By Matthew McKenzie – Carers UK Volunteer and Ambassador
On Friday 6 June, I had the pleasure of joining Carers Uk and fellow Carers UK volunteers at a picnic in St James’s Park, London a brilliant afternoon full of connection, recognition, and shared purpose. The weather managed to hold “Thank Goodness!”
As a Carers UK volunteer and ambassador, it was great to see so many familiar faces and meet new ones, all united by a commitment to supporting unpaid carers across the UK. The picnic was a chance for us to unwind, share stories, and enjoy the beautiful surroundings of the park.
One of the highlights of the afternoon was the volunteer awards recognising the time, energy, and dedication that so many of us give. It was humbling to stand alongside other passionate volunteers and celebrate each other’s contributions.
Volunteers’ Week is a vital opportunity to shine a light on the incredible work of volunteers across the country and to say thank you for the real difference they make every day.
Later in the day, we teamed up to distribute Carers UK membership resources around the area, helping to raise awareness and connect more carers to support. You can check the link below to find resources.
I would like to extend a huge thank you to everyone who helped organise the event and to those who brought food and drink. Moments like these remind us that we’re not alone in what we do as Carers – we’re part of a caring, committed community.
Help raise awareness for unpaid mental health carers during Carers Week 2025. Learn how to support and recognize their vital, often unseen role in society. To watch the video of this blog, click the video below
Recognizing the Unseen: The Vital Role of Unpaid Carers in Mental Health
Every year, Carers Week serves as a powerful reminder of the millions of individuals who dedicate their lives to supporting loved ones with health challenges often without recognition, compensation, or adequate support.
At Caring Mind Blog, we’re always on the lookout for ways to uplift, support, and connect our incredible community of carers. That’s why we’re thrilled to share this upcoming event hosted by West London NHS Trust, dedicated entirely to you – the carers who give so much every single day.
📅 An Event for Carers – Focusing on Equality
When: 12th June 2025 Time: 1:00 PM – 4:00 PM Where: Irish Cultural Centre, 5 Blacks Road, London W6 9DT
This event is part of Carers Week, with the theme “Caring About Equality” – recognizing the vital role carers play and the importance of inclusion and fairness for all.
What to Expect:
🌈 A welcoming space to connect with other carers
🗣️ Insightful talks and support resources
☕ Light lunch and refreshments provided – because you deserve a break!
💬 Opportunities to share experiences and ask questions
Whether you’re a full-time carer or juggling caring responsibilities alongside other commitments, this event is designed to celebrate and support you.
Welcome to another blog and awareness video by carer activist Matthew McKenzie FRSA BEM. If you wish to see the awareness below, please click below.
Raising Awareness: The Unseen Heroes of Parkinson’s Disease
Parkinson’s Disease, a progressive neurological condition predominantly affecting movement and coordination, often evokes the imagery of tremors and physical discomfort. Yet, beyond these visible symptoms lies an intricate complexity that reshapes daily life for both those diagnosed and the caregivers – the unsung heroes standing resiliently behind them.
As we mark World Parkinson’s Day 2025, it is imperative to delve deep into the unseen facets of this journey, particularly focusing on driving and the often-overlooked unpaid carers who tirelessly offer support, love, and patience against formidable odds.
Understanding Parkinson’s Disease: A Complex Condition
Parkinson’s Disease is more than an ailment of tremors. This progressive neurological disorder brings with it a range of symptoms that affect mobility, movement, and coordination, making daily tasks increasingly challenging. However, that’s merely the surface. The true complexity of Parkinson’s lies in its unpredictable nature, no two journeys are the same. Each individual experiences a unique set of challenges, and by extension, so do their families and carers.
The Impact on Mobility and Beyond
While the loss of coordinated movement is a significant indicator, Parkinson’s Disease affects much more than the physical. It impacts daily activities, altering how individuals interact with their environment and the people around them. This transformation extends beyond the individual, touching families and communities and reshaping relationships in profound ways.
The Role of Unpaid Carers: Strength and Resilience in Silence
For every person diagnosed with Parkinson’s Disease, there usually stands an unpaid carer – a partner, child, friend, or close companion who navigates this journey alongside them. These carers exhibit an unwavering commitment marked by strength and resilience, often facing their own set of challenges including emotional, physical, and financial strains. It is crucial to acknowledge their dedication and raise awareness about the indispensable role they play.
Life Beyond Diagnosis: A New Normal
Carers find their lives dramatically altered as they take on responsibilities that extend far beyond regular caregiving duties. There’s no clocking out, no salary, and hardly any spotlight. Carers prioritize the needs of the person with Parkinson’s above their own, often dealing with the emotional toll of the disease. They embody strength – the kind needed to wake up each day and face unknown variables, to push forward despite physical and emotional exhaustion.
The Intersection of Parkinson’s and Driving: Independence and Freedom
Driving symbolizes independence, connection, and freedom – aspects that those living with Parkinson’s struggle to hold on to. For many, driving is more than a convenience; it is a crucial part of their identity and autonomy. However, the progression of Parkinson’s can compromise these abilities, bringing about new challenges and fears.
The New Role of Carers in Mobility
Carers play a significant role in helping to navigate this new reality. They advocate, co-pilot, and sometimes take over the wheel in both a literal and emotional sense. Their support becomes an anchor for the person with Parkinson’s, helping them maintain some semblance of independence and connection with the world.
The Collective Effort: Parkinson’s UK and Global Initiatives
World Parkinson’s Day is spearheaded by a global alliance comprising approximately 80 Parkinson’s organizations, unified in their mission to raise awareness and advocate for those affected. Parkinson’s UK stands at the forefront of this initiative, leading the fight for better care, support, and services. They emphasize the importance of community, providing expert guidance and an invaluable support network for both patients and carers.
Advocacy and Community Support
These organizations work tirelessly to promote awareness, engage in advocacy efforts, and foster a sense of community. They provide a platform for those affected by Parkinson’s to share their experiences, find support, and fight for a better quality of life. Through these collective efforts, the aim is to ensure that no one faces this journey alone.
A Call to Action: Recognizing and Supporting Carers
As we commemorate World Parkinson’s Day, it is essential to recognize the people standing behind those with Parkinson’s. These carers often carry a significant portion of the burden, usually unnoticed and unacknowledged. Raising awareness about their contributions is vital to ensure they do not have to bear this weight in silence.
Driving Forward Together
The road ahead requires a collective effort to drive forward, not just physically but in terms of societal understanding and support. It’s about creating a world that truly acknowledges the challenges of living with Parkinson’s and equally the dedication of those who love and care through its trials. Together, by sharing this mission, we can make a meaningful difference in the lives of individuals with Parkinson’s and their carers.
Thank you for taking the time to read and understand the multifaceted journey of Parkinson’s Disease on this World Parkinson’s Day 2025. Let’s continue to support, advocate, and drive forward towards a better world for those living with and caring for Parkinson’s Disease.
On Wednesday 26th March, I had the pleasure of attending and representing Carers UK along with Greenwich Carers MH carers grouos. This was at the Greenwich Carers centre – Carers Forum – Mental Health event.
The event was held in the building and then in a beautiful garden setting surrounded by passionate individuals and organisations all focused on supporting unpaid carers. As someone who’s deeply involved in carer advocacy, this was more than just an information stall, it was a moment to connect, empower, and share resources that can make a real difference in someone’s life.
Are you passionate about building stronger, healthier communities? Oxleas NHS Trust is hosting an incredible event, the “Trusted Leaders Project,” designed to bring people together, enhance communication pathways, and foster meaningful information exchange across diverse communities.
This event is an excellent opportunity for individuals, community leaders, and organizations to:
Learn about Oxleas NHS Trust’s ongoing efforts to engage and support local communities.
Share valuable insights and experiences to help shape future initiatives.
Network with like-minded individuals who are committed to creating positive change.
By attending, you’ll not only strengthen your connection to local services but also contribute to building a more informed and empowered community.
Whether you’re a carer looking after someone using Oxleas services, community leader, healthcare advocate, or simply someone who cares about making a difference, this event is not to be missed!
👉 Mark your calendars and join us on 22nd January 2025! Together, let’s build stronger connections and a brighter future.
For more information or to RSVP, please contact Oxleas NHS trust – Reshma Jerin at reshma.jerin@nhs.net or click on the poster for details.
Let’s make a difference – one conversation at a time. See you there!
On December 14th, a carer engagement peer event took place at Sydenham’s Ignition Brewery, creating a vibrant and inclusive space for unpaid carers in Lewisham to connect and share experiences. The event, which was carer-led, was hosted by Wendy, who is passionate about strengthening the network of support for carers in the borough. Wendy was joined by her son Jamie who as a young carer was awarded “Young Resident of the Year” in 2022 by Lewisham Homes.
The gathering named Sydenham’s Ignition Peer Support “SIPS FOR CARERS” provided an opportunity for carers to engage in meaningful conversations.
Welcome back to another blog post by carer activist Matthew McKenzie. I am involved in quite a few things and one of them is being one of the Carer Network Ambassadors for Cygnet. This means we have a keen interest in networking and support families, friends and carers throughout the community.
One way to connect to carers is through carer led events. You see, we are more than just our roles, we are more than carers and just once there should be a space for families, friends can carers to express themselves, take time out for themselves despite the emotional and difficult journeys they face.
So following off the successful event held over at one of the Cygnet sites Churchill hospital.
Carers Annette Davis and Faith Smith set out to host Postive Talents part 2 to give a chance for carers to showcase their talents and have a night out for entertainment to reduce isolation.
The Positive Talents – Part 2 event took place on friday 29th of November 2024. For this event we had an amazing range of performing acts, including poets, singers, dancers, book readings and interests that those with lived experience of caring promoted.
I will not go fully into all the acts as you can watch the video below and fast forward to any of the performances you want to see.
The event included a Raffle section, food and refreshments and a way for carers to network to reduce isolation and stigma.
However the event was worth attending to give carers of London a chance to have space for them with thanks to Laura Sheridan Cygnet Head Carer & Service User Engagement and staff at Cygnet for the excellent hospitality.
Well done to all the carers who performed at the event who were awarded certificates.
We look forward for the next Positive Talents show.
Living with Parkinson’s disease is undeniably challenging, not just for those diagnosed but also for those who support them. During a recent panel discussion from Parkinsons UK, experience of care experts including Matthew McKenzie and volunteers shared their insights and experiences on managing these challenges, offering valuable advice for fellow caregivers. The discussion highlighted key aspects of being on the supporters journey, from communicating diagnoses to seeking support and handling medication concerns. Here, we summarize the essential points covered during the session for a comprehensive guide.
Parkinson’s UK is a leading charity dedicated to improving the lives of people affected by Parkinson’s disease in the United Kingdom. Established in 1969, the organization provides vital support, information, and resources to individuals living with the condition, as well as their families and caregivers. Parkinson’s UK also funds groundbreaking research aimed at finding better treatments and ultimately a cure for the disease.
Parkinson’s UK held a Panel interview to highlight and educate those who are new to the caring role and want to find out more about supporting someone with Parkinsons. Below is a small summary of the panel interview, although if you want to watch the Panel discussion, please click on the video below.
Here is another blog for to raise awareness of Carers Rights Day 2024 – Recognising your rights as a carer.
This blog is written by Carers UK volunteer Matthew McKenzie who runs many carer groups and is also a poet and author.
I have also created a video to help raise awareness of Carers Rights day.
Exploring the Importance of Carers Rights Day 2024
Carers Rights Day 2024, a significant annual event in the UK, is organized by Carers UK, a leading charity dedicated to supporting unpaid carers across the country. This day focuses on raising awareness about the legal rights, support, and resources available to unpaid carers and ensuring they can access the help they need. Traditionally held in late November, this year, Carers Rights Day will occur on Thursday, 21st November, under the theme “Recognizing Your Rights as a Carer”.
The Role of Unpaid Carers in Society
Unpaid carers play an essential role in society by providing invaluable support to family members, friends, or neighbors who cannot manage daily activities due to illness, disability, mental health issues, or old age. Despite their crucial contributions, unpaid carers often face significant challenges, including financial strain, emotional stress, and lack of recognition. Carers Rights Day is vital in shedding light on these challenges and educating both the public and carers about their rights and the available support systems.
Objectives of Carers Rights Day
Raising Awareness
One of the primary objectives of Carers Rights Day is to raise awareness about carers’ rights. This involves highlighting the critical role that unpaid carers play in society and the unique challenges they encounter. Awareness campaigns are designed to educate carers about their legal rights, encompassing financial, practical, and emotional support they are entitled to receive.
Educating Carers and the Public
Carers Rights Day aims to educate not only carers themselves but also the broader public. By informing carers about their entitlements and the support available to them, the day helps empower them to advocate for their rights and the rights of those they care for. The day is also geared towards educating society about the crucial work done by unpaid carers and the need to support them better.
Empowering Unpaid Carers
Empowering unpaid carers is another critical objective of Carers Rights Day. This is achieved by providing vital information on various entitlements, such as benefits, workplace rights, and access to health and social care services. By understanding their entitlements, carers can feel more confident in seeking the support they need and advocating for themselves and those they care for.
Access to Benefits and Support Services
Carers are often unaware of the full range of benefits and support services available to them. On Carers Rights Day, information sessions and workshops are held to educate carers about these resources. This could include details on financial aid, respite care options, and mental health support, all of which are crucial in ensuring carers can continue to provide high-quality care without sacrificing their well-being.
Influencing Policy Change
Carers Rights Day also aims to influence policy changes that will improve the lives of unpaid carers. By encouraging conversations about necessary policy adjustments, the event aims to engage organizations, policymakers, and communities in recognizing and supporting unpaid carers. This advocacy is crucial for driving systemic changes that can lead to better support and recognition for carers nationwide.
Engaging Policy Makers and Organizations
The day provides an opportunity to engage with policymakers and organizations, urging them to consider the unique needs of carers when designing and implementing policies. By involving these stakeholders, Carers Rights Day can foster a more inclusive and supportive environment for unpaid carers, encouraging initiatives that can significantly improve their quality of life.
Activities and Events on Carers Rights Day
Information Sessions and Workshops
Throughout the country, various activities and events will be held to raise awareness about the rights of unpaid carers. These may include information sessions and workshops hosted by local authorities, NHS health organizations, and charities. These sessions aim to educate carers and the public about the support available and how to access it.
Local Authorities and Health Organizations
Local authorities and NHS health organizations play a pivotal role during Carers Rights Day by hosting events that educate carers about their rights and available resources. These organizations can provide insights into local support services, advice on navigating the healthcare system, and information on how carers can claim their entitlements.
Support Clinics and Drop-In Sessions
Support clinics and drop-in sessions are organized to provide carers with the opportunity to ask questions and seek advice from professionals. These sessions offer a personal touch, addressing individual concerns and guiding carers on how to manage their unique situations.
Personalized Support and Advice
Personalized support is essential for carers dealing with specific challenges. Drop-in sessions aim to offer tailored advice, covering various issues such as managing stress, accessing financial support, and understanding workplace rights. These sessions provide a crucial support network, enabling carers to feel less isolated and more confident in their roles.
Campaigns and Advocacy
Carers Rights Day also features numerous campaigns, both online and offline, to amplify the voices of unpaid carers. Advocacy efforts aim to raise public awareness and generate broader support for carers’ rights.
Online and Offline Campaigns
Campaigns conducted both online and offline help spread the message about the importance of supporting unpaid carers. Social media campaigns, public service announcements, and community outreach programs all contribute to raising awareness and encouraging societal support for carers.
Events Hosted by Care Centers and Charities
Care centers and charities often host events to commemorate Carers Rights Day, further raising awareness about the essential role of unpaid carers and the challenges they face. These events can include workshops, information sessions, and community gatherings aimed at providing support and resources to carers.
Collaboration with Carer Centers
Collaboration with care centers ensures that carers are connected to essential services and support networks. Events hosted by these centers typically focus on providing practical advice, emotional support, and opportunities for carers to connect with others in similar situations.
Conclusion
Carers Rights Day 2024 stands as a crucial event dedicated to recognizing, supporting, and empowering unpaid carers. By raising awareness, providing essential information, and advocating for policy changes, Carers Rights Day aims to improve the lives of carers across the UK. Whether through information sessions, support clinics, or advocacy campaigns, the day offers various ways for carers to access the resources and support they need to continue their vital work. As a society, understanding the importance of unpaid carers and the challenges they face is paramount in ensuring they receive the recognition and support they deserve.
A Caring Mind 