Tag Archives: carer struggles

Interview with Elsie

Caring for a loved one is a role that often goes unseen and undervalued. In this interview, Matthew McKenzie speaks with Elsie, a 73-year-old carer and activist, about her journey as an unpaid carer, the challenges she’s faced, and her mission to support others walking the same path.

Standing Strong for Carers’ Rights

Elsie refuses to be silenced. Though at times labeled as a “persistent, unreasonable complainer,” she sees her persistence as a duty to her loved ones and to other carers. For her, raising concerns is about advocating for better care and systemic improvements.

Her advice to carers is simple but powerful:

  • Trust your instincts.
  • Don’t give up until your loved one gets the right care.
  • Learn about carers’ rights and stay engaged in decisions.

Finding Strength in Words

In a deeply moving moment, Elsie shared a poem she had written for the Book of Remembrance at Honor Oak Crematorium, in memory of her son. Her words reflect not only grief but also strength, love, and the motivation to keep advocating for change.

You’ll always be our hero.
Although you’re gone, we’re not apart.
Our love for you keeps going,
It stays deep within our hearts.

Football, food and fishing
Were what it was all about.
Blue is the color,
Come on, you lions, to shout.

“Listen to Me” – A Carer’s Plea Turned into Song

Caring for someone with a mental illness is an emotional, often isolating experience. Unpaid carers—whether they are family members, friends, or loved ones—carry immense responsibility, yet their voices can feel unheard, especially within the healthcare system.

One of my poem’s “On Being Heard” taken from my book The Poetry Book of Mental Health Caring, captures this struggle with raw honesty.

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