Southwark MH Carers forum February 2018

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Here is the update for the Southwark Mental Health Carers forum. This is newest forum that I chair, which with the help of Southwark Carers aims to bring together carers in the London Borough of Southwark.

The point of the forum is to allow carers a stronger voice regarding how they are supported in that borough. Carers might not even know what South London & Maudsely does and how it can help support carers. Some carers cannot possibly come involved with the trust, but may wish to attend a certain theme about the forum.

For the february forum we had the “public and patient involvement lead” attending to help plan who should engage with the Southwark MH carers forum in future. A lot of the carers were just arriving from the new carer course, which had been running at the Recovery college. The course was set up in partnership with Southwark Carers.

At this forum, I presented on the themes which carers may want a SLaM staff member to present on. It is important that the forum should ask questions on specific topics and not just have a guest speaker talking about how to contact PALs. Members of the carers forum, should be interesting in the number of complients, compliments and how carers concerns are raised.

The forum members were interested in engagement from

– What research the IOPPN is doing, especially on involvement
– The Mind & Body project which is a partnership between SLaM and Kings College London.
– Representatives from Southwark CCG
– Reps from the council
– Updates & issues regarding carers assessments

We hope to present some updates to the SLaM family & Carers committee. At the forum we also heard updates on how the “Carer Course” had run, plus feedback from the new Mental Health ACT changes. Yet again, we thank the involvement lead for supporting the forums.

 

BME MH Carer forum update February 2018

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Welcome to the February update of the Lewisham BME mental health carers forum. I know the title of the group in lewisham is very long, but it does cover the aspects of Black Minority Ethnic and mental health.

Out of the 4 carer forums I chair in South London, this one is a mix of service users and carers. The forum started last year, so it is fairly new. The older forum which is the Lewisham Carers MH forum has been running close to 2 years.

On the february update, we were joined by South London and Maudsley’s Patient and Public involvement lead Alice Glover. I have been on many of Alice’s involvement groups for some years, so it was great to get support from her in which she contributed to the forum. Her task for the february forum was on how can the South London trust support this particular forum.

We all decided that perhaps each month would have a representative from the trust to speak to the forum and engage with matters arising or even compliments. There was some frank discussion on that day as a majority of experiences were about the police. Other important discussions related to medication, education about mental health, difficult experiences and who would engage with the forum in future.

Other interesting discussions were on the courses available at the SLaM recovery college and the new Black Thrive intiative event, which will take place on the 14th of March. See link for more details.

https://www.eventbrite.co.uk/e/thrive-ldn-lewisham-community-workshop-tickets-42455852598?aff=es2

The involvement lead presented on getting involved with the trust, which one of the members was very interested in doing. Other leaflets and cards were handed out about trust, including membership which gives patients, staff and carers a more powerful voice regarding the direction of the trust.

The forum slightly over ran, but in the end a lot of progress was made and we all appreciated Alice engaging with the BME forum.

Speaking up as an unpaid carer

Big problems - daughter comforts senior motherAs you may or may not already know, this website is dedicated to unpaid carers and raising mental health awareness. An unpaid carer is someone looking after a relative or someone close who has physical or mental health needs. An unpaid carer is not a care worker, carer workers are paid to provide support and can do most tasks out of choice, while unpaid carers do their role almost out of desperation.

This particular blog is about giving unpaid carers some inspiration to get their voices out there. Why is this? Because if carers do not speak up then it is hard for mental health commissioners or health services to work with carer needs.

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Being a carer can be daunting as very few suddenly expect to provide care at a specific time, although most feel that there will come a time when they have to support aging parents, unwell partners or even a friend. When caring for someone with health needs, there can be some relief that the ‘cared for’ has some idea what support they require. This can be be tricky if the ‘cared for’ has mental health needs and due to mental capacity issues refuses care or support.

It is vital carers raise their voices regarding such issues, especially if they live with the ‘cared for’. Many carers just cope from day to day thinking there is no need for support for themselves, but if the carer falls unwell then who will provide support for the ‘cared for’?

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If you are a carer, do not feel worried, frightened or scared to speak up about your caring experiences or caring journey.

So where can carers speak in regards to their caring journey?

There are several places and one of them usually can be at a focus group, especially if its run by a mental health service. The service may want to hear what carers think about a particular service provision, so it is vitally important carers take the time to provide opinions.

Other places could be about a mental health service carers strategy, or a mental health awareness event setting. Carers can also speak up about their caring role at a carers support group, which is vital if a carer needs to let off stream or get something off their chest. Sometimes a carer issue cannot be solved overnight, but most carers do with to be heard or listened to.

Other places where carers can speak is at carer forums, I chair many in south London and look forward to hearing carers ideas and suggestions. Carers need not complain, shout or always play the blame game. The focus is on how we can all work together although I am aware of the frustration with services and feeling that carers are not being listened to or not being taken seriously.

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If you are caring for someone with physical or mental health needs, please check out any important health events in your area. You have given so much to your family, friend or the community, it is time to be heard.

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Lambeth MH Carers Forum update January 2018

Hello again. Welcome to my blog site raising awareness of unpaid carers caring for those suffering mental illness. The site also covers mental health awareness, psychology and more.

This blog post is a brief update of one of the forums I sometimes chair along with a co-chair. The forum is called the Lambeth Mental Health Carers forum, which has been running successfully for some months. I sometimes do not get the time to update on every forum I chair, so since I am not at work this weekend, I thought to try get some info out to members or those who are interested in the carer forum.

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BME Mental Health Carer forum update January 2018

Welcome back to the 2nd blog of 2018. This particular blog post is a brief update to one of the carer forums I chair in South London. The forum is the BME Mental Health Carer forum in Lewisham. This forum gives a chance for both carer and patient/service user to engage with service providers on mental health matters.

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The importance of community spirit

Welcome back to the first blog post of 2018. It has been a while since I last wrote a post, the last one I made was on the fantastic arts event held over in London borough of Lambeth.

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So it is now 2018 and a beginning of new year, with new opportunities, challenges and awareness projects to raise regarding unpaid carers, mental health events and topics about psychology. Some people wonder why I have created such a blog site and why I cover mental health events and carer forums. I feel these specific issues need a lot of awareness raising. Mental health still struggles to get a decent platform and any help I can contribute to the awareness of unpaid carers and service users should continue.

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STELEO Art Exhibition

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Welcome, on this blog I talk about the art event that took place over at The Coffee Lovers Cafe’. The art exhibition was a joint work of the patients / service users of the STEP and LEO mental health team.

If you wish to see the video version please click the video below

A bit about The Coffee Lovers Cafe. The Coffee Lovers Cafe is a lovely Moroccan themed cafe situated in Lambeth, the staff are friendly and the prices are very reasonable. If you ever get the chance, it is worth dropping by for the lovely atmosphere.

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The art exhibition title ‘STELEO’ was hosted by Arts therapist Paula Moclair who provides art therapy at South London & Maudsley. As I arrived at the Cafe, Paula greeted me and showed me some of the works on display. I was glad to be in from the cold and the warmth of the cafe certainly made a difference. Plus there was lots of refreshments on offer.

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It was not long before some of the artists turned up to speak and present some of their work. First to chat about her work was Marian Saidik who produced the work “Hub of Roses”.

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Mariam mentioned that the work produced made her happy and felt the work’s aim was to be a gift to others. She started art at a very young age, but has interests in the environment, language and fitness. Mariam explained to me about the use of colours and the importance of expressing the art work.

Paula then spoke to me about her art, each of her art work had a theme and focus. The first work shown was titled “Lurly-Lurley”, which seems to express the use of words and the relation with her sister.

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Paula then spoke about three other pieces of work shown here. One showing the toliet and her cat focused on the patron saint of miracles. The other picture shown in blue was to do with Yoga and the last being about the experiences with her sister at a young age.

Soon I spoke to another artist who talked about the flower they made and how they liked flowers, plus the flower represents life

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The next service user spoke about the work she produced, which I noticed a visitor spoke kindly about. The visitor felt that the patterns from the work produced called out to him. When I asked the artist to explain more about her work, she mentioned how she enjoyed creating patterns.

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More artists arrived and spoke about how Paula helped them produce the work and how they appreciated the help. They felt that art was a positive force in their life and a good hobby. They was not too worried about their art work selling since they could always take it home later.

The artist also showed more of his work off his mobile phone.

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Near the end of the art exhibition we got to hear from the art therapist who explained the latest developments from the past year and how it was good to see people’s work framed. One of the artists also spoke about how good it was to see his art on show and how it overwhelmed him.

I also made a speech stating that I was proud to see the end results of all the hard work patients and staff from the LEO and STEP team had put in and I was happy to see the end results of the funding by the Mausley ‘Lets Smile’ charity.

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All in all, the event inviting, inspiring and it felt great to talk to friendly people. I hope more work can be produced for the next exhibition.

Lewisham MH Carers forum November

133Welcome to the November update of the Lewisham Mental Health carers forum for 2017. This will be the last forum for 2017 until January 2018. The carers forum has been running in Lewisham for some years now and there has been some minor problems, but many successes.

For the November forum on the agenda we had feedback from South London & Maudsley regarding carer queries from the October meeting. The patient information officer did a great job in notifying the involvement lead, information manager and engagement lead regarding carer queries.

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Why you care

Mother comforts her teen daughterIf you are a non paid carer of someone suffering from mental illness, there will be times that you question yourself on why you care. Especially during the toughest part of a crisis. It might be that you constantly fear loosing that person through an eating disorder, addiction or psychotic episode. It may be that you are having difficultly getting your point across to mental health professionals especially when the NHS is in its time of crisis.

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Self Care Week

SCWwebbuttonlg2017Welcome back to another health awareness video. I have been gone quite a long while, but that doesn’t mean I have not been very busy. I usually am involved with many carer forums and groups in and around south/south east London. I try to raise awareness of unpaid carers who look after someone suffering from mental illness.

 

To see the video version, please click below

However there comes a time when we need to look after ourselves, be it if we are caring for someone or trying to care for ourselves. This video looks into Self Care week, which runs from November 13th to November 19th. The theme is Embracing Self Care for Life. Self care is about keeping fit and healthy, understanding when you can look after yourself and also when to askfor advice from a GP.

If you are unwell or suffer from a long term condition then it is very important you find out as much as you can in order to support yourself. Self care need not be so difficult if you know what you are dealing with.

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Across the UK many suffer needlessly when dealing with weight problems, lack of exercise and stopping smoking. Getting information or attending events can be useful in combating unhealthy lifestyles. If you are caring for someone, you can easily fall into the habit of not paying much attention to your own health needs. It is an easy mistake to make especially when you have little time for yourself.

From the self care forum website, there are tips and advice not only for yourself, but for GP surgeries and pharmacists up and down the UK. It is a massive drive to get the population healthier and combat damaging habits to our health.

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You can find out more about Self Care week from the Self Care forum on http://www.selfcareforum.org/events/self-care-week/

Remember if you cannot find time to self care for yourself, think of how hard it would be for you to care for someone else.