On Thursday 20th November, I had the privilege of attending and speaking at the Memory, Wellbeing and Brain Health event hosted at Broadfield Community Centre in Crawley. Organised by Carers Support West Sussex, the event formed part of Carers Rights Day, bringing together carers, professionals, community teams, and people living with dementia for a day of learning, connection, and support.
Although I couldn’t stay for the full programme due to travelling to another Carers Rights Day engagement later that afternoon, I was grateful to take part in the early sessions and witness the energy and compassion that shaped the whole day.
Welcome to the latest edition of my unpaid carer newsletter for November This month’s release is full of insights, stories and resources to support carers across the UK.
On this year’s Carers Rights Day 2025 (Thursday 20 November), the theme is “Know your rights, use your rights.”
If you care for someone, whether it’s a partner, parent, child or friend; you may be missing out on vital support simply because you didn’t realise you have rights as a carer.
In my new video I walk you through what those rights actually are, and how you can use them in practice.
In this video you’ll discover:
Why recognising yourself as a carer matters
Key rights every carer should know (from assessments to flexible working)
How to make use of those rights in your daily life
Where to go for help, guidance and support
Click the link, take two minutes, and empower yourself today.
For Unpaid carers those who support loved ones living with long-term physical or mental health conditions, they face a unique set of challenges. The role is often demanding, emotionally taxing, and can feel isolating. Yet, in recent years, the rapid advancement of digital tools, apps, and online platforms has begun to transform the landscape of unpaid care, offering new avenues for support, organization, and connection.
My blog is a short transcript of my longer video below
Drawing from the lived experience as a passionate advocate for unpaid carers and an IT professional, my article and video explores how digitization, artificial intelligence, and mobile technology are reshaping the way informal carers manage their responsibilities. We’ll delve into the practical benefits, the most useful apps, and the limitations of technology in the caring role, providing a comprehensive guide for carers seeking to harness digital tools for their own well-being and the well-being of those they support.
Understanding the Role of Technology in Unpaid Care
The Growing Demands on Carers
Unpaid carers often juggle multiple responsibilities: managing medication schedules, tracking symptoms, coordinating appointments, and advocating for their loved ones with health professionals. The emotional and cognitive load can be overwhelming, especially when combined with work, family, and personal commitments.
As I points out, “As humans, we can only remember things so often. So, especially when we’re getting older or if we are under a lot of stress trying to juggle our caring role and busy lives, it does help to have apps that can schedule these things.”
The Promise of Digitization
Digitization offers carers a “second brain”, a way to offload tasks, reminders, and information, reducing stress and mental clutter. Mobile phones, now more powerful than ever, serve as hubs for health management, communication, and emotional support. But while technology can be transformative, it’s not without its challenges, including digital literacy, access, and the irreplaceable of value of human connection.
The Future of Care: Technology as an Empowering Force
The digital revolution is reshaping unpaid care, offering carers new ways to manage responsibilities, connect with others, and support their own well-being. While technology is not a replacement, it can be a powerful ally, reducing stress, improving organization, and fostering community.
As my experience shows, embracing digital tools can transform the caring journey. By leveraging apps for health management, communication, and emotional support, carers can reclaim control, reduce isolation, and find new sources of strength.
Ultimately, the goal is not to replace human kindness or connection, but to empower carers with the tools they need to thrive. With thoughtful adoption and ongoing support, technology can help unpaid carers navigate the challenges of their role and build a brighter, more connected future.
Resources and Recommendations my video covers
Essential Apps for Carers
Pill Reminder: Medication management and alerts
Medsafe: Medication tracking and scheduling
NHS App: Health records, care plans, and feedback (UK)
Google Calendar / Microsoft Outlook: Appointment and routine management
To-Do List / Trello: Task organization
Zoom / Microsoft Teams / Google Chat: Virtual support groups and communication
Siri / Google Assistant: Voice commands and reminders
AI Journals / Well-being Apps: Emotional support and mindfulness
Tips for Safe and Effective Use
Choose reputable apps with strong privacy policies
Keep software updated to ensure security
Seek training or support if you’re new to digital tools
Balance online and offline support for holistic well-being
Conclusion
Unpaid carers are the unsung heroes of our communities, providing vital support to those living with long-term ill health. The rise of digital tools and technology offers new hope, making the caring role more manageable, less isolating, and more connected.
By embracing digitization, carers can streamline their responsibilities, access emotional support, and build resilient communities. While challenges remain, the future of care is bright, powered by technology and the enduring spirit of human kindness.
The recent Carers Forum brought together unpaid carers, health professionals, and community organisations from across South London to share updates, experiences, and ideas for improving mental health support. The event, chaired by Matthew McKenzie, created a safe and open space for carers to connect, exchange information, and have their questions heard by local health leaders.
Setting the Scene
Matthew opened the session by welcoming carers from across Lambeth, Lewisham, and Southwark. He spoke about the importance of providing carers with dedicated time to hear from service providers, particularly those supporting someone with mental ill-health and to ensure their voices shape local mental health strategies.
As someone who’s been advocating for carers for years through A Caring Mind, I know how important it is that carers’ experiences influence the way support systems are built. The OSMOSIS project offers a real chance to help improve understanding and services for those of us supporting loved ones with severe mental health conditions.
If you are caring for someone living with psychosis, schizophrenia, or bipolar disorder, here’s an opportunity to make your voice heard.
Today, I had the privilege of being part of King’s College Hospital NHS Foundation Trust’s Mental Health Fair, held on Thursday 2nd October, in recognition of World Mental Health Day 2025.
The event brought together a wide range of organisations and community groups working tirelessly to support the mental health and wellbeing of patients, families, and carers.
Why carers need to be at the heart of mental health conversations
As someone who has cared for a loved one experiencing mental health challenges, I know firsthand the importance of recognising and supporting carers through the groups i run.
By Matthew McKenzie – Carer activist and facilitator of the group
The group is a community of carers in Lambeth, Southwark and Lewisham that exists to provide support, advocacy, and connection for people looking after loved ones living with mental illness. It brings together unpaid carers of all ages and backgrounds to share experiences, learn from one another, and build confidence in dealing with health and social care professionals. A core part of its mission is reducing isolation by creating a safe space where carers can speak openly, develop skills, and access practical resources like advocacy services.
The meeting began with introductions and updates from various participants, including myselff where I discussed work with London Hospitals and the NHS app, while other carers introduced themselves to the group. In attendance was Tama from PohWer presented information about carer complaints and support services across different regions, including discussions about the potential impact of Healthwatch’s dissolution on patient and carer support services.
Community is a word we hear often, but its true meaning and significance can sometimes be overlooked. At its core, a community is a network, a web of relationships built on shared identity, common themes, and mutual trust. Communities are formed when people come together, united by a sense of belonging and shared responsibility. This sense of belonging is not just about being part of a group; it’s about feeling valued, having a purpose, and working towards common ideals.
This blog is a transcript of the video below.
Communities exist in many forms. The most immediate and intimate is the family, where the seeds of unpaid caring are often sown.
By Matthew McKenzie – Carer poet and Carer activist
On the 18th of September, West Ealing Library once again became a hub of creativity, reflection, and connection as carers gathered for our second poetry workshop. Guided by carer activist and writer Matthew McKenzie, the session offered not just writing prompts, but a safe and supportive space to explore the healing power of words.
Poetry as Expression and Healing
The morning began with Matthew sharing his personal journey from caring for his mother living with schizophrenia, to writing books on mental health and carer experiences, and now using poetry as a tool for both advocacy and self-expression.
For many carers, life can feel isolating, exhausting, and invisible to wider society. Poetry offered participants a way to give voice to those emotions. As I reminded carers, “Poetry gives shape to what’s hard to say” — even if it’s just a few lines scribbled on paper, those words can carry truth, comfort, and even influence change.
