Author Archives: mmckenz11

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About mmckenz11

IT Officer for London School of Osteopathy and a Carer representative for Maudsley. As you can see, I have many interests shown off my blog. I hope to keep it updated with posts and more things to come soon.

A look back on 2014 from my Mental Health blogsite

Well as of this blog, it is new year’s eve and soon it will be 2015. I cannot believe how fast 2014 has gone, but then again time moves so fast if you have been so busy, and yes I have been so busy during 2014. What did I get up to? What were the highlights?

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LMHC Xmas Party 2014

On the 18th Of December 2014. I enjoyed the Lewisham Mental Health Connection Xmas party. There were lots of activities, having fun and being part of the community. I met many old and new friends and hope to contribute and help the LMHC in 2015.

Health Watch Lewisham Annual Event

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On the 15th Dec 2014 at Lewisham civic suite. I attended the Healthwatch Lewisham Annual event where we got updates on what Lewisham Healthwatch has been up to, plus the 2014 Care Act was explained and we got a chance to influence Lewisham Healthwatch priorities for the coming 2015.

PerPlexUs: MA Applied Imagination Degree Show 2014

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On 12th of December 2014. I headed over to PerPlexUs, MA Applied Imagination’s 2014 degree show. This took place over at one of the University of the Arts London sites. I met my friend Adele Orcajada who explained her Yarn work and project, plus I got the chance to visit many more of the other students art projects and participated in their group sessions.

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Hidden Gems Exhibition at the SMART Gallery

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On the 10th of December 2014, I attended the SHARP gallary which stands for Social Inclusion, Hope and Recovery Project. This is where I got to visited and view many of the mental health trust staff art work. There were lots of hidden gems to find and I enjoyed capturing all the creativity that was held at the gallery including the event itself.

Southwark Healthwatch One Year on Event

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On the 22nd of November 2014, I took a trip over to Pembroke House over in Southwark to attended and capture the Southwark Healthwatch On Year on Event where we got to hear updates from the past year where Healthwatch Southwark have been very busy collecting stories of those who use the health services.  Healthwatch Southwark heavily engages with the public and those who champion health services.

Lewisham Mental Health and Wellbeing Day 2014

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On the 20th of November over at the Lewisham Civic Suite, I attended the Lewisham Mental Health Wellbeing day which was  presented by the NHS Lewisham CCG, South London and Maudsley NHS Foundation Trust and Lewisham Council.  The MH and Wellbeing stakehold event wanted to concentrate on the service user/survivor aspect.

CarersUK National Summit

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On the 13th of November 2014 I attended the CarersUK National.  My friend and Carer representative Bridget Jones also attended along with another governor.  We heard many updates and issues from CarersUK, plus I was lucky enough to have my blog included in CarersUK newsletter.

The anatomy of melancholy

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On the 23rd of October 2014 I was lucky enough to watch an Opera performance describing the form of depression and the anatomy of melancholy. The Opera was a fascinating experience and a joy to watch, every actor kept my attention and there was so much to learn from the performance.

World Mental Health Day 2014

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On the 10th of October was an awareness day, this being World Mental Health day, which falls on the 10th of October each year. I managed to visit 5 events from the Lambeth & Southwark Mind stall, to the South East London Arts Network workshop at Horniman Museum. I even attened a series of talks at the GV Art gallery.

Carers Lewisham Annual General Event

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Carers Lewisham held its AGM in 2014, this is one the most carers centers I use in order to get support for my caring duties. I have used Carers Lewisham for probably 8 years or so. At the AGM we heard what Carers Lewisham have been up to since their last AGM and we got to hear carers stories, including my own carer experience.

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Lambeth Carers Hub Forums 2014

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Lambeth runs around about 4 carers forums each year. I managed to attend and capture 2 of the forums. The forums are very large and although not all carers are mental health carers you can at least capture the general field of what carers go through and what issues are raised.

Family and Carers Listening event 2014

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The South London & Maudlsey Foundation Trust run family and carer’s conferences each year. I was lucky enough to help plan and participate in the conference where families and carers get the chance to be informed of the work and updates the trust is doing to help families and carers of those using the services. There were lots of speakers, stalls and activities at the conference, I hope to blog about this soon.

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Lewisham Mental Health Connection Conference 2014

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The Lewisham Mental Health Connection ran another of their yearly conferences and this one took place at the Lewisham Civic Suite on Thursday 11th September. We got to hear from many speakers in the field of mental health and volunteering, there were many workshops and stalls and I got to hear from friends who influence the field of mental health.

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Healthwatch Lewisham Best community care

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Healthwatch Lewisham run many engagement events and one of them focused on community care. This event was held over at the Lewisham & Greenwich University hospital on the 28th of June. There was many great ideas from the event coming from those passionate about the community and passionate about healthcare. The event was run in partnership with the Save Lewisham Hospital campaign.

Disability MH and wellbeing event

20140910_110035b  Those who have learning disabilities can unfortunately develop mental ill health, but what things are being done to help those who have those challenges? I was asked to cover the Wellbeing event over at the Maudsley Learning Center situated over at Denmark Hill. This event was huge and practically used most of the building. There were many stalls ranging from health eating, mental health projects, healthy and active lifestyles and also workshops. I was most impressed with the involvement from those who use the services at the event.

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Croydon HearUs Celebration 2014

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Hear Us is the Mental Health Service User Group which acts as a coordinating body to facilitate, and ensure service users involvement in the planning, delivery and monitoring of mental health services in Croydon. They have gone from strength to strength ever since the group started and this event was to celebrate their archievements. I was impressed with the presentations and stories from those with lived experiences.

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Sydenham Garden Autumn Fair 2014

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On saturday the 27th of September, I was lucky enough to attend the sydenham Garden Autumn fair and lucky enough the weather was just right for it. Sydenham Gardens is award-winning charity providing gardening, nature conservation & creative opportunities for the well-being residents of Lewisham. At the fair was music, children’s activities, apple juicing and a chance to visit many of their gardens. Sydenham Gardens are also a member of the Lewisham Mental Health Connection.

Southwark HealthWatch Social Care

I visit quite a few healthwatch events and other healthwatches are happy enough for me to promote and blog their events. Southwark healthwatch held the Social care event in 2014 where we got to hear what they are doing for Access to GP services, Access to Mental Health services, Sexual Health Services, specifically HIV and of course Social Care. We also had the oppertunity to influence what needs to improve social care in the borough.

Bethlem Summer Farye 2014

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On Saturday 5 July 12-5pm I decided to visit Bethlem Hospital grounds to attend the Bethlem Sunfayre 2014. Each year they hold the Bethlem Sunfayre where there are some of the stalls selling various wares, plus five zones. There were BBQ and music and entertainment stage, Art workshops, ceramic workshops and the Bethlem Gallery plus bethlem Archives and Museum. There was also a Community Centre, Complimentary therapies and cafe. I spoke to Victoria Northwood on the developments of the new Bethlem Museum.

Asylum movie event – London Anxiety 2014 Festival

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The Anxiety 2014 is a London-wide arts festival taking place at multiple venues throughout June 2014 and I attened around 5 of the events and blogged, video blogged and captured a few events as well as networked with many of the attendees. One of the events was a documentary on film maker RD Laing’s controversial Archway Community, testing Laing’s conviction that mentally ill people can only heal their shattered “self” in a space where they are free.

Cooltan Arts Summer Solstice midnight walk 2014

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Cooltan Arts held their midnight walk, where about 130 walkers gathered for their Summer Solstice Midnight Walk on the 21st June CoolTan Arts is a a mental health and arts charity that believes mental well-being is enhanced by the power of creativity. I had an amazing journey on their 5 to 6 hour walk. We explored the area of Southwark and heard many stories and got to do some activities, however most importantly we learnt more about mental health and made new friends.

Hear Us Wellbeing event

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Back over in the London borough of Croydon on Tuesday 1st of July I attended the Hear Us wellbeing event where nearly 200 people, including those experiencing mental health problems, carers, staff and members of the public attended. I took part in some football, visiting some stalls, had some massage therapy and viewed some creative writing.

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Refocus on Recovery 2014

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On the on 2nd and 3rd of June 2014 the Refocus on Recovery 2014 international conference took place over at New Hunt’s House at Guy’s Hospital. The conference had four themes being, System transformation, Relationships that support recovery, Recovery in crisis and Keeping well in daily life.

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Lewisham Mental Health Connection Xmas Party 2014

 

Welcome to another blog by Matthew Mckenzie a carer from the London Borough of Lewisham. Its Xmas as of this blog post and there are many activities and parties going on. I have been to quite a few celebrations myself, but on the 18th of December 2014, I was looking forward to attending the Lewisham Mental Health Connection Xmas party, which was held over at St Mary’s Center over in Lewisham.

However what is the Lewisham Mental Health Connection or LMHC?

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Basically the LMHC are a group of people working in the voluntary sector who are committed to improving mental health in Lewisham. This is especially with the voices of those using the services and those who have important roles dealing with mental health.

To list some of the collaboration we have

Quo Vadis Trust, Equinox Lewisham, Healthwatch Lewisham, Bromley & Lewisham Mind, Family Action, Hexagon Housing, Animals for Therapy, Network Arts Lewisham, Voluntary Action Lewisham, Community Connections, This Way Up WellBeing, Volunteer Centre Lewisham, Lewisham Samaritans, Lewisham Parish, Sydenham Garden, Penrose and the Mental Health Providers’ Forum and myself.

So what happened on the day?

Well as I arrived at St Mary’s Hall, I could tell I was at the correct place because I could hear lively music coming from inside the hall. I managed to catch Charlotte Tarrant the Marketing Manager for Equinox, which provides support, care and recovery to people who are challenged by exclusion, marginalisation and a range of needs for special assistance such as mental health problems.

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Charlotte was glad to see me and she was also greeting many others who attended the Xmas party.

More from Charlotte later. Eventually after a little chat I entered the hall to see that they were almost ready to start the Xmas party and celebrations.

The Lewisham Mental Health Connection have had such an amazing year in 2014 and coming off their Lewisham Mental Health conference 2014 which had speakers such as

David Robinson OBE, Co-Founder of Community Links
Dr Pamela Martin, GP Mental Health Lead for Lewisham CCG
Tony Holmes & Kirsy Giles from SLAM Recovery College Manager
Dr Jim Sikorsk from Sydenham Gardens

It was great that the LMHC, its supporters and clients took the time for an Xmas celebration.

Going back to the party, the first thing that caught my eye was the lovely Xmas picture up on the wall, which I had to take a picture of. I was reminded by Ingrid (Scheme Manager for a mental health residential project) that someone with lived experience had produced that picture.

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Ingrid also introduced me to others at the party and the DJ also popped in to say Hi, but eventually I could not help notice some stalls at the back of the hall. I was intrigued as to what was in those boxes.

A lovely lady hosting the stall came up to me and explained that some animals were in the box and that she worked for “Animals for Therapy”. Here they provide companionship service, respite care, self-esteem for those suffering mental ill health.

The lady took a few animals out of the box to show me and although I was a little nervous at first, my curiosity eventually got the better of me, I began to be more drawn to the different types of animals and began to hover around different boxes to see what else was on display. The staff at the stall were friendly, professional and quite chatty.

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Soon I started to see others at the Xmas party come up and stroke or touch some of the animals, which all were very behaved and I could almost see the warmth of affection and connection between the pet and the person touching the animal.

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This is when Charlotte stopped by to say hello again and she also picked up one of the snakes to handle it. I was amazed to see how happy Charlotte was in handling the snake when I thought she might flinch from it, but this goes to show how different things are when you try to form a connection. I also took a snake to handle and see how it felt. The snake felt very smooth and light.

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You can find out more about Animals for Therapy off their site being

http://www.animalsfortherapy.org.uk

At the LMHC Xmas party I got listening to some nice lively music from the DJ and eventually noticed quite a few people were dancing happily, almost forgetting their problems or worries and just enjoying the moment. I noticed a few of my friends arrive and I popped over to say hello and also met a fellow mental health trust governor who also does work in helping those with lived experiences seek employment.

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Some of my friends went over to experience the amazing connection of animal therapy. This was when John O’Sullivan the CEO of a charity and housing association called Quo Vadis Trust introduced the guests to the activities at the Xmas party.

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I then took the opportunity to experience handling a bigger snake, which was a constrictor and this one obviously felt more heavy, but felt smooth and I could feel how slowly the snake moved, I think the pet snake was called “Bea”, I am not sure, but I was so glad to have the experience, I mean I know some animals are not for everyone, but none at the stall were harmful.

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Soon I played some games, which were free to play and I began to feel as if I was part of the community, since I was having a great time. I felt wanted and noticed how people came together as a community who have been through tough times amazed me. We all contributed in the spirit of being together and either relaxing or doing activities. I felt my label as a carer was melting away as I really enjoying myself, although it was not always easy.

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Next was to check out some more of the stalls and I found out that Bromley and Lewisham Mind had an information stall hosting a large array of useful information about mental health and Peer support group dates for 2015. I spoke to Simta from Bromley and Lewisham Mind about the different group activities for 2015 being walking, reflective writing, mindfulness and creative arts.

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Being that it was Xmas one booklet from the stall took my attention, which was title “How to cope with loneliness”. Now I know I was having a good time at the Xmas party, I know also that others were enjoying the festivities here and elsewhere, but I also know many suffering mental ill health are isolated, many suffer social exclusion, suffer mental stigma and are too afraid or worried to go out. Its important that not only those suffering mental ill health are giving information on how to cope, but also those who do not understand loneliness also have a read.

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Xmas can unfortunately be one of the worst times for those left behind, because there is always talk about time with families and friends and this can upset those who are lonely.

We should spare at least some thought for them.

Going back to the LMHC Xmas party, after being served free Xmas dinner and chatting to some others, we had a raffle, but being a carer I felt it was time to head back although I did try and invite them to come along.

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I really enjoyed the event and It was a shame I could not record the other activities there since I did not spend as long as I would have liked. I thank the Lewisham Mental Health Connection team for spending such a massive effort to get the xmas party set up. There will be more projects, discussions and opportunities coming from the LMHC off one of their social media groups which is on meetup.com.

I cant wait to see what the journey is like for 2015.

Check out Lewisham Mental Health Connection online.

http://www.meetup.com/Lewisham-Mental-Health-Connection

PerPlexUs – MA Applied Imagination Degree Show Review

20141212_171149Welcome to another blog post on mental health and the world of caring from a carer’s perspective. You can check out my other blog posts which sometimes has posts about my thoughts on caring, mental health, reviews, videos and so on.  Now on this post I want to talk about another Art event I visited over at the University of the Arts London.

On friday 12th of December, I went along to the PerPlexUs, MA Applied Imagination’s 2014 degree show, which defies myopic ideology and social infrastructures. There were plenty of art exhibitions to view and I even managed to also stay for the talk by artists describing their projects and the work they have produced across the world via the power of collaboration. This talk was on “How can creative collaboration save the world?“.

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Now I don’t know if you managed to view my site post about the Edward Adamson Collection Talk on my blog, but feel free to visit the site for the link below.

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Edward Adamson Collection Talk at Vout-0-Reenee

Going back to that talk I met a lovely artist by the name of Adele Orcajada at that talk done by Dr David O Flynn.  She told me about her project on the Masters Applied Imagination degree.

Adele told me about her interest which was on Yarn, where Yarn is a soft fabric used for knitting. Adele told me her philosophy on the texture, colour and uses for yarn.

I almost envied her passion for the fabric. So when she told me she was having an exhibition over at the University of the Arts London, I thought to myself it would be great to go over there and check her project out. Adele also reminded me that Dr David O Flynn was doing a talk at the PerPlexUs exhibition, so I felt it would be great to capture that as well, although unfortunately David could not attend that day due to an emergency.

Now going back to the degree show, I felt the main emphasis of that show was how art could heal and help people recover and connect with each other.

Still the PerPlexUs 2014 event also focuses on the students from the degree course raising projects to engage with many vital current issues and concerns from the personal to the global, being either gender issues, youth, well-being and so on.

If you wish to see the video version of my review of this event, please press play on the video below.

So anyway, as I approached Adele’s stand. Her exhibition was very impressive, I wished I had arrived a bit earlier to take things slowly and examine the stall even further. Each part of the stall told a number of stories and projects about the fabric, which is Yarn. Adele’s focus for her project was “Can Yarn achieve recognition as a distinct material that connects us to emotion, culture and identity?

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Adele then explained to me a number of her projects, one being story book about different types of Yarn. The other being a journal being turned into a ball of Yarn, plus Yarn rings which I thought were very interesting. I was also amazed at how the project aimed itself on dementia issues, where Adele took her Yarn for patients to use, although some would just touch the Yarn and felt at ease with it so they could sleep.

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Another thing that interested me at Adele’s project was the Yarn placed in bubble wrap, I was so tempted to press and pop the wrap, but thought I had better leave it alone.

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Adele showed me the types of Yarn at her exhibit section and explained further the properties and texture of Yarn, she also encouraged me to touch each Yarn fabric while she explained how it was nice to pull the string of yarn or make something out of the it.

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Unfortunately Adele was very busy that evening setting up much of the exhibition and also the talk on “Creative Collaboration”, so I took it upon myself to check out some more exhibits, I was hoping to hear more from Adele at the lecture theatre soon, before Adele rushed off, she invited me to touch and play with the Yarn some more and make my own thoughts about how the Yarn felt.

I also took the chance to go through her lovely stories about the pots of Yarn on her stall.

The Play Machine section by Ritika Jobanputra

So what was the next exhibit I checked out? Well I came across an attractive set of colours near placed near the wall. This was the “Play Machine” section by Art Student Ritika Jobanputra. Now her project aspect was on “How can the art of self-expression reach a wider audience of children through ‘play’ with sound and colour?

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Here is a small explanation from Ritika herself, basically “Play Machine” is a low-tech creative, recreational and educational tool, which combines both sound and colour, giving children the opportunity to freely express themselves.

One of things that struck at the Play Machine Exhibit was the messages on the wall.

Where a quote read out “Through self-expression in play children resolve conflicts, express outwardly what they are experiencing internally” Erikson, 1977

I also took note of how the pattern’s of paint were painted on paper up along the wall as if it was done playfully, but also being rather attractive to watch.

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I decided to also take a memento of the exhibit took a card on how I felt play was actually unproductive in a good way.

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You are a “pack of cards” exhibit

One of the installations I stopped at before I got to Adele’s exhibit was one done by Mitchell Cutmore. His project was on “How can playing with personality help you play your cards right?” I was wondering why a large number of cards were placed on the wall.

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This was rather perplexing, but when I approached to find out more information, the project explained that this was a grounding metaphor to help people know themselves better by playing card games to boost self-awareness. Here people can shuffle, split and personalize their personality and it is suggested the card game “Rummy” to do such a task.

I then turned to check out a large section of exhibits in the middle of the hall and I was drawn to an exhibit nearly laid out.

The “Work as we Play” Exhibit

The next project I saw was called “Work as we play”. Now this exhibit was done by Zerlyna Merilla and this project was on “How can gamification increase millennial employee engagement to the company?

Well this reminds me of Google, since I tend to feel they aim to merge work as if the employee was playing.

Zerlyna emphasis on this section is How that Work as we Play, is an internet-based system wrapped in a ribbon of fun for employers to engage their employees.

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I did not spend too long at this exhibit, but being an IT person, I did attempt to create a character off the laptop placed on the stall.

The “Sound Hanger” Exhibit

I moved on to an interesting section that looked to be called “Sound Hanger”, this one was done by Kwan Hee Cho. Her project was on “How can multi-sensory tagging enhance the shopping experience for the visually impaired?“.

Here it is mentioned that when the blind pick out clothes, they know basic information about material and shape of clothes by using the sense of touch. Here this project provides a new shopping experience through hearing, transferring colours of clothes into sound, plus giving experience to sighted shoppers.

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The Dialogue & Bridge Exhibit

I quickly then glanced and explored the project to my right and this was done by Dongran Li, which questioned “How can we break down the barriers and generate the new film co-production possibilities between the UK and China

I felt this was a fairly interesting project, which looked at how London is a global centre of production for screen industry, but Dongran noticed it was a good time for the Chinese film market to help develop fresh ideas.

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The Contemporary Art Section

Soon I found myself at a phrase I recognised in the art movement, contemporary art. Here the artist Lujia questioned “How can online and physical space combine art environments to promote and develop communication?

Here this interesting project looked at blending the two elements of online and physical environments together, where art does not just exist on the internet. I felt the project was attractive and nicely laid out.

As I looked around the large hall, I kept noticing this sign placed around the place. It looked to be tribal or almost some far eastern symbol. I wished I had asked someone what it was or what it stood for, the symbol was certainly perplexing.

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Polymeric Islands exhibit

Eventually I found myself attracted to another symbol and was interested in the word below the symbol called “Join the resistance”. When I stepped closer to examine the stall, I noticed it was completed by art student Jennifer Glein where her project focused on “Can a surrealist approach towards ecological messaging engage people to rethink attitudes and altar their behaviours towards the plastic polluted oceans?

Ok, ok….that was a long project title, but I guess there are quite a few around.

So what does this polymeric islands mean?

Well I read that this project is concerned with individual action and aims to show that action DOES count. In fact, it proposes that this is the only way in which change can come about, where one person changing one small part of their world, again and again……I like that.

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The project looks to attack the problem of consumerism and our ecological myopia.

I spent quite a while looking at the Polymeric Landmark placed near the exhibition.

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The Kibi Schultz Installation

The next installation was done by Kibi Schultz. I was really impressed by the use of space and colour and the closer I got to the display, the more I saw the message about the exploitation about female children’s bodies, this being on the topic of Female Genital mutilation and the pressure to change their bodies.

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The Consumption exhibit

A few steps away was another exhibit,  visitors to the exhibit were asked “What is your inconspicuous Consumption?“.

Going back to the large sheet of paper on the wall, I did not really know what my inconspicuous consumption is or was. So I just noted that I agreed with someone else’s view.

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The Self-acknowledgement stall

Out of all the stalls and exhibits that drew my attention, there were 4 of them and although my main interest was in Adele’s stall, this one by was close to my field. Here at this exhibit the project was on “How can self-acknowledgement through the help of a psychologist lessen people’s emotional sufferings?

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Here this project asked if people ever considered consulting a psychologist and looked at the stigma and embarrassment of those who were too afraid to admit this. Here this exhibition has a blog to help raise the awareness of mental health and I glad to see an exhibition whose core aim was mental wellbeing, the project also has a blog, which I not managed to get hold of as yet.

Who is the next Ai Weiwei? Section

One of the last exhibits I checked out was compiled by Belinda Shi whose theme was on “Who is the next Ai Weiwei and can western audiences explore Chinese contemporary art beyond the political perspective?

What impressed me at one of the last installations I visited was how engaging Belinda Shi was about her work.

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Belinda took the time to explain what her exhibit, which allowed people to tear off or cut off the paper on the wall to reveal cards on Chinese art.

You can find out a bit more on Belinda’s work off her facebook page.

https://www.facebook.com/WhoIsTheNextAiWeiwei/info?tab=page_info

Cutting the sleeves Section

Next to Belinda’s work was Yinghui Cao’s project looking  at “Cutting the sleeve – How can Chinese gay men be encouraged to refuse sham marriages?”.

There was a video of a young Chinese man cutting off some clothes from what I believe is an ancient Chinese story was mesmerising.

The project is a campaign to encourage Chinese gay men to be honest with their sexuality and refuse to get married to straight women in sham marriages. This perhaps might be the situation in China, where pressure is placed on many to marry, but I guess the same can be in the west on some circumstances.

The talk

Well I visited a few more installations and exhibits, obviously I could not visit all of them and I am sorry I could not mention any more artists since there was so many to mention, but all the stalls and exhibits offered something for the viewer, but now I want to move on to the next part of the Perplexus art event at the University of the Arts London

This part was the talk about how creative collaboration can save the world

We had several hosts at the talk, who were so happy to see people coming together and being creative and where there are ways making people think in a new light. The thing is that socialising can be a creative process and bring a community connection.

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At the talk we got to hear from 3 students the first being Adele who talked through a cycle of pictures each representing her projects. Unfortunately the pictures cycled fairly fast, so I could not capture all of them, but for Adele her projects were on

Adele

1. Using Yarn to make Tangible network
2. An Unmake project where old sweaters are turned into to new sweaters to aid recycling
3. The Awareness champion of a person knitting as he walks to raise awareness of dementia
4. Sharing messages to the world
5. Turning stories into yarn, mainly because people couldn’t read her writing

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We also got to hear from 2 other artists.

1. The use of the Imagination symbol
2. Workshops on recreation of old
3. Creating art on the cups to enhance objects
4. Projects portraying the Art of history
5. Examining the paintings of Mary Dubin’s sea horse

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1. Rehabilitation on child abuse
2. Somewhere over the rainbow.
3. Daughter working with the artist on FGM awareness
4. Raising awareness of the wasting of water
5. Inconspicuous consumption – old clothes to new clothes innovative.

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Next we heard from the 3 artists at the panel who two I have briefly mentioned already.

The first was Regina frank 

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Now Regina talked about on one project where she Worked on an art piece for 28 days to emulate the workers on slave wage. E.g. developing country workers.

She talked about how she has travelled around the world while using the internet as digital information and found words that she felt she had some connection to.

Made a kimono out of her favourite text while over in Japan

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Went to Atlanta to make an art on a game where no one wins, felt amazing experience of people contributing on poetry.

One project was on a Mushroom dress where mushrooms were grown on a dress and shared with others.

An interest project using sound where she used Cracking out from a mould and also used the sound of cracking the fruit open and painting with it, the sound was an amazing experience for Regina.

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Another project was on the Powerful perspective of painting a brush on a dress, how the brush moves and not us. If you want to hear more about Regina’s work then visit her site at http://www.regina-frank.de/

We then heard from Maria Dubin

Who told us of the experience she had when trying to explain to a big company about a piece of art work, but it showed how difficult it is to make an art piece. The problem was on how nobody understood her about how hard art is to make. Something was wrong. Now Maria wants to be part of the world, no more artist language, she felt she spent too long with other artists.

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Her mission was not to be so private, but take her art studio out into the world. Into museums.

Her Studio was also taken into a hospice, and although as we know people die there, the project was challenging on how art would be taken to a place like that, but maria was nervous about the interest.

Maria found out she was in dialogue with other people, she noticed art can HEAL.

Maria also painted sea horses near business, which helped a business because people wanted to have their picture taken by the seahorse.

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Seahorses painted around the world, seems to be connecting people and she has made film “sea horse symphony.

Feel free to check out Maria Dubin’s site at http://www.mariadubin.com/

The last artist on the panel was Jazz Rasool 

Now he Works with people a lot on transforming their skills. Jazz spoke about his transition model which has 3 processes, where the first is Awaken then collaborate and transform – ACT

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Here on this model, it is a Working wheel, where each Spends time in each cycle, but relies on it to build up momentum.

In order to be creative, have intent, cook it, transform it.
Explains a bit on Awakening cycle, connecting better with yourself and the world around you. Half of the cycle is about waking up.

He the moved on to the collaboration cycle, where he explained on the use of committing to collaborate with others, half the cycle is cooperation and building of trust of people. Need commitment, but can lead to bigger things as influence the world as a whole in itself.

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Jazz warned on avoiding the competitive cycle, this is where you go in reverse, which is backwards, the thing is we need to contribute.

The last cycle was the Transformation cycle, but half the cycle is planning, but after a while this turns into action, and if this is done well it can lead to impacts and that is done really well it can lead to another spin of the cycle.

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I am sure I have missed so much out of Jazz presentation, but you can read up on more of his ideas at http://www.jazzrasool.com/

After the talk, I actually got involved in the event with the students where we participated in several group workshops. One was writing a word or phrase that can relate to the community in which we are drawn to. We then used the words or phrases of other artists to make a story. We then moved on to learning about our abilities and talents and learning about other people’s talents who are opposite from us, but also opens up room for learning from our weakness.

The last section was connecting with each other through A web of Yarn, each with a different colour, texture and length.

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Overall I enjoyed the event and to be honest this was the students final projects before they graduated and I wish them well with their future projects on pushing the boundaries of art, using art to make a statement or activism, help raise awareness with art and most importantly experiencing creativity in their lives where art helps them in their journey.

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SHARP Gallery – Hidden Gems Art exhibition

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Welcome to another blog on caring on mental health. On this blog post, I want to talk about an art exhibition I went to check out over at the SHARP gallery located in Brixton on Brixton road. The private viewing was on the 10th of December 2014. Now SHARP stands for Social Inclusion, Hope and Recovery Project.

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Basically SHARP is a specialist team of mental health professionals focussing on recovery and wellbeing for people accessing the mental health services in Lambeth. The team is made up of Occupational Therapists and Psychologists and they help provide group and one to one interventions, helping people develop their mind and body and offer types of therapy.

 

 

A bit about the SHARP galley. Now the SHARP galley was set up in 2012 by local artist and carer Mary Salome.

Mary Salome

Mary Salome

The galley has exhibited the work of over 70 artists and many of whom use the mental health services. The gallery aims to be inclusive to all with no selection panels or screening of artists.

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Eventually the SHARP gallery will become the Salome gallary by the end of 2014.

Well what was this art exhibition about? The show was called “Hidden Gems”, and it is a celebration of staff art within South London and Maudsley NHS foundation trust or SLaM for short. South London and Maudsley NHS Foundation Trust provides the widest range of NHS mental health services in the UK.

Although I have done a written blog post of the event, I have also done a video blog as well with narration.

Going back to the exhibition, I managed to chat to Anna Croucher about what to expect at the exhibition and I also chatted to Sarah Josefsberg who is an Occupational Therapist. Sarah had some interesting views about why people paint and how she felt art is a way to break away from the label of mental health stigma.

The first SLaM staff and artist I spoke to was Dr Richard Corrigall is a Consultant Psychiatrist at Snowsfields Adolescent Unit. He is Chair of Trust’s Local Negotiating Committee and CAMHS lead for medical student teaching.

Richard Corrigall

Dr Richard Corrigall

Here Richard showed me his work called “Escape”, which was inspired by hearing a story from someone using the services, although he has recently got back into art, he felt the story from the service user was so inspiring that he visited her site and that got him into paint. His “Escape” painting looks into recovering from Mental ill health, but is also a form of kaleidoscope and playing around.

Next I spoke to Carol burtt who is a psychologist for the IAPTs team in Lewisham. IAPTs stands for Increasing Access TO Psychological Therapies. Now Carol showed me two very large paintings.

Carol Burtt

Carol Burtt

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These paintings were untitled, but abstract in showing some form of a railway track. Interestingly the two paintings were meant to be formed together, but Carol mentioned to me that it is up to the viewer to relate to what they feel about the paintings.

 

 

 

The next SLaM artist I spoke to was Jill Abrahart who is an IAPTs  employment worker. Jill helps and engages those who try to find work. Her painting was when she was on holiday in Rhodes and she managed to capture and paint the sunrise. Jill also showed me 3 other pieces of her work.

Jill Abrahart

Jill Abrahart

One of them was called “lavender” and the other being “view from a window”. Again Jill was on holiday, but she was playing around and experimenting with paint.

Jill Abrahart

Jill Abrahart

One of her other pieces of work was when she was going through a difficult time, the painting was called “Preparation for Separation”. Basically she painted through her expression and her the painting is a moody blue filled with splashes of different colours.

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Preparation for Separation

I then talked to Alex Harwood who is an Arts Facilitator. He facilitates two groups one being the Blackfriars CDAT group and the other being the SLaM ADart group. He has been on the art scene for around about 1 year and has done work at the Institute of psychiatry Psychology and Neuroscience. The first piece he showed me was a mixed media painting called “what a way to make a living”. The painting which was one of my favourites at the show, was about how travelled into work years ago and parts of the painting is on the tools he used for work all those years ago.

Alex Harwood

Alex Harwood

Alex then showed me another photograph picture, which was one of his art work. Here Alex is trying to capture real life.

Alex Harwood

Alex Harwood

After chatting and having some refreshments. I then spoke to Paula Mochair who is part of the STEPs team working on STEP art. Paula showed me her photograph art work on the homelessness in India and she showed me the mixed media painting which was inspired by her 3 legged cat who liked to stash ripped up papers in his litter.

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Paula Moclair

I then chatted to Terence Wilde about his 3 colourful paintings, but unfortunately none of his mental health work was on show that event.

Next was Carol Stevenson who is the membership officer for SLaM. Carol showed me 3 of her paintings, one titled “In the undergrowth” and the other called “fishermen” where she managed to paint some fishermen while on holiday painting some waterfalls. Her paintings were based on experimenting with shapes and colours.

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carol stevenson

The last artist I spoke to was Helen Shearn who is the Head of Arts Strategy for the Mental Health trust. Helen spoke about her photograph paintings she did some time ago.

Helen Shearn

Helen Shearn

Well overall I enjoyed attended the art show and talking to the various artists. I was really surprised at how many SLaM staff were creative in their art work. It was great how they supported how art can help others and had the time to even put their art on display. It was a shame I could not capture all the artists at the exhibition, but hopefully I ll get around to it at some other art show, who knows?

I thank Mary and her team on being so helpful for allowing me to help blog the event and I thank Helen Shearn and the other artists for taking the time to explain their artwork.

Staying strong as a mental health carer

Staying strong as a mental health carer

The FutureAre you caring for someone? maybe a close relative or friend? Perhaps a neighbour or maybe you are keeping an eye on your work colleague, but what if you have been caring for someone suffering mental health problems? What I mean is if you are being there for someone suffering addiction problems, psychosis disorders, bipolar, chronic stress or others that I have not mentioned.

 

 

 

Continue reading

Hear Us December Forum 2014

Welcome to another blog post from a carer who is caring for a close relative using the mental health services.  This particular blog post is about a mental health forum over in Croydon, which is free to attend as service user, carer or even mental health professionals.

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This mental health forum is called the ‘Hear Us Open Forum, but what is Hear Us all about?

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Taken from their website.

Hear Us is Croydon’s Mental Health Service User Group which acts as a coordinating body to facilitate, and ensure service users involvement in, the planning, delivery and monitoring of mental health services in Croydon. Helping to improve the quality of the services commissioned and delivered in Croydon objectives.

  • To relieve the needs of people living in the London Borough of Croydon and surrounding areas who have mental health problems by provision of services and advice.
  • To advance education about mental health for the public benefit in the London borough of Croydon and surrounding areas with the object of creating awareness and reducing the stigma attached to mental health.

Now Hear Us run their open forum every 2nd Tuesday of each month.  Unfortunately I have been so busy that I have missed 2 of their past open forums, but this time I was determined to catch their December forum and I was not disappointed.

So what was in store for us at the December Hear Us forum?

Well first we got to hear about the latest Hear Us AGM.

Next was the presentation by Lee Roach on the Reablement Service

Plus last but not least was the Mental Health Strategy from Susan Grose one of the Croydon CCG Commissioners.

First we had a lovely hot lunch for the cold December day.  I was fairly greedy and had several slices of pizza.

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Next up was David Ashton chairing the event and going through the forum procedure and agenda for the day.

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We discussed the Hear Us annual report for 2013/14.  We were all handed out a copy of the report and members of Hear Us actually got the report earlier on.  The report was an interesting read where we got to hear from the Chair, an introduction to members of the Hear Us board.  We also got to read up about the latest developments on the Linkworking project and view the Hear Us accounts and financial review.

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At the forum we heard more about the members of the Hear Us board and some of them introduced themselves to the attendees of the forum.  There were also some interesting and probing questions, here are some I picked up at the December forum.

One member was interested in Hear Us aims on Autism.

Another person asked on how people became trustees

I remember one of the Hear Us workers replying to the question about how rigorous the process is on applying to become a trustee.

This was when some of the Trustees of the Hear Us board introduced themselves to us.  One of them Felicia who was sitting next to chair of the forum David Ashton.  Felicia explained how much experience she has within mental health and the mental health services.

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The attendees of the forum were asked if they were happy with trustees, which I felt was a good question and showed that Hear Us valued their member’s opinions.

The first presentation at the forum was Lee Roach who is an Occupational Therapist on the Croydon Mental Health Reablement Project.

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Lee told us the following at the forum.

Who he is and what he does

What the Mental Health Reablement service project in Croydon

How important it is for Reablement project to be inline with the new care act coming out in 2015.

Lee mentioned that the Reablement services are still fairly new and there are not many reablement services out there.

Lee also explained a bit about what Reablement actually means. Basically reablement means helping people regain the ability to look after themselves as in self care.

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Lee then talked about how some are referred to their Reablement service although they do not take referral from GPs.

However anyone can be referred from IAPTs or Community Mental Health Teams.

The reablement project is actually a pilot, which means it is under evaluation at the same time to see how the project affects the community. The project has been running for 2 years and a report out in 2015.

However some people at the forum were worried that people being reffered back to GP and they wondered why the GP can’t refer patients back to services.

There also was other important questions aimed at Lee and they were.

Why could the reablement project not run in conjunction with services.

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–  It was mentioned that it is important to state the reablement service does not deal with medication and those referred are at a point of recovery when being reffered to the service. However someone followed up on the answer and stated if you do not support on medication, what happens if there are medical issues after refferal?

One member of the audience felt that the Care act must be empowering to Service User and that they feel dis-empowered in the London borough of Croydon, he wondered who is making these decisions on these services.

– We are under a steering group under Mind and HearUs, take makes sure our services are in the best services levels in regarding service users.

Another interested discussion was on the option on ‘easy in easy out’ service over in Purly where the GP refer back to team faster if they are concerned, this is where urgent appointments available in 7 days.

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A felt another good question was someone asking what are the evaluation of the service so far?

Lee stated so far there are positive findings of the service, but they need to engage with carers more.  Plus they are also focusing on leisure and work of people’s lives, plus learning new skills (reading and writing, new courses, yoga, exercise).

One last question I noticed was that one person was worried about those who do not have a care coordinator, but were passed on to outside agencies, seems two-tiered group.

After a short break and some networking we moved on to the next presentation, which was presented by Susan Grose the Croydon CCG mental health Commissioner.  Susan spoke about the Croydon CCG MENTAL HEALTH STRATEGY and wanted to hear the views of service users, carers and members of the public.

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Susan Grose was actually an Interim commissioner in Lewisham a while back and is now a commissioner for Croydon

Susan spoke about how the borough of Croydon is changing and is more likely going to be more deprived. One in Six adults in Croydon has a hemtal health need and it is stated that Anxiety and depression are projected to increase by 5%.

Susan mentioned the need to improve integration of mental health with physical health, which is something I clearly agree and support. Susan also spoke about the need to better address the needs of BME communities where there is a 40% of acute admissions.  Croydon CCG have also invested in the use of IAPT services, which basically means Increasing Access to Psychological Therapies.

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Susan then moved on to presenting the need to ensure the wider determinants of health to be addressed, that being housing, education and employment support.  Plus also addressing variation in primary care and easy access to whole life support to improve and maintain mental well being.

Croydon CCG have been busy consulting with service users and stakeholders, they have held a number of workshops with GPs and developed associated strategies for CAMHS and OAMH.  They have committed to the investment of £5.2 million to stabilise the system and invest in community services, plus invested £600K in IAPT services.

Susan spent some time at the forum showing us the Proposed Adult Mental Health Model where we were explained the steps on stabilisation of the mental health services in Croydon and how gatekeeping, capacity building and relapse prevention can fit into this model.

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Some of the Key aims of the strategy is to ensure voluntary and third sector provision works alongside with primary and secondary health services. Another aim is to improve the quality of life of people with mental health needs, improve access to mental health services, strengthen partnership working and ensure there is education available on mental health awareness.

The next steps for the strategy is to develop a strategy action plan with service users and stakeholders although I do hope they involve the carers.  Other steps are to continue to work in collaboration with other CCG commissioners and also refine the community adult mental health.

So what questions came up in the discussions?

One person was worried about waiting times on IAPTs, However it was explained that lack of funding was a result of this and they are working to improve waiting times.

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Another question was on the cutting beds to increase throughput was not the best idea, the person felt it is best to keep those beds, the commissioner agreed with this statement.

A good question was on the problem of hostel’s closing and the concern of hostel provisioning. It was stated that there was worry about many of the hostel’s are privately owned, need to look carefully at where those in those areas, receiving services in the right setting, its not an easy problem to solve, so no answer as yet.

Another interesting question was on how to access dementia services, which takes too long. Susan did agree and stated that dementia is high on national agenda. The UK is an ageing population and dementia is a silent time-bomb, we need to educate people.

There was also many other interesting questions, but overall I really enjoyed the forum and look forward to the next forum, I felt David chaired the forum very well and the staff were friendly and kind.

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Carers Rights Day 2014

matthew mckenzieWelcome to a caring mind blogsite. A site dedicated to a carer’s perspective on mental health awareness and sometimes other health topics and events. On this post I want to talk about carers rights. You see Carer’s Rights Day is on the 28th of November and I am writing this post just before the day.

 

However, what is a carer? and why is it important that carers need to be aware of their rights?

Well basically a carer is someone who looks after either a close relative, friend or neighbour who are not able to take care of themselves. The caree (the one receiving care) can either be suffering from a physical or mental health problem. Now I am a carer of someone suffering mental ill health, so as a carer I am passionate about what carers have to go through.

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Carers unfortunately do not have it easy, if you are caring for someone who is chronically ill, then as a carer you will spend more time caring than looking after your own needs. Another difficult situation is carers have to SACRIFICE so much to able to carry out their role. Carers find it hard to work normal hours, carers have to spend a lot of time and energy in their roles, plus carers sometimes have to navigate the difficult maze of confidentiality.

The problems I have pointed out above only make a small percent of what carers have to tackle. So if there are even more difficulties in a caring role, what could make the difference? What could make a caring role more easier to bear?

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The answer is carers having their needs supported, plus also having their rights protected. As of this writing we have two acts over in the UK, these are “The Children and Families Act” and “The Care Act”. The Children and Families Act 2014 introduces a system of support which extends from birth to 25, while the Care Act deals with adult social care for anyone over the age of 18. These Acts, which hopefully will become bills will help support carers in their role.

I expect Carers Rights Day to focus on these acts and help explain what rights carers are meant to be given. There are around 6 to 6.5 million carers in the UK and carers save the NHS £87 billion every year!! However looking at carers these days, you would not think anyone would notice how much value carers add to the community. The problem is that carers help save money, but if carers were buying into something then carers would be protected.

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Now we have two new acts which looks to protect carers, but this is not the end of the story, how does Carers Rights Day help in carer awareness? Well if you are a carer, you may have already known how difficult it is to get support in order to make your role easier, or make your life easier. Carer’s Rights Day makes it known that carers have a right to information that supports their role, it is also important to help raise awareness of carers rights.

Carers also have the right to have financial support and also be aware of where to get that financial support. This is because carers just do not have the time to work if they are so busy caring, which is something so many people do not understand. Carers are financially poor not because they do not work, but they just do not always have the time.

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A national carers organisation called CarersUK has released a report which examines how financial pressures affect health, wealth, and well-being of carers. It is worth reading off their site.

Carers also struggle to find information, sometimes its difficult for carers to find the right person to get such information, but What can be worse is if that the carer finally finds that person who may end up withholding information for other reasons. Carer’s Rights day should also focus on how carers can get access to information within the right context to carry out their role.

Time and time again carers can be driven back into a role that is unsafe, unhealthy and unnerving for many carers not only across the UK, but across the world. Carers need to take a step forward and be counted for their efforts. Not everyone has the time and patience to look after someone. Carers should be valued for their skill-set in keeping the family together and keeping the community together. For far too long carers have been denied access to so much support.

Carers Rights Day should also be a celebration for carers across the UK. I for one am going to spend part of the day visiting Carers Lewisham and I am also keen to see what the other carer’s centers are up to on the day.

What amazes me as a carer is wondering what would the situation be for carers if there was no Carers Rights day? How bad would it have to be for carers to continually care for someone with little support, before that carer suffers from bad health themselves?

We can all make that difference on Carers Rights Day. As a carer I urge other carers to blog about their experience of Carers Rights day, I also hope many people attend carers awareness events and pick up information about Carers Rights Day.

Thank you for reading.

Review of the Lewisham Mental Health and Wellbeing Day

Matthew MckenzieHello again and welcome to another blog post on a carer’s perspective on mental health and wellbeing. Talking about those two last points, there was a mental health and wellbeing day on the 20th of November over at the Catford Civic Suite in Lewisham.

 

 

 

The Lewisham Mental Health and Wellbeing Day is presented by the NHS Lewisham CCG, South London and Maudsley NHS Foundation Trust and Lewisham Council.

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I just had to attend the mental health and wellbeing event, this is because I am a carer of a close relative suffering mental ill health. Last year I was lucky enough to chair the 2013 event and perhaps I ll place the video of that event later on in this blog post, but what was in store for us this year?

Well this year the MH and Wellbeing stakehold event wanted to concentrate on the service user/survivor aspect. So we had Carmine De Rosa chair the event. Next was a Mental Health commissioning update for 2014 and this was presented by Pamela Martin, GP Mental Health Lead for Lewisham CCG.

After Pamela’s talk came the presentation from Sarah Yiannoullou who is the Managing Director from NSUN (National Service User Network). Her talk was on inclusion, involvement and influence of those using the services and the NSUN 4PI standards.

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Then last to speak was John Ryan talking about an alternative view of the Mental Health system, John is a comedian and his talk certainly lightened up the mood since we all know Mental Health can be a difficult subject to discuss.

Still, the event was not just about talks, throughout the day from 10.00 am till 4:00 pm the event numerous workshops, stalls, wellbeing activities, refreshments and a chance to network and most importantly gain information to aid in recovery or getting support in caring. I also noticed some members of the public attended to try find out what mental health is all about.

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Unfortunately I cannot go into so much detail about the event this time, but why is this? Well for one I was recovering from a horrible cold, so I could not gain access to the talks or workshops because I kept coughing and sneezing. Secondly I do not want to repeat what is found in booklets about the event, I perfer this blog post to be about how I experienced the event and what I got up to most of the day.

Well on that sunny morning as I entered the Civic Suite, I was greeted by friendly staff who signed me in and handed out the agenda and activity information for the day. I then explored around the building and watched the impressive presentation slide of the wellbeing event.

Unfortunately my cold was getting the better of me so I had to sit down and gobble up some oranges kindly left for visitors to take. I was then greeted by Gráinne from Lewisham CCG and a few others who were glad I attended the event.

Eventually the public were called into the main chamber to hear the talks and I also went in for around about…..5 minutes before I started coughing and wheezing again. I just managed to get some of the talk where they presented on improving recovery and challenging mental health labels in order to reduce stigma.

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Soon I had to head back out to the waiting area and check to see if I could go back in the conference chamber, but it was no good so instead I took a trip to Civic Suite’s Lower floor. There were a vast array of stalls and I could not visit them all, but I ll explain what stalls took most of my attention.

The first stall that took my attention was SLaM Stall or the South London and Maudsley Stall. I could see many booklets and information about the mental health trust and also more information on how to become a member of the trust. I also picked up a flicked through SLaM’s latest newsletter about the Happy Heads event, which is an event aimed at teenagers to promote mental health and wellbeing. I think I did a blog post about that event.

After a while I tried again to enter the conference chamber and just caught a bit of the talk by NSUN on the 4PI standards, but what is NSUN all about? NSUN stands for National Survivor User Network and is a network for mental health in England. NSUN gives and promotes a powerful voice for those using the services and their carers, but they also do a lot more.

The talk was about how their work has led to the development of the 4PI framework for involvement: a simple, yet robust framework around which to base standards for good practice, and to measure, monitor and evaluate involvement.

– Principles
– Purpose
– Presence
– Process
– Impact

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Involvement of those using the mental health services is critical not only in aiding in recovery, but reducing the isolation felt by those using the services. At the core of mental health services should be the service user perspective. Such implementations are of course not an easy thing to archieve, but must always be one of the aims of any mental health service provider.

Again my cold played up on me and I found myself beating a hasty retreat back to the lower floor again to view some more stalls. The next stall was impressive and this was the lewisham healthwatch stall. Healthwatch is an independent consumer champion that gathers and represents the public’s views on health and social care services locally or nationally. The most interesting document I picked up from this stall is their report on one of SLaM’s units, which I flicked through. What came to mind when I went through the report was transparency and cooperation with other independent organisations.

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The next stall I visited was the Samaritans stall, I have spoken to the Samaritans several times on many events. Basically the Samaritan’s are a registered charity aimed at providing emotional support to anyone in emotional distress. I spent quite a long time on this stall swapping ideas and networks, because one of their staff is a member of the Lewisham mental health connection, which I am also a member.

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The next stall was on IAPTs (Improving Access to Psychological Therapies
), which offers a range of psychological therapies to adults 18 years and over. I glanced over a few of their leaflets to take home and read, plus I have been on many IAPTs courses in the past.

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Eventually I wandered over to chat to a the SLaM’s carers support officer who I have known for many years, she was busy minding the SLaM’s Family & Carers information stall and I could see the purple family and carer booklet which I was lucky enough to contribute to. The Mental Health Trust aims to support carers as much as they can and this stall shows they are working hard to help carers of those using the services.

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After visiting the SLaM Family & Carers support stall, I moved on to the Carer’s Lewisham Stall and spoke to Jey and her new volunteer who specilises in dementia support. I picked up one of their leaflets, which was very colourful and flicked through it. As a carer, I have been using Lewisham Carers a long time.

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Then next stall was on “Community Connections”. Community Connections is a development and access-facilitation project with a preventative health and wellbeing focus. I picked up one of their leaflets which was on a wellbeing story, just on the focus for the day. Soon I moved on to another impressive stall which is the SmokeFree campiagn for lewisham.

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I eventually I ended up at the MyHealthLocker stall. This stall is about self empowerment using technology to monitor your own health and allow doctors and even carers to aid in your care. myhealthlocker allows you to have control over your health information. Service users can access their care plan from the South London and Maudsley NHS Foundation Trust, keep track of how they are feeling, access resources and tips on staying well and manage their health and wellbeing. I was given a free T-shirt for attending the stall.

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The next stall I spent talking to the staff for a while in order to catch up with them. This stall is about the Lewisham Mental Health Connection are group of people working in the voluntary sector who are committed to improving mental health in Lewisham.

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After a few more visits to some stalls, I ended up back in the upper floor to have some nice carribean lunch and continued to network with many others.

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Unfortunately I missed out on the workshops and more talks, but I guess its impossible to be everywhere and considering I had a cold, I really enjoyed the day. I can’t wait for next years event.

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My Review on Healthwatch Southwark – 1 Year on event

coverI thought this time I would do a post on an healthwatch event. Now I have done some posts about healthwatch before, sometimes Healthwatch Lewisham and other times Lambeth, but this time I was over in the London borough of Southwark for the Healthwatch Southwark event – One Year on.

 

Before I continue on how the event went, what is healthwatch Southwark all about? Well basically taken from their site – Healthwatch gives people a POWERFUL voice locally and nationally on matters concerning health services. At a local level, local Healthwatch will work to help local people get the best out of their local health and social care services. Whether it’s improving them today or helping to shape them for tomorrow.

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Now there are healthwatches across different boroughs of London and the UK, all giving people the chance to form an opinion of the health services. Healthwatch does more than just listen and engage, they also do enter and view of health services and produce many reports. So the thing is what has Healthwatch Southwark been up to over the year they have been in action?

Well on the 22nd of November, I took a trip over to Pembroke House over in Southwark and was greeted friendly by the healthwatch staff and a staff member of “Community Action Southwark”. As a reminder, the Healthwatches are heavily volunteer focused and depend on involvement by the community, especially by those who have a passion for improving or championing the health service in the UK.

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When I entered the premises, I was glad to see quite a few stalls on display, although one of my main interest was the stall about mental health awareness and engagement. I took the opportunity to visit the CoolTan Wellbeing stall. CoolTan Arts exists to inspire and transform peoples lives though creativity and self-advocacy. The stall advertised the up and coming CoolTan Coolwalks, which I have been on several times. The stall also had booklets and information about mental health and a video about different periods the coolwalks focused on.

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20141122_132222The next stall I visited was a stall promoting sexual health research and awareness, which is one of Southwark Healthwatch’s main area on raising awareness about sexual Health. I spoke to the stall holder about her research and its main aim is to have people from the area of Lambeth & Southwark from aged 16-30 be part of an innovative sexual health study, where people can look to getting a sexual health check and tell them what they think about the service. Getting tested on sexual health is very important for many reasons.

Soon I spoke to the stall holders of the Southwark & Lambeth Integrated care where Health and social care organisations and people in Southwark and Lambeth have come together so that local people can lead healthier and happier lives. I was impressed by their display and the stall holders explained some important reasons for building a community along the lines of better healthcare. They want people to at least

– Feel they are a part of the community
– Have systems in place so they can avoid having a crisis at a later stage
– Live independently
– For carers to live the life they want to the best of their ability.
– and lots more

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Another stall I visited was the Southwark CCG stall, where they had lots of interesting information on what Southwark Doctors have been doing to improve healthcare for the borough. The CCG stands for Clinical Commissioning Group, which basically means a membership organisation of all the GP surgeries in a borough who help organise the delivery of NHS services. One of the main focus of the CCG is of the commissioning of services hence where should the money be allocated to on providers of health services.

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My main interest was the Southwark CCG summary annual report for 2013-14. I also picked up and took away people’s health information is used in the borough of southwark. I urge those interested in their health and health services to read up on such information when they can.

I also noticed stalls doing free health checks, free eye check examinations and I was also given a free health goodie bag. I guess Xmas has come early for me.

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After having some tasty lunch, which was provided free of charge by Healthwatch Southwark. We then went upstairs for the main event. The event was to hear what has healthwatch Southwark been up to? It was time to hear their story.

First to speak was Southwark Healthwatch Chair David Cooper. David spoke on the following being how much work and effort HW Southwark has been doing, The new NHS 5 year plan in south london, how financially difficult it has been for the health services and the importance of Healthwatch Southwark.

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David then moved on to the agenda of today’s speakers, which I was keen to hear from.

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We were then introduced to the new Healthwatch Southwark Manager Aarti Gandesha, now Aarti spoke about more about Healthwatch Southwark’s aims as you can see from the picture. She also talked about how people can get involved with healthwatch and there are many ways to get involved if you are passionate about your health services.

Aarti then talked about what HW Southwark has been up to so far and many of their engagements have been on the community focus groups involving different members of Southwark’s communities. Healthwatch Southwark have also held many public forum events and community events. Plus HW Southwark have been busy collecting stories for their joint ‘1000 lives’ project.

The Healthwatch Manager then moved on to explain what Healthwatch priorities are for Southwark and there are 4 being

1. Access to GP Services
2. Access to Mental Health Services (my main area of interest)
3. Sexual Health Services
4. Social care Services

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Next Aarti talked about Healthwatch Southwark’s archievements during the past year where they have

– Engaged with a large number of people over group sessions
– Established 4 priority areas
– have 676 supporters
– received 194 info and signposting queries
– and more

After Aarti’s presentation and talk, we then got to hear a story from a carer in the borough of Southwark. The story resonated similar themes that I go through as a carer e.g. the worry of services being closed down, being able to relate to others, the hope that things will get better and having to provide advice for others.

We then got to hear a talk and presentation from Southwark CCG Director Paul Jenkins. Now Paul’s talk was on the current & Future Opportunities for locality and neighbourhood working. Paul talked about understanding Southwark’s population and health needs (shown as a tree in picture).

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Plus Paul talked about the direction of travel when people needed to access health services in Southwark. The aim was to look into providing GP practices that will work closer together in the borough, plus providing a wider range of hospital care closer to patients homes. The thing I noticed from Paul’s talk is that services will need to work together since there will be many challenges.

We were shown the different neighbourhood groups of practices and their reach into the community. Plus the explanation of the direction of travel where many schemes and projects will be set with the aim of GPs working together

The last speaker was Kerry Crichlow who is Southwark Councils director of strategy and commissioning. Her talk was about health and social care commissioning and the integration in the borough of Southwark.

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Kerry gave a quick run down on the big issues about commissioning. Those being an ageing population and responding to financial challenges, plus health inequalities. Next Kerry moved onto opportunities where a strategy developed to aid the patient’s journey through their experiences in health. Plus building a stronger framework on prevention and inclusion. Kerry spoke more about the opportunities to shape provisioning around people and maximising integration of health services.

After the presentations, the public and patients who attended got to ask some quick questions, I won’t go into the answers, but some questions were based on

What can be of assistance for those who have physical disabilities or those who have hearing impairment?
What can bridge the divide in health equalities in the borough of Southwark?
How can personalisation help those who have had bad experiences health assessment?

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The next and last stage of the event was people to seperate into groups and provide HW Southwark and their facilitators opinions on the following

1 – Service Changes
2 – HW Priorities
3 – Involvement in HW Southwark

The one I chose was the “Involvement” table on how can Healthwatch get more people to volunteer. Each person on our table talked about their role and connections and we also talked about who do each of us talk to when we experience good or bad things in health service. Usually it would be our friends, family or specific groups. For me I tend to speak about my experiences at a carer’s group.

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We also discussed the importance of social media, which is one of my area of expertise and also the purpose of volunteering since some would like to volunteer, but are not sure how much work it would involve.

After feedback from each table. David then thanked all for attending. I was particularly glad I attended the event and was allowed to even blog the event. What I got most off this event is learning more about Southwark’s Health and social care setting, learning even more about Healthwatch, networking as I got access to sit on more groups and also giving my opinions.

Thanks for reading my blog post of this event.

CarersUK National Summit Review

Welcome back to another one of my blog posts. I guess I have not done a carers post for a while, so it seems fitting to do a post on the CarersUK National Carers Summit, which was held on the 13th of Novemeber 2014. This was an impressive Summit and I do admit the Clifford Chance building is certainly stylish.

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I am sure I may have mentioned CarersUK in one or two of my posts already and you might have actually seen the CarersUK link off my carers site list, but if you are still not sure what is CarersUK all about. Let me point out a bit about the organisation.

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Basically in a nutshell CarersUK give expert advice, information and support to all different types of carers, but not only that. CarersUK fundraise, the lobby the UK government, raise awareness of carers and try to support other carers to get involved in the carers movement.

Here is a brief video about CarersUK.

CarersUK have several important messages which I heard a few times at their National summit. These being :-

“You do not have to care alone” or “If only I had known” and many more important motto’s for carers.

Now, I am a member of CarersUK myself and often pop on to their carers forum every so often. I have even phoned CarersUK for advice and even if I did not get the advice I could have hoped for, then at least someone was on the other line who at least listened to me.

So why did I decide to take some of my precious carer’s time and head off the their national summit or AGM? Well there were several reasons.

1. CarersUK is BIG, if you have been a carer for a while then you should have heard of them.  I was very curious to see what CarersUK have been up to and wanted to experience what their AGM was like.

2. I also wanted to meet and see how many other carers turn up, I felt if there was a chance to form a network or make a connection then it has to be at this event. I have to be honest and state it is not so easy to get a majority of carers in one place. Why is this? Carers just do not have the time. Time for one thing is a precious commodity for carers, but if I at least shook a hand of another carer or spoke to a carer then at least I felt I was not alone.

3. Other reasons I wanted to attend the event is to gain information and to be part of the special occasion. I could not attend the previous event because it was fully booked, I was not happy about this, but this time I was not going to miss this AGM. I did not specifically go there to ask questions, I felt it was just nice to be there and feel part of the carers movement, it was nice to belong and to not feel alone any more.

There were numerous others of reasons why I wanted to be there, but anyway what happened at the AGM? What could I remember?

Well I met up with long time carer and carer representative Bridget Jones who has been working so hard in the field to spread carer awareness at the mental health trust South London and Maudsley, both Bridget and myself planned to attend the event a while back.

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Bridget and myself were so excited to visit the building and hear of any new developments, but in the back of my mind I knew there were going to be some difficult questions asked of CarersUK. For one I have noticed the austerity measures and cuts beginning to bite into social care.

The thing is, carers are trying to protect the vulnerable, which is their loved ones, but such cuts, bedroom tax and austerity measures always hits the vulnerable first.

As I walked into the building and collected my pass, I was impressed by the space and size of the area. The staff were welcoming and very friendly, I even bumped into fellow South London & Maudsley carer Governor Angela Flood, plus I also managed to shake hands with Heléna Herklots who is the CarersUK CEO as she greeted other carers into the auditorium, which I felt was one of the highlights since I know CEOs of big organisations can be distance or very busy to notice everyone.

Eventually Brigdet, Angela and myself sat down to hear the welcome from Professor David Greyson the chairman of CarersUK. He gave a very good speech, but a fair bit of my attention was on other carers and the surroundings. I also noticed some excellent and very challenging questions about the financial situation of carers.

We also got to hear from Heléna who gave a review of 2014 and what carersUK have been up to. I picked up a few points and those were

– How CarersUK have managed to increase their advice service from 2 days to 5 days a week
– Developed more training to NHS Staff
– Produced an e-learning package
– Plus producing leaflets for carers since not all carers have access to the internet
– CarersUK have increased membership and one of the major members is NHS England, which I was very glad to hear
– CarersUK have also made an impact on the Care act by getting parent carers included in the care act.
– It has also been a difficult year, as I have mentioned before. A lot of carers have been hit by bedroom tax, social care cuts and more cuts are on the way.

One thing that kept popping up at the AGM is that a number of CarersUK centers have closed due to limited funds or not being able to adapt systems CarersUK has tried to set up. It is important that carers who have had issues with CarersUK had to be heard and to be honest I expected the tough questions and statements to be raised at the AGM.

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We then had a 10 minute break where I spoke the Emily Holzhausen who is the director of policy and public affairs for CarersUK. I have met Emily quite a few times and she has spoken at the SLaM family and carers listening event a few times. I can certainly say that Emily works very hard for carers since it can be difficult to get someone of her stature to speak at such NHS trust events.

I also took time to make a pledge off the carersUK pledge wall and hoped to do just a bit more for CarersUK, but I know my time is very limited since not only am I still caring, but having to hold down a job and push forward carer awareness in South London and sometimes beyond.

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After the break we got to hear from more carer questions and I noticed another carer Kelvin Wheelan asking some interesting, but tough questions at the CarersUK board.

There were also questions of the trustee members and stating if they represented carers on their gender and race, which is a very difficult balance, but I did agree with the counter argument that if there were such criticisms then other carers should put themselves forward.

Next to present was Gavin Macgregor Director of communications and Engagement, plus we heard from Rucksana Mahmood who is the local ambassador in Glasgow and a member of the Carers Scotland Committee. We also heard from Denise Lee who is one of the CarersUK Adviceline volunteer who spoke passionately about her role to carers. We also got to listen to Caroline Toll who is another CarersUK ambassador in Somerset.

Unfortunately I could not stay long for the carersUK AGM, but I did get to listen to several poems from Cheryl Moskowitz and also from the short story winner Val Ormrod. As I write this blog now, I can still hear their voices as they read out their stories and poems from the AGM.

However, this blog is not mainly about what happened at the AGM, I wanted to put my 2 cents about the carers movement, I want to put my feet on the side of the fence, but which side?

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Well throughout the AGM, I did hear tough questions being asked of CarersUK. The thing is big organisations have big responsibilities and I do notice CarersUK shoulders are broad, but I also know that carers can complain and are not always silent as one may notice.

There are of course millions of carers who are isolated and do not know of their role or do not get any support, but I could not help notice some unfair questions being thrown at CarersUK. Yes, I am sure some of the CarersUK staff get paid well for what they do, but I still feel that job is not the easiest of roles. I also notice CarersUK need support as well, but from who? you ve guessed it, us carers.

It is a shame that carers in the UK have to muster up more energy and determination to help the carers movement, but I feel its not just any carer can take up that role. I feel it takes a carer who has the energy, spirit and heart to give not only care for their loved ones, but also to support their carer organisation or centers.

If I was talking about the banker movement, then yes, it would be far easier for other bankers to support their financial sector, but alas it is us carers having to spread the message.

Its not that CarersUK is forcing people to help in the movement, but I am aware that if we are to be heard on our struggles then we all need to work together, but I am aware that the system does not work for all carers and there will be tough decisions ahead. Carers will be let down and yes CarersUK have struggled to be there for some carers, but I also know resources are hard to come by.

So I guess the side of the fence I am sitting on is to support CarersUK. I feel it does no good complaining about them or blaming them for too many things, which of course some things are clearly out of their control.

Plus thinking back to the AGM, I cannot remember any carer in the audience thanking carersUK for their hard work that they have done so far, although I could be wrong since I had to leave around lunch time.

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Overall I was impressed with the AGM and I felt all speakers spoke from their heart, which is what I want to hear most of all. I want to see the passion in the movement, I also want to see carers rally to support not just carersUK, but many other carers organisations as well. I want carers to link up and support other carers. Us carers can support fellow carers by listening, giving advice and pointing to other carers where to find good resources.

I wish to thank all CarersUK staff for running a successful AGM, which kept to its time limit and keeping my interest (which is not an easy thing to do). Us carers need to connected more than ever now because we are at risk due to cuts and the care bill although promising has not been tested in an uncertain society. With big changes in politics, the NHS and the community, we need the big organisations that cannot be so easily ignored. Us carers can usually be ignored because we are not often heard, we just continue to struggle on caring, but rest assured when carers speak, I know carersUK will amplify our voices.

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Let our caring voices ring out “We do not have to care alone“.