Tag Archives: severe mental illness

Oxford University study seeks unpaid carers supporting someone with severe mental illness

By Matthew McKenzie – facilitator of carer groups

Dr Eiluned Pearce, a trainee clinical psychologist and researcher at the University of Oxford, is seeking help recruiting participants for an important study about unpaid carers’ wellbeing.

The study will explore whether attending social and community groups, including carer support groups, clubs and other group activities is associated with improved wellbeing among people supporting someone with a severe mental illness.

This is particularly relevant to what I promote at my site because many unpaid carers rely on peer groups and carer forums for understanding, information and a sense of connection. However, you do not need to attend any kind of group to participate. The researchers need to hear from carers who attend groups and those who do not.

Who can take part?

You may be eligible if you:

  • Are aged 18 or over
  • Live in the United Kingdom
  • Speak English fluently
  • Provide unpaid emotional or practical support to someone aged 16 or over
  • Support someone experiencing psychosis, bipolar disorder, an eating disorder, or complex emotional needs/personality disorder
  • Do not personally experience a severe mental illness

You do not have to describe yourself as a “carer” or “caregiver”. You might consider yourself a relative, partner, parent, sibling or friend who provides essential support.

What does participation involve?

Participants will complete an anonymous online survey lasting approximately 40 minutes. You can take breaks and return to it using the same internet browser, provided it is completed within one week of starting.

Questions will cover your wellbeing and mental health, the support you provide, its impact on you, any groups you attend and some information about your background.

Individual responses will not be shared outside the research team, and IP addresses will not be recorded.

Take part in the study

To read more about the research and access the survey, visit:

https://tinyurl.com/CaregiverSMIWellbeingOrgs

The study has been approved by the University of Oxford Central University Research Ethics Committee (reference: MS IDREC 2204969).

For questions about the research, please contact:

Dr Eiluned Pearce
Email: eiluned.pearce@psy.ox.ac.uk
Telephone: 07775 229377

Dr Lorna Hogg
Email: lorna.hogg@hmc.ox.ac.uk

Dr Shama El-Salahi
Email: Shama.ElSalahi@oxfordhealth.nhs.uk

Research into carers’ wellbeing remains limited, and it is important that the experiences of people supporting someone with a severe mental illness are properly heard and understood.

Why Black Carers Struggle to Access Mental Health Support

By Matthew McKenzie

Black unpaid carers can face significant barriers when trying to access mental health support for themselves or the person they care for.

These difficulties may include long waiting times, financial pressure, cultural stigma, fear of statutory services and a shortage of professionals who understand the effects of racism, racial trauma and culturally specific caring experiences.

In my new video, I examine how misdiagnosis, over-policing and expectations that Black families should simply remain “strong” can create mistrust and discourage carers from asking for help.

Drawing on my perspective as a Black lived-experience carer, I also consider what mental health services can do differently. Genuine improvement requires culturally responsive support, greater representation, safe spaces for carers, accessible community-led services and meaningful partnership with Black carers and families.

PCREF provides an important opportunity to challenge racial inequalities, but its success will depend on whether services listen to lived experience and turn commitments into visible action.

Lewisham, Southwark & Lambeth carer forum update October 2025

The recent Carers Forum brought together unpaid carers, health professionals, and community organisations from across South London to share updates, experiences, and ideas for improving mental health support. The event, chaired by Matthew McKenzie, created a safe and open space for carers to connect, exchange information, and have their questions heard by local health leaders.

Setting the Scene

Matthew opened the session by welcoming carers from across Lambeth, Lewisham, and Southwark. He spoke about the importance of providing carers with dedicated time to hear from service providers, particularly those supporting someone with mental ill-health and to ensure their voices shape local mental health strategies.

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