By Matthew McKenzie – Carer poet and Carer activist
On the 18th of September, West Ealing Library once again became a hub of creativity, reflection, and connection as carers gathered for our second poetry workshop. Guided by carer activist and writer Matthew McKenzie, the session offered not just writing prompts, but a safe and supportive space to explore the healing power of words.
Poetry as Expression and Healing
The morning began with Matthew sharing his personal journey from caring for his mother living with schizophrenia, to writing books on mental health and carer experiences, and now using poetry as a tool for both advocacy and self-expression.
For many carers, life can feel isolating, exhausting, and invisible to wider society. Poetry offered participants a way to give voice to those emotions. As I reminded carers, “Poetry gives shape to what’s hard to say” — even if it’s just a few lines scribbled on paper, those words can carry truth, comfort, and even influence change.
On Friday 12th September 2025, I had the privilege of attending Abilities Development’s Awards Night: Celebrating Unpaid Carers at The Grange in London. The event was a moving and powerful reminder of the sacrifices, love, and resilience shown by unpaid carers across our communities.
The event was hosted by founder Dr Karen May, who spoke passionately about the vision to celebrate and support unpaid carers. The evening also included tributes from fellow carers sharing their lived experiences, moving reflections on the sacrifices and strength carers show daily, and recognition from community leaders.
As many of you know, unpaid carers often go unseen, their daily contributions hidden behind closed doors. Yet they carry the heavy responsibilities of looking after loved ones with compassion and strength, often without formal recognition. This event was different, it put carers at the centre, reminding us all that their efforts matter and deserve to be celebrated.
We were given a tour of the facilities available for unpaid carers and their loved ones to us.
One of the highlights of the evening was the presentation of awards and certificates to unpaid carers. Each recipient was honoured with a Certificate of Honour in Caregiving, recognising their unconditional love, tireless dedication, and the invaluable role they play in supporting their loved ones without financial reward or formal recognition.
The evening, attended by the Mayor of Brent and other distinguished guests, was filled with speeches that spoke to the heart of caregiving, its challenges, its emotional toll, but also its incredible strength. One message that stood out was that carers must not forget their own worth and wellbeing. As was beautifully said on the night: “You are important. Take moments for yourself so you can rejuvenate, be well, and stay healthy.”
I was truly honoured to receive a Certificate of Honour in Caregiving myself. This certificate recognised the unconditional love and tireless dedication of carers who, without pay or recognition, give their heart, time, and energy to provide comfort, dignity, and hope. Holding it in my hands was not just a personal moment of pride, but also a reminder of the countless carers whose work too often goes unnoticed
Events like these are not “just another event.” They are opportunities to create legacies and spaces where carers are not only seen but also valued, uplifted, and supported. They are about passing on the message to future generations that caring is not a burden, but a profound act of humanity.
As someone who has long campaigned for carers’ voices, I want to encourage others to support, promote, and attend events like this. Whether it’s through organisations like Abilities Development, local carer networks, or even small community groups, recognising unpaid carers is vital.
To every unpaid carer reading this: you are a quiet hero. Every sleepless night, every whispered prayer, every act of kindness you show it matters. You matter.
Carers can book to use The Grange by contacting Abilities Development directly. Whether it’s for a quiet space to reflect, joining a carers’ group, or making use of tailored support services, The Grange offers a safe environment built around compassion and community.
The Power of Poetry and Storytelling in the Lives of Carers
Caring for a loved one with mental health challenges or chronic illness is a journey marked by both hardship and hope. Too often, the voices of carers those who provide unpaid, tireless support are overlooked in the broader conversation about health and wellbeing. Yet, as this moving gathering of carers and poets reveals, storytelling and poetry can be transformative tools for connection, healing, and advocacy. So it was an honour to host our first poetry event at Cygnet Churchill for the 13th of June during Carers Week 2025
This Blog explores the themes, experiences, and creative expressions shared by carers, drawing from a vibrant community event centered on poetry, storytelling, and the lived realities of those who care. Through their words, we gain insight into the emotional landscape of caring, the challenges faced, and the resilience that emerges when stories are shared.
To watch the performance, please view the video below.
Giving Carers a Voice: The Motivation Behind the Book
The host of the event was myself (Matthew McKenzie), as a prolific author and advocate, where I have dedicated my eighth book to amplifying the voices of mental health carers. For me, books are more than just a means of communication they are a way to reach people who might otherwise remain unheard.
By Matthew McKenzie, Carer Ambassador, Cygnet Health Care
On Friday 13th June 2025, I had the privilege of attending and speaking at Cygnet Health Care’s National Carers Event, hosted at Cygnet Churchill in Lambeth, London. The event brought together carers, staff, professionals, and advocates to reflect on the vital role of unpaid carers who step up daily out of love, resilience, and responsibility, often with little recognition.
Carers Week is always a powerful reminder that caring touches us all – and Cygnet’s event this year was especially moving and informative. It offered a platform for carers to share their lived experience, influence policy, and strengthen our collective voice.
Agenda Highlights
The day opened with a warm welcome from Laura Sheridan & Shane Mills, setting the tone for a day grounded in empathy and collaboration. We heard from a range of speakers including:
Susan Hartnell-Beavis, sharing practical tools for supporting carers.
Kate Mercer and Carly Ellicott, who both championed carer involvement in care planning and research.
John Bangs OBE, who brought a national perspective on carer rights and policy.
Dr Angela Misra, who tackled the health implications of caregiving.
Julian de Takats and Matthew McKenzie (myself), focusing on empowering carers’ voices.
We also had insights from Dr Henk Swanepoel & Sophie Borg, who presented on collaborative approaches with carers in mental health services.
Written by: Matthew McKenzie – WLHT co-facilitator of ethnic carer group and Triangle of Care Community Chair
The Irish Cultural Centre in Hammersmith was filled with warmth and purpose on June 12th, as carers, professionals, and community leaders came together for the West London NHS Trust’s Carers Event in support of Carers Week 2025.
As Chair of the Triangle of Care Community and an involved carer for West London NHS Trust, I was interested in the carers conversations, and sense of solidarity among all those present.
On Tuesday, 10th June 2025, the Dominion Centre in Southall hosted a vibrant and deeply informative Carers Week Celebration.
Organised by the Ealing Carers Partnership and supported by various local organisations, the event honoured unpaid carers with a day of connection, education, and appreciation.
Carers Week 2025: Caring About Equality
This year’s theme, Caring About Equality, highlighted the challenges faced by unpaid carers, particularly those from marginalised communities and called for fair access to services, recognition, and support.
The event was a powerful reminder that equality means meeting people where they are and valuing every carer’s contribution.
By Matthew McKenzie – Carers UK Volunteer and Ambassador
On Friday 6 June, I had the pleasure of joining Carers Uk and fellow Carers UK volunteers at a picnic in St James’s Park, London a brilliant afternoon full of connection, recognition, and shared purpose. The weather managed to hold “Thank Goodness!”
As a Carers UK volunteer and ambassador, it was great to see so many familiar faces and meet new ones, all united by a commitment to supporting unpaid carers across the UK. The picnic was a chance for us to unwind, share stories, and enjoy the beautiful surroundings of the park.
One of the highlights of the afternoon was the volunteer awards recognising the time, energy, and dedication that so many of us give. It was humbling to stand alongside other passionate volunteers and celebrate each other’s contributions.
Volunteers’ Week is a vital opportunity to shine a light on the incredible work of volunteers across the country and to say thank you for the real difference they make every day.
Later in the day, we teamed up to distribute Carers UK membership resources around the area, helping to raise awareness and connect more carers to support. You can check the link below to find resources.
I would like to extend a huge thank you to everyone who helped organise the event and to those who brought food and drink. Moments like these remind us that we’re not alone in what we do as Carers – we’re part of a caring, committed community.
Help raise awareness for unpaid mental health carers during Carers Week 2025. Learn how to support and recognize their vital, often unseen role in society. To watch the video of this blog, click the video below
Recognizing the Unseen: The Vital Role of Unpaid Carers in Mental Health
Every year, Carers Week serves as a powerful reminder of the millions of individuals who dedicate their lives to supporting loved ones with health challenges often without recognition, compensation, or adequate support.
At Caring Mind Blog, we’re always on the lookout for ways to uplift, support, and connect our incredible community of carers. That’s why we’re thrilled to share this upcoming event hosted by West London NHS Trust, dedicated entirely to you – the carers who give so much every single day.
📅 An Event for Carers – Focusing on Equality
When: 12th June 2025 Time: 1:00 PM – 4:00 PM Where: Irish Cultural Centre, 5 Blacks Road, London W6 9DT
This event is part of Carers Week, with the theme “Caring About Equality” – recognizing the vital role carers play and the importance of inclusion and fairness for all.
What to Expect:
🌈 A welcoming space to connect with other carers
🗣️ Insightful talks and support resources
☕ Light lunch and refreshments provided – because you deserve a break!
💬 Opportunities to share experiences and ask questions
Whether you’re a full-time carer or juggling caring responsibilities alongside other commitments, this event is designed to celebrate and support you.
Welcome to another blog and awareness video by carer activist Matthew McKenzie FRSA BEM. If you wish to see the awareness below, please click below.
Raising Awareness: The Unseen Heroes of Parkinson’s Disease
Parkinson’s Disease, a progressive neurological condition predominantly affecting movement and coordination, often evokes the imagery of tremors and physical discomfort. Yet, beyond these visible symptoms lies an intricate complexity that reshapes daily life for both those diagnosed and the caregivers – the unsung heroes standing resiliently behind them.
As we mark World Parkinson’s Day 2025, it is imperative to delve deep into the unseen facets of this journey, particularly focusing on driving and the often-overlooked unpaid carers who tirelessly offer support, love, and patience against formidable odds.
Understanding Parkinson’s Disease: A Complex Condition
Parkinson’s Disease is more than an ailment of tremors. This progressive neurological disorder brings with it a range of symptoms that affect mobility, movement, and coordination, making daily tasks increasingly challenging. However, that’s merely the surface. The true complexity of Parkinson’s lies in its unpredictable nature, no two journeys are the same. Each individual experiences a unique set of challenges, and by extension, so do their families and carers.
The Impact on Mobility and Beyond
While the loss of coordinated movement is a significant indicator, Parkinson’s Disease affects much more than the physical. It impacts daily activities, altering how individuals interact with their environment and the people around them. This transformation extends beyond the individual, touching families and communities and reshaping relationships in profound ways.
The Role of Unpaid Carers: Strength and Resilience in Silence
For every person diagnosed with Parkinson’s Disease, there usually stands an unpaid carer – a partner, child, friend, or close companion who navigates this journey alongside them. These carers exhibit an unwavering commitment marked by strength and resilience, often facing their own set of challenges including emotional, physical, and financial strains. It is crucial to acknowledge their dedication and raise awareness about the indispensable role they play.
Life Beyond Diagnosis: A New Normal
Carers find their lives dramatically altered as they take on responsibilities that extend far beyond regular caregiving duties. There’s no clocking out, no salary, and hardly any spotlight. Carers prioritize the needs of the person with Parkinson’s above their own, often dealing with the emotional toll of the disease. They embody strength – the kind needed to wake up each day and face unknown variables, to push forward despite physical and emotional exhaustion.
The Intersection of Parkinson’s and Driving: Independence and Freedom
Driving symbolizes independence, connection, and freedom – aspects that those living with Parkinson’s struggle to hold on to. For many, driving is more than a convenience; it is a crucial part of their identity and autonomy. However, the progression of Parkinson’s can compromise these abilities, bringing about new challenges and fears.
The New Role of Carers in Mobility
Carers play a significant role in helping to navigate this new reality. They advocate, co-pilot, and sometimes take over the wheel in both a literal and emotional sense. Their support becomes an anchor for the person with Parkinson’s, helping them maintain some semblance of independence and connection with the world.
The Collective Effort: Parkinson’s UK and Global Initiatives
World Parkinson’s Day is spearheaded by a global alliance comprising approximately 80 Parkinson’s organizations, unified in their mission to raise awareness and advocate for those affected. Parkinson’s UK stands at the forefront of this initiative, leading the fight for better care, support, and services. They emphasize the importance of community, providing expert guidance and an invaluable support network for both patients and carers.
Advocacy and Community Support
These organizations work tirelessly to promote awareness, engage in advocacy efforts, and foster a sense of community. They provide a platform for those affected by Parkinson’s to share their experiences, find support, and fight for a better quality of life. Through these collective efforts, the aim is to ensure that no one faces this journey alone.
A Call to Action: Recognizing and Supporting Carers
As we commemorate World Parkinson’s Day, it is essential to recognize the people standing behind those with Parkinson’s. These carers often carry a significant portion of the burden, usually unnoticed and unacknowledged. Raising awareness about their contributions is vital to ensure they do not have to bear this weight in silence.
Driving Forward Together
The road ahead requires a collective effort to drive forward, not just physically but in terms of societal understanding and support. It’s about creating a world that truly acknowledges the challenges of living with Parkinson’s and equally the dedication of those who love and care through its trials. Together, by sharing this mission, we can make a meaningful difference in the lives of individuals with Parkinson’s and their carers.
Thank you for taking the time to read and understand the multifaceted journey of Parkinson’s Disease on this World Parkinson’s Day 2025. Let’s continue to support, advocate, and drive forward towards a better world for those living with and caring for Parkinson’s Disease.
A Caring Mind 