Tag Archives: carers community

The Heart of Care – Ealing Carers Online Poetry Group August 2026

By Matthew McKenzie – Poetry group facilitator

The Ealing Carers Online Poetry Group returned in August for another warm and creative evening of poetry, reflection and peer support. Delivered with the support of Ealing Carers Partnership, the group has now been running for two years and continues to provide carers with a welcoming space in which they can express themselves, meet others and take some valuable time away from the pressures of their caring roles.

Carers joined the session for different reasons. Some wanted inspiration to write, while others valued the opportunity to relax, listen and spend time with people who understood the realities of caring. One member described how they often begin an exercise believing they will not be able to write anything, only to be surprised by the words and emotions that emerge.

This is an important part of the poetry group. Nobody needs to be an experienced poet, and there is no pressure to read aloud. People are welcome to participate at their own pace, listen to other carers and gradually build their confidence.

Exploring “The Heart of Care”

The main writing exercise was called “The Heart of Care”. Carers were given the beginnings of lines and invited to complete them using words drawn from their own experiences. They could choose whether or not to use rhyme.

The poems explored dedication, courage, memories, exhaustion, prayer, quiet reflection and the determination required to continue caring through difficult days. Familiar moments, including sharing a laugh, shedding a tear or simply making a cup of tea, became meaningful images within the poems.

Although everyone worked from the same starting point, each poem developed its own character and voice. One contribution focused on the strength needed to continue walking along the “winding road” of caring. Another described finding a voice and taking a stance, while another ended by recognising that small moments of reflection can help build the core of a carer’s wellbeing.

The exercise reminded us that poetry does not need to be complicated. A few carefully chosen words can express feelings that may otherwise be difficult to explain.

Listening, reflecting and encouraging one another

After each poem was shared, group members were encouraged to ask thoughtful questions and reflect on what they had heard. This created some powerful conversations about finding your voice, managing negative thoughts and recognising your own efforts.

One carer spoke about replacing late-night self-criticism with positive affirmations: reminding themselves that they had done their best and did not need to solve everything before allowing themselves to rest.

Another spoke about the “will” carers must find each morning to get up and continue. Even though they felt nervous about reading aloud, the encouragement they received demonstrated the peer-support element at the heart of the group.

Carers were encouraged to keep their poems together in a folder or notebook. Returning to words about hope, warmth, identity and resilience can offer reassurance during times when someone is feeling low or overwhelmed.

When a carer’s poem becomes a song

A particularly moving part of the evening came when one member shared a song developed from their own poem about caring. The piece was originally inspired by the theme “A Carer Is” and offered a heartfelt message to other carers: you are seen, you matter and the contribution you make deserves to be recognised.

Members described the song as a love letter to carers. They felt it was something from which carers could draw comfort and strength, particularly because recognition does not always come from services or even from the people receiving care.

The writer generously gave permission for the song to be shared with other carer groups, forums and events.

Listen to the carer’s song here:
https://www.mureka.ai/song-detail/125940401242114

Carers helping to shape future poetry events

The session was also an opportunity to ask carers what they would like to experience at upcoming in-person and hybrid poetry events.

Ideas included combining poetry with art, drawing and music; creative activities based on hope, wellbeing and resilience; choosing unexpected words from a hat and using them to write a poem or short story; and using simple unfinished lines to help people try poetry for the first time.

Members also suggested introducing relaxation, breathing and gentle body-awareness activities. These could help carers settle their minds, release some tension and feel ready to write.

Most importantly, carers wanted opportunities to perform their own work and help lead parts of future workshops. One member volunteered to lead a creative word-picking exercise at a future event. This is an exciting step towards making the programme increasingly carer-led and co-produced.

Upcoming activities discussed during the session included an Ealing Central Library workshop on 8 October, a future workshop at Greenford Library and an event at Manor House Library in Lewisham on 4 November. Further details will be shared once all arrangements have been confirmed.

Join the Ealing Carers Online Poetry Group

The Ealing Carers Online Poetry Group is more than a writing workshop. It is a friendly and supportive community where carers can connect, develop their creativity and have their experiences heard and valued.

You do not need to consider yourself a poet. You can write in rhyme or free verse, share something you have already created or simply attend and listen. Carers from Ealing and beyond are welcome to take part.

The next online meeting is planned for Friday 25 September 2026. Please contact the group organiser for the joining details and to be added to the mailing list.

info@ealingcarerspartnership.org

Whether you are looking for creative inspiration, companionship, a little relaxation or a safe way to express your caring experiences, you will be warmly welcomed.

East Sussex Carers Voices – Celebrating Carers Week 2026

East Dean Village Hall – 11 June 2026

Written by Matthew McKenzie, Speaker, Carer, Campaigner and Poet

As part of Carers Week 2026, I had the privilege of travelling to East Dean in East Sussex to speak at the East Sussex Carers Voices – Celebrating Carers Week Event, organised by Care for the Carers. The event brought together unpaid carers, carers’ organisations, NHS representatives, local authority leaders, health professionals, community groups and carers from across East Sussex to discuss the realities of caring and identify ways to improve support for unpaid carers.

The event was hosted by Dr Neil Churchill, Chair of Care for the Carers, who guided the day’s discussions and emphasised the vital role carers play in society. Throughout the day, carers shared their personal stories, experiences and recommendations directly with decision-makers and service providers.

This blog post provides an overview of the key themes, speakers and discussions for those who were unable to attend.

Opening Remarks – Dr Neil Churchill

Dr Neil Churchill opened the event by welcoming attendees and recognising the significant contribution unpaid carers make to families, communities and public services.

He highlighted several key challenges currently facing carers:

• Rising financial pressures and cost-of-living concerns.
• The growing number of carers leaving employment due to caring responsibilities.
• Increased risks of poor physical and mental health among carers.
• Social isolation and loneliness experienced by many carers.
• Growing concerns around carer burnout.

Dr Churchill stressed that the country depends heavily on unpaid carers and that health and social care systems would struggle to function without them. He also spoke about the importance of moving towards a model where carers are treated as equal partners in care rather than simply being expected to cope alone.

A key message from his introduction was that carers should not be left to navigate fragmented services by themselves. Instead, health, social care and voluntary sector organisations must work together more effectively to recognise, support and value carers.

Carer Stories and Lived Experience

One of the most powerful aspects of the event was hearing directly from carers themselves.

Miles Bing – Caring Through Dementia

The first speaker was Miles Bing, author of “Deadheaded: An Alzheimer’s Memoir by Mother and Son”.

Miles shared his family’s experience of supporting both of his parents through Alzheimer’s disease. His presentation explored the emotional impact of caring at a distance, the guilt often experienced by family members who live far away, and the difficulties of coordinating support across multiple services.

He spoke about:

• The long-term impact of dementia on families.
• The challenges of accessing services in rural areas.
• The lack of coordination between health and social care systems.
• The practical and emotional burden placed on carers.

Many attendees identified strongly with his comments regarding the need for carers to act as coordinators between multiple organisations that often fail to communicate effectively with one another.

Young Carers – Julia and Elsie

The audience then heard from young carers Julia and Elsie, whose presentations left a lasting impression on everyone in the room.

Both spoke honestly about growing up while caring for family members with complex needs. They described responsibilities that included supporting parents during health crises, helping siblings with disabilities and managing situations involving emergency services.

Their stories demonstrated:

• The hidden nature of young caring responsibilities.
• The emotional impact caring can have on children and young people.
• The importance of early intervention and support.
• The value of dedicated young carers services.

Perhaps most importantly, they highlighted that while caring can build resilience, no child should have to face these responsibilities without support.

The standing ovation they received reflected the courage and honesty with which they shared their experiences.

Round Table Discussions

Following the morning speakers, attendees participated in facilitated round table discussions.

These conversations focused on:

• The biggest issues facing carers over the next six months.
• Practical actions that could help carers in their caring role.
• Barriers to accessing support.
• Positive examples of support that should be expanded.

Several common themes emerged from these discussions:

Earlier Identification

Many carers reported not being recognised as carers until they had reached crisis point. Participants called for earlier identification within GP surgeries, hospitals and community services.

Access to Information

Attendees highlighted how difficult it can be to find accurate and timely information about available support.

Financial Pressures

Many carers discussed the financial impact of caring, including reduced employment opportunities and increasing household costs.

Mental Health and Wellbeing

Carers spoke about the emotional strain of caring and the importance of counselling, respite and peer support services.

Speaker sessions resumes

Diverse Communities and Caring

A particularly thought-provoking presentation was delivered by Manal Ahmed, who supports carers from ethnically diverse and refugee communities.

She discussed additional challenges experienced by carers from minority communities, including:

• Language barriers.
• Cultural differences.
• Social isolation.
• Displacement trauma.
• Immigration-related issues.
• Financial and emotional dependency.

Manal explained that many carers experience multiple layers of disadvantage and that support services must be culturally aware and accessible to everyone.

She also highlighted positive examples of community-building activities that help carers connect with one another and reduce isolation.

Her presentation reinforced the importance of ensuring that no carer is excluded from support because of their background, language or circumstances.

My Presentation – A Carer’s Journey

I was invited to speak about my own experiences as a young carer and later as an adult carer supporting family members with autism and serious mental illness.

One of the key messages I shared was that many carers do not initially recognise themselves as carers. Like many people, I simply viewed what I was doing as helping my family.

However, over time I found myself:

• Coordinating care.
• Supporting hospital admissions and discharges.
• Managing appointments.
• Advocating with professionals.
• Navigating complex systems.
• Supporting multiple family members simultaneously.

I spoke about how difficult it can be when carers are not listened to or involved in important decisions.

I also highlighted the importance of recognising carers as equal partners in care and ensuring that professionals understand the expertise carers develop through lived experience.

One of the central themes of my presentation was carers’ rights.

I encouraged carers to:

• Identify themselves as carers.
• Seek support from local carers organisations.
• Request carers assessments.
• Learn about their rights.
• Participate in co-production and service improvement.
• Share their experiences to help reduce stigma.

To conclude, I performed my poem “It’s My Right”, which focuses on the rights every carer should expect to receive, including recognition, respect, involvement, information and support.

Afternoon Reflections and Future Priorities

The afternoon session included reflections from senior leaders from Care for the Carers, East Sussex County Council and NHS Sussex.

Discussions focused on:

• Improving identification of carers.
• Supporting carers before crises occur.
• Encouraging carers to access support services.
• Learning from positive experiences of care.
• Strengthening partnerships between carers and professionals.

Representatives acknowledged the crucial role carers play and listened to feedback gathered throughout the day.

Many carers expressed concerns about navigating systems that can often feel complicated and difficult to access. There was broad agreement that services should be simpler, more joined-up and more responsive to carers’ needs.

Key Messages from the Day

Several important messages emerged consistently throughout the event:

Carers Need Recognition

Many carers remain hidden and unidentified. Earlier recognition can lead to earlier support.

Carers Need Practical Support

Information, respite, emotional support and financial advice remain essential.

Carers Must Be Involved

Carers are experts in the lives of the people they support and should be treated as partners in care.

Young Carers Need Protection

Children and young people with caring responsibilities require dedicated support and opportunities to thrive.

Communities Matter

Strong local networks can help reduce isolation and improve wellbeing.

Prevention Is Better Than Crisis Management

Supporting carers early can prevent breakdowns in caring arrangements and reduce pressure on services.

Conclusion

The East Sussex Carers Voices Event was an excellent example of what can happen when carers, professionals and decision-makers come together to listen, learn and work collaboratively.

Throughout the day, carers shared powerful stories of resilience, commitment and compassion. They also spoke honestly about the challenges they face and the changes they want to see. I also recognised Agi who does lots of work raising carer awareness in Sussex, she recently spoke at my national ethnic mental health carers forum. So it was great to see her there.

Dr Neil Churchill’s leadership as host helped create an environment where carers felt able to speak openly and where decision-makers could hear directly from those with lived experience.

As Carers Week 2026 comes to a close, the challenge now is to turn these conversations into meaningful action. Carers should not have to struggle to be recognised, supported or heard.

The event demonstrated that when carers’ voices are placed at the centre of discussions, better solutions can emerge for everyone.

Thank you to Care for the Carers, all speakers, volunteers, professionals and carers who contributed to such a valuable and inspiring day.

Carers Week Celebration 2026: A Day of Recognition, Reflection and Resilience

By Matthew McKenzie – Carer, Author, Poet and Host of the Carers UK Information Stall
10 June 2026, Perceval House, Ealing

As a carer myself, supporting both of my brothers, I understand that caring is often a role we never planned for, yet one we embrace out of love, duty and commitment. It can be rewarding, but it can also be isolating, exhausting and overwhelming. That is why events such as the Carers Week Celebration 2026, organised by Ealing Carers Partnership, Ealing Carers Hub and Ealing Council, are so important.

I think it reminds us that carers matter, that our voices are heard and that we are not alone.

Having the privilege of hosting the Carers UK information stall, while also attending as a carer, poet and author, I witnessed first-hand the incredible sense of community that filled Perceval House throughout the day.

The event brought together carers, professionals, charities, community organisations and council representatives for a celebration that was both informative and inspiring. Alongside the opportunity to gather information and advice, carers enjoyed complimentary refreshments, free manicures from students of Uxbridge College, artwork exhibitions and the chance to connect with others who truly understand the caring journey.


Carer Stalls of Support and Opportunities

One of the highlights of the day was the large exhibition area, where carers could meet a wide range of organisations offering support, guidance and practical services.

The information stalls represented the breadth of support available across Ealing and North West London. Throughout the day carers visited displays from organisations including:

  • Carers UK
  • Ealing Carers Partnership
  • Ealing Carers Hub
  • Mind
  • RISE
  • Ealing Advice Service
  • Harlington Hospice / Harlington Care
  • Independent Mental Health Advocacy Services
  • Volunteer Centre Ealing
  • Eating Disorders Support Services
  • Community wellbeing organisations
  • Health and social care providers
  • Local voluntary sector groups
  • Arts and creativity projects for carers
  • Community engagement and peer support groups

Many stalls offered practical information about carers’ rights, benefits, wellbeing support, mental health services, respite opportunities, advocacy and volunteering. Others showcased creative projects and community activities designed to reduce isolation and improve wellbeing.

It was also great to see Carer Poetry displayed including the Carer Poetry group I run with Ealing Carers.

At the Carers UK stall, I had numerous conversations with carers who were seeking information about financial support, carers’ assessments, employment rights and how to balance caring responsibilities with their own health and wellbeing. What struck me most was how many carers were attending such an event for the first time and discovering services they never knew existed.

The exhibition also featured the moving “A Carer Is…” artwork display, where carers expressed their experiences through art. The exhibition provided a powerful reminder that caring is not simply a task—it is an emotional journey filled with love, sacrifice, resilience and hope.


Listening to Carers: The Ealing Carers Forum and Council Presentations

A major focus of the day was the Carers Forum and Question & Answer Session, where carers had the opportunity to hear directly from council leaders and ask questions about services, support and future plans.

The event was opened by senior representatives who acknowledged the enormous contribution carers make every day.

Among the key speakers were:

  • Paul Driscoll, Cabinet Member for Healthy Equal Lives, Ealing Council
  • Kashmir Takhar, Ealing’s Carers Commissioner
  • Senior representatives from Adult Social Care
  • Sophie (Assistant Director, Adult Social Care)
  • Representatives from Ealing Carers Partnership
  • Representatives from Ealing Carers Hub
  • Jane Wheeler, Chief Executive of Harlington Hospice

Paul Driscoll spoke about his commitment to understanding carers’ experiences and ensuring that Ealing’s Carers Strategy becomes a meaningful reality rather than simply another policy document. He emphasised the importance of recognition, support and partnership working with carers.

The presentation by Kashmir Takhar focused on Ealing’s Carers Strategy, a joint strategy developed in partnership with carers, health services, social care and voluntary sector organisations. The strategy highlights four key priorities:

  1. Identifying carers early in their caring journey.
  2. Helping carers maintain family and community life.
  3. Supporting carers’ physical and mental wellbeing.
  4. Helping carers maximise income and achieve their potential.

The presentation revealed that there are approximately 24,000 carers in Ealing, although many remain hidden and do not identify themselves as carers. It also highlighted the growing challenges carers face around mental health, financial pressures, access to services, respite care and social isolation.

Particularly encouraging was hearing about plans to improve access to information, increase wellbeing activities, strengthen respite opportunities and expand support for young carers and working carers.


The Power of Carers’ Voices

One of the most important aspects of the forum was the open discussion session.

Carers shared their personal experiences, raising concerns about respite services, communication between council departments, transport arrangements and the challenges of navigating complex systems while already carrying significant caring responsibilities.

A particularly powerful contribution came from a carer who described how difficult it had been to arrange respite care due to poor coordination between services. The honesty and emotion behind this contribution resonated with many people in the room because it reflected experiences that carers often face but rarely have opportunities to discuss publicly.

Council representatives acknowledged these concerns and committed to improving communication, responsiveness and coordination across services. Assistant Director Sophie openly recognised that carers deserve better experiences and welcomed continued feedback to help shape future improvements.

Representatives from frontline organisations, including Ealing Advice Service, also highlighted recurring issues encountered by carers and stressed the importance of joined-up working between agencies.

Later in the session, Jane Wheeler from Harlington Hospice explained how the organisation’s carers’ short break service supports carers through home-based respite, community outings and specialist support. Her presentation reinforced the message that carers themselves need care, support and opportunities to recharge.


It was more than just a Carers Event

As the day came to a close, what remained was a sense of connection.

For many carers, simply being in a room full of people who understood their experiences was invaluable. There was laughter, conversation, shared stories and moments of reflection. New friendships were formed, information was exchanged and carers left knowing that support is available.

From my own perspective, hosting the Carers UK stall and speaking with so many dedicated carers reinforced why events like this matter. Caring can often feel invisible. The hours spent supporting loved ones frequently go unnoticed by wider society. Yet carers are the backbone of our communities and health systems.

The Carers Week Celebration reminded us that carers deserve recognition not just during one week each year but every day.

To everyone who organised the event, staffed a stall, delivered a presentation, volunteered their time or simply attended and shared their story, I thank you.

Most importantly, to every unpaid carer reading this: thank you for everything you do.

Filming My Story as a Carer with Specsavers Carers Hub

Today I had the opportunity to be interviewed for the Specsavers Carers Hub, a platform that shares real stories, advice, and support for those who dedicate their lives to caring. It was a chance to reflect not only on my role as a carer but also on the deeper themes of healing, connection, and creativity that shape my journey.

Telling My Story

As someone with lived experience of caring for my mother and brothers, I know first-hand how demanding and emotional the role of an unpaid carer can be. I shared their story through my words and memories.

Speaking on camera about my caring role reminded me why visibility matters. Carers often go unseen, yet carer voices hold the power to inspire change, raise awareness, and remind others that they are not alone.

The Importance of Self-Healing

One of the most important parts of my journey has been recognising the need for self-care and self-healing. Carers often put the needs of others before their own, but to continue supporting loved ones, we must nurture our own wellbeing. Whether through reflection, community, or creative outlets, finding ways to heal is not selfish.

Connecting with Carers

During the interview, I spoke about the importance of connection. Meeting other carers, whether through groups, campaigns from Carers UK, or online spaces, brings a sense of solidarity. I wont say much about the interview, you will need to watch the video when it is released.

The Power of Poetry and Words

For me, poetry has always been a form of healing. Writing and performing allows me to give shape to emotions that are often hard to express. In the beginning of my caring journey, words were painful, but after a while words can be medicine they can validate, soothe, and inspire both writer and listener.

A Special Thanks to Specsavers

I couldn’t end without mentioning the role my Specsavers glasses played in my journey. Whether it’s writing late into the night, reading the works that inspire me, or standing up to perform poetry, my glasses have been an essential tool.

To check out previous carer stories, please viset the Specsavers Carers Hub below.

https://www.youtube.com/@SpecsaversCarersHub

Keep an eye out for the latest set of videos from Specsavers Carers hub