful photographs.
  • Tell powerful stories through images.
  • Build confidence in your creative skills.
  • Prepare photographs for a public exhibition.

Workshop dates (BST):

  • 📷 Workshop 1: Photography Fundamentals – Saturday 18 July, 11:00am–12:00pm
  • 📖 Workshop 2: Storytelling – Saturday 25 July, 11:00am–12:00pm
  • 🖼️ Workshop 3: Finalising Your Photographs & Stories – Saturday 1 August, 11:00am–12:00pm

The workshops are completely free, held online via Zoom, and no previous photography experience is needed.

https://www.eventbrite.com/cc/photography-fundamentals-for-health-wellbeing-4854963

Showcase Your Experience

Participants will have the opportunity to submit their photographs to be displayed at the DUALITY: Journeys of Ageing and Multiple Long-Term Conditions community exhibition.

The exhibition celebrates the real-life experiences of people living with long-term health conditions, those who support them, and the communities around them.

Join the DUALITY Community Event

The exhibition forms part of a free community event taking place at Bush House, King’s College London.

Date: Tuesday 8 September
Time: 4:00pm – 7:30pm

Visitors can enjoy:

  • A community photography exhibition.
  • Conversations with people who have lived experience of long-term conditions.
  • Information from local health and community organisations.
  • A discussion about realistic ways to include exercise and wellbeing in everyday life.
  • Complimentary refreshments.

The event is open to everyone, but registration is required as places are limited.

Interested?

If you’re an unpaid carer and would like to explore your creativity while helping raise awareness of the realities of caring and long-term health conditions, we encourage you to register for these free workshops.

Places are limited, so early booking is recommended.

This opportunity is free, welcoming, and open to everyone, no photography experience required.

Alcohol Awareness Week 2026 – Alcohol and Me

This week (6–12 July) marks Alcohol Awareness Week 2026, organised by Alcohol Change UK. This year’s theme, “Alcohol and Me,” encourages us to take a moment to reflect on our own relationship with alcohol and the impact it can have on our health, mental wellbeing, relationships and everyday lives.

For many unpaid carers supporting someone with a mental health condition, life can be emotionally demanding. While we often focus on the person we care for, it’s just as important to look after our own wellbeing. This campaign reminds us that seeking support, talking openly and making small positive changes can make a real difference.

To support this important awareness week, I’ve created a new video on my YouTube channel, A Caring Mind, exploring why Alcohol Awareness Week matters, particularly for carers and families affected by mental ill health.

If this post resonates with you, please share the video to help raise awareness, reduce stigma and remind carers that their wellbeing matters too.

For more information about Alcohol Awareness Week and the “Alcohol and Me” campaign, visit Alcohol Change UK: https://alcoholchange.org.uk/get-involved/campaigns/alcohol-awareness-week-1

Greenwich Mental Health Carers Forum – June Update

By Matthew McKenzie – Chair of the Greenwich MH carers forum

The forum continues to provide a safe space for carers to receive updates, influence local services and learn about developments that affect both carers and the people they support.

This month’s forum focused on three important themes:

  • New support available for carers through the Greenwich Mental Health Hub.
  • Major reforms to the Mental Health Act and what they mean for carers.
  • Why unpaid carers must continue to have a voice in shaping local mental health services.

New Mental Health Support for Carers

We were pleased to welcome Jana, Mental Health Carers Advisor from the Greenwich Mental Health Hub, who introduced a relatively new service specifically supporting carers experiencing their own mental health difficulties.

Many carers spend years putting someone else’s wellbeing first while their own emotional health suffers. Stress, anxiety, depression, trauma, loneliness and exhaustion are common experiences among unpaid carers. The Mental Health Hub aims to provide early support before these issues become more severe.

The service accepts referrals primarily through GPs and offers:

  • Individual mental health assessments
  • Short-term personalised support
  • Advice on carers’ rights
  • Signposting to benefits, housing and community organisations
  • Emotional wellbeing support
  • Practical coping strategies
  • Access to peer support groups

Support can be delivered face-to-face, online or by telephone, making it more accessible for carers with demanding caring responsibilities.

One particularly welcome development is the dedicated carers’ drop-in sessions, which are open even to carers who have not been referred into the Hub. These sessions provide opportunities to discuss issues such as:

  • Sleep difficulties
  • Self-care
  • Stress management
  • Accessing local services
  • Benefits advice
  • Carers’ Assessments
  • Meeting other carers facing similar challenges

As carers repeatedly tell us, simply speaking with someone who understands the realities of caring can make an enormous difference.


Carers Continue to Raise Important Gaps

One of the strengths of the forum is that carers are able to raise concerns directly with professionals.

During the discussion several important issues were highlighted.

Many carers continue to experience difficulties navigating complex mental health systems and understanding their rights.

Questions were raised about the lack of specialist advocacy for mental health carers in Greenwich. While support and signposting are available, carers discussed how independent advocacy can be invaluable when attending meetings, challenging decisions or ensuring their voice is properly heard during difficult situations.

The discussion recognised that navigating the Mental Health Act, hospital admissions and care planning can be overwhelming, particularly for new carers who may have little understanding of the legal processes involved.

These conversations reinforce why forums like this remain so important. They allow carers to identify gaps in services while helping organisations understand where further improvements are needed.


Understanding the New Mental Health Act

A major part of the forum explored the forthcoming reforms to the Mental Health Act.

Although the original Mental Health Act dates back to 1983, significant reforms have now received Royal Assent and will gradually be introduced over the coming years.

These reforms aim to create a more person-centred approach by strengthening:

  • Choice and control
  • Therapeutic benefit
  • Least restrictive care
  • Respect for individual dignity

For unpaid carers, these reforms are particularly significant because they affect how decisions are made when someone is detained for assessment or treatment under the Mental Health Act.


Universal Care Plans and Care Contingency Planning

The forum also introduced another important development currently being rolled out across London: the Universal Care Plan.

This digital record allows important information about both carers and the person they support to be shared appropriately across health and care services.

For carers, this can help:

  • Ensure professionals know who provides care.
  • Reduce the need to repeat information.
  • Improve emergency planning.
  • Support continuity of care.
  • Make carers more visible within NHS systems.

Alongside this sits the Care Contingency Plan, which records what should happen if a carer suddenly becomes unable to provide support due to illness or an emergency.

Many carers have never considered what would happen if they themselves became unwell. Having a contingency plan can prevent crises and ensure continuity of care for vulnerable people.


Local Updates

Greenwich Carers Centre also shared news of a new partnership with the South East London Cancer Alliance. I will be involved regarding my Cancer Caregiver group

The project will establish local peer support opportunities for carers and people affected by cancer, alongside awareness events covering issues such as breast cancer, prostate cancer and wider health and wellbeing topics.

Further information will be shared by Greenwich Carers Centre over the coming months.


Looking Ahead

The Greenwich Mental Health Carers Forum continues to demonstrate why unpaid carers need opportunities to come together.

The discussions during this meeting highlighted both the progress being made and the challenges that remain. Carers continue to advocate for better information, stronger involvement in care planning, improved advocacy services and clearer communication from health professionals.

As the Mental Health Act reforms begin to take shape over the coming years, carers will play an increasingly important role in ensuring these changes lead to meaningful improvements for both carers and the people they support.

If you were unable to attend this forum, we hope this summary has helped keep you informed. We encourage all unpaid mental health carers to join future meetings, share their experiences and help shape the services that support carers across Greenwich.

West London NHS Carers Event

By Matthew McKenzie – Chair of Triangle of Care community group, NHS England involvement & Carer Poet

We are delighted to invite carers to “Caring Together, Stronger Together” a special event hosted by West London NHS Trust to recognise, support and celebrate the vital role of carers.

The event is open to all carers across Ealing, Hounslow, and Hammersmith & Fulham, so please could you share this information and the attached flyer with all of your networks.

Join us for an enjoyable and informative afternoon featuring:

  • Opportunities to socialise and connect with other carers
  • Inspiring talks, presentations and poetry
  • A carers’ services marketplace with information stands
  • I will also be hosting a Carer stall providing leaflets for Carers including UCP
  • Wellbeing activities, including mindfulness and hand massages
  • A complimentary hot lunch

Event details:
📅 Wednesday 29 July
🕐 1:00pm – 4:00pm
📍 Irish Cultural Centre, 5 Blacks Road, London W6 9DT

The event is designed to help carers connect, access information, and take some well-deserved time for themselves in a welcoming and supportive environment.

To book a place:
📧 sonja.jansli@nhs.net
📞 07860 104223

Looking forward to welcoming carers from across our West London communities. Please help us spread the word by sharing this invitation and the attached flyer.

Help Shape Better Family Support for Ethnic Minority Families in South West London

Are you a parent or carer from an ethnic minority background who is currently receiving support from community mental health services in South West London? Researchers at King’s College London are looking to hear from families about their experiences to help improve the support available to parents and carers.

Who can take part?

You may be eligible if you:

  • Are aged 18–65
  • Are currently under the care of South West London and St George’s Mental Health NHS Trust community mental health services
  • Have caring responsibilities for a child under 18
  • Identify as being from an ethnic minority background

Why take part?

Parents and carers from ethnic minority communities often face unique challenges when accessing mental health support. By sharing your experiences, you can help researchers understand what works well, what could be improved, and how services can better support families across South West London.

Your voice can contribute to developing more inclusive, family-focused mental health services for future generations.

Are practitioners involved?

The study is also inviting practitioners working in community mental health services within South West London and St George’s Mental Health NHS Trust to take part, helping to bring together both professional and lived experience perspectives.

Thank You for Your Time

Participants apart from practitioners will receive a thank-you gift in recognition of their time and contribution.

Interested in Taking Part?

For more information or to express your interest, please contact:

Dr Ida Doherty
📧 ida.doherty@kcl.ac.uk


Have You Supported Someone Through Mental Health Care? We Want to Hear From You

If you have cared for, supported, or helped someone navigate mental health services, your experience matters.

Researchers are seeking carers to share their perspectives as part of a project exploring how people make decisions about mental health treatment together. The insights gathered will help shape a research funding application focused on understanding how service users, carers, and clinicians can work collaboratively when making decisions about care and treatment.

Use your Carers’ Voice

Carers often play a vital role in supporting loved ones through mental health challenges. You may have helped someone:

  • Understand treatment options
  • Attend appointments
  • Manage medication and care plans
  • Communicate with healthcare professionals
  • Make important decisions during difficult times

Your experiences can provide valuable insights into what works well, what could be improved, and how mental health services can better support collaborative decision-making.

Who Can Take Part?

We are looking for people who have supported someone through mental health care.

We are particularly keen to hear from carers from minoritised and under-represented communities, whose perspectives are often missing from research but are essential to ensuring services meet the needs of everyone.

What’s Involved?

Participants will be invited to take part in an online discussion via Microsoft Teams.

Dates: 15–19 June
Format: Microsoft Teams
Time commitment: Up to 2 hours
Payment: £27.50 per hour (NIHR public involvement rate)

Make a Difference Through Your Experience

By sharing your views, you can help influence future research and contribute to improving how mental health treatment decisions are made between service users, carers, and clinicians.

Every experience is valuable, and your contribution could help shape better mental health care for individuals and families in the future.

Interested?

Register your interest by scanning the QR code on the poster or visiting:

tinyurl.com/5f83xea5

Thank you for considering taking part and helping ensure carers’ voices are heard.

Join Healthwatch Bromley for an Open Conversation About Connection

Feeling connected is important especially for those who spend much of their time caring for others. Healthwatch Bromley is hosting a special interactive session designed to explore connection and combat loneliness in our community.

Event Details:

  • Date: Friday 5th June 2026
  • Time: 10:00 – 12:00
  • Location: Bromley United Reformed Church, 20 Widmore Rd, Bromley BR1 1RY
  • Guest Speaker: Helayna Jenkins MBE, IEng
  • Free Registration: Sign up here

What to Expect:

This session will give unpaid carers and community members the chance to:

  • Engage in a thoughtful group discussion about building connections.
  • Learn practical strategies to strengthen relationships and reduce loneliness.
  • Hear insights from guest speaker Helayna Jenkins, who brings experience and inspiration to the conversation.
  • Enjoy light refreshments while connecting with others in similar circumstances.

Whether you’re a carer seeking support, someone looking to expand their social network, or simply interested in meaningful conversations, this event offers an open, welcoming space to share, listen, and grow stronger together.

Don’t miss this opportunity to connect and make a difference in your community. Register for free today and be part of the conversation.

Mental Health Awareness Week 2026 – Take Action

Mental Health Awareness Week 2026 over in the UK runs from Monday 11 to Sunday 17 May, and the theme is Take Action. I know firsthand how challenging it can be to look after someone while managing your own wellbeing.

Mental Health Foundation is the main charity behind Mental Health Awareness Week in the UK, but there are many other important organisations playing key roles in mental health support, advocacy, treatment and public awareness.

So for the week of this blog, it is a reminder that even small steps can make a big difference, whether it’s checking in on a friend, practicing self-care, or seeking support from local and national organisations.

As a reminder Carers often put themselves last, but protecting your own mental health is essential and taking action starts with acknowledging that you deserve support too.

During this Mental Health Awareness Week, there are many organisations and local NHS carer support services provide invaluable guidance, counselling, and resources for unpaid carers.

The theme is “Every action counts”. From reaching out to your community, to joining peer support groups, to simply taking a moment for yourself.

Watch my video above for practical tips, encouragement, and ways to take action for your mental health and the wellbeing of those you care for.

Let’s work together to make mental health a priority for everyone, today and every day.

Additional Resources for Carers and Mental Health Support