Category Archives: Carers Lewisham MH Forums

Lewisham, Southwark & Lambeth carer forum update August 2025

The meeting facilitated by Matthew McKenzie began with introductions from participants and updates on various carer support initiatives, including forum mergers and NHS plan changes.

Local council strategies and initiatives were discussed across different boroughs, with particular focus on Lambeth and Southwark’s carer support plans and the development of a carer’s forum in Lewisham. The group explored challenges faced by carers, including access to primary care and the need for better coordination, while discussing recent conferences and upcoming events aimed at supporting and advocating for carers’ rights.

Lewisham Carers Strategy and Service Updates

Lewisham is currently refreshing its Carers Strategy to strengthen support for unpaid carers and improve access to local services. The focus is on ensuring carers are included in decision-making through co-production and collaboration with the council, health providers, and community organisations. A major priority is improving well-being services, providing better information, and ensuring carers know their rights under the Carers Leave Act.

As part of wider NHS reforms, Lewisham is moving towards a neighbourhood-based care model designed to bring services closer to local communities. While this aims to make access more seamless, carers raised concerns about inconsistent GP access, gaps in communication, and challenges navigating between boroughs when supporting loved ones. The forum highlighted the importance of better coordination between primary care, hospital discharge planning, and mental health services to ensure carers are recognised and supported.

Lambeth Carers Strategy Refresh

Lambeth is currently refreshing its Carers Strategy with the aim of improving services, increasing visibility, and ensuring carers have a stronger voice in decision-making. The updated strategy focuses on key priorities such as well-being, access to assessments, respite options, and workforce training for those supporting unpaid carers.

There was a particular focus on improving support for mental health carers in Lambeth. The Carers Hub Lambeth team continues to facilitate peer support groups and collaborates closely with the South London and Maudsley NHS Foundation Trust to ensure carers are recognised as partners in care planning. Initiatives like Triangle of Care are gaining momentum, emphasising better communication between professionals and families while creating pathways for carers to get involved in shaping local mental health services.

Carers Hub Lambeth also celebrated the growing range of community-based activities available for carers and families in Lambeth. Over the summer, there have been several events designed to support young carers, including trips, tours, and group workshops aimed at helping them connect with others and access emotional support. These initiatives are part of Lambeth’s broader goal to make sure younger carers, who are often overlooked, receive the help they need both at home and within education.

One of the key upcoming events for Lambeth carers is the Lambeth Carers Strategy Event taking place on 25th September 2025 at 336 Brixton Road. The session will bring together carers, professionals, and decision-makers to review plans, share ideas, and set priorities for the future. Carers are strongly encouraged to attend to ensure their voices are heard and to take part in shaping the borough’s action plans moving forward.

Southwark Council Carers Support and Strategy Group

Matthew fed back on how Southwark Council continues to strengthen its approach to supporting unpaid carers, with a growing emphasis on improving access to information, assessments, and respite services.

The Unpaid Carers Strategy Refresh is a project running from August 2025 to April 2026, led by Southwark Council in collaboration with Adult Social Care, the NHS, local voluntary groups, and unpaid carers themselves. The plan focuses on improving support for carers by updating evidence on local needs, strengthening engagement with seldom-heard groups, and mapping gaps in current services.

Key priorities include better access to respite care, enhanced referral pathways, stronger partnerships with health services, and improved inclusion of young carers, carers with disabilities, and LGBTQ+ carers. The initial phase, from August to October, involves reviewing existing strategies, mapping current services, gathering insights through focus groups and surveys, and benchmarking against national policies and neighbouring boroughs.

The forum highlighted the importance of co-production, ensuring that carers are actively involved in shaping local strategies and service priorities.

Update on Key Themes from the final NHS England Carers Conference

Matthew highlighted that the 2025 NHS England carers conference placed a strong emphasis on recognising unpaid carers as essential partners in delivering effective healthcare. The NHS stressed its commitment to involving carers in shaping services and policies, ensuring their voices are reflected at every stage of decision-making. There was a clear acknowledgement that without unpaid carers, many health and social care systems would face significant pressure.

You can watch the conference below.

A major focus was on the NHS’s shift towards neighbourhood-based care models designed to bring services closer to communities. Matthew explained that this change aims to improve coordination between GPs, hospitals, and mental health services, but he also highlighted concerns raised about fragmented communication and the risk of carers being left out of local planning. Carers at the conference called for better access to information and more joined-up pathways across boroughs.

The conference also featured interactive workshops and discussion groups focused on co-production, digital innovations, and addressing inequalities among carers. Specific sessions explored improving support for young carers, carers from minority backgrounds, and those supporting loved ones with mental health needs. The event closed with a call to action for stronger collaboration between carers, NHS teams, local authorities, and community organisations. Attendees were encouraged to get involved in upcoming forums and engagement opportunities to help shape future services and ensure carers’ voices are at the heart of decision-making.

Matthew shared updates on national policy developments discussed at the conference, including the Carers Leave Act and commitments to expanding access to respite, assessments, and flexible working rights. There was also a discussion about new digital tools and support platforms designed to make it easier for carers to connect with professionals and access resources. However, many attendees expressed concerns that these initiatives need proper funding and training to work effectively in practice.

January carer forum updates 2023

Hello fellow unpaid carers. I am doing a quick update of most of my carer forums that I facilitate in London. These groups focus on mental health carers. Basically people who are caring for someone going through mental illness.

LEWISHAM MENTAL HEALTH CARER FORUM UPDATE

Members of the Lewisham group were interested in how the Ladywell Unit was performing for unpaid carers. The Ladywell mental health unit has several wards. The unit is based at Lewisham & Greenwich NHS trust. We were joined by Inpatient carer engagement Eunice Adeshokan who gave us an update. We were also joined by Cath Collins who leads on engaging carers in the community.

The next speaker was Caroline Norrie who is a research fellow at Kings College London. She spoke about research regarding addictions and the gambling industry.

She kindly passed on details on support services

Online gambling: GamStop is a free scheme that can be used to allow gamblers to self-exclude from online gambling websites and apps run by companies licensed in Great Britain. http://www.gamstop.co.uk

Blocking software: A GamBan software licence enables people to block access to online gambling apps and websites. The licence can be obtained for free if it is requested through the National Gambling Helpline.
https://gamban.com

Blocking gambling banking transactions: Some banks offer blocks on gambling transactions, with some having a 48-hour cooling off period before it can be removed which may help to prevent relapse. For information about which banks offer a gambling blocking service go to: https://www.gamblingcommission.gov.uk/public-and-players/page/i-want-to-know-how-to-block-gambling-transactions

It is worth noting that people can no longer use credit cards to pay for gambling.

Betting shops, casinos, arcades and bingo halls:

All gambling premises such as arcades, bingo halls and casinos must be part of a multi-operator self-exclusion scheme (MOSES). This allows a gambler to make a single request (by filling in a form) to self-exclude from all premises offering the same type of gambling, such as betting shops. Once a self-exclusion agreement is made, the gambling company must close the gambler’s account, return money in it, and remove personal details from their databases.

For betting shops see https://self-exclusion.co.uk/ or ring 0800 294 2060
For casinos see https://bettingandgamingcouncil.com/sense-self-exclusion-scheme
For arcades see https://bacta.org.uk/self-exclusion/

For bingo halls see https://www.bingo-association.co.uk/self-exclusionThe National Lottery Healthy Play | The National Lottery (national-lottery.co.uk)


JOINT SOUTHWARK & LAMBETH MH CARERS FORUM

For my Southwark & Lambeth mental health carers forum, we were joined by Toby Lee-Manning who is the Carers Development Lead for St Christopher’s Hospice.

St Christopher’s Hospice exists to promote and provide skilled and compassionate palliative care, but there also should be a focus on unpaid carers who are caring for someone end of life. The difficultly appears when people who are providing unpaid care are not sure what to do.

Luckily St Christopher’s Hospice have developed online courses aimed at carers, this is what Toby presented to our group.

Caring for Carers – online course
https://www.stchristophers.org.uk/timetable/event/caring-for-carers-drop-in-course/

We were also joined by Damian Larkin who is the Digital Health Nurse Lead at South London & Maudsley NHS. Damian spoke about BETH. Basically Beth is a free and secure way for our patients and carers to stay connected with their care team.

If you are interested in BETH – please check out SLaM BETH site


ETHNIC MENTAL HEALTH CARER FORUM

For my ethnic carer forum we were joined by Carers UK. Patrick Knock presented a project where Carers UK is currently working a series of ‘Carers Active Stories’ videos to highlight to unpaid carers the benefits of being physically active from the perspective of a carer giving their firsthand experience.

Here is a video link below

Next was Simon Mayers who is the Equality, Diversity and Inclusion Lead for Maudsley covering the borough of Lewisham. Simon updated the group on how Lewisham is working with the new equality policy. This policy is called “Patient Carer Race Equality Framework”. This framework is aimed at mental health NHS trust across England and it is important carers get a chance to get updates and raise any queries.

We also had Tafadzwa Marapara from Oxleas NHS trust. Oxleas is also adopting PCFREF and it was only fair to hear what they plan on engaging black carers and patients using their services.

Kevlin one of our carer members is heavily involved in PCREF over at the maudsley, so I gave him a chance to update the group. Plus we also had Halima Ali join us to speak about her research project on What are the Occupational experiences of BAME unpaid mental health carers for people with a mental health diagnosis?”


SW LONDON MENTAL HEALTH CARER FORUM

This carer forum is slightly different from my other carer forums. This one covers multiple boroughs as we are developing a strong carers network. This group covers Richmond, Merton, Kingston, Wandsworth and Sutton. We get support from all 5 carer centres.

This group also spends a fair bit of time for carers to update how things have been progressing. We were also joined by Nicole Smith who is a Darzi Fellow in Integrated Medicine. She spoke to the group about Virtual Wards and how they are important regarding the NHS. She is also doing some research.

You can give feedback on her survey at the link below

Virtual Ward survey


GREENWICH MENTAL HEALTH CARER FORUM

This forum is slightly different as it is linked the the Greenwich carer peer group I facilitate for the borough. Greenwich Carers centre help me run the group. This forum runs every 2 months.

The forum was filled with a lot of speakers so I was glad that Oxleas work hard to engage with carers.

We were joined by Catherine Seabourne who is Oxleas Head of Nursing. She talked about her role and answered queries from carers. We were hoping to hear developments from Jason McCulloch who Service Manager regarding Greenwich Carers Strategy, Jason was unable to attend.

We were also joined by Ariane Zegarra and Janice Williamson. Janice is the new Carers Network Lead for Oxleas. We were given updates regarding social care.

This was the January update for most of my carer groups.

Joint Southwark & Lambeth MH Carers forum April 2022

Hello fellow carers. A quick update from my past carer forums. This is the April update of my Joint Southwark and Lambeth mental health carers forum.

Speakers for this forum were

Naomi Good – Engagement from Guys & St Thomas NHS FT

Rachel Braverman – Expert by experience at Royal College of Psychiatrists

Just a quick note, I cannot remember if Rachel managed to attend this forum. I think should could not make it and attended my south west London carers group at a later date.

It was however good that Naomi engaged with carers who look after someone with a mental illness. The thing is that patients also use physical health services. So it was important to get stakeholder engagement from Guys & St Thomas hospitals.

Naomi Good Presents to the forum.

I know Naomi very well when she used to work at NSUN, this being the National Service User Network. Naomi did a lot for developing the 4PI involvement standards at mental health NHS trusts. These standards are still very much in use today, although there still needs to be a lot of work done.

Naomi is now the stakeholder engagement at GSTT and is also a carer herself and spoke on the following.

  1. Joint Programme for Carers and Patients in Covid Recovery
  2. Surgical Strategy – delivery workshops and steering group
  3. Apollo Programme – Electronic Health Care Record
  4. Carers Strategy – development

Naomi started by presenting the Joint Program for Carers and Patients.

Basically the programme aims to make sure the views of patients, carers and the public help with future service changes during the pandemic especially those who have been most affected by the pandemic. GSTT want to continue to improve and provide the very best care to patients, especially to those who are:-

Waiting for treatment
Virtual access to care
Struggling with Long COVID

There actually were some workshops back in April and May which Naomi presented on the surgical strategy

The Apollo Programme

The Apollo Programme

Naomi then spoke about how Apollo will be the most ambitious programme of transformation they have undertaken. GSTT will be replacing many of the systems (both digital and paper). GSTT currently use with a single, integrated and comprehensive source of information across Guys and St Thomas’ (including Royal Brompton and Harefield) and
Kings College Hospital Trusts. Epic is a US-based provider of electronic health records (EHR). It is used in some of the best hospitals around the world including the majority of top-ranked US hospitals, and UK trust’s such as Great Ormand Street and Cambridge.

GSTT Carer Strategy

I asked a quick question regarding GSTT’s carer’s strategy in which Naomi responded they do have one. The GSTT carer’s strategy is embedded within each of the different strategies, but there is an effort in refreshing that and making sure it is available across the trust, which is seen as priority area.

GSTT involvement

Naomi talked about how others could have the opportunity to make a huge impact to the care of patients and the experience of carers across Guy’s and St Thomas’ and King’s College London. During the programme to date, the carer’s voice has been integral to shaping how they will support carer’s to access care on their loved ones behalf’s. In future phases of the programme, patients and carers will help GSTT to user test the patient-facing applications, and design their patient communications and training programmes.

• Reimbursement of time spent in workshops and meetings in line with Trust policy
• Reimbursement of travel expenses, childcare costs, and carer costs
• Access to various IT training opportunities
• Foundation Trust Membership (for those 18 years of over).
• Job references