Are you currently juggling the responsibility of caring for both a child and a care-dependent adult? If so, you may be what we call a “sandwich carer”—someone who provides care for loved ones across different generations.
At UCL’s Center for Transport Studies, They are conducting an important research study exploring the travel experiences of sandwich carers, and we want to hear from you.
Why Participate?
Sandwich carers play a critical role in our society, often balancing work, caregiving, and personal needs—all while navigating complex travel routines. However, little is known about how this group manages their daily transportation. Your input can help inform future transport policies and support systems to make travel more accessible and manageable for carers like you.
Who Can Take Part?
You are eligible if:
You are a carer for at least one child and one care-dependent adult,
And you currently live in England.
How to Participate
Simply scan the QR code in the flyer (see below) to complete a short pre-screening questionnaire. It only takes a few minutes and is the first step to being part of this valuable study.
Get Involved Today
Your voice matters. By participating, you’ll be contributing to research that could lead to meaningful change for thousands of carers across the country.
For any questions or more information, feel free to contact us at: 📧 njoud.hurr.20@ucl.ac.uk
Thank you for considering taking part in this important work. Please share this invitation with others who might qualify.
The meeting focused on carer involvement and representation across different regions, with participants discussing their roles in supporting carers and addressing discrimination. The main focus for this meeting was on “What does good look like?” when it comes to Triangle of Care and PCREF.
The group explored the Triangle of Care initiative and its five key elements, including discussions about medication-related challenges and the need for better communication between healthcare providers and carers. The conversation ended with conversations about improving carer support systems, including the importance of advocacy, training, and creating safe spaces for carers to share concerns confidentially.
Are you a carer in the Woolwich area? Take a well-deserved break and connect with others at our brand-new Carers Drop-In sessions! Whether you’re looking for support, information, or simply a chance to chat with others who understand, you’re warmly welcome—no referral needed.
Welcome to a brief update of my Hospital Carers Discharge group. The Carers Hospital Discharge Toolkit Working Group is a collaborative initiative dedicated to improving the hospital discharge experience for carers and their loved ones. Chaired by myself a carer with lived experience, the group brings together a diverse mix of voices, including fellow carers, representatives from local carer centres, and, at times, hospital public and patient involvement (PPI) leads or staff. This inclusive approach ensures that the toolkit remains grounded in real-world experiences while benefiting from professional insight and support.
The meeting began with introductions from various participants who shared their roles related to carer support and hospital engagement, including updates on the Universal Care Plan and NHS 10-year plan from NHS England. We also had a presentation on the new project to support carers across North Central London, covering five boroughs and 11 hospital sites, which will help identify and support carers through various initiatives and resources.
The group discussed upcoming events for Carers Week 2025, new carers charter development at one of London’s largest NHS trusts, and various support programs, while addressing challenges and opportunities for improving carer support across different organizations and locations.
Carer Support and Hospital Engagement
The meeting began with introductions from various participants, who shared their roles and affiliations related to carer support and hospital engagement. Matthew highlighted his involvement in various mental health hospital trusts and carer engagement initiatives, while Eleanor discussed her new role as project manager for the North Central London Carers Support Project, which covers five boroughs. Ros from NHS England provided an update on the Universal Care Plan for carers, noting that more updates are needed. The conversation ended with plans for Eleanor to present later, focusing on developments in carer support across the region.
Universal Care Plan Implementation Update
As mentiioned earlier, there was a discussion the Universal Care Plan, which launched in January and will soon allow unpaid carers to initiate their own plans through the NHS app, expected by late summer or early autumn.
It was noted that while some organizations like hospitals and local authorities are familiar with the plan, there are knowledge gaps in the community and voluntary sectors. It was noted that the Urgent Care Plan team are addressing technical questions about IT systems and interfaces, and they are working towards a coordinated London approach. Also highlighted was the need for more training and support in having conversations with carers about the importance of being identified and registered in the system.
NHS 10-Year Plan Updates
There was also updates on the NHS 10-year plan, expected to be published in July, which will emphasize patient experience and care. An update on the integration of carers’ work streams between NHS England and the Department of Health and Social Care, with a likely focus on working-age carers. It was also mentioned on the uploading a video recording of the UCP Carer Contingency Plan launch to NHS Future, which participants could access by requesting to join.
Universal Care Plan Resources
The group discussed the Universal Care Plan (UCP) and its resources for carers, with an offer to connect with the UCP team in South West London.
Matthew shared a website link for UCP One London, which provides information and updates on carer technology initiatives.
The group also discussed plans for Carers Week next month and a new mental health resource for hospitals, though it was noted that details about the latter were still pending.
Carer Support Project Launch
Eleanor presented a new project to support carers across North Central London, covering five boroughs and 11 hospital sites. She explained how the project will identify carers through self-referral or hospital staff identification, using a website with translation tools and referral forms that can be submitted by carers.
Eleanor also discussed plans for carer awareness training and the distribution of informational materials in hospitals to help identify and support carers. Harrow Carers centre raised questions about how hospitals can alert staff to carers involved with patients and how to better identify carers, to which Eleanor responded with plans for training and collaboration with other initiatives like the Universal Care Plan.
Carer Strategy and Resources Discussion
Eleanor discussed her previous work with Guys and St Thomas’s, noting that she had been involved in creating a carer strategy. She offered to provide the email address of a former colleague for more accurate information. The group also discussed a returning from home resources project led by Guys in southeast London, which the CEO of Bexley Carers Centre planned to present at the next meeting.
Carer Support Program Updates
The meeting discussed a carer support program that targets all carers, including young carers, with no specific threshold or type of carer required. Eleanor explained that local carers organizations would decide how to support identified carers, and hospital staff would have a centralized referral system. Matthew McKenzie provided an update on Carers Week events, highlighting various topics and resources available.
I have placed the link below from the NHS England site.
Tower Hamlet Carers Centre shared developments at the Royal London Hospital, including the addition of two carer support workers, a new base on the 13th floor, and efforts to raise awareness among staff and carers.
Carer Support Events and Initiatives
Tower Hamlets Carer centre discussed upcoming events to promote carer support, including a community day on June 11th.
Plus an information stall at the Royal Hospital on June 13th.
Tower Hamlets Carer Centre mentioned plans to start a coffee morning at the hospital’s 13th floor carers hub. Harrow Carers shared that the carers support lead stopped in April due to funding issues, but the NHS trust is now considering joining the Triangle of Care scheme. He requested help finding a suitable presenter for an upcoming meeting with high-level trust members. Matthew offered to connect the centre with Triangle of care leads, who might be able to help with the presentation.
Carers Week Planning and Support
The team discussed upcoming events for Carers Week 2025, including a joint event with the local authority and a new event in the north of the borough in partnership with Greenwich carers. St Georges hospital NHS trust (GESH) shared the development of a new carers charter based on feedback from listening events, which will be shared with various groups and staff to demonstrate commitment to carers’ needs.
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Bexley Carers mentioned the availability of the Household Support Fund for carers facing cost of living issues, with grants of up to £150 available through local authorities.
By Matthew McKenzie, carer activist Date: May 24, 2025
In an evening charged with truth, courage, and community spirit, Think Tenacity Academy CIC hosted one of the most impactful events of Mental Health Awareness Week 2025. Held at Think Tenacity HQ in Vauxhall and themed #BlackStorytellingCommunity, the gathering was more than a panel or workshop, it was a safe space for healing through shared experience.
The event was led by Bella Rareworld, Think Tenacity’s CEO and a mental health advocate living with bipolar disorder, the event was built on a legacy of ancestral wisdom: “Before slavery, social media, or podcasts, we passed on strength and knowledge through storytelling,” she reminded the audience. “Tonight, we reclaim that legacy not just to speak, but to heal, empower, and connect.”
Thursday 8th May 2025 | 10:00 – 16:30 National Conference Centre and Motorcycle Museum, Birmingham
Yes, as you can tell by the date of the conference, this blog took ages to write, it was not helped that my computer decided to die on me and I had to re-write certain sections again.
Anyway, attending the Cygnet Annual Nursing Conference and Awards 2025 as a Carer Ambassador wasn’t just informative it was empowering. As someone whose life has been shaped by navigating the health system with a loved one, this event felt like a shared space where lived experience wasn’t just welcomed it was valued, where we at least attended and networked
Learning about nursing and nurse wellbeing.
This conference didn’t just give space for clinical frameworks and policy updates, it gave space for people. And for me, that’s what made the eveent truly powerful. Many presenters talked about their journeys, from early support roles to leadership. I found myself nodding along the main speaker David Wilmot recalled standing awkwardly in a ward, unsure of what to say to someone in distress. That honesty resonated with my own journey supporting loved ones through their darkest days, I was unsure about my own role.
Continuing on with the Mental Health Awareness Week 2025 theme, the event was more than just another date on the calendar, it was a celebration of unity, joy, and shared purpose at the “Trivia & Togetherness” event hosted at Churchill Hospital.
The event was organised by Socialising Angels C.I.C. in collaboration with Cygnet Health Care, this free event brought together carers, parents, and young adults with learning disabilities from across Lambeth for an uplifting day of fun, food, and fellowship.
just so you know, Socialising Angels C.I.C is a community interest company based in Lambeth, London, dedicated to supporting young adults with learning disabilities. Their mission is to uplift the wellbeing of these individuals by creating inclusive opportunities that tackle social isolation and build confidence, communication, and independence.
As a Cygnet Carer Ambassador, I saw firsthand how vital inclusive events like these are, especially for the community. They give carers a platform to shine, to socialise, and to feel a deep sense of belonging.
Such events also provide carers with a supportive network and a chance to reconnect, share, and celebrate the amazing achievements of those we support. The room was alive with energy from the very beginning. On the event agenda were Trivia quizzes, bingo cards, and also conversation to connect.
It was great to see everyone participating with smiles and laughter. The games were cleverly designed not only to entertain but to encourage communication and teamwork tools.
For Lunch, Cygnet provided a hearty spread of classic fish and chips with peas, lemon wedges, and desserts added that special British comfort everyone loves. It wasn’t just a meal, it was a moment to sit, reflect, and enjoy the company of friends old and new.
Events like this don’t happen by accident. It takes dedication, vision, and real investment in people. That’s where Cygnet comes in. Their support with Socialising Angels is more than sponsorship, it’s a true commitment to improving mental health and social inclusion in our community. Cygnet’s continued support helps make these spaces accessible and vibrant, giving young adults the confidence to grow, and carers the strength to keep going.
To all the volunteers, organisers, and participants thank you. Today reminded us that inclusion isn’t just a word; it’s an action. Where organisations like Socialising Angels and Cygnet help lead the way.
Here is a brief update of the Triangle of Care Community group for the month of May 2025. The Triangle of Care Community group is a collaborative forum that champions the voices of unpaid carers in mental health services. The group works in partnership with service users, carers, and professionals to embed the principles of the Triangle of Care, promoting shared decision-making, improved communication, and recognition of carers as equal partners in care.
Our most recent meeting brought together carers, NHS professionals, researchers, and advocates from across the UK, including representatives from Kent, Bristol, Lewisham, East Sussex, and Hertfordshire. The atmosphere was one of mutual respect, knowledge-sharing, and a shared drive to improve the experience of care for carers and their loved ones.
The meeting covered updates on Triangle of Care developments, including recent accreditations and ongoing pilots to adapt the model for various healthcare and social settings. Presentations were given on research studies related to mental health care, including pharmacist prescribers’ roles and experiences of underserved older male carers. The group also discussed campaigns for increased research funding in serious mental illnesses and initiatives to support carers, such as Carers Roadshows.
Triangle of Care Expansion Updates
Mary Patel one of the Triangle of Care leads, provided an update on Triangle of Care developments and accreditations. Several healthcare providers have recently gained Star awards. There are ongoing pilots to adapt Triangle of Care for social care settings and to incorporate criteria for better support of racially marginalized carers. Mary announced that the Triangle of Care community group will be formally brought on board with Carers Trust, with Matthew as the inaugural chair for a 2-year term. They are looking to bring on co-chairs to support Matthew in his role.
Triangle of Care Implementation Updates
The group discusses recent achievements in implementing the Triangle of Care model across various healthcare organizations. Gabrielle Richards who leads on carers at South London & Maudsley reported that her trust successfully completed their Star 2 accreditation assessment for community services.
Matthew McKenzie shared a video poem he created about the Triangle of Care as it was shown during the peer review at South London & Maudsley.
Kelvin thanked Gabrielle for her contributions as she prepares to leave her role. Louise from Kent and Medway NHS Trust reported they maintained their second star accreditation and have implemented new processes to ensure carer considerations are included in policy development.
Richard introduced Bashir Al Saeed, a PhD student from the University of Manchester, to present their research study on the experiences of people with mental illness and their carers when receiving care from pharmacist prescribers in the community.
Bashir explains that the study aims to understand and improve care provided by pharmacist prescribers for people with mental illnesses in community-based settings. Participants will be asked to take part in a one-hour interview and will receive £30 as compensation.
The study is seeking individuals aged 18 or older with mental illnesses or their unpaid carers who have received care from pharmacist prescribers in the UK. A discussion follows about the inclusion criteria, particularly regarding the requirement for fluency in English, with concerns raised about potential issues against non-English speakers
Mental Health Research Campaign Initiative
The group discussed a campaign for better research into long-term serious mental illness in working-age people. Irene explained that they have been working on this campaign for a year, collaborating with experts from Oxford and the Welcome Trust.
The campaign aims to gather signatures and includes a short video. Irene emphasizes the importance of this initiative, as many in their group have loved ones who have been ill since their teens and are now in their thirties and forties.
You can find out more about the campaign from the link below.
The discussion focuses on a petition to increase government funding for research into psychosis, including its diagnosis, prevention, and treatment. Irene passionately advocates for more effective medications with fewer side effects, emphasizing the need for better understanding of the underlying causes of psychosis. A carer shared personal experiences of her son’s struggles with mental illness and medication side effects. The group discusses the importance of signing and sharing the petition to gain government support for accelerated research in this area.
Pharmacist Prescribing for Mental Health
The discussion focuses on pharmacists prescribing for mental health conditions. Richard explains that some pharmacists, especially those with specialized training, are caring for people with mental illnesses in various settings. However, the extent of their involvement in prescribing and monitoring is still unclear. A carer expressed concern about pharmacists prescribing for severe conditions like bipolar disorder without extensive training. The group discusses the need for proper qualifications and access to medical records. Richard emphasizes that the study aims to understand and improve the care provided by pharmacist prescribers in community services.
Carers Roadshows: Community Support Network
Trevor a carer involved at Notts NHS described his Carers Roadshows, which he has been organizing since 2013. These free events bring together various organizations dealing with health, mental health, and social care to provide information and support to carers and patients.
Trevor emphasizes the importance of communication in triangular care and sees the roadshows as an effective, sustainable tool for fostering connections between different organizations and the community. He expresses his ambition to expand the roadshows across the country, particularly in London boroughs, and offers to help others create their own roadshows using his four-step guide.
Older Male Carers Advisory Group
Steve Owen from the University of Hertfordshire presents his research project on exploring the experiences of underserved older male carers. The project aims to set up an advisory group of 7-10 older men, particularly from minority ethnic groups, same-sex relationships, and rural/coastal areas, to meet from June to December 2025.
The research group will discuss the benefits and challenges of caring, gender dynamics, and access to support. The project’s goals are to develop a grant proposal for further research and improve advisory group guidelines. Steve is still recruiting participants and welcomes help in sharing information about the project.
Final Reflections
The session highlighted both the progress and the gaps still faced by carers, particularly around communication, access to services, and recognition. The Triangle of Care model continues to be a vital tool in bridging these gaps, but it is the commitment of carers and professionals alike that drives real change.
“Thank you for another great meeting Matthew and everyone.” – Linda Thomas “These meetings have been such a resource for us all.” – Gabrielle Richards “Powerful video, powerful voices. Thank you everyone.” – Claire Wood
I’m proud to be involved and help lead as triangle of care community as Chair and look forward to building our impact together. If you’re interested in co-chairing or getting more involved, please reach out let’s continue to shape mental health care that values and includes carers at every level.
At Caring Mind Blog, we’re always on the lookout for ways to uplift, support, and connect our incredible community of carers. That’s why we’re thrilled to share this upcoming event hosted by West London NHS Trust, dedicated entirely to you – the carers who give so much every single day.
📅 An Event for Carers – Focusing on Equality
When: 12th June 2025 Time: 1:00 PM – 4:00 PM Where: Irish Cultural Centre, 5 Blacks Road, London W6 9DT
This event is part of Carers Week, with the theme “Caring About Equality” – recognizing the vital role carers play and the importance of inclusion and fairness for all.
What to Expect:
🌈 A welcoming space to connect with other carers
🗣️ Insightful talks and support resources
☕ Light lunch and refreshments provided – because you deserve a break!
💬 Opportunities to share experiences and ask questions
Whether you’re a full-time carer or juggling caring responsibilities alongside other commitments, this event is designed to celebrate and support you.
The Power of Community in Mental Health: Reflections on Mental Health Awareness Week 2025
By Matthew McKenzie
Mental health is a universal concern, touching every life in profound and personal ways. As we mark Mental Health Awareness Week 2025, the spotlight turns to a theme that is both timeless and urgently relevant: community. In a world where isolation and disconnection are increasingly common, the bonds we share with others, whether family, friends, neighbors, or online networks it can be the difference between despair and hope, between struggle and resilience.
You can watch the awareness video below.
This article explores the vital role of community in mental health, the challenges many face in accessing supportive spaces, and the collective actions we can take to ensure no mind is left behind.
Understanding Mental Health Awareness Week 2025
A Tradition of Advocacy and Reflection
For over two decades, Mental Health Awareness Week has been a cornerstone of advocacy in the UK, led by organizations like the Mental Health Foundation. Each year, this week serves as a time for reflection, education, and action, encouraging individuals and communities to prioritize mental well-being.
A Caring Mind 