Tag Archives: invisible carers

Becoming a Human Book at the DUALITY Event – The Carer They Didn’t See

By Matthew McKenzie – Carer Activist and Carer Advocate

On 8 September 2026, I had the honour of attending the DUALITY event at King’s College London, held at Bush House.

The event was a research and public/community engagement event connected to the INTERCEPTION study, based in King’s Department of Global Health & Social Medicine, within the School of Global Affairs / Faculty of Social Science & Public Policy.

There was a packed agenda, which I have shown below.

  • Registration, refreshments and photo exhibition — Attendees arrived, had refreshments and had an opportunity to look around the community photography exhibition.
  • Welcome and introduction to DUALITY — The organisers introduced the event and its focus on ageing, ethnicity, health and experiences of living with multiple long-term conditions.
  • Research Panel: Ethnicity, Ageing and Health — Researchers discussed work exploring inequalities and experiences at the intersection of ethnicity, ageing, health and multiple long-term conditions.
  • King’s Sport & Wellness energiser — Attendees were invited to take part in accessible seated stretches and movement exercises.
  • Human Library — Attendees could “borrow” Living Books for short conversations, hearing personal stories intended to build understanding, foster empathy and challenge assumptions. My Living Book was “The Carer They Didn’t See.”
  • Community information booths — Organisations and community representatives provided information and resources. This was also where I supported the Carers UK stall.
  • DUALITY Photography Exhibition — Photographs used visual storytelling to explore support, health, ageing and lived experience. My photograph “The Carer They Didn’t See” was included in the exhibition.
  • Photography Competition Awards — Winners of the DUALITY Photography Competition were announced, with “The Carer They Didn’t See” selected as one of the winning entries.
  • Creative performance — The programme included a creative lived-experience performance exploring identity, Caribbean heritage, racism, family, memory and culture.
  • Keeping Fit with Multiple Long-Term Conditions — This discussion brought professional and lived-experience perspectives together to explore chronic conditions, exercise, confidence and wellbeing.
  • Dinner and networking — The evening concluded with food and an opportunity for attendees, researchers, community groups and people with lived experience to connect.

This was quite a different event for me. I have attended many conferences, workshops and involvement events over the years as an unpaid carer, carer advocate and speaker. This time, however, I wasn’t simply attending or presenting.

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World Lung Cancer Day 2025: Honoring Unpaid Carers & Fostering Compassion

By Matthew McKenzie

On this World Lung Cancer Day (1st of August), we spotlight not only the impact of lung cancer itself, but also theose behind the scenes the unpaid family members, friends, and carers who provide unwavering love, support, and strength.

In this 8-minute video, hosted by myself from A Caring Mind, I explore:

  • The profound emotional and physical toll of caring for someone with cancer
  • The critical need for early detection, expanded research funding, and global health equity
  • The indispensable role of families and unpaid carers—whose contributions often go unrecognized

I also introduce major organizations leading the lung cancer fight:

  • European Respiratory Society (ERS) – promoting lung health through education, early diagnosis, policy advocacy, and improved treatment pathways
  • Forum of International Respiratory Societies (FIRS) – uniting global respiratory health organizations to advocate for prevention, clean air, and equitable access to care
  • Lung Cancer Foundation of America (LCFA) – funding innovative lung cancer research and amplifying the voices of patients and survivors to raise awareness and reduce stigma
  • Lung Cancer Research Foundation (LCRF) – accelerating research, supporting affected individuals, and organizing global awareness initiatives like World Lung Cancer Day

In the video I remind that behind the tragic statistic of over 1.6 million annual deaths worldwide, are stories of resilience and compassion: nights spent advocating in hospitals, hands held during chemotherapy, and hope sustained in the darkest moments.

What You Can Do:

  • Share the video to raise awareness
  • Support carers through mental health resources and recognition
  • Advocate for policies that include carers in healthcare support systems
  • Approach lung cancer conversations with empathy—not stigma

Today, we honor not just the patients, but those who stand beside them—quietly, persistently, lovingly.