Tag Archives: carer stories

The Power of Lived Experience and Carer Voices in Healthcare: A Conversation with Hannah Codogin

By Matthew McKenzie – Carer activist

In a recent interview, Matthew McKenzie sat down with Hannah Codigan, a palliative care nurse who brings a unique perspective to healthcare, not only as a professional but also as someone with lived experience of serious mental illness. Together, they explored the importance of recognising unpaid carers and embedding lived experience voices in the design and delivery of healthcare services.

Caring Beyond the Patient

Hannah shared how her role in hospice care extends beyond patients to include families and carers who often struggle without recognition. She emphasised that carers need as much emotional and practical support as the people they care for, noting how time pressures in nursing can make it difficult to truly listen to their experiences.

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Understanding Community: The Foundation of Connection

By Matthew McKenzie – A Caring Mind

Community is a word we hear often, but its true meaning and significance can sometimes be overlooked. At its core, a community is a network, a web of relationships built on shared identity, common themes, and mutual trust. Communities are formed when people come together, united by a sense of belonging and shared responsibility. This sense of belonging is not just about being part of a group; it’s about feeling valued, having a purpose, and working towards common ideals.

This blog is a transcript of the video below.

Communities exist in many forms. The most immediate and intimate is the family, where the seeds of unpaid caring are often sown.

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Healing Through Words: Poetry Workshop at West Ealing Library – 18th September

By Matthew McKenzie – Carer poet and Carer activist

On the 18th of September, West Ealing Library once again became a hub of creativity, reflection, and connection as carers gathered for our second poetry workshop. Guided by carer activist and writer Matthew McKenzie, the session offered not just writing prompts, but a safe and supportive space to explore the healing power of words.

Poetry as Expression and Healing

The morning began with Matthew sharing his personal journey from caring for his mother living with schizophrenia, to writing books on mental health and carer experiences, and now using poetry as a tool for both advocacy and self-expression.

For many carers, life can feel isolating, exhausting, and invisible to wider society. Poetry offered participants a way to give voice to those emotions. As I reminded carers, “Poetry gives shape to what’s hard to say” — even if it’s just a few lines scribbled on paper, those words can carry truth, comfort, and even influence change.

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Carers Week 2025: Supporting Unpaid Mental Health Carers

Help raise awareness for unpaid mental health carers during Carers Week 2025. Learn how to support and recognize their vital, often unseen role in society. To watch the video of this blog, click the video below

Recognizing the Unseen: The Vital Role of Unpaid Carers in Mental Health

Every year, Carers Week serves as a powerful reminder of the millions of individuals who dedicate their lives to supporting loved ones with health challenges often without recognition, compensation, or adequate support.

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Promo of Young Carer by Matthew McKenzie

She did not know. She only went along with it. Her mother needed her and that is all she knew. It was time to care, but was it all too soon? Story number 9 from the audiobook “Providing Care & Other Short stories”. I labelled this story “Young Carer”, because I wanted to get straight to the point. What is that point you ask?

The answer is to state that Young Carers exist and in these times they face all sort of challenges. What is a Young carer?

Well a young carer is someone under the age of 18 who looks after a family member or friend who has a physical or mental health condition. This is the story of Jenny a young girl about to finish her primary school. Unlike the carers in the other story, it is not easy for Jenny to reach out for help. Most of the time she just reacts. A lot of her roles focus on guess work and even though recognition of young carers has increased, Jenny still face challenges.

The story starts of with Jenny trying to make sense of her life. She is trying to make sense as to why she is so different from the other children at school. She is quiet about her struggles because she feels guilty and does not want to make anyone else feel guilty. Jenny is lucky to get some support, but is that enough?

As usual the story will be in audio dramatization. I have been experimenting with voices to bring the story to life. With the age of technology, storytelling has changed. Things spring to life and if you are a campaigner or activist then it makes sense to use technology. The story of Jenny can be difficult to listen to as it shows how vulnerable we really are.

We need to raise awareness of young carers or how can we claim this is a caring society? Many carers in my previous stories often had some choices, but when you are young then your choices might be limited. Will keep you posted to how the story develops soon.

To watch my other stories about unpaid carers check my video playlist below.

Latest carer story – Just when I needed you

Welcome back fellow carers. This blog is by Matthew McKenzie, carer activist, author and poet. I write and campaign to raise awareness of unpaid carers. A lot of my focus goes on those caring for someone with mental illness.

I also have a focus on cancer carers, but more on that in a moment.

I have just released my 6th audio story about the importance of carer peer support. The story is called “Just when I needed you”. You can actually watch the story for free at the end of this blog.

The audio story revolves around the struggle to show empathy and the challenge someone faces with their faith. When people care for each other then the community carers, but this is not always the care as the carers in this story have their own struggles.

It takes a couple to walk that journey of someone damaged by the community. They are there for that person when he feels the world has abandoned him. The couple find a bond with their close friend as Barbara who is providing unpaid care can sympathize because she also experienced mental illness.

The audio story provides a story of hope, but raises challenging questions for those caring for someone. Things are not always so clear cut and it can be very difficult to be involved in someone’s care. This is especially problematic if someone is suffering depression.

Watch the video below and enjoy the carer awareness.

My next audio story will soon be released titled “A story of Hope”

The carers story

smallerWelcome to another carer blog post. My blog site works to raise the awareness of mental health carers, that being unpaid carers/caregivers looking after or supporting someone suffering mental distress. The website also tries to raise awareness of mental health, charities and their events.

So this time i want to focus how important it is to take time to listen to carers stories. Listening to how a person became a carer can allow us to relate on a certain level regarding their caring journey. Obviously there is no way a person can relate 100% to any carer, only at a certain level as in sympathizing or recognizing a carer when you see someone in a stressful caring situation.

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