Tag Archives: patient support

Have You Supported Someone Through Womb Cancer? Your Experience Could Help Improve Care

By Matthew McKenzie – Chair of Cancer Caregiver group

Supporting a loved one through a cancer diagnosis is a journey that often goes unseen. Family members, partners, friends, and other caregivers provide emotional support, help navigate appointments, and stand alongside patients during one of the most challenging periods of their lives. Yet their experiences are rarely heard.

Researchers at University College London (UCL) are inviting people who have supported someone with endometrial (womb) cancer to take part in a research study exploring the cancer diagnostic journey. The study is particularly interested in hearing from people who have supported women experiencing economic hardship, as well as Black women, who are more likely to be diagnosed with endometrial cancer at a later stage, when treatment can be more difficult.

Your Story Matters

Every caregiver’s experience provides valuable insight into the challenges people face before, during, and after a cancer diagnosis. By sharing your story, you can help researchers better understand the barriers to timely diagnosis and identify ways to improve support for future patients and their families.

Your voice could contribute to research that helps reduce health inequalities and improve cancer care across the UK.

Who Can Take Part?

You may be eligible if:

  • You are 18 years or older.
  • You supported a friend or family member diagnosed with endometrial (womb) cancer.
  • The person you supported completed treatment (such as surgery, chemotherapy, or radiotherapy) within the last 2–5 years.
  • Their cancer treatment took place in the UK.
  • Your experience involved economic hardship.
  • You are willing to participate in a one-hour interview.

What’s Involved?

Participants will be invited to take part in a one-hour interview, either online or at UCL. Translation support is available for people whose first language is not English, and participants will receive a gift card as a thank-you for their time.

Interested?

If you think you may be eligible or would like to learn more, please contact the research team:

Email: ruby.neish.25@ucl.ac.uk

On a side note, remember I also run the Cancer Caregiver group the last wednesday of the month, see poster below.

Join Voice – Amplifying the Voices of Cancer Patients and Carers at St George’s Hospital

By Matthew McKenzie – Cancer Carer group

At St George’s University Hospitals NHS Foundation Trust, people affected by cancer are placed at the heart of everything they do. Whether you’re a patient receiving treatment, a family member, a carer, or part of a local cancer support group, your experiences and insights are invaluable in shaping the way the hospital cancer services are delivered.

That’s why Voice exists.

See link below for more details.

Voice – Cancer patients & carers user group

What is Voice?

Voice is a dedicated patient and carer group that works closely with the Cancer Team at St George’s. It provides a vital forum for sharing experiences, ideas, and suggestions that directly influence how services are planned, developed, and improved.

By joining Voice, you’ll:

  • Represent the perspectives of patients and carers.
  • Share what works well in cancer pathways and highlight areas for improvement.
  • Help identify priorities for local cancer services.
  • Be kept informed of new cancer services and projects.
  • Take part in health and wellbeing events.
  • Have the chance to help design new services or join the core group guiding the support group.

Why carers are especially needed

Carers play a unique and vital role in the cancer journey. Their insights into the challenges and realities of supporting a loved one through treatment provide perspectives that professionals and even patients themselves may not always see.

Right now, Voice is especially looking for more carers to join, ensuring their voices are fully represented in shaping services.

How to get involved

Becoming a member of Voice is free. By joining, you’ll be part of a welcoming community committed to making cancer care better for everyone.

To find out more or sign up, contact the Macmillan Information and Support Centre:

Together, we can make a real difference in the lives of those affected by cancer.