Tag Archives: carers

The stigma of an unpaid Mental Health Carer

matthew-mckenzieWelcome back to another blog from unpaid carer in the south of London. As world Mental Health Day draws near, a lot of emphasis is placed on those suffering angel problems. I find it quite important that you must not forget the hidden Heroes who’s tape in when their loved ones are in most need. This is not to take away the difficult battles mental health survivors face, however all too often sigma hits out at more than one person.

Mental health stigma hits the family, the friend, the husband, the wife and even the neighbour. This blog will concentrate on another type of stigma, which can be all Too Well forgotten. I am going to talk about carer stigma. Now it is very important that not all unpaid carers suffer from carer stigma.

First you must differentiate what or who is an unpaid carer. I am talking about the person who suddenly finds themselves caring for someone close to them who has been unfortunate to pick up either physical or mental health problem. I am not talking about paid care workers, although I do admit care workers to find they can have a difficult job, they are paid for their role and can be protected by Union.

Arguments.

With carers they are not trained and often care out of closeness and love for the person they are trying to look out for. It gets really difficult if that person has a mental health illness.

The types of carer stigma.

So Let’s Begin, I cannot really produce an exhaustive list of different types of carer stigma, but the ones that i am showing i’ll probably the most recognisable types of carers take life out there.

Depends on the illness.

When a loved one become very unwell, he often try as hard as he can to support them. The problem is the more chronic the illness the more is stigma lash out. A good example is when a carer is caring for someone suffering psychosis, those suffering from this difficult illness can often present challenging behaviours. If such behaviour is out in public, then the challenge is not only faced by the mental health Survivor but also the carer.

It only takes one person to ridicule the suffering from a mental health problem. This can then extend to the person family, the risk is once a community starts to gossip about the situation, it can cause the carer to become more isolated. This in turn leads to stigma of both mental health and carer. As a note not or carers go through this and it probably can depend upon the illness anyway.

The Label

Although not as devastating as the first form of carer stigma, it still can be rather destructive. Some people carry on caring and supporting those close to them out of desperation. They carry on caring regardless of the support mechanisms that amen applied to the family network.

At first it seemed really brave, it is great to hear a carer battle it out no matter what the situation. However there is one big problem, no matter what are the carers might say to this situation, the person still feels that they do not deserve the term of being labelled a carer. The problem is that this person will then like the support network available for carers.

Clashing forms of relations

This type of stigma is actually quite similar to the one mentioned previously. A good example is when a person marries someone they marry for better or worse. When the worst does arrived, the person cares especially out of love. They care because they are either the husband or wife. If you try to tell them that they are now a carer, that person may become very irritated. They refuse to be labelled as a carer, and yes this is the right, but the risk is lack of support network available to them.

This care stigma can also extend to other relations within the family, another good example is a young person caring for a parent, or even especially a young carer. Can you imagine as a child having to suddenly provide care for an older adult suffering a mental health condition?

The terrible characteristics of an unpaid mental health carer

There are several characteristics, which are aimed at carers. I am going to go through a few that come off the top of my head.

Being labelled as lazy

All too often we have to work for a living, we have to pay our dues. The harder the work we do, the more we expect to be paid. The more complex the role, the more we expect be rewarded. There is this review going around that the Caring role is fairly easy, because some people think that it is easy, they think that the carer does not have to do much at all. This can lead to carers being labelled as lazy. Once a person is targeted as lazy, they do not really want to be labelled as a carer.

Being blamed

This is quite common in the field of psychology/psychiatry, especially in America. When someone is unfortunate enough to develop a mental health problem, all too often psychiatrists tend to probe the family structure. All too often, it says if the carer is not doing their job properly. It might even go so far as to state that the carer is causing the mental health relapse or has caused the mental health problem to manifest itself in the first place.

One of the main criticisms of psychiatry, is at one end it might exclude the carer in their supporting role/care plans or confidentiality and at the other end label the carer as the problem within care plans and assessments. This can lead to a person not really wanting to find the energy battling a mental health system that can misunderstand the caring role.

Confrontational

Another good example of how the mental health system might fail families and carers, is if the carer has experienced failures in support of their loved ones and even the care of them self. It then becomes only a matter of time before the carer becomes more confrontational. No one really wants to be labelled as aggressive, uncooperative and confrontational. This is just another label a person can do without, so why would they want to be labelled as a carer?

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Risk of declining health

Again this might depend upon the type of illness the person is trying to care for, the more chronic the illness, the most stressful situation is for the carer. Since the NHS is under severe strain, a person would have to think hard and long before they would want to commit themselves in becoming an unpaid carer. It is like that there has been a secret contract, stating that the carer now must take the role of the lack of staff within the health system. This could be administering medication, advocating, understanding side effects, understanding social welfare, mental health legal matters, engaging with doctors and also mental health advocate and peer supporters.

Is there any wonder why carers can end up with depression, anxiety, stress and worry? One could say that mental health illness can be catching.

Hiding it all away

I’m afraid I have bad news, for what I have mentioned is only the tip of the iceberg when it comes to Carer stigma. I did not want to make this blog post overly long. With the above issues mentioned, is it any wonder why someone wants to hide themselves from being labelled as a carer?

Southwark MH Carers Forum September 2018

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Welcome to the September update of the Southwark mental health carers forum. Out of all the mental health carers forums, this forum was the last carers forum to be set up throughout South London. The forum is held over at Southwark carers.

Southwark Carers provides information, advice and support to carers across the borough of Southwark, they also aim to raise awareness of the rights and needs of carers. One of the aims of the Southwark mental health carers forum is to raise awareness of mental health carers. That being families and carers who care for someone close suffering mental health needs.

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Lambeth MH Carers Forum update September 2018

20140710_143445Welcome to the latest update from the lambeth mental health carers forum. The Lambeth mental health carers forum seeks to engage and involve carers who provide care and support to those with mental health needs. When I say mental health carers I am talking about those who are unpaid, I am not talking about care workers.

 

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Promoting your voice as a carer

insert_edited-1Hello, welcome to my latest blog. This particular blog is aimed at carers. This post hopes to be an inspirational message for anyone who is caring for a family friend or even a neighbour.

This post looks at promoting your voice as a carer. As a carer by our role, we give up so much and sometimes expect little, by definition health services and sometimes social services are aimed at the patient. Policies and laws can often assume that the family and carer are strong enough to cope by themselves.

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Lambeth MH Carers Forum update August 2018

Here is the update from the Lambeth mental health carers forum for August.

The forum runs every last Thursday of the month. The forum is aimed at unpaid carers who are supporting someone suffering from mental ill health. The forum gives a chance for carers to discuss strategy, become empowered and engage with services.

The forum helps bring involvement out into the community, we also seek to network with other carers and track what is happening to carers welfare in the borough of Lambeth.

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I had a bit of a break this month from charing because we had two new chairs for the August form.

For the month of August, We were lucky to have liason Staff member Tim Allen from SLaM presenting on caring for someone with depression. Tim also told us more about his role and how their team engages with those suffering from mental health crisis.

It was interesting hearing about the inspirations and challenges the mental health team were going through. Tim had a lot of knowledge to pass on and I’m sure the group had benefited from his wisdom.

For the second guest invite, Victoria Cabral from Black Thrive replaced Denis O’Rourke from the CCG, as Denis cannot attend this month but will attend a future forum instead. Victoria mentioned several reasons why ‘Black Thrive’ are active in the borough of Lambeth.

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Here are some of the reasons below

– There is a high rate of black people using the mental health system in Lambeth

– The death of Sean Riggs has shocked the community in Lambeth and things have to change.

– Due to the High representation of black people using the mental health system, there also seems to be a lack of black people taking advantage of mental health services at an earlier stage.

– We need more involvement for black people to be helping to shape mental health services rather than just being the recipient of Health Services.

You can find out more information from their website below.

https://www.blackthrive.org.uk/

There were other things discussed, like trying to keep slam staff motivated and making sure SLaM keep good staff at the NHS Trust.

We also discussed carer experiences at Lambeth Hospital, plus how the trust should be trying to work within the principles of the Triangle of care. A good part of the forum looked into trying to care for someone who does not want to engage with mental health services, which many unpaid carers can experience.

The problems of lack of staff and lack of services or end up putting pressures on families and carers, it was mentioned that it is vitally important carers get a voice and speak up about their difficult role.

Lewisham BME MH Carer/SU Forum August Update 2018

Welcome to the latest update of the Lewisham BME MH carer/SU forum for august. This is the first time that the forum took place in the evening, so to allow other carer members Who cannot always attends during friday morning.

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For the August forum, we hoped to have the Mental Health Act officer attend and give a presentation regarding the Mental Health Act and how south London and Maudsley were going to adapt to the latest changes to the mental Health Act. Unfortunately he could not make it, so we decided to discuss south London and Maudsley carer strategy.

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Lewisham MH Carers forum August 2018 update

IMG_20180828_141300Hello everyone, welcome to the latest update from the Lewisham mental health carers forum, which took place on August the 28th carers Lewisham. I know I have missed a few updates regarding the other forums that took place in July, I am hoping to add those at a later date.

As a quick reminder, the MH carers forums give a chance for carers to get updates, engagement, empowerment and also query NHS services and policies. We had some good attendance for the latest lewisham carers forum.

The forum usually runs for 2 hours, however so much was discussed at this particular forum we actually overran. I gave updates from our local mental health trust, which is South London and Maudsley. The NHS Trust has been really good in engaging with carers forums from the Boroughs of Lambeth, Southwark, Croydon and Lewisham.

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Southwark MH Carers Forum June 2018

Dg3QQzpUYAAo2uyWelcome to June 2018 update from the Southwark mental health carers forum. As a reminder the mint of carers forums give unpaid carers in care for someone suffering mental health needs a chance to get updates and query mental health services and also services aimed at unpaid carers. One of the things that is important to note is that the forms allow empowerment to unpaid carers.

For this particular form over at Southwark carers, we were lucky to have the Labour MP helen Hayes attend the forum to present a new report published jointly by the Health & Social Care and the Housing, Communities & Local Government Select Committees on the long term funding of adult social care.

At the forum we all admitted that the social care system is broken. There are quite a few reasons why social care is struggling to support those in desperate need. One of the things that has been causing a lot of problems is the austerity effect. We felt that the current government seems to be dragging its heels on supporting and protecting the rights of unpaid carers.

If that wasn’t hard enough we have a double blow in regards to the ‘cared for’ where hospitals are struggling with funding, delayed hospital discharges, difficulty with mental health patients getting support and the rotating door system. All of this applies added pressure on families and unpaid carers who are trying their best to care for their loved ones.

Comforting friend. Woman consoling her sad friend.

The select committee which Helen Hayes is a member of is a cross party initiative that includes a Citizens jury. The committee looked at funding and who should fund social care. The committee also queried what social care should look like.

Too often the poorest in Society are asked to pay for social care that cannot often reach them. Above all they should be transparency not just in social care but within the NHS. It is so important that families and carers are given the support in order to care for their loved ones rather than being pushed out by care workers.

The forum also discussed the integrated social care system where are the city of Manchester has set an example for others to follow.

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The MP felt glad that such a forum is up and running since she felt the current government has failed to give unpaid carers a voice and she will do all she can in order to support the mental health carers forum. We also discussed carers assessments and who should attend the forum.  Unfortunately Southwark Council representatives were due to attend the forum, but were unaware the time had changed.

In future we can send out posters where the MPs can help publicise and support the forum.

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This concludes the update for June 2018 Southwark mental health carers forum.

Lambeth MH Carers Forum update June 2018

20140710_143445Here is the update for the Lambeth mental health carers forum held over at 336 Brixton road. This forum alternates in time, so that carers can I do attend during the daytime or evening.

For this particular forum we had two people engaging with the members. The first being Steve badger who is the clinical lead for the Lambeth home treatment team. Home treatment teams are very important in regards to introducing is service user or patient back into the community, but how does this work with families and carers?

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Steve badger explained how the home treatment team worked. He took time to talk about the structure of the home treatment team over in the borough of Lambeth. A lot of discussions centered back onto the “place of safety ward”, this is because a lot of the members were interested in how people were introduced to the service especially in Crisis.

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As usual bed management was often talked about at the forum because there’s a lot of worrying on how patients are introduced to the service not just on me how they end up back into the community. A fair bit of discussion was on consent especially when the patient ends up back home with the family how would the home treatment team engage with the carer?

Steve kindly explain other useful support which carers or patients can use especially the 24-hour Slam helpline and also using the “Living Well network”. There was also some discussion on the new structure changes wear Slam is going back to Borough based services. We look forward to hearing more about the new structure in future forums.

The next speaker at the june lambeth mental health carers forum was Bobby Allen from “carers 4 carers”.

Carers 4 Carers is a charity group set up in Lambeth to offer care services for those who themselves care for their disabled, sick and elderly loved ones. Carers 4 Carers was set up by and is run by Carers and ex Carers. Who want to use their skills and experience of caring to support other Carers.

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Bobby explained how carers get together and exchanged ideas we found out that “carers 4 carers” is a great place to relax socialize and network with other carers. The Lambeth charity is running several initiatives one of them is called “inspirational champions”, which looks at confidence building. Another project is called “Viva”, which concentrates on carers you are over 50 and allows them a chance to exercise and go on trips. The charity has one funding from “Sports England” in order to get more carers to become active.

Carers 4 Carers have been running sessions at the Oval and Dulwich Sports Centre. The charity is based at Brixton recreational centre. You can find out more about Carers 4 Carers at the following link http://www.lambethforestnetwork.org.uk/carers-4-carers/

Next was a discussion on the recent Slam Carers listening event. This took place on the 27th of June 2018 over at Coin Street Community Centre in Lambeth. To make it easier have broken down the discussion into bullet points

  • Those who attended liked the main speaker who was speaking about planning for the future and where interested in the pack provided by Birmingham & Soulihill NHS Foundation Trust, which led to a discussion on its content and the empowerment carers got to implement changes with support from the Trust, clinicians and Council.

 

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  • They also enjoyed the workshop so especially on confidentiality and being shown in the short film.
  • Some felt the medication workshop with was good but a bit too presentational.
  • Although I could not attend in the afternoon I heard a lot about what people thought regarding the panel of question and it was good to see the chief exec attend.
  • We felt it was a shame that few carers from the borough of Lambeth could only attend.
  • Plus the events seem to lack a way to discuss on tables with carers and staff.
  • Some felt that the confidentiality film was a bit too staged.
  • One carer was unhappy that her question was not asked during the panel debate.

Moving away from the recent carers listening event, I updated the Lambeth carers forum on a new carers support group being set up over at Lambeth Hospital. We hope that the carers support group can link into the Lambeth carers forum. In regards to other updates for the Lambeth mental carers forum is that members are looking forward to updates from Lambeth Healthwatch, updates from health Locker advisory board meeting and one of the Lambeth MPs attending the Forum in future.

This concludes the update for the Lambeth mental health carers forum for June 2018.

Carers week 2018

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Hello everyone welcome to your new blog for Matthew McKenzie a carer from South London. Now as of this blog it is carers week 2018. Carers Week is an annual campaign to raise awareness of caring, highlight the challenges carers face and recognise the contribution they make to families and communities throughout the UK.

For this year carers 2018 looks to address caring in the community as where carers can come connected to the community and also keeping carers healthy. It is quite common to know that carers can also be isolated and caring for someone that they have known for most of their lives or at least someone special.

We all want a caring Society so that’s why it is so important and continue to address that carers can be connected to the community.

Family

 

1. Make sure carer centers are still active in the area so at least carers have a safe space to go and get support and advocacy.

2. Make sure staff are trained to be carer aware and engage with carers and unknown carers as much as possible.

3. If you know of any carers or your close to someone who is currently carer, it does not hurt to give them a call to see how they are doing.

4. A good one is to make a Pledge on the ‘carers week’ website. https://www.carersweek.org/get-involved/pledge-support.

5. Educate carers on how they can keep fit and healthy so in order that they can care for others it is important that carers care for themselves.

6. Reward organisations that make a continued effort to raise the profile and support of carers so it can sit a good example to other organisations for instance GP practices, NHS trusts or councils.

Giving help

It is so important that you raise and continue raise the needs of 6.5 million carers across the country. It is a shame that carers have to Sacrifice so much when their loved ones become unwell. Carers don’t often ask for much so that’s why we should at least give carers some recognition.